Hydrocephalus
Symptoms, Doctors, Treatments, Advances & More

Learn About Hydrocephalus

What is the definition of Hydrocephalus?

Hydrocephalus is a buildup of fluid inside the skull that leads to the brain pushing against the skull.

Hydrocephalus means "water on the brain."

What are the alternative names for Hydrocephalus?

Water on the brain

What are the causes of Hydrocephalus?

Hydrocephalus is due to a problem with the flow of the fluid that surrounds the brain. This fluid is called the cerebrospinal fluid, or CSF. The fluid surrounds the brain and spinal cord and helps cushion the brain.

CSF normally moves through the brain and around the spinal cord, and then is absorbed into the bloodstream. CSF levels in the brain can rise if:

  • The flow of CSF is blocked.
  • The fluid does not get properly absorbed into the blood.
  • The brain makes too much of the fluid.

Too much CSF puts pressure on the brain. This pushes the brain up against the skull and damages brain tissue.

Hydrocephalus may begin while the baby is growing in the womb. It is common in babies who have a myelomeningocele, a birth defect in which the spinal column does not close properly.

Hydrocephalus may also be due to:

  • Genetic defects
  • Certain infections during pregnancy

In young children, hydrocephalus may be due to:

  • Infections that affect the central nervous system (such as meningitis or encephalitis), especially in infants.
  • Bleeding in the brain during or soon after delivery (especially in premature babies).
  • Injury before, during, or after childbirth, including subarachnoid hemorrhage.
  • Tumors of the central nervous system, including the brain or spinal cord.
  • Injury or trauma.

Hydrocephalus most often occurs in children. Another type, called normal pressure hydrocephalus, may occur in adults and older people.

What are the symptoms of Hydrocephalus?

Symptoms of hydrocephalus depend on:

  • Age
  • The amount of brain damage
  • What is causing the buildup of CSF fluid

In infants, hydrocephalus causes the fontanelle (soft spot) to bulge and the head to be larger than expected. Early symptoms may also include:

  • Eyes that appear to gaze downward
  • Irritability
  • Seizures
  • Separated sutures
  • Sleepiness
  • Vomiting

Symptoms that may occur in older children can include:

  • Brief, shrill, high-pitched cry
  • Changes in personality, memory, or the ability to reason or think
  • Changes in facial appearance and eye spacing
  • Crossed eyes or uncontrolled eye movements
  • Difficulty feeding
  • Excessive sleepiness
  • Headache
  • Irritability, poor temper control
  • Loss of bladder control (urinary incontinence)
  • Loss of coordination and trouble walking
  • Muscle spasticity (spasm)
  • Slow growth (child 0 to 5 years)
  • Slow or restricted movement
  • Vomiting
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What are the current treatments for Hydrocephalus?

The goal of treatment is to reduce or prevent brain damage by improving the flow of CSF.

Surgery may be done to remove a blockage, if possible.

If not, a flexible tube called a shunt may be placed in the brain to reroute the flow of CSF. The shunt sends CSF to another part of the body, such as the belly area, where it can be absorbed.

Other treatments may include:

  • Antibiotics if there are signs of infection. Severe infections affecting the shunt may require the shunt to be removed.
  • A procedure called endoscopic third ventriculostomy (ETV), which relieves pressure without replacing the shunt.
  • Removing or burning away (cauterizing) the parts of the brain that produce CSF.

The child will need regular check-ups to make sure there are no further problems. Tests will be done regularly to check the child's development, and to look for intellectual, neurological, or physical problems.

Visiting nurses, social services, support groups, and local agencies can provide emotional support and help with the care of a child with hydrocephalus who has serious brain damage.

Who are the top Hydrocephalus Local Doctors?
Mark G. Luciano
Elite in Hydrocephalus
Neurosurgery
Elite in Hydrocephalus
Neurosurgery

Johns Hopkins Outpatient Center

601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 
Languages Spoken:
English
Offers Telehealth

Dr. Mark Luciano is the director of the Johns Hopkins Hydrocephalus and Cerebral Fluid Center. A renowned leader in treating hydrocephalus, Dr. Luciano is distinguished both nationally and internationally for his research and educational and clinical work in neuroendoscopy. Dr. Luciano treats adults with hydrocephalus, pseudotumor cerebri, intracranial hypotension, Chiari malformations, and cerebral and spinal cysts. He has significant expertise treating children and adults with cerebrospinal fluid leaks and congenital disorders. Among his accomplishments in neuroscience research and biomedical engineering are his investigation of the cerebrovascular response to hydrocephalus and the invention of a unique device for control of intracranial pressure (ICP) pulsatility to increase blood flow. His National Institutes of Health-funded studies have explored prolonged compression and hypoxia in the brain as a result of hydrocephalus, as well as the interaction between cerebrospinal fluid and vascular systems. Dr. Luciano is rated as an Elite provider by MediFind in the treatment of Hydrocephalus. His top areas of expertise are Hydrocephalus, Normal Pressure Hydrocephalus, Increased Intracranial Pressure, Posterior Fossa Decompression, and Gastrostomy.

Abhay R. Moghekar
Elite in Hydrocephalus
Elite in Hydrocephalus

Johns Hopkins Bayview Medical Center

4940 Eastern Avenue, Suite 1201, Suite 1201, 
Baltimore, MD 
Languages Spoken:
English, Hindi, Marathi

Dr. Abhay Moghekar focuses on disorders of cerebrospinal fluid physiology like normal pressure hydrocephalus, obstructive hydrocephalus, congenital hydrocephalus, pseudotumor cerebri, CSF otorhhea, CSF rhinorrhea, intracranial hypotension due to spinal CSF leaks and peri-operative management of patients undergoing repair of CSF otorrhea and rhinorrhea. His research interests include identifying biomarkers of neurodegenerative disorders including Alzheimer's disease and Normal Pressure Hydrocephalus. Dr. Moghekar is rated as an Elite provider by MediFind in the treatment of Hydrocephalus. His top areas of expertise are Increased Intracranial Pressure, Hydrocephalus, Pseudotumor Cerebri Syndrome, Stent Placement, and Gastrostomy.

 
 
 
 
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David C. Straus
Distinguished in Hydrocephalus
Neurosurgery
Distinguished in Hydrocephalus
Neurosurgery

Aurora Neuroscience Innovation

2801 W Kinnickinnic River Pkwy, Ste 680, 
Milwaukee, WI 
Experience:
17+ years
Languages Spoken:
English
Offers Telehealth

David Straus is a Neurosurgery provider in Milwaukee, Wisconsin. Dr. Straus has been practicing medicine for over 17 years and is rated as a Distinguished provider by MediFind in the treatment of Hydrocephalus. His top areas of expertise are Meningioma, Pituitary Tumor, Subdural Hematoma, Gastrostomy, and Awake Craniotomy.

What is the outlook (prognosis) for Hydrocephalus?

Without treatment, up to 6 in 10 people with hydrocephalus will die. Those who survive will have different amounts of intellectual, physical, and neurological disabilities.

The outlook depends on the cause. Hydrocephalus that is not due to an infection has the best outlook. People with hydrocephalus caused by tumors will often do very poorly.

Most children with hydrocephalus who survive for 1 year will have a fairly normal lifespan.

What are the possible complications of Hydrocephalus?

The shunt may become blocked. Symptoms of such a blockage include headache and vomiting. Surgeons may be able to help the shunt open without having to replace it.

There may be other problems with the shunt, such as kinking, tube separation, or infection in the area of the shunt.

Other complications may include:

  • Complications of surgery
  • Infections such as meningitis or encephalitis
  • Intellectual impairment
  • Nerve damage (decrease in movement, sensation, function)
  • Physical disabilities
When should I contact a medical professional for Hydrocephalus?

Seek medical care right away if your child has any symptoms of this disorder. Call 911 or the local emergency number or go to the emergency room if emergency symptoms occur, such as:

  • Breathing problems
  • Extreme drowsiness or sleepiness
  • Feeding difficulties
  • Fever
  • High-pitched cry
  • No pulse (heartbeat)
  • Seizures
  • Severe headache
  • Stiff neck
  • Vomiting

You should also contact your child's provider if:

  • The child has been diagnosed with hydrocephalus, and the condition gets worse.
  • You are unable to care for the child at home.
How do I prevent Hydrocephalus?

Protect the head of an infant or child from injury. Prompt treatment of infections and other disorders associated with hydrocephalus may reduce the risk of developing the disorder.

What are the latest Hydrocephalus Clinical Trials?
Are Long Term Prophylactic Antibiotics Useful With Antibiotic Impregnated External Ventricular Drains (EVDs)?

Summary: The principal objective of this study is to compare the incidence of ventriculostomy related infections (VRIs) in patients who receive twenty-four hours of antibiotics, beginning no more than sixty minutes prior to EVD placement, to the incidence of VRIs in patients who also receive a pre-procedural dose of antibiotics with continued dosing of antibiotics for the duration of the external ventricul...

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CSF Lactate and Ventriculostomy Associated Infections in Patients With Acute Brain Injury - a Prospective, Observational Cohort Study.

Summary: This observational study involving patients with acute brain injury undergoing treatment with an external ventricular drain consists of three subprojects, aiming to: 1. investigate various biomarkers, with a primary focus on the development of cerebrospinal fluid lactate in relation to ventriculostomy-associated infection; 2. compare proximal and distal sample results obtained from an external ven...

Who are the sources who wrote this article ?

Published Date: October 01, 2025
Published By: Charles I. Schwartz, MD, FAAP, Clinical Assistant Professor of Pediatrics, Regional Medical Director of Penn Medicine Primary and Specialty Care, Perelman School of Medicine at the University of Pennsylvania, General Pediatrician at PennCare for Kids, Phoenixville, PA. Also reviewed by David C. Dugdale, MD, Medical Director, Brenda Conaway, Editorial Director, and the A.D.A.M. Editorial team.

What are the references for this article ?

Gunny RS, Saunders DE, Argyropoulou MI. Paediatric neuroradiology. In: Adam A, Dixon AK, Gillard JH, Schaefer-Prokop CM, eds. Grainger & Allison's Diagnostic Radiology. 7th ed. Philadelphia, PA: Elsevier; 2021:chap 76.

Ho WS, Kestle JRW. Hydrocephalus in children: etiology and overall management. In: Winn HR, ed. Youmans and Winn Neurological Surgery. 8th ed. Philadelphia, PA: Elsevier; 2023:chap 223.

Lu VM, Shimony N, Jallo GI, Niazi TN. Infant hydrocephalus. Pediatr Rev. 2024;45(8):450-460. PMID: 39085190 pubmed.ncbi.nlm.nih.gov/39085190/.

Rosenberg GA. Brain edema and disorders of cerebrospinal fluid circulation. In: Jankovic J, Mazziotta JC, Pomeroy SL, Newman NJ, eds. Bradley and Daroff's Neurology in Clinical Practice. 8th ed. Philadelphia, PA: Elsevier; 2022:chap 88.

Trowbridge SK, Yang E, Yuskaitis CJ. Congenital anomalies of the central nervous system. In: Kliegman RM, St. Geme JW, Blum NJ, et al, eds. Nelson Textbook of Pediatrics. 22nd ed. Philadelphia, PA: Elsevier; 2025:chap 631.