Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 10/30/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 137 doctor with experience in Jacobsen Syndrome near Michigan, US. Of these, 127 are Experienced and 10 are Advanced.

    Location
    LocationClose
    137 providers found
      Advanced in Jacobsen Syndrome
      Pediatrics | Medical Genetics
      Advanced in Jacobsen Syndrome
      Pediatrics | Medical Genetics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Mark Hannibal is a Pediatrics specialist and a Medical Genetics provider in Ann Arbor, Michigan. Dr. Hannibal is rated as an Advanced provider by MediFind in the treatment of Jacobsen Syndrome. His top areas of expertise are Aase Syndrome, Filippi Syndrome, CHARGE Syndrome, and Smith-Kingsmore Syndrome.

      Advanced in Jacobsen Syndrome
      Medical Genetics | Pediatrics
      Advanced in Jacobsen Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Amanda Pritchard is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Pritchard is rated as an Advanced provider by MediFind in the treatment of Jacobsen Syndrome. Her top areas of expertise are Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Aase Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Jacobsen Syndrome
      Ophthalmology
      Advanced in Jacobsen Syndrome
      Ophthalmology

      Beaumont Medical Group- Specialty Services

      3535 W 13 Mile Rd, 555 Beaumont Eye Institute, 
      Royal Oak, MI 
      Languages Spoken:
      English

      Leemor Rotberg is an Ophthalmologist in Royal Oak, Michigan. Dr. Rotberg is rated as an Advanced provider by MediFind in the treatment of Jacobsen Syndrome. Her top areas of expertise are Strabismus, Brown Syndrome, Amblyopia, and Esotropia.

      Learn about our expert tiers
      Advanced in Jacobsen Syndrome
      Advanced in Jacobsen Syndrome

      Regents Of The University Of Michigan

      7500 Challis Rd, 
      Brighton, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Hornyak is a Physiatrist in Brighton, Michigan. Dr. Hornyak is rated as an Advanced provider by MediFind in the treatment of Jacobsen Syndrome. His top areas of expertise are Charcot-Marie-Tooth Disease, Hereditary Sensory Neuropathy Type 1 (HSN1), Cerebral Palsy, and Spasticity. Dr. Hornyak is currently accepting new patients.

      Advanced in Jacobsen Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in Jacobsen Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Adam Dorfman is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Dorfman is rated as an Advanced provider by MediFind in the treatment of Jacobsen Syndrome. His top areas of expertise are Tetralogy of Fallot, Double Discordia, Transposition of the Great Arteries, and Hypoplastic Left Heart Syndrome (HLHS).

      Advanced in Jacobsen Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in Jacobsen Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Thor Thorsson is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Thorsson is rated as an Advanced provider by MediFind in the treatment of Jacobsen Syndrome. His top areas of expertise are Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Isthmian Coarctation.

      Advanced in Jacobsen Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology
      Advanced in Jacobsen Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Experience:
      9+ years
      Languages Spoken:
      English, Farsi
      Accepting New Patients

      Sara Sadat-Hossieny is a Pediatric Cardiologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Sadat-Hossieny has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of Jacobsen Syndrome. Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Transposition of the Great Arteries, Tetralogy of Fallot, and Heart Transplant. Dr. Sadat-Hossieny is currently accepting new patients.

      Advanced in Jacobsen Syndrome
      Medical Genetics | Pediatrics
      Advanced in Jacobsen Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Christina Sloan is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Sloan is rated as an Advanced provider by MediFind in the treatment of Jacobsen Syndrome. Her top areas of expertise are Chromosome 8p Deletion, Chromosome 6q Duplication, Delayed Growth, and Fragile XE Syndrome.

      Advanced in Jacobsen Syndrome
      Medical Genetics
      Advanced in Jacobsen Syndrome
      Medical Genetics

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Tomoyasu Higashimoto is a Medical Genetics provider in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Advanced provider by MediFind in the treatment of Jacobsen Syndrome. His top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia.

      Advanced in Jacobsen Syndrome
      Medical Genetics | Pediatrics
      Advanced in Jacobsen Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Kristen Lee is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Jacobsen Syndrome. Her top areas of expertise are Biotinidase Deficiency, Delayed Growth, Beta-Ketothiolase Deficiency, and Triple X Syndrome.

      Experienced in Jacobsen Syndrome
      Pediatric Otolaryngology | Pediatrics | Otolaryngology
      Experienced in Jacobsen Syndrome
      Pediatric Otolaryngology | Pediatrics | Otolaryngology

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Glenn Green is a Pediatric Otolaryngologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Green is rated as an Experienced provider by MediFind in the treatment of Jacobsen Syndrome. His top areas of expertise are Tracheobronchomalacia, Acquired Tracheomalacia, CHARGE Syndrome, Adenoidectomy, and Myringotomy. Dr. Green is currently accepting new patients.

      Experienced in Jacobsen Syndrome
      Medical Genetics | Pediatrics
      Experienced in Jacobsen Syndrome
      Medical Genetics | Pediatrics

      Spectrum Health Hospitals

      25 Michigan St Ne, Corewell Health Grand Rapi, 
      Grand Rapids, MI 
      Experience:
      9+ years
      Languages Spoken:
      English, Mandarin, Spanish
      Accepting New Patients
      Offers Telehealth

      Linda Rossetti is a Medical Genetics specialist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Rossetti has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Jacobsen Syndrome. Her top areas of expertise are Miller-Dieker Syndrome, Smith-Magenis Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion. Dr. Rossetti is currently accepting new patients.

      Experienced in Jacobsen Syndrome
      Pediatric Cardiology | Pediatrics
      Experienced in Jacobsen Syndrome
      Pediatric Cardiology | Pediatrics

      Regents Of The University Of Michigan

      7500 Challis Rd, 
      Brighton, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Katherine Deweert is a Pediatric Cardiologist and a Pediatrics provider in Brighton, Michigan. Dr. Deweert is rated as an Experienced provider by MediFind in the treatment of Jacobsen Syndrome. Her top areas of expertise are Double Discordia, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Transposition of the Great Arteries. Dr. Deweert is currently accepting new patients.

      Experienced in Jacobsen Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics
      Experienced in Jacobsen Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Carey Lumeng is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Ann Arbor, Michigan. Dr. Lumeng is rated as an Experienced provider by MediFind in the treatment of Jacobsen Syndrome. His top areas of expertise are Secondary Immunodeficiency (SID), Cystic Fibrosis, Newborn Jaundice, Trisomy 13, and Adenoidectomy. Dr. Lumeng is currently accepting new patients.

      Experienced in Jacobsen Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Jacobsen Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Sonal Owens is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Owens is rated as an Experienced provider by MediFind in the treatment of Jacobsen Syndrome. Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Congenital Heart Disease (CHD), and Coarctation of the Aorta. Dr. Owens is currently accepting new patients.

      Experienced in Jacobsen Syndrome
      Pediatric Neurology | Neurology | Pediatrics
      Experienced in Jacobsen Syndrome
      Pediatric Neurology | Neurology | Pediatrics

      Beaumont Medical Group- Specialty Services

      3601 W 13 Mile Rd, 
      Royal Oak, MI 
      Languages Spoken:
      English, Arabic, French
      Accepting New Patients

      Rawad Obeid is a Pediatric Neurologist and a Neurologist in Royal Oak, Michigan. Dr. Obeid is rated as an Experienced provider by MediFind in the treatment of Jacobsen Syndrome. His top areas of expertise are Intraventricular Hemorrhage of the Newborn, GAPO Syndrome, Delayed Growth, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Obeid is currently accepting new patients.

      Experienced in Jacobsen Syndrome
      Developmental and Behavioral Pediatrics | Pediatrics
      Experienced in Jacobsen Syndrome
      Developmental and Behavioral Pediatrics | Pediatrics

      Spectrum Health Primary Care Partners

      4444 Kalamazoo Ave Se, 200 Corewell Health Medica, 
      Kentwood, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Meghan Behrmann is a Developmental and Behavioral Pediatrics specialist and a Pediatrics provider in Kentwood, Michigan. Dr. Behrmann is rated as an Experienced provider by MediFind in the treatment of Jacobsen Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Delayed Growth, Cardiofaciocutaneous Syndrome, and Distal 18q Deletion Syndrome. Dr. Behrmann is currently accepting new patients.

      Experienced in Jacobsen Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Jacobsen Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      7500 Challis Rd, 
      Brighton, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Jimmy Lu is a Pediatric Cardiologist and a Cardiologist in Brighton, Michigan. Dr. Lu is rated as an Experienced provider by MediFind in the treatment of Jacobsen Syndrome. His top areas of expertise are Tetralogy of Fallot, Transposition of the Great Arteries, Mitral Atresia, and Hypoplastic Left Heart Syndrome (HLHS). Dr. Lu is currently accepting new patients.

      Experienced in Jacobsen Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Jacobsen Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      University Pediatricians

      3901 Beaubien St, Suite H, 
      Detroit, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Aimee Luat is a Pediatric Neurologist and a Pediatrics provider in Detroit, Michigan. Dr. Luat is rated as an Experienced provider by MediFind in the treatment of Jacobsen Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Epilepsy, and Seizures. Dr. Luat is currently accepting new patients.

      Experienced in Jacobsen Syndrome
      Pediatric Otolaryngology | Otolaryngology
      Experienced in Jacobsen Syndrome
      Pediatric Otolaryngology | Otolaryngology
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Terrence Pleasant is a Pediatric Otolaryngologist and an Otolaryngologist in Ann Arbor, Michigan. Dr. Pleasant is rated as an Experienced provider by MediFind in the treatment of Jacobsen Syndrome. His top areas of expertise are Laryngomalacia, Enlarged Adenoids, Choanal Atresia, Branchial Cleft Cyst, and Adenoidectomy. Dr. Pleasant is currently accepting new patients.

      Showing 1-20 of 137

      Last Updated: 10/30/2025

      What is the definition of Jacobsen Syndrome?

      Jacobsen syndrome is a condition caused by a loss (deletion) of genetic material from chromosome 11. Because this deletion most commonly occurs at the end (terminus) of the long (q) arm of chromosome 11, Jacobsen syndrome is also known as 11q terminal deletion disorder.

      When should I see a Jacobsen Syndrome doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Jacobsen Syndrome doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Jacobsen Syndrome doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Jacobsen Syndrome doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Jacobsen Syndrome doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Jacobsen Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Jacobsen Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Jacobsen Syndrome doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Jacobsen Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Jacobsen Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Jacobsen Syndrome doctors in Michigan, US?

      Look for the filter feature on the left side of the Jacobsen Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Jacobsen Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Jacobsen Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy

      More Jacobsen Syndrome Doctors by city