Learn About Jones Syndrome

What is the definition of Jones Syndrome?
Jones syndrome is a very rare condition characterized by gingival fibromatosis (enlargement and overgrowth of the gums) and progressive, sensorineural hearing loss. Excessive growth of the gums may cause displacement of teeth, over-retention of primary teeth, and increased spacing. Jones syndrome is inherited in an autosomal dominant manner, but the underlying genetic cause is not yet known. Only a few families with Jones syndrome have been reported.
What are the alternative names for Jones Syndrome?
  • Jones syndrome
  • Familial gingival fibromatosis associated with progressive deafness
  • GFD
  • Gingival fibromatosis with progressive deafness
  • Gingival fibromatosis with sensorineural hearing loss
Who are the top Jones Syndrome Local Doctors?
Douglas D. Backous
Distinguished in Jones Syndrome
Otolaryngology | Pediatric Otolaryngology
Distinguished in Jones Syndrome
Otolaryngology | Pediatric Otolaryngology

Proliance Ear Nose Throat & Allergy Associates

104 27th Avenue SE, 
Puyallup, WA 
Languages Spoken:
English
Accepting New Patients
Offers Telehealth

Douglas Backous, MD, is a board-certified neurotologist specializing in treating conditions of the ear and skull base. For more than 22 years, Dr. Backous has provided leading edge treatments for patients with hearing loss, deafness, chronic ear infections, cholesteatoma acoustic neuromas and facial nerve disorders. His professional passion is ensuring access to care for patients who choose to hear with cochlear implants, brainstem implants, Baha and other hearing devices. He treats adults and children. His medical research interests focus on implantable hearing device program efficiency for improved patient access and program viability. Dr. Backous is a member of the Proliance Surgeons Board of Directors. He is also the program director for the Seattle Advanced Otology Fellowship at Puget Sound ENT. Both Doug (’84) and his wife, Julie (’86), are alumni of Seattle Pacific University, where he previously served as Board Chair. They have three adult children. Dr. Backous is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Cholesteatoma, Acoustic Neuroma, Schwannoma, and Infant Hearing Loss.

Trac M. Duong
Distinguished in Jones Syndrome
Otolaryngology | Pediatric Otolaryngology
Distinguished in Jones Syndrome
Otolaryngology | Pediatric Otolaryngology

Proliance Surgeons Bellevue Ear, Nose & Throat And Sound Hearing

510 8th Avenue NE, Suite 310, 
Issaquah, WA 
Languages Spoken:
English, Vietnamese
Accepting New Patients
Offers Telehealth

Trac Duong, MD, practices all aspects of adult and pediatric otolaryngology. He is subspecialty-trained in otology and neurotology and specializes in treating patients with complex diseases of the ear and skull base.  He performs microsurgery, including endoscopic ear surgery, to treat hearing loss, tympanic membrane perforation, otosclerosis, chronic ear infections, cholesteatoma, vestibular schwannoma and tumors of the ear and skull base. He has over 10 years of experience performing cochlear implant surgery and working with implantable hearing technology. He also treats patients with peripheral vestibular disorders such as Meniere's disease.He believes that excellent and compassionate care starts with listening and taking the time to educate his patients so they can be more effective partners in their own care. He considers it a privilege to care for his patients. Dr. Duong is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Infant Hearing Loss, Cholesteatoma, DFNB1, and Jones Syndrome.

 
 
 
 
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Howard J. Bresalier
Distinguished in Jones Syndrome
Distinguished in Jones Syndrome

Advanced ENT & Allergy

620 N Broad St, 
Woodbury, NJ 
Languages Spoken:
English

Howard Bresalier is an Otolaryngologist in Woodbury, New Jersey. Dr. Bresalier is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Jones Syndrome, DFNB1, Benign Paroxysmal Positional Vertigo, and Infant Hearing Loss.

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center