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    Last Updated: 10/30/2025

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    MediFind found 23 doctor with experience in Kabuki Syndrome near Michigan, US. Of these, 18 are Experienced and 5 are Advanced.

    Location
    LocationClose
    23 providers found
      Jessica R. Priestley
      Advanced in Kabuki Syndrome
      Pediatrics | Medical Genetics
      Advanced in Kabuki Syndrome
      Pediatrics | Medical Genetics

      Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 2100, 
      Grand Rapids, MI 
      Experience:
      8+ years
      Languages Spoken:
      English

      Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Priestley has been practicing medicine for over 8 years and is rated as an Advanced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are Fabry Disease, Ornithine Transcarbamylase Deficiency, Biotinidase Deficiency, and Multiple Sulfatase Deficiency.

      Robert C. Ward
      Advanced in Kabuki Syndrome
      Advanced in Kabuki Syndrome

      Corewell Health Lakeland Hospitals Neurology Royalton

      3950 Hollywood Road, Suite 230, 
      Saint Joseph, MI 
      Experience:
      40+ years
      Languages Spoken:
      English
      Accepting New Patients

      Robert Ward is a Neurologist in Saint Joseph, Michigan. Dr. Ward has been practicing medicine for over 40 years and is rated as an Advanced provider by MediFind in the treatment of Kabuki Syndrome. His top areas of expertise are Autosomal Dominant Partial Epilepsy with Auditory Features, Axillary Nerve Dysfunction, Seizures, and Memory Loss. Dr. Ward is currently accepting new patients.

      Advanced in Kabuki Syndrome
      Pediatrics | Medical Genetics
      Advanced in Kabuki Syndrome
      Pediatrics | Medical Genetics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Mark Hannibal is a Pediatrics specialist and a Medical Genetics provider in Ann Arbor, Michigan. Dr. Hannibal is rated as an Advanced provider by MediFind in the treatment of Kabuki Syndrome. His top areas of expertise are Aase Syndrome, Filippi Syndrome, CHARGE Syndrome, and Smith-Kingsmore Syndrome.

      Learn about our expert tiers
      Advanced in Kabuki Syndrome
      Medical Genetics | Pediatrics
      Advanced in Kabuki Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Kristen Lee is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are Biotinidase Deficiency, Delayed Growth, Beta-Ketothiolase Deficiency, and Triple X Syndrome.

      Advanced in Kabuki Syndrome
      Medical Genetics | Pediatrics
      Advanced in Kabuki Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Amanda Pritchard is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Pritchard is rated as an Advanced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Aase Syndrome.

      Stephanie L. Campbell
      Experienced in Kabuki Syndrome
      Experienced in Kabuki Syndrome

      Corewell Health William Beaumont University Hospital Pediatric Genetics

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Campbell is a Pediatrics provider in Royal Oak, Michigan. Dr. Campbell has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are Increased Head Circumference, Delayed Growth, Congenital Athymia, and Acromesomelic Dysplasia. Dr. Campbell is currently accepting new patients.

      Linda Z. Rossetti
      Experienced in Kabuki Syndrome
      Pediatrics | Medical Genetics
      Experienced in Kabuki Syndrome
      Pediatrics | Medical Genetics

      Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 2100, 
      Grand Rapids, MI 
      Experience:
      10+ years
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Rossetti has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are Miller-Dieker Syndrome, Smith-Magenis Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion.

      Steven T. Deroos
      Experienced in Kabuki Syndrome
      Pediatric Neurology
      Experienced in Kabuki Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      32+ years
      Languages Spoken:
      English
      Accepting New Patients

      Steven Deroos is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Deroos has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is currently accepting new patients.

      Jena M. Krueger
      Experienced in Kabuki Syndrome
      Pediatric Neurology
      Experienced in Kabuki Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      16+ years
      Languages Spoken:
      English

      Jena Krueger is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Krueger has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 1, and Spinal Muscular Atrophy Type 2.

      Experienced in Kabuki Syndrome
      Family Medicine
      Experienced in Kabuki Syndrome
      Family Medicine

      Mclaren Central Michigan

      1221 S Dr, 
      Mount Pleasant, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Allum is a primary care provider, practicing in Family Medicine in Mount Pleasant, Michigan. Dr. Allum is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. His top areas of expertise are Maturity Onset Diabetes of the Young, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Familial Hypertension. Dr. Allum is currently accepting new patients.

      Experienced in Kabuki Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Kabuki Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Timothy Hoban is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Hoban is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. His top areas of expertise are Down Syndrome, Obstructive Sleep Apnea, Periodic Limb Movement Disorder, Sleepwalking (Somnambulism), and Adenoidectomy. Dr. Hoban is currently accepting new patients.

      Experienced in Kabuki Syndrome
      Medical Genetics
      Experienced in Kabuki Syndrome
      Medical Genetics
      25 Michigan St Ne Ste 2000, 
      Grand Rapids, MI 
      Languages Spoken:
      English

      Timothy Moss is a Medical Genetics provider in Grand Rapids, Michigan. Dr. Moss is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. His top areas of expertise are Proteus-Like Syndrome, Proteus Syndrome, Weaver Syndrome, and Simpson-Golabi-Behmel Syndrome.

      Experienced in Kabuki Syndrome
      Medical Genetics | Pediatrics
      Experienced in Kabuki Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Elizabeth Ames is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ames is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are Delayed Growth, Cardiomyopathic Lentiginosis, Noonan Syndrome, and Cardiofaciocutaneous Syndrome. Dr. Ames is currently accepting new patients.

      Experienced in Kabuki Syndrome
      Pediatric Neurology | Neurology
      Experienced in Kabuki Syndrome
      Pediatric Neurology | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Nicole Pariseau is a Pediatric Neurologist and a Neurologist in Ann Arbor, Michigan. Dr. Pariseau is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Conversion Disorder, and Memory Loss. Dr. Pariseau is currently accepting new patients.

      Experienced in Kabuki Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Kabuki Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients

      Taryn-leigh Surtees is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Surtees has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are Cavernous Sinus Thrombosis, Generalized Tonic-Clonic Seizure, Seizures, and Memory Loss. Dr. Surtees is currently accepting new patients.

      Experienced in Kabuki Syndrome
      Medical Genetics | Pediatrics
      Experienced in Kabuki Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Christina Sloan is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Sloan is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are Chromosome 8p Deletion, Chromosome 6q Duplication, Delayed Growth, and Fragile XE Syndrome.

      Experienced in Kabuki Syndrome
      Family Medicine
      Experienced in Kabuki Syndrome
      Family Medicine

      Exclusive Physicians, PLLC

      18591 West 10 Mile Road, 
      Southfield, MI 
      Experience:
      28+ years
      Languages Spoken:
      English
      Accepting New Patients

      Susan Tam is a primary care provider, practicing in Family Medicine in Southfield, Michigan. Dr. Tam has been practicing medicine for over 28 years and is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are High Cholesterol, Obesity, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Tam is currently accepting new patients.

      Experienced in Kabuki Syndrome
      Experienced in Kabuki Syndrome

      Michigan Institute For Neurological Disorders (MIND)

      28595 Orchard Lake Road, Suite 200, 
      Farmington Hills, MI 
      Experience:
      30+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Martin Belkin is a Neurologist in Farmington Hills, Michigan. Dr. Belkin has been practicing medicine for over 30 years and is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Memory Loss, and Migraine. Dr. Belkin is currently accepting new patients.

      Experienced in Kabuki Syndrome
      Medical Genetics | Pediatrics
      Experienced in Kabuki Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English, Urdu
      Accepting New Patients

      Ayesha Ahmad is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ahmad is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. Her top areas of expertise are Pompe Disease, Propionic Acidemia, Von Gierke Disease, and Classic Galactosemia. Dr. Ahmad is currently accepting new patients.

      Experienced in Kabuki Syndrome
      Medical Genetics
      Experienced in Kabuki Syndrome
      Medical Genetics

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Tomoyasu Higashimoto is a Medical Genetics provider in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Experienced provider by MediFind in the treatment of Kabuki Syndrome. His top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia.

      Showing 1-20 of 23

      Last Updated: 10/30/2025

      What is the definition of Kabuki Syndrome?

      Kabuki syndrome is a disorder that can affect many parts of the body. It is characterized by distinctive facial features including arched eyebrows; long eyelashes; long openings of the eyelids (long palpebral fissures) with the lower lids turned out (everted) at the outside edges; a flat, broadened tip of the nose; and large protruding earlobes. The name of this disorder comes from the resemblance of its characteristic facial appearance to stage makeup used in traditional Japanese Kabuki theater.

      When should I see a Kabuki Syndrome doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Kabuki Syndrome doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Kabuki Syndrome doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Kabuki Syndrome doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Kabuki Syndrome doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Kabuki Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Kabuki Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Kabuki Syndrome doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Kabuki Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Kabuki Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Kabuki Syndrome doctors in Michigan, US?

      Look for the filter feature on the left side of the Kabuki Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Kabuki Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Kabuki Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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