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    Last Updated: 10/30/2025

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    MediFind found 51 doctor with experience in KBG Syndrome near Germany. Of these, 33 are Experienced, 16 are Advanced and 2 are Distinguished.

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    51 providers found
      Distinguished in KBG Syndrome

      Ilaria Parenti
      Distinguished in KBG Syndrome

      Ilaria Parenti
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Ilaria Parenti practices in Luebeck, Germany. Ms. Parenti is rated as a Distinguished expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Cornelia De Lange Syndrome, KBG Syndrome, Mosaicism, and Coffin-Siris Syndrome.

      Distinguished in KBG Syndrome

      Andreas Busche
      Distinguished in KBG Syndrome

      Andreas Busche
      Muenster, NW, DE 

      Andreas Busche practices in Muenster, Germany. Mr. Busche is rated as a Distinguished expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are KBG Syndrome, Split Hand Foot Malformation, Achalasia Microcephaly Syndrome, and Microcephaly.

      Advanced in KBG Syndrome

      Alma Kuechler
      Advanced in KBG Syndrome

      Alma Kuechler
      Essen, NW, DE 

      Alma Kuechler practices in Essen, Germany. Kuechler is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Their top areas of expertise are RASopathies, Early Infantile Epileptic Encephalopathy, Noonan Syndrome, and KBG Syndrome.

      Learn about our expert tiers
      Advanced in KBG Syndrome

      Tzung-chien Hsieh
      Advanced in KBG Syndrome

      Tzung-chien Hsieh
      Bonn, NW, DE 

      Tzung-chien Hsieh practices in Bonn, Germany. Hsieh is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Their top areas of expertise are KBG Syndrome, Micrognathia, Miller Syndrome, and Coffin-Siris Syndrome.

      Advanced in KBG Syndrome

      Nuria C. Bramswig
      Advanced in KBG Syndrome

      Nuria C. Bramswig
      Muenster, NW, DE 

      Nuria Bramswig practices in Muenster, Germany. Ms. Bramswig is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Coffin-Siris Syndrome, Miller Syndrome, Micrognathia, and Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius.

      Advanced in KBG Syndrome

      Frank J. Kaiser
      Advanced in KBG Syndrome

      Frank J. Kaiser
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Frank Kaiser practices in Luebeck, Germany. Mr. Kaiser is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Cornelia De Lange Syndrome, Focal Dystonia, KBG Syndrome, and Drug Induced Dyskinesia.

      Advanced in KBG Syndrome

      Peter M. Krawitz
      Advanced in KBG Syndrome

      Peter M. Krawitz
      Bonn, NW, DE 

      Peter Krawitz practices in Bonn, Germany. Mr. Krawitz is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Glucose Phosphate Isomerase Deficiency, Fryns Syndrome, Crouzon Syndrome, and KBG Syndrome.

      Advanced in KBG Syndrome

      Denise M. Horn
      Advanced in KBG Syndrome

      Denise M. Horn
      Berlin, BE, DE 

      Denise Horn practices in Berlin, Germany. Ms. Horn is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Cohen Syndrome, Brachydactyly Type B, Acromicric Dysplasia, and Learman Syndrome.

      Advanced in KBG Syndrome

      Franziska Schnabel
      Advanced in KBG Syndrome

      Franziska Schnabel
      Leipzig, SN, DE 

      Franziska Schnabel practices in Leipzig, Germany. Ms. Schnabel is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Rommen Mueller Sybert Syndrome, KBG Syndrome, Cutis Marmorata Telangiectatica Congenita, and Trisomy 12 Mosaicism.

      Advanced in KBG Syndrome

      Konrad D. Platzer
      Advanced in KBG Syndrome

      Konrad D. Platzer
      Leipzig, SN, DE 

      Konrad Platzer practices in Leipzig, Germany. Mr. Platzer is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Floating-Harbor Syndrome, Hypotonia, Epilepsy, and Cortical Dysplasia.

      Advanced in KBG Syndrome

      Lara Heuft
      Advanced in KBG Syndrome

      Lara Heuft
      Leipzig, SN, DE 

      Lara Heuft practices in Leipzig, Germany. Ms. Heuft is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are KBG Syndrome and Malnutrition.

      Advanced in KBG Syndrome

      Heiko M. Reutter
      Advanced in KBG Syndrome

      Heiko M. Reutter
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Heiko Reutter practices in Bonn, Germany. Mr. Reutter is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Exstrophy of the Bladder, Tracheoesophageal Fistula, Epispadias, Reconstructive Urology Surgery, and Bladder Reconstruction.

      Advanced in KBG Syndrome

      Birgit Zirn
      Advanced in KBG Syndrome

      Birgit Zirn
      Stuttgart, BW, DE 

      Birgit Zirn practices in Stuttgart, Germany. Ms. Zirn is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are FOXG1 Syndrome, Ring Chromosome 4, KBG Syndrome, and Rothmund-Thomson Syndrome.

      Advanced in KBG Syndrome

      Peter Wieacker
      Advanced in KBG Syndrome

      Peter Wieacker
      Muenster, NW, DE 

      Peter Wieacker practices in Muenster, Germany. Mr. Wieacker is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Mayer-Rokitansky-Kuster-Hauser Syndrome, Mullerian Aplasia, Kuster Syndrome, Intersex, and Reconstructive Urology Surgery.

      Advanced in KBG Syndrome

      Irina Huning
      Advanced in KBG Syndrome

      Irina Huning
      1Department Of Dermatology, Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Irina Huning practices in Luebeck, Germany. Ms. Huning is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Microcephaly, Achalasia Microcephaly Syndrome, Cortical Dysplasia, and KBG Syndrome.

      Advanced in KBG Syndrome

      Britta Hanker
      Advanced in KBG Syndrome

      Britta Hanker
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Britta Hanker practices in Luebeck, Germany. Ms. Hanker is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Flat Feet, Micrognathia, KBG Syndrome, and West Syndrome.

      Advanced in KBG Syndrome

      Dagmar Wieczorek
      Advanced in KBG Syndrome

      Dagmar Wieczorek
      Duesseldorf, NW, DE 

      Dagmar Wieczorek practices in Duesseldorf, Germany. Ms. Wieczorek is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Micrognathia, Coffin-Siris Syndrome, Microcephaly, Achalasia Microcephaly Syndrome, and Gastrostomy.

      Advanced in KBG Syndrome

      Barbara Mikat
      Advanced in KBG Syndrome

      Barbara Mikat
      Essen, NW, DE 

      Barbara Mikat practices in Essen, Germany. Ms. Mikat is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, KBG Syndrome, Micrognathia, and Spinocerebellar Ataxia Type 27.

      Experienced in KBG Syndrome

      Gabriele Kaesbach-Gillessen
      Experienced in KBG Syndrome

      Gabriele Kaesbach-Gillessen
      1Department Of Dermatology, Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Gabriele Kaesbach-Gillessen practices in Luebeck, Germany. Ms. Kaesbach-Gillessen is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Cornelia De Lange Syndrome, Distal Arthrogryposis Type 6, Distal Arthrogryposis, and Coffin-Siris Syndrome.

      Experienced in KBG Syndrome

      Thomas Eggermann
      Experienced in KBG Syndrome

      Thomas Eggermann
      Aachen, NW, DE 

      Thomas Eggermann practices in Aachen, Germany. Mr. Eggermann is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Russell-Silver Dwarfism, Beckwith-Wiedemann Syndrome, Macroglossia, and Chromosome 11 Uniparental Disomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 51

      Last Updated: 10/30/2025

      What is the definition of KBG Syndrome?

      KBG syndrome is a rare disorder that affects several body systems. "KBG" represents the surname initials of the first families diagnosed with the disorder. Common signs and symptoms in individuals with this condition include unusual facial features, skeletal abnormalities, and intellectual disability.

      When should I see a KBG Syndrome doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a KBG Syndrome doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best KBG Syndrome doctor in Germany?

      You can find a KBG Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank KBG Syndrome doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by KBG Syndrome doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a KBG Syndrome doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the KBG Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different KBG Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a KBG Syndrome doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my KBG Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my KBG Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female KBG Syndrome doctors in Germany?

      Look for the filter feature on the left side of the KBG Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a KBG Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the KBG Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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