The 20 Best KBG Syndrome Doctors in Germany

Find the Top KBG Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 49 doctor with experience in KBG Syndrome near Germany. Of these, 33 are Experienced, 15 are Advanced and 1 are Distinguished.

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49 providers found
    Distinguished in KBG Syndrome

    Ilaria Parenti
    Distinguished in KBG Syndrome

    Ilaria Parenti
    Referral may be required
    Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Ilaria Parenti practices practicing medicine in Luebeck, Germany. Ms. Parenti is rated as a Distinguished expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Cornelia De Lange Syndrome, KBG Syndrome, Mosaicism, and Coffin-Siris Syndrome.

    Advanced in KBG Syndrome

    Alma Kuechler
    Advanced in KBG Syndrome

    Alma Kuechler
    Referral may be required
    Essen, NW, DE 

    Alma Kuechler practices practicing medicine in Essen, Germany. Kuechler is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. They are also highly rated in 19 other conditions, according to our data. Their clinical expertise encompasses RASopathies, Achalasia Microcephaly Syndrome, Microcephaly, and Early Infantile Epileptic Encephalopathy.

    Advanced in KBG Syndrome

    Tzung-chien Hsieh
    Advanced in KBG Syndrome

    Tzung-chien Hsieh
    Referral may be required
    Bonn, NW, DE 

    Tzung-chien Hsieh practices practicing medicine in Bonn, Germany. Hsieh is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses KBG Syndrome, Coffin-Siris Syndrome, Micrognathia, and Miller Syndrome.

    Learn about our expert tiers
    Advanced in KBG Syndrome

    Peter M. Krawitz
    Advanced in KBG Syndrome

    Peter M. Krawitz
    Referral may be required
    Bonn, NW, DE 

    Peter Krawitz practices practicing medicine in Bonn, Germany. Mr. Krawitz is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Glucose Phosphate Isomerase Deficiency, Fryns Syndrome, Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1), and Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2).

    Advanced in KBG Syndrome

    Denise M. Horn
    Advanced in KBG Syndrome

    Denise M. Horn
    Referral may be required
    Berlin, BE, DE 

    Denise Horn practices practicing medicine in Berlin, Germany. Ms. Horn is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 50 other conditions, according to our data. Her clinical expertise encompasses Learman Syndrome, Cohen Syndrome, Brachydactyly Type B, and Acromicric Dysplasia.

    Advanced in KBG Syndrome

    Konrad D. Platzer
    Advanced in KBG Syndrome

    Konrad D. Platzer
    Referral may be required
    Leipzig, SN, DE 

    Konrad Platzer practices practicing medicine in Leipzig, Germany. Mr. Platzer is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Floating-Harbor Syndrome, Hypotonia, Epilepsy, and Cortical Dysplasia.

    Advanced in KBG Syndrome

    Lara Heuft
    Advanced in KBG Syndrome

    Lara Heuft
    Referral may be required
    Leipzig, SN, DE 

    Lara Heuft practices practicing medicine in Leipzig, Germany. Ms. Heuft is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses KBG Syndrome and Malnutrition.

    Advanced in KBG Syndrome

    Franziska Schnabel
    Advanced in KBG Syndrome

    Franziska Schnabel
    Referral may be required
    Leipzig, SN, DE 

    Franziska Schnabel practices practicing medicine in Leipzig, Germany. Ms. Schnabel is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Rommen Mueller Sybert Syndrome, KBG Syndrome, Spinocerebellar Ataxia Type 10, and Cutis Marmorata Telangiectatica Congenita.

    Advanced in KBG Syndrome

    Andreas Busche
    Advanced in KBG Syndrome

    Andreas Busche
    Referral may be required
    Muenster, NW, DE 

    Andreas Busche practices practicing medicine in Muenster, Germany. Mr. Busche is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses KBG Syndrome, Achalasia Microcephaly Syndrome, Microcephaly, and Split Hand Foot Malformation.

    Advanced in KBG Syndrome

    Nuria C. Bramswig
    Advanced in KBG Syndrome

    Nuria C. Bramswig
    Referral may be required
    Muenster, NW, DE 

    Nuria Bramswig practices practicing medicine in Muenster, Germany. Ms. Bramswig is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Coffin-Siris Syndrome, Miller Syndrome, Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, and Micrognathia.

    Advanced in KBG Syndrome

    Heiko M. Reutter
    Advanced in KBG Syndrome

    Heiko M. Reutter
    Referral may be required
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Heiko Reutter practices practicing medicine in Bonn, Germany. Mr. Reutter is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Exstrophy of the Bladder, Tracheoesophageal Fistula, Imperforate Anus, Epispadias, and Reconstructive Urology Surgery.

    Advanced in KBG Syndrome

    Peter Wieacker
    Advanced in KBG Syndrome

    Peter Wieacker
    Referral may be required
    Muenster, NW, DE 

    Peter Wieacker practices practicing medicine in Muenster, Germany. Mr. Wieacker is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Mayer-Rokitansky-Kuster-Hauser Syndrome, Mullerian Aplasia, Kuster Syndrome, Intersex, and Reconstructive Urology Surgery.

    Advanced in KBG Syndrome

    Irina Huning
    Advanced in KBG Syndrome

    Irina Huning
    Referral may be required
    1Department Of Dermatology, Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Irina Huning practices practicing medicine in Luebeck, Germany. Ms. Huning is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, Achalasia Microcephaly Syndrome, Cortical Dysplasia, and KBG Syndrome.

    Advanced in KBG Syndrome

    Britta Hanker
    Advanced in KBG Syndrome

    Britta Hanker
    Referral may be required
    Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Britta Hanker practices practicing medicine in Luebeck, Germany. Ms. Hanker is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Flat Feet, Micrognathia, KBG Syndrome, and Lethal Congenital Contracture Syndrome.

    Advanced in KBG Syndrome

    Dagmar Wieczorek
    Advanced in KBG Syndrome

    Dagmar Wieczorek
    Referral may be required
    Duesseldorf, NW, DE 

    Dagmar Wieczorek practices practicing medicine in Duesseldorf, Germany. Ms. Wieczorek is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses Micrognathia, Coffin-Siris Syndrome, Microcephaly, Achalasia Microcephaly Syndrome, and Gastrostomy.

    Advanced in KBG Syndrome

    Barbara Mikat
    Advanced in KBG Syndrome

    Barbara Mikat
    Referral may be required
    Essen, NW, DE 

    Barbara Mikat practices practicing medicine in Essen, Germany. Ms. Mikat is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses KBG Syndrome and Osteochondroma.

    Experienced in KBG Syndrome

    Gabriele Kaesbach-Gillessen
    Experienced in KBG Syndrome

    Gabriele Kaesbach-Gillessen
    Referral may be required
    1Department Of Dermatology, Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Gabriele Kaesbach-Gillessen practices practicing medicine in Luebeck, Germany. Ms. Kaesbach-Gillessen is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Cornelia De Lange Syndrome, Distal Arthrogryposis, Distal Arthrogryposis Type 6, and Coffin-Siris Syndrome.

    Experienced in KBG Syndrome

    Thomas Eggermann
    Experienced in KBG Syndrome

    Thomas Eggermann
    Referral may be required
    Aachen, NW, DE 

    Thomas Eggermann practices practicing medicine in Aachen, Germany. Mr. Eggermann is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Russell-Silver Dwarfism, Beckwith-Wiedemann Syndrome, Macroglossia, and Chromosome 11 Uniparental Disomy.

    Experienced in KBG Syndrome

    Matthias Begemann
    Experienced in KBG Syndrome

    Matthias Begemann
    Referral may be required
    Aachen, NW, DE 

    Matthias Begemann practices practicing medicine in Aachen, Germany. Mr. Begemann is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Russell-Silver Dwarfism, Chromosome 6 Uniparental Disomy, Macroglossia, Orchiectomy, and Bone Marrow Transplant.

    Experienced in KBG Syndrome

    Klaus Zerres
    Experienced in KBG Syndrome

    Klaus Zerres
    Referral may be required
    Aachen, NW, DE 

    Klaus Zerres practices practicing medicine in Aachen, Germany. Mr. Zerres is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Meckel Syndrome, Autosomal Recessive Polycystic Kidney Disease, Arthrogryposis Multiplex Congenita Neurogenic Type, and Pontocerebellar Hypoplasia.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 49

    Last Updated: 06/30/2026

    What is the definition of KBG Syndrome?

    KBG syndrome is a rare disorder that affects several body systems. "KBG" represents the surname initials of the first families diagnosed with the disorder. Common signs and symptoms in individuals with this condition include unusual facial features, skeletal abnormalities, and intellectual disability.

    When should I see a KBG Syndrome doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a KBG Syndrome doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best KBG Syndrome doctor in Germany?

    You can find a KBG Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank KBG Syndrome doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by KBG Syndrome doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a KBG Syndrome doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the KBG Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different KBG Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a KBG Syndrome doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my KBG Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my KBG Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female KBG Syndrome doctors in Germany?

    Look for the filter feature on the left side of the KBG Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a KBG Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the KBG Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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