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    Last Updated: 01/09/2026

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    MediFind found 19 doctor with experience in KBG Syndrome near North Rhine-Westphalia, DE. Of these, 10 are Experienced and 9 are Advanced.

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    19 providers found
      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Essen, NW, DE 

      Alma Kuechler practices in Essen, Germany. Kuechler is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Their top areas of expertise are RASopathies, Early Infantile Epileptic Encephalopathy, Achalasia Microcephaly Syndrome, and Microcephaly.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Bonn, NW, DE 

      Tzung-chien Hsieh practices in Bonn, Germany. Hsieh is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Their top areas of expertise are KBG Syndrome, Micrognathia, Miller Syndrome, and Coffin-Siris Syndrome.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Muenster, NW, DE 

      Nuria Bramswig practices in Muenster, Germany. Ms. Bramswig is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Coffin-Siris Syndrome, Miller Syndrome, Micrognathia, and Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius.

      Learn about our expert tiers
      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Bonn, NW, DE 

      Peter Krawitz practices in Bonn, Germany. Mr. Krawitz is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Glucose Phosphate Isomerase Deficiency, Fryns Syndrome, Crouzon Syndrome, and KBG Syndrome.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Muenster, NW, DE 

      Andreas Busche practices in Muenster, Germany. Mr. Busche is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are KBG Syndrome, Split Hand Foot Malformation, Microcephaly, and Achalasia Microcephaly Syndrome.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Heiko Reutter practices in Bonn, Germany. Mr. Reutter is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Exstrophy of the Bladder, Tracheoesophageal Fistula, Imperforate Anus, Reconstructive Urology Surgery, and Bladder Reconstruction.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Muenster, NW, DE 

      Peter Wieacker practices in Muenster, Germany. Mr. Wieacker is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Mayer-Rokitansky-Kuster-Hauser Syndrome, Mullerian Aplasia, Kuster Syndrome, Intersex, and Reconstructive Urology Surgery.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Duesseldorf, NW, DE 

      Dagmar Wieczorek practices in Duesseldorf, Germany. Ms. Wieczorek is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Micrognathia, Coffin-Siris Syndrome, Microcephaly, Achalasia Microcephaly Syndrome, and Gastrostomy.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Essen, NW, DE 

      Barbara Mikat practices in Essen, Germany. Ms. Mikat is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, KBG Syndrome, Spinocerebellar Ataxia Type 27, and Spinocerebellar Ataxia Type 28.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome
      Aachen, NW, DE 

      Thomas Eggermann practices in Aachen, Germany. Mr. Eggermann is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Russell-Silver Dwarfism, Beckwith-Wiedemann Syndrome, Macroglossia, and Chromosome 11 Uniparental Disomy.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome
      Aachen, NW, DE 

      Klaus Zerres practices in Aachen, Germany. Mr. Zerres is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Meckel Syndrome, Autosomal Recessive Polycystic Kidney Disease, Arthrogryposis Multiplex Congenita Neurogenic Type, and Pontocerebellar Hypoplasia.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome
      Aachen, NW, DE 

      Matthias Begemann practices in Aachen, Germany. Mr. Begemann is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Russell-Silver Dwarfism, Chromosome 6 Uniparental Disomy, Macroglossia, Orchiectomy, and Bone Marrow Transplant.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome
      Aachen, NW, DE 

      Robert Meyer practices in Aachen, Germany. Mr. Meyer is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Russell-Silver Dwarfism, Dyskeratosis Congenita, Mosaic Variegated Aneuploidy Syndrome, Mulibrey Nanism, and Bone Marrow Transplant.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome
      Essen, NW, DE 

      Cordula Kiewert practices in Essen, Germany. Ms. Kiewert is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Intersex, Anorexia, Juvenile Paget's Disease, and Klinefelter Syndrome.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome
      Aachen, NW, DE 

      Miriam Elbracht practices in Aachen, Germany. Ms. Elbracht is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Russell-Silver Dwarfism, Temple Syndrome, Beckwith-Wiedemann Syndrome, Beukes Familial Hip Dysplasia, and Bone Marrow Transplant.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome
      Muenster, NW, DE 

      Axel Bohring practices in Muenster, Germany. Mr. Bohring is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Frontometaphyseal Dysplasia, Autosomal Cleft Palate, Hyperelastic Skin, and Schwannomatosis.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome
      Koeln, NW, DE 

      Lukas Soellner practices in Koeln, Germany. Mr. Soellner is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Russell-Silver Dwarfism, Beckwith-Wiedemann Syndrome, Macroglossia, and Gigantism.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome
      Bonn, NW, DE 

      Nils Rahner practices in Bonn, Germany. Mr. Rahner is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Lynch Syndrome, Familial Colorectal Cancer, Mulibrey Nanism, Colonoscopy, and Endoscopy.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome
      Essen, NW, DE 

      Beate Albrecht practices in Essen, Germany. Ms. Albrecht is rated as an Experienced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Miller Syndrome, Nicolaides-Baraitser Syndrome, Coffin-Siris Syndrome, and Acheiropody.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-19 of 19

      Last Updated: 01/09/2026

      What is the definition of KBG Syndrome?

      KBG syndrome is a rare disorder that affects several body systems. "KBG" represents the surname initials of the first families diagnosed with the disorder. Common signs and symptoms in individuals with this condition include unusual facial features, skeletal abnormalities, and intellectual disability.

      When should I see a KBG Syndrome doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a KBG Syndrome doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank KBG Syndrome doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by KBG Syndrome doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a KBG Syndrome doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the KBG Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different KBG Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a KBG Syndrome doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my KBG Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my KBG Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female KBG Syndrome doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the KBG Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a KBG Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the KBG Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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