Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 01/09/2026

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 57 doctor with experience in KBG Syndrome near Netherlands. Of these, 25 are Advanced, 25 are Experienced, 5 are Distinguished and 2 are Elite.

    Location
    LocationClose
    57 providers found
      Elite in KBG Syndrome
      Elite in KBG Syndrome
      Nijmegen, GE, NL 

      Charlotte Ockeloen practices in Nijmegen, Netherlands. Ms. Ockeloen is rated as an Elite expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are KBG Syndrome, Split Hand Foot Malformation, Coffin-Siris Syndrome, and Koolen De Vries Syndrome.

      Elite in KBG Syndrome
      Elite in KBG Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Tjitske Kleefstra practices in Rotterdam, Netherlands. Kleefstra is rated as an Elite expert by MediFind in the treatment of KBG Syndrome. Their top areas of expertise are KBG Syndrome, Hypotonia, Increased Head Circumference, and Short Philtrum.

      Distinguished in KBG Syndrome
      Distinguished in KBG Syndrome

      Radboudumc

      Nijmegen, GE, NL 

      Elke De Boer practices in Nijmegen, Netherlands. Ms. De Boer is rated as a Distinguished expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are KBG Syndrome, 1p36 Deletion Syndrome, Dubowitz Syndrome, and Achalasia Microcephaly Syndrome.

      Learn about our expert tiers
      Distinguished in KBG Syndrome
      Distinguished in KBG Syndrome
      Nijmegen, GE, NL 

      Juliet Hampstead practices in Nijmegen, Netherlands. Ms. Hampstead is rated as a Distinguished expert by MediFind in the treatment of KBG Syndrome. Her top area of expertise is KBG Syndrome.

      Distinguished in KBG Syndrome
      Distinguished in KBG Syndrome

      Lumc

      Leiden, ZH, NL 

      Gijs Santen practices in Leiden, Netherlands. Santen is rated as a Distinguished expert by MediFind in the treatment of KBG Syndrome. Their top areas of expertise are Micrognathia, Miller Syndrome, Coffin-Siris Syndrome, and KBG Syndrome.

      Distinguished in KBG Syndrome
      Distinguished in KBG Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Dmitrijs Rots practices in Rotterdam, Netherlands. Rots is rated as a Distinguished expert by MediFind in the treatment of KBG Syndrome. Their top areas of expertise are KBG Syndrome, Floating-Harbor Syndrome, Crigler-Najjar Syndrome, and Rotor Syndrome.

      Distinguished in KBG Syndrome
      Distinguished in KBG Syndrome
      Rotterdam, ZH, NL 

      Jacqueline Goos practices in Rotterdam, Netherlands. Ms. Goos is rated as a Distinguished expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are KBG Syndrome, Craniosynostosis, Metopic Ridge, and Plagiocephaly.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome

      Radboudumc

      Nijmegen, GE, NL 

      Rolph Pfundt practices in Nijmegen, Netherlands. Mr. Pfundt is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Short Philtrum, Hypotonia, Increased Head Circumference, Cortical Dysplasia, and Orchiectomy.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Nijmegen, GE, NL 

      Linde Van Dongen practices in Nijmegen, Netherlands. Ms. Van Dongen is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are KBG Syndrome, Ruvalcaba Syndrome, Bannayan-Riley-Ruvalcaba Syndrome, and Lhermitte-Duclos Disease.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Venray, LI, NL 

      Anja Roubos-Bos practices in Venray, Netherlands. Ms. Roubos-Bos is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are KBG Syndrome, Prader-Willi Syndrome, Turner Syndrome, and Neurofibromatosis Type 1 (NF1).

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Nijmegen, GE, NL 

      Marjolein Willemsen practices in Nijmegen, Netherlands. Willemsen is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Their top areas of expertise are Hypotonia, KBG Syndrome, Achalasia Microcephaly Syndrome, and Microcephaly.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Utrecht, UT, NL 

      Rosa Van Loon practices in Utrecht, Netherlands. Ms. Van Loon is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are KBG Syndrome, Glycogen Storage Disease Type 6, Danon Disease, and Dilated Cardiomyopathy (DCM).

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome

      Radboudumc

      Nijmegen, GE, NL 

      Alexander Stegmann practices in Nijmegen, Netherlands. Mr. Stegmann is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are 1p36 Deletion Syndrome, Hypotonia, Increased Head Circumference, and Winchester Syndrome.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome

      Radboud UMC

      Nijmegen, GE, NL 

      Christian Gilissen practices in Nijmegen, Netherlands. Mr. Gilissen is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, Horseshoe Kidney, and Leber Congenital Amaurosis.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Peter Van Der Spek-Van Der Tol practices in Rotterdam, Netherlands. Mr. Van Der Spek-Van Der Tol is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Trichothiodystrophy, Periventricular Heterotopia, Cerebellar Hypoplasia, KBG Syndrome, and Heart Transplant.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Nijmegen, GE, NL 

      Jeroen Van Reeuwijk practices in Nijmegen, Netherlands. Mr. Van Reeuwijk is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Asphyxiating Thoracic Dystrophy, KBG Syndrome, Ellis-Van Creveld Syndrome, and 3M Syndrome.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Irene Mathijssen practices in Rotterdam, Netherlands. Ms. Mathijssen is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Craniosynostosis, Metopic Ridge, Plagiocephaly, Osteotomy, and Adenoidectomy.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome

      Radboudumc

      Nijmegen, GE, NL 

      Lisenka Vissers practices in Nijmegen, Netherlands. Vissers is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. Their top areas of expertise are Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, 1p36 Deletion Syndrome, KBG Syndrome, and Deafness Hypogonadism Syndrome.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Nijmegen, GE, NL 

      Simon Fisher practices in Nijmegen, Netherlands. Mr. Fisher is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Developmental Reading Disorder, Apraxia, Autism Spectrum Disorder, Schinzel-Giedion Syndrome, and Splenectomy.

      Advanced in KBG Syndrome
      Advanced in KBG Syndrome
      Nijmegen, GE, NL 

      David Koolen practices in Nijmegen, Netherlands. Mr. Koolen is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Koolen De Vries Syndrome, Hypotonia, Floating-Harbor Syndrome, and West Syndrome.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 57

      Last Updated: 01/09/2026

      What is the definition of KBG Syndrome?

      KBG syndrome is a rare disorder that affects several body systems. "KBG" represents the surname initials of the first families diagnosed with the disorder. Common signs and symptoms in individuals with this condition include unusual facial features, skeletal abnormalities, and intellectual disability.

      When should I see a KBG Syndrome doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a KBG Syndrome doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank KBG Syndrome doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by KBG Syndrome doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a KBG Syndrome doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the KBG Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different KBG Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a KBG Syndrome doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my KBG Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my KBG Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female KBG Syndrome doctors in Netherlands?

      Look for the filter feature on the left side of the KBG Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a KBG Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the KBG Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy