The 20 Best KBG Syndrome Doctors in Netherlands

Find the Top KBG Syndrome Experts and Specialists

Last Updated: 06/30/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 61 doctor with experience in KBG Syndrome near Netherlands. Of these, 32 are Experienced, 26 are Advanced and 3 are Elite.

Location
LocationClose
61 providers found
    Elite in KBG Syndrome

    Charlotte W. Ockeloen
    Elite in KBG Syndrome

    Charlotte W. Ockeloen
    Referral may be required
    Nijmegen, GE, NL 

    Charlotte Ockeloen practices practicing medicine in Nijmegen, Netherlands. Ms. Ockeloen is rated as an Elite expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses KBG Syndrome, Coffin-Siris Syndrome, Koolen De Vries Syndrome, and Meier-Gorlin Syndrome.

    Elite in KBG Syndrome

    Tjitske Kleefstra
    Elite in KBG Syndrome

    Tjitske Kleefstra
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Tjitske Kleefstra practices practicing medicine in Rotterdam, Netherlands. Kleefstra is rated as an Elite expert by MediFind in the treatment of KBG Syndrome. They are also highly rated in 17 other conditions, according to our data. Their clinical expertise encompasses KBG Syndrome, Hypotonia, Increased Head Circumference, and Autism Spectrum Disorder.

    Elite in KBG Syndrome

    Elke J. De Boer
    Elite in KBG Syndrome

    Elke J. De Boer
    Referral may be required

    Radboudumc

    Nijmegen, GE, NL 

    Elke De Boer practices practicing medicine in Nijmegen, Netherlands. Ms. De Boer is rated as an Elite expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses KBG Syndrome, 1p36 Deletion Syndrome, Dubowitz Syndrome, and Microcephaly.

    Learn about our expert tiers
    Advanced in KBG Syndrome

    Juliet E. Hampstead
    Advanced in KBG Syndrome

    Juliet E. Hampstead
    Referral may be required
    Nijmegen, GE, NL 

    Juliet Hampstead practices practicing medicine in Nijmegen, Netherlands. Ms. Hampstead is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses KBG Syndrome.

    Advanced in KBG Syndrome

    Dmitrijs Rots
    Advanced in KBG Syndrome

    Dmitrijs Rots
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Dmitrijs Rots practices practicing medicine in Rotterdam, Netherlands. Rots is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses KBG Syndrome, Floating-Harbor Syndrome, Crigler-Najjar Syndrome, and Rotor Syndrome.

    Advanced in KBG Syndrome

    Jacqueline C. Goos
    Advanced in KBG Syndrome

    Jacqueline C. Goos
    Referral may be required
    Rotterdam, ZH, NL 

    Jacqueline Goos practices practicing medicine in Rotterdam, Netherlands. Ms. Goos is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses KBG Syndrome, Craniosynostosis, Metopic Ridge, and Plagiocephaly.

    Advanced in KBG Syndrome

    Gijs E. Santen
    Advanced in KBG Syndrome

    Gijs E. Santen
    Referral may be required

    Lumc

    Leiden, ZH, NL 

    Gijs Santen practices practicing medicine in Leiden, Netherlands. Santen is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Micrognathia, Miller Syndrome, Coffin-Siris Syndrome, and KBG Syndrome.

    Advanced in KBG Syndrome

    Rolph R. Pfundt
    Advanced in KBG Syndrome

    Rolph R. Pfundt
    Referral may be required

    Radboudumc

    Nijmegen, GE, NL 

    Rolph Pfundt practices practicing medicine in Nijmegen, Netherlands. Mr. Pfundt is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Hypotonia, Short Philtrum, Increased Head Circumference, Cortical Dysplasia, and Orchiectomy.

    Advanced in KBG Syndrome

    Linde M. Van Dongen
    Advanced in KBG Syndrome

    Linde M. Van Dongen
    Referral may be required
    Nijmegen, GE, NL 

    Linde Van Dongen practices practicing medicine in Nijmegen, Netherlands. Ms. Van Dongen is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses KBG Syndrome, Ruvalcaba Syndrome, Bannayan-Riley-Ruvalcaba Syndrome, and Cowden Syndrome.

    Advanced in KBG Syndrome

    Anja G. Roubos-Bos
    Advanced in KBG Syndrome

    Anja G. Roubos-Bos
    Referral may be required
    Venray, LI, NL 

    Anja Roubos-Bos practices practicing medicine in Venray, Netherlands. Ms. Roubos-Bos is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses KBG Syndrome, Prader-Willi Syndrome, Turner Syndrome, and Neurofibromatosis Type 1 (NF1).

    Advanced in KBG Syndrome

    Marjolein H. Willemsen
    Advanced in KBG Syndrome

    Marjolein H. Willemsen
    Referral may be required
    Nijmegen, GE, NL 

    Marjolein Willemsen practices practicing medicine in Nijmegen, Netherlands. Willemsen is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Hypotonia, KBG Syndrome, Microcephaly, and Achalasia Microcephaly Syndrome.

    Advanced in KBG Syndrome

    Rosa E. Van Loon
    Advanced in KBG Syndrome

    Rosa E. Van Loon
    Referral may be required
    Utrecht, UT, NL 

    Rosa Van Loon practices practicing medicine in Utrecht, Netherlands. Ms. Van Loon is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses KBG Syndrome, Glycogen Storage Disease Type 6, Danon Disease, and Dilated Cardiomyopathy (DCM).

    Advanced in KBG Syndrome

    Lisenka M. Vissers
    Advanced in KBG Syndrome

    Lisenka M. Vissers
    Referral may be required

    Radboudumc

    Nijmegen, GE, NL 

    Lisenka Vissers practices practicing medicine in Nijmegen, Netherlands. Vissers is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, 1p36 Deletion Syndrome, KBG Syndrome, and Deafness Hypogonadism Syndrome.

    Advanced in KBG Syndrome

    Irene J. Mathijssen
    Advanced in KBG Syndrome

    Irene J. Mathijssen
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Irene Mathijssen practices practicing medicine in Rotterdam, Netherlands. Ms. Mathijssen is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Craniosynostosis, Metopic Ridge, Plagiocephaly, Osteotomy, and Nerve Decompression.

    Advanced in KBG Syndrome

    Jeroen Van Reeuwijk
    Advanced in KBG Syndrome

    Jeroen Van Reeuwijk
    Referral may be required
    Nijmegen, GE, NL 

    Jeroen Van Reeuwijk practices practicing medicine in Nijmegen, Netherlands. Mr. Van Reeuwijk is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Asphyxiating Thoracic Dystrophy, KBG Syndrome, Ellis-Van Creveld Syndrome, and Joubert Syndrome.

    Advanced in KBG Syndrome

    Joyce M. Geelen
    Advanced in KBG Syndrome

    Joyce M. Geelen
    Referral may be required
    Nijmegen, GE, NL 

    Joyce Geelen practices practicing medicine in Nijmegen, Netherlands. Ms. Geelen is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses KBG Syndrome, Noonan Syndrome, RASopathies, and Prader-Willi Syndrome.

    Advanced in KBG Syndrome

    Christian Gilissen
    Advanced in KBG Syndrome

    Christian Gilissen
    Referral may be required

    Radboud UMC

    Nijmegen, GE, NL 

    Christian Gilissen practices practicing medicine in Nijmegen, Netherlands. Mr. Gilissen is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, Horseshoe Kidney, and Leber Congenital Amaurosis.

    Advanced in KBG Syndrome

    Peter J. Van Der Spek-Van Der Tol
    Advanced in KBG Syndrome

    Peter J. Van Der Spek-Van Der Tol
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Peter Van Der Spek-Van Der Tol practices practicing medicine in Rotterdam, Netherlands. Mr. Van Der Spek-Van Der Tol is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Trichothiodystrophy, Periventricular Heterotopia, Cerebellar Hypoplasia, and KBG Syndrome.

    Advanced in KBG Syndrome

    Alexander A. Stegmann
    Advanced in KBG Syndrome

    Alexander A. Stegmann
    Referral may be required

    Radboudumc

    Nijmegen, GE, NL 

    Alexander Stegmann practices practicing medicine in Nijmegen, Netherlands. Mr. Stegmann is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses 1p36 Deletion Syndrome, Hypotonia, Increased Head Circumference, and Winchester Syndrome.

    Advanced in KBG Syndrome

    Simon E. Fisher
    Advanced in KBG Syndrome

    Simon E. Fisher
    Referral may be required
    Nijmegen, GE, NL 

    Simon Fisher practices practicing medicine in Nijmegen, Netherlands. Mr. Fisher is rated as an Advanced expert by MediFind in the treatment of KBG Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Developmental Reading Disorder, Apraxia, Autism Spectrum Disorder, Increased Head Circumference, and Splenectomy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 61

    Last Updated: 06/30/2026

    What is the definition of KBG Syndrome?

    KBG syndrome is a rare disorder that affects several body systems. "KBG" represents the surname initials of the first families diagnosed with the disorder. Common signs and symptoms in individuals with this condition include unusual facial features, skeletal abnormalities, and intellectual disability.

    When should I see a KBG Syndrome doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a KBG Syndrome doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best KBG Syndrome doctor in Netherlands?

    You can find a KBG Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

    KBG Syndrome doctor near New York, NY
    KBG Syndrome doctor near Los Angeles, CA
    KBG Syndrome doctor near Chicago, IL
    KBG Syndrome doctor near Houston, TX
    KBG Syndrome doctor near Phoenix, AZ
    KBG Syndrome doctor near Philadelphia, PA
    KBG Syndrome doctor near Atlanta, GA
    KBG Syndrome doctor near Boston, MA
    KBG Syndrome doctor near Dallas, TX
    KBG Syndrome doctor near San Jose, CA

    How does MediFind rank KBG Syndrome doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by KBG Syndrome doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a KBG Syndrome doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the KBG Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different KBG Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a KBG Syndrome doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my KBG Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my KBG Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female KBG Syndrome doctors in Netherlands?

    Look for the filter feature on the left side of the KBG Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a KBG Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the KBG Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.