The 20 Best KBG Syndrome Doctors Near Me in Indiana, US

Find the Top KBG Syndrome Experts and Specialists

The 20 Best KBG Syndrome Doctors in Indiana, US

Last Updated: 02/22/2026

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MediFind found 49 doctor with experience in KBG Syndrome near Indiana, US. Of these, 39 are Experienced and 10 are Advanced.

Location
LocationClose
49 providers found
    Experienced in KBG Syndrome
    Neurology
    Experienced in KBG Syndrome
    Neurology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Lisa Smith is a Neurologist in Indianapolis, Indiana. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Seizures, and Tuberous Sclerosis Complex.

    Experienced in KBG Syndrome
    Experienced in KBG Syndrome

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Deborah Sokol is a Neurologist in Indianapolis, Indiana. Dr. Sokol is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Seizures, Partial Familial Epilepsy, Memory Loss, and Partial Seizure.

    Experienced in KBG Syndrome
    Experienced in KBG Syndrome

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Marcia Felker is a Neurologist in Indianapolis, Indiana. Dr. Felker is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Spinal Muscular Atrophy Type 1, Duchenne Muscular Dystrophy, Seizures, and Spinal Muscular Atrophy Type 2.

    Learn about our expert tiers
    Experienced in KBG Syndrome
    Experienced in KBG Syndrome

    Office

    355 W 16th St Ste 3200, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Offers Telehealth

    Dragos Sabau is a Neurologist in Indianapolis, Indiana. Dr. Sabau is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Seizures, Memory Loss, Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), and Epilepsy.

    Experienced in KBG Syndrome
    Pediatric Cardiology
    Experienced in KBG Syndrome
    Pediatric Cardiology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Robert Darragh is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Darragh is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Tricuspid Atresia, Tetralogy of Fallot, Double Inlet Left Ventricle, Heart Transplant, and Thymectomy.

    Experienced in KBG Syndrome
    Pediatric Cardiology
    Experienced in KBG Syndrome
    Pediatric Cardiology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Timothy Cordes is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Cordes is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Transposition of the Great Arteries, Isthmian Coarctation, Coarctation of the Aorta, and Hypoplastic Left Heart Syndrome (HLHS).

    Experienced in KBG Syndrome
    Pediatric Cardiology
    Experienced in KBG Syndrome
    Pediatric Cardiology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    John Parent is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Parent is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Cardiomyopathy, Pulmonary Valve Stenosis, RASopathies, Duchenne Muscular Dystrophy, and Heart Transplant.

    Experienced in KBG Syndrome
    Cardiology
    Experienced in KBG Syndrome
    Cardiology

    Arshad P. Malik MD PC

    8560 Broadway, 
    Merrillville, IN 
    Languages Spoken:
    English

    Arshad Malik is a Cardiologist in Merrillville, Indiana. Dr. Malik is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Angina, Carotid Artery Disease, Low Potassium Level, Endoscopy, and Gastrostomy.

    Experienced in KBG Syndrome
    Pediatric Cardiology
    Experienced in KBG Syndrome
    Pediatric Cardiology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Tiffanie Johnson is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Isthmian Coarctation, Coarctation of the Aorta, Pulmonary Supravalvular Stenosis, and Pulmonary Valve Stenosis.

    Experienced in KBG Syndrome
    Cardiology
    Experienced in KBG Syndrome
    Cardiology

    Franciscan Health Indiana Heart Physicians, A Department Of Franciscan Health Indianapolis

    5330 E Stop 11 Rd, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Stephen Cook is a Cardiologist in Indianapolis, Indiana. Dr. Cook is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Endocardial Cushion Defect, Atrioventricular Septal Defect, Partial Atrioventricular Canal, and Congenital Heart Disease (CHD).

    Experienced in KBG Syndrome
    Pediatric Cardiology
    Experienced in KBG Syndrome
    Pediatric Cardiology

    Office

    7950 W Jefferson Blvd Ste 210, 
    Fort Wayne, IN 
    Languages Spoken:
    English

    Tamika Rozema is a Pediatric Cardiologist in Fort Wayne, Indiana. Dr. Rozema is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Pulmonary Valve Stenosis, Pulmonary Supravalvular Stenosis, Heart Murmurs, and Patent Ductus Arteriosus.

    Experienced in KBG Syndrome
    Experienced in KBG Syndrome

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Derryl Miller is a Neurologist in Indianapolis, Indiana. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Partial Familial Epilepsy, Partial Seizure, Continuous Spike-Wave During Slow Sleep Syndrome, and Photosensitive Epilepsy.

    Experienced in KBG Syndrome
    Pediatric Endocrinology
    Experienced in KBG Syndrome
    Pediatric Endocrinology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Alexander Tuttle is a Pediatric Endocrinologist in Indianapolis, Indiana. Dr. Tuttle is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Type 1 Diabetes (T1D), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), and Short Stature (Growth Disorders).

    Advanced in KBG Syndrome
    Medical Genetics | Pediatrics
    Advanced in KBG Syndrome
    Medical Genetics | Pediatrics
    550 University Blvd, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    Gabrielle Geddes is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Geddes is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Costello Syndrome, Hemihyperplasia, RASopathies, Birt-Hogg-Dube Syndrome, and Gastrostomy. Dr. Geddes is currently accepting new patients.

    Advanced in KBG Syndrome
    Pediatrics | Pediatric Neurology | Neurology
    Advanced in KBG Syndrome
    Pediatrics | Pediatric Neurology | Neurology

    Indiana University Med Ctr Homecare

    575 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Celanie Christensen is a Pediatrics specialist and a Pediatric Neurologist in Indianapolis, Indiana. Dr. Christensen is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Microcephaly, Aphantasia, Nicolaides-Baraitser Syndrome, and CHARGE Syndrome.

    Advanced in KBG Syndrome
    Pediatric Neurology | Neurology
    Advanced in KBG Syndrome
    Pediatric Neurology | Neurology
    705 Riley Hospital Dr # 1340, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Laurence Walsh is a Pediatric Neurologist and a Neurologist in Indianapolis, Indiana. Dr. Walsh is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Early Infantile Epileptic Encephalopathy, Seizures, Neurofibromatosis, and Partial Familial Epilepsy.

    Advanced in KBG Syndrome
    Medical Genetics | Pediatrics
    Advanced in KBG Syndrome
    Medical Genetics | Pediatrics

    Iu Health Medical Group LLC

    1701 N Senate Blvd, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    Theodore Wilson is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Wilson is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Zlotogora-Ogur Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, Ectodermal Dysplasias, and AEC Syndrome. Dr. Wilson is currently accepting new patients.

    Advanced in KBG Syndrome
    Medical Genetics
    Advanced in KBG Syndrome
    Medical Genetics
    1002 Wishard Blvd, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    Evan-jacob Garcia is a Medical Genetics provider in Indianapolis, Indiana. Dr. Garcia is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Increased Head Circumference, Micrognathia, Microcephaly, and Stickler Syndrome. Dr. Garcia is currently accepting new patients.

    Advanced in KBG Syndrome
    Medical Genetics | Pediatrics
    Advanced in KBG Syndrome
    Medical Genetics | Pediatrics
    575 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Ware is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Ware is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Arachnodactyly, Isolated Ectopia Lentis, Jackson-Weiss Syndrome, and Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism. Dr. Ware is currently accepting new patients.

    Advanced in KBG Syndrome
    Medical Genetics | Pediatrics
    Advanced in KBG Syndrome
    Medical Genetics | Pediatrics

    Iu Health Medical Group LLC

    1701 N Senate Ave, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    Erin Conboy is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Conboy is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Hereditary Multiple Osteochondromas, Clouston Syndrome, Ectodermal Dysplasias, and Early Infantile Epileptic Encephalopathy. Dr. Conboy is currently accepting new patients.

    Showing 1-20 of 49

    Last Updated: 02/22/2026

    What is the definition of KBG Syndrome?

    KBG syndrome is a rare disorder that affects several body systems. "KBG" represents the surname initials of the first families diagnosed with the disorder. Common signs and symptoms in individuals with this condition include unusual facial features, skeletal abnormalities, and intellectual disability.

    When should I see a KBG Syndrome doctor in Indiana, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a KBG Syndrome doctor in Indiana, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank KBG Syndrome doctors in Indiana, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by KBG Syndrome doctors in Indiana, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a KBG Syndrome doctor in Indiana, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the KBG Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different KBG Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a KBG Syndrome doctor in Indiana, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my KBG Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my KBG Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female KBG Syndrome doctors in Indiana, US?

    Look for the filter feature on the left side of the KBG Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a KBG Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the KBG Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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