The 20 Best KBG Syndrome Doctors Near Me in Michigan, US

Find the Top KBG Syndrome Experts and Specialists

The 20 Best KBG Syndrome Doctors in Michigan, US

Last Updated: 02/22/2026

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MediFind found 129 doctor with experience in KBG Syndrome near Michigan, US. Of these, 107 are Experienced, 20 are Advanced and 2 are Distinguished.

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129 providers found
    Linda Z. Rossetti
    Advanced in KBG Syndrome
    Pediatrics | Medical Genetics
    Advanced in KBG Syndrome
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
    Experience:
    10+ years
    Languages Spoken:
    English, Spanish

    Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Rossetti has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Smith-Magenis Syndrome, Miller-Dieker Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion.

    Distinguished in KBG Syndrome
    Family Medicine
    Distinguished in KBG Syndrome
    Family Medicine

    Macomb Medical Clinic PC

    2405 East 14 Mile Road, 
    Sterling Heights, MI 
    Experience:
    39+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Rosenberg is a primary care provider, practicing in Family Medicine in Sterling Heights, Michigan. Dr. Rosenberg has been practicing medicine for over 39 years and is rated as a Distinguished provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Woodhouse-Sakati Syndrome, Duane-Radial Ray Syndrome, DK Phocomelia Syndrome, and Culler Jones Syndrome. Dr. Rosenberg is currently accepting new patients.

    Distinguished in KBG Syndrome
    Medical Genetics
    Distinguished in KBG Syndrome
    Medical Genetics
    2799 W Grand Blvd, Cfp 4, 
    Detroit, MI 
    Languages Spoken:
    English

    Kristin Monaghan is a Medical Genetics provider in Detroit, Michigan. Dr. Monaghan is rated as a Distinguished provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Hypotonia, 1p36 Deletion Syndrome, Microcephaly Deafness Syndrome, and Early Infantile Epileptic Encephalopathy.

    Learn about our expert tiers
    Advanced in KBG Syndrome
    Advanced in KBG Syndrome

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Marion Hofmann is a Cardiologist in Ann Arbor, Michigan. Dr. Hofmann is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Marfan Syndrome, Aortic Dissection, Familial Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

    Advanced in KBG Syndrome
    Pediatric Cardiology
    Advanced in KBG Syndrome
    Pediatric Cardiology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Jimmy Lu is a Pediatric Cardiologist in Ann Arbor, Michigan. Dr. Lu is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Tetralogy of Fallot, Transposition of the Great Arteries, Hypoplastic Left Heart Syndrome (HLHS), and Mitral Atresia.

    Advanced in KBG Syndrome
    Pediatric Cardiology
    Advanced in KBG Syndrome
    Pediatric Cardiology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor,, MI 
    Languages Spoken:
    English

    Mark Russell is a Pediatric Cardiologist in Ann Arbor,, Michigan. Dr. Russell is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Congenital Heart Disease (CHD), Hypoplastic Left Heart Syndrome (HLHS), and Patent Foramen Ovale Repair.

    Advanced in KBG Syndrome
    Endocrinology
    Advanced in KBG Syndrome
    Endocrinology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Tobias Else is an Endocrinologist in Ann Arbor, Michigan. Dr. Else is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Adrenal Cancer, Adrenocortical Carcinoma, Adrenal Gland Adenoma, Neuroendocrine Tumor, and Thyroidectomy.

    Advanced in KBG Syndrome
    Pediatric Cardiology
    Advanced in KBG Syndrome
    Pediatric Cardiology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor,, MI 
    Languages Spoken:
    English

    Thor Thorsson is a Pediatric Cardiologist in Ann Arbor,, Michigan. Dr. Thorsson is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Isthmian Coarctation.

    Jessica R. Priestley
    Experienced in KBG Syndrome
    Pediatrics | Medical Genetics
    Experienced in KBG Syndrome
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
    Experience:
    8+ years
    Languages Spoken:
    English

    Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Priestley has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Fabry Disease, Biotinidase Deficiency, Ornithine Transcarbamylase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

    Alexandra Shaw
    Experienced in KBG Syndrome
    Neurology | Pediatric Neurology
    Experienced in KBG Syndrome
    Neurology | Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Experience:
    17+ years
    Languages Spoken:
    English, French
    Accepting New Patients

    Alexandra Shaw is a Neurologist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Shaw has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Seizures, Epilepsy Juvenile Absence, Memory Loss, and Absence Seizure. Dr. Shaw is currently accepting new patients.

    Daniel H. Arndt
    Experienced in KBG Syndrome
    Neurology | Pediatric Neurology
    Experienced in KBG Syndrome
    Neurology | Pediatric Neurology

    Specialists In Pediatric Neurology PLLC

    7001 Orchard Lake Road, Suite 320C, 
    West Bloomfield, MI 
    Experience:
    23+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Arndt is a Neurologist and a Pediatric Neurologist in West Bloomfield, Michigan. Dr. Arndt has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Absence Seizure, and Memory Loss. Dr. Arndt is currently accepting new patients.

    Sarah E. Fahnhorst
    Experienced in KBG Syndrome
    Pediatric Cardiology
    Experienced in KBG Syndrome
    Pediatric Cardiology

    Helen DeVos Children's Hospital Fetal And Pediatric Cardiology Clinic

    1105 Sixth Street, 
    Traverse City, MI 
    Experience:
    13+ years
    Languages Spoken:
    English
    Accepting New Patients

    Sarah Fahnhorst is a Pediatric Cardiologist in Traverse City, Michigan. Dr. Fahnhorst has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Double Discordia, Tetralogy of Fallot, Bicuspid Aortic Valve, and Ebstein's Anomaly. Dr. Fahnhorst is currently accepting new patients.

    Maala S. Daniel
    Experienced in KBG Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in KBG Syndrome
    Pediatric Endocrinology | Endocrinology

    Corewell Health Pediatric Endocrinology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 1800, 
    Grand Rapids, MI 
    Experience:
    25+ years
    Languages Spoken:
    English
    Accepting New Patients

    Maala Daniel is a Pediatric Endocrinologist and an Endocrinologist in Grand Rapids, Michigan. Dr. Daniel has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Type 1 Diabetes (T1D), Short Stature (Growth Disorders), Familial Short Stature (FSS), and Idiopathic Short Stature (ISS). Dr. Daniel is currently accepting new patients.

    Richard J. Bloomingdale
    Experienced in KBG Syndrome
    Experienced in KBG Syndrome

    Corewell Health William Beaumont University Hospital Heart & Vascular

    3601 West 13 Mile Road, 
    Royal Oak, MI 
    Experience:
    13+ years
    Languages Spoken:
    English
    Accepting New Patients

    Richard Bloomingdale is a Cardiologist in Royal Oak, Michigan. Dr. Bloomingdale has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Aortic Valve Stenosis, Cardiomyopathy, Coronary Heart Disease, and Aortic Regurgitation. Dr. Bloomingdale is currently accepting new patients.

    Christel M. Keefe
    Experienced in KBG Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in KBG Syndrome
    Pediatric Endocrinology | Endocrinology

    Corewell Health Pediatric Endocrinology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 1800, 
    Grand Rapids, MI 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Christel Keefe is a Pediatric Endocrinologist and an Endocrinologist in Grand Rapids, Michigan. Dr. Keefe has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Type 1 Diabetes (T1D), Mixed Gonadal Dysgenesis, Perrault Syndrome, and Turner Syndrome. Dr. Keefe is currently accepting new patients.

    Yaw Appiagyei
    Experienced in KBG Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in KBG Syndrome
    Pediatric Endocrinology | Endocrinology

    Corewell Health Pediatric Endocrinology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 1800, 
    Grand Rapids, MI 
    Experience:
    39+ years
    Languages Spoken:
    English
    Accepting New Patients

    Yaw Appiagyei is a Pediatric Endocrinologist and an Endocrinologist in Grand Rapids, Michigan. Dr. Appiagyei has been practicing medicine for over 39 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Type 1 Diabetes (T1D), Septo-Optic Dysplasia, Short Stature (Growth Disorders), and Familial Short Stature (FSS). Dr. Appiagyei is currently accepting new patients.

    Aditya V. Dewoolkar
    Experienced in KBG Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in KBG Syndrome
    Pediatric Endocrinology | Endocrinology

    Corewell Health Pediatric Endocrinology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 1800, 
    Grand Rapids, MI 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Aditya Dewoolkar is a Pediatric Endocrinologist and an Endocrinologist in Grand Rapids, Michigan. Dr. Dewoolkar has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Type 1 Diabetes (T1D), Septo-Optic Dysplasia, Familial Hypopituitarism, and Short Stature (Growth Disorders). Dr. Dewoolkar is currently accepting new patients.

    Emily R. Miller
    Experienced in KBG Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in KBG Syndrome
    Pediatric Endocrinology | Endocrinology

    Corewell Health Pediatric Endocrinology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 1800, 
    Grand Rapids, MI 
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    Emily Miller is a Pediatric Endocrinologist and an Endocrinologist in Grand Rapids, Michigan. Dr. Miller has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Type 1 Diabetes (T1D), Short Stature (Growth Disorders), Thyroid Dysgenesis, and Congenital Hypothyroidism. Dr. Miller is currently accepting new patients.

    Julian J. Barbat
    Experienced in KBG Syndrome
    Experienced in KBG Syndrome

    Corewell Health William Beaumont University Hospital Cardiology - 27901 Woodward

    27901 Woodward Avenue, Suite 300, 
    Berkley, MI 
    Experience:
    15+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Julian Barbat is a Cardiologist in Berkley, Michigan. Dr. Barbat has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Carotid Artery Disease, Arterial Embolism, Coronary Heart Disease, Angina, and Pacemaker Implantation. Dr. Barbat is currently accepting new patients.

    Experienced in KBG Syndrome
    Endocrinology
    Experienced in KBG Syndrome
    Endocrinology

    Doctor's Approach Dermatology & Laser Center PC

    2900 Hannah Blvd Ste 114, 
    East Lansing, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Kara Hoisington is an Endocrinologist in East Lansing, Michigan. Dr. Hoisington is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Type 2 Diabetes (T2D), Hypothyroidism, Obesity in Children, and Thyroid Nodule.

    Showing 1-20 of 129

    Last Updated: 02/22/2026

    What is the definition of KBG Syndrome?

    KBG syndrome is a rare disorder that affects several body systems. "KBG" represents the surname initials of the first families diagnosed with the disorder. Common signs and symptoms in individuals with this condition include unusual facial features, skeletal abnormalities, and intellectual disability.

    When should I see a KBG Syndrome doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a KBG Syndrome doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank KBG Syndrome doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by KBG Syndrome doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a KBG Syndrome doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the KBG Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different KBG Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a KBG Syndrome doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my KBG Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my KBG Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female KBG Syndrome doctors in Michigan, US?

    Look for the filter feature on the left side of the KBG Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a KBG Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the KBG Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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