The 20 Best KBG Syndrome Doctors Near Me in North Carolina, US

Find the Top KBG Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 26 doctor with experience in KBG Syndrome near North Carolina, US. Of these, 22 are Experienced and 4 are Advanced.

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26 providers found
    Donald J. Weaver
    Experienced in KBG Syndrome
    Pediatric Nephrology
    Experienced in KBG Syndrome
    Pediatric Nephrology

    Atrium Health Levine Children's Nephrology

    1001 Blythe Blvd., Suite C, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Donald Weaver is a Pediatric Nephrologist in Charlotte, North Carolina. Dr. Weaver is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Posterior Urethral Valves, Togaviridae Disease, Feingold Syndrome, and Congenital Nephrotic Syndrome. Dr. Weaver is currently accepting new patients.

    Jacob C. Hartz
    Experienced in KBG Syndrome
    Pediatrics | Pediatric Cardiology
    Experienced in KBG Syndrome
    Pediatrics | Pediatric Cardiology

    Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

    1001 Blythe Blvd., Suite 500, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jacob Hartz is a Pediatrics specialist and a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Hartz is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Homozygous Familial Hypercholesterolemia (HoFH), High Cholesterol, Defective Apolipoprotein B-100, Familial Hypertriglyceridemia, and Pacemaker Implantation. Dr. Hartz is currently accepting new patients.

    Lisa D. Hobson
    Experienced in KBG Syndrome
    Experienced in KBG Syndrome

    Duke Electromyography Laboratory - Clinic 1L

    40 Duke Medicine Cir, 
    Durham, NC 
    Experience:
    25+ years
    Languages Spoken:
    English
    Offers Telehealth

    Lisa Hobson is a Neurologist in Durham, North Carolina. Dr. Hobson has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, and Hypokalemic Periodic Paralysis.

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    Munes Fares
    Experienced in KBG Syndrome
    Pediatrics | Pediatric Cardiology
    Experienced in KBG Syndrome
    Pediatrics | Pediatric Cardiology

    Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

    1001 Blythe Blvd., Suite 500, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients

    Munes Fares is a Pediatrics specialist and a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Fares is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Transposition of the Great Arteries, Coronary Artery Aneurysm, Ventricular Septal Defects, Tetralogy of Fallot, and Heart Transplant. Dr. Fares is currently accepting new patients.

    Laura A. Caligiuri
    Experienced in KBG Syndrome
    Pediatric Neurology
    Experienced in KBG Syndrome
    Pediatric Neurology
    2301 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English

    Laura Caligiuri is a Pediatric Neurologist in Durham, North Carolina. Dr. Caligiuri is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Cavernous Sinus Thrombosis, Cerebellum Agenesis Hydrocephaly, Zika Virus Disease, and Microcephaly with Spastic Quadriplegia. She is board certified in American Board Of Psychiatry & Neurology - Pediatric Neurology.

    Justin T. Mhoon
    Experienced in KBG Syndrome
    Experienced in KBG Syndrome

    Duke Neurology South Durham

    234 Crooked Creek Pkwy, 
    Durham, NC 
    Experience:
    20+ years
    Languages Spoken:
    English
    Offers Telehealth

    Neurological disorders affect both the patient and their families. I strive to provide compassionate guidance and education to make the process meaningful for both. Excellent patient centered care is the standard. Dr. Mhoon is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Erythromelalgia, Hypokalemic Periodic Paralysis, Thyrotoxic Periodic Paralysis, and Andersen-Tawil Syndrome.

    Experienced in KBG Syndrome
    Endocrinology
    Experienced in KBG Syndrome
    Endocrinology

    Pinehurst Medical Clinic Inc.

    200 Pavilion Way, 
    Southern Pines, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Alex Bonnecaze is an Endocrinologist in Southern Pines, North Carolina. Dr. Bonnecaze is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Pheochromocytoma, Hereditary Paraganglioma-Pheochromocytoma Syndrome, Adrenal Gland Adenoma, Obesity, and Hormone Replacement Therapy (HRT).

    Advanced in KBG Syndrome
    Family Medicine
    Advanced in KBG Syndrome
    Family Medicine

    Carolinas Physicians Network Inc.

    705 Griffith St Ste 100, 
    Davidson, NC 
    Languages Spoken:
    English

    Ronnie Beamon is a primary care provider, practicing in Family Medicine in Davidson, North Carolina. Dr. Beamon is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Urinary Tract Infection in Children, Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism.

    Advanced in KBG Syndrome
    Medical Genetics | Pediatrics | Oncology
    Advanced in KBG Syndrome
    Medical Genetics | Pediatrics | Oncology

    Mission Health Community Multispecialty Providers LLC

    9 Vanderbilt Park Dr, 
    Asheville, NC 
    Languages Spoken:
    English, Polish, Spanish

    Peter Leahy is a Medical Genetics specialist and a Pediatrics provider in Asheville, North Carolina. Dr. Leahy is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Maple Syrup Urine Disease, Succinyl-CoA:3-Ketoacid CoA Transferase Deficiency, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Beta-Ketothiolase Deficiency.

    Advanced in KBG Syndrome
    Internal Medicine
    Advanced in KBG Syndrome
    Internal Medicine

    ECU Health Roanoke-Chowan Hospital

    500 Academy St S, 
    Ahoskie, NC 
    Languages Spoken:
    English

    Jeffrey Severa is a primary care provider, practicing in Internal Medicine in Ahoskie, North Carolina. Dr. Severa is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Necrosis, Alzheimer's Disease, HNRNPH2-Related Disorder, and Ascites.

    Advanced in KBG Syndrome
    Advanced in KBG Syndrome

    Office

    300 Meadowmont Village Cir, 
    Chapel Hill, NC 
    Languages Spoken:
    English

    Andrea Corse is a Neurologist in Chapel Hill, North Carolina. Dr. Corse is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Myasthenia Gravis, Cytoplasmic Body Myopathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Myositis.

    Michelle Festa
    Experienced in KBG Syndrome
    Family Medicine
    Experienced in KBG Syndrome
    Family Medicine

    Novant Health Primary Care Poplar Tent

    9955 Poplar Tent Road, 
    Concord, NC 
    Experience:
    36+ years
    Languages Spoken:
    English
    Offers Telehealth

    Michelle Festa is a primary care provider, practicing in Family Medicine in Concord, North Carolina. Dr. Festa has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Williams Syndrome, High Cholesterol, Migraine, and Hypertension.

    Koshilie C. Gunadasa
    Experienced in KBG Syndrome
    Family Medicine
    Experienced in KBG Syndrome
    Family Medicine

    Atrium Health Primary Care Lincoln Family Medicine

    447 McAlister Road, Suite 2400, 
    Lincolnton, NC 
    Languages Spoken:
    English, Sinhala
    Accepting New Patients
    Offers Telehealth

    Koshilie Gunadasa is a primary care provider, practicing in Family Medicine in Lincolnton, North Carolina. Dr. Gunadasa is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Folate Deficiency, Vitamin B12 Deficiency Anemia, Multiple Carboxylase Deficiency, and Familial Combined Hyperlipidemia. Dr. Gunadasa is currently accepting new patients.

    Experienced in KBG Syndrome
    Internal Medicine
    Experienced in KBG Syndrome
    Internal Medicine

    Laboratory Corporation Of America Holdings

    4309 Medical Park Dr Ste 200, 
    Durham, NC 
    Languages Spoken:
    English
    Offers Telehealth

    John Kallianos is a primary care provider, practicing in Internal Medicine in Durham, North Carolina. Dr. Kallianos is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Hypertensive Heart Disease, High Cholesterol, Sitosterolemia, and Enlarged Liver.

    Experienced in KBG Syndrome
    Pediatrics | Medical Genetics
    Experienced in KBG Syndrome
    Pediatrics | Medical Genetics

    Duke Health Integrated Practice Inc

    4709 Creekstone Dr, Suite 300, 
    Durham, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Ermal Aliu is a Pediatrics specialist and a Medical Genetics provider in Durham, North Carolina. Dr. Aliu is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Phenylketonuria (PKU), Learman Syndrome, Microcephaly, and Symphalangism Distal.

    Experienced in KBG Syndrome
    Experienced in KBG Syndrome

    Office

    150 Parkway Office Ct, 
    Cary, NC 
    Languages Spoken:
    English

    Ranjit Joseph is a Hematologist in Cary, North Carolina. Dr. Joseph is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Essential Thrombocythemia, Acquired Agranulocytosis, Hemochromatosis, and Anemia.

    Experienced in KBG Syndrome
    Hematology Oncology | Hematology | Oncology
    Experienced in KBG Syndrome
    Hematology Oncology | Hematology | Oncology
    5092 Genetics Medicine Building, Unc - Chapel Hill, Cb # 7264, 
    Chapel Hill, NC 
    Languages Spoken:
    English
    Accepting New Patients

    Jonathan Berg is a Hematologist Oncology specialist and a Hematologist in Chapel Hill, North Carolina. Dr. Berg is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Hennekam Syndrome, Triple-Negative Breast Cancer, Lowe Syndrome, and Familial Colorectal Cancer. Dr. Berg is currently accepting new patients.

    Experienced in KBG Syndrome
    Hematology
    Experienced in KBG Syndrome
    Hematology

    Lake Norman Hematology And Oncology Specialists PA

    170 Medical Park Rd Ste 101, 
    Mooresville, NC 
    Languages Spoken:
    English
    Offers Telehealth

    David Eagle is a Hematologist in Mooresville, North Carolina. Dr. Eagle is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Iron Deficiency Anemia, Childhood Iron Deficiency Anemia, Blood Clots, and Anemia.

    Experienced in KBG Syndrome
    Family Medicine
    Experienced in KBG Syndrome
    Family Medicine

    Coastal Carolina Family Practice PA

    600 S Church St, 
    Hertford, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Robert Lane is a primary care provider, practicing in Family Medicine in Hertford, North Carolina. Dr. Lane is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are High Cholesterol, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Familial Hypertension.

    Experienced in KBG Syndrome
    Pediatrics | General Practice
    Experienced in KBG Syndrome
    Pediatrics | General Practice

    Mission Health Community Multispecialty Providers LLC

    509 Biltmore Ave, 
    Asheville, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    William Allen is a primary care provider, a Pediatrics specialist and a General Practice provider in Asheville, North Carolina. Dr. Allen is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Breast Cancer, Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), and Mucopolysaccharidoses (MPS). Dr. Allen is currently accepting new patients.

    Showing 1-20 of 26

    Last Updated: 04/28/2026

    What is the definition of KBG Syndrome?

    KBG syndrome is a rare disorder that affects several body systems. "KBG" represents the surname initials of the first families diagnosed with the disorder. Common signs and symptoms in individuals with this condition include unusual facial features, skeletal abnormalities, and intellectual disability.

    When should I see a KBG Syndrome doctor in North Carolina, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a KBG Syndrome doctor in North Carolina, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank KBG Syndrome doctors in North Carolina, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by KBG Syndrome doctors in North Carolina, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a KBG Syndrome doctor in North Carolina, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the KBG Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different KBG Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a KBG Syndrome doctor in North Carolina, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my KBG Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my KBG Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female KBG Syndrome doctors in North Carolina, US?

    Look for the filter feature on the left side of the KBG Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a KBG Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the KBG Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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