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    Last Updated: 01/09/2026

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    MediFind found 9 doctor with experience in Kearns-Sayre Syndrome near Indiana, US. Of these, 9 are Experienced.

    Location
    LocationClose
    9 providers found
      Experienced in Kearns-Sayre Syndrome
      Pediatric Cardiology
      Experienced in Kearns-Sayre Syndrome
      Pediatric Cardiology

      Riley Hospital For Children At Indiana University Health

      705 Riley Hospital Dr, 
      Indianapolis,, IN 
      Languages Spoken:
      English
      Offers Telehealth

      Mira Trivedi is a Pediatric Cardiologist in Indianapolis,, Indiana. Dr. Trivedi is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. Her top areas of expertise are Isthmian Coarctation, Coarctation of the Aorta, Pulmonary Atresia with Intact Ventricular Septum, and Right Ventricle Hypoplasia.

      Experienced in Kearns-Sayre Syndrome
      Neurology
      Experienced in Kearns-Sayre Syndrome
      Neurology

      Riley Hospital For Children At Indiana University Health

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Lisa Smith is a Neurologist in Indianapolis, Indiana. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Tuberous Sclerosis, and Tuberous Sclerosis Complex.

      Experienced in Kearns-Sayre Syndrome
      Medical Genetics | Pediatrics
      Experienced in Kearns-Sayre Syndrome
      Medical Genetics | Pediatrics

      Iu Health Medical Group LLC

      1701 N Senate Ave, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Brett Graham is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Graham is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. His top areas of expertise are MELAS Syndrome, Mitochondrial Complex 1 Deficiency, Smith-Magenis Syndrome, and Hypotonia. Dr. Graham is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Kearns-Sayre Syndrome
      Medical Genetics | Pediatrics
      Experienced in Kearns-Sayre Syndrome
      Medical Genetics | Pediatrics

      Iu Health Medical Group LLC

      1701 N Senate Ave, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Erin Conboy is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Conboy is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. Her top areas of expertise are Hereditary Multiple Osteochondromas, Clouston Syndrome, Ectodermal Dysplasias, and Early Infantile Epileptic Encephalopathy. Dr. Conboy is currently accepting new patients.

      Experienced in Kearns-Sayre Syndrome
      Pediatric Neurology | Neurology
      Experienced in Kearns-Sayre Syndrome
      Pediatric Neurology | Neurology
      705 Riley Hospital Dr # 1340, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Laurence Walsh is a Pediatric Neurologist and a Neurologist in Indianapolis, Indiana. Dr. Walsh is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. His top areas of expertise are Early Infantile Epileptic Encephalopathy, Seizures, Neurofibromatosis, and Partial Familial Epilepsy.

      Experienced in Kearns-Sayre Syndrome
      Otolaryngology
      Experienced in Kearns-Sayre Syndrome
      Otolaryngology

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Charles Yates is an Otolaryngologist in Indianapolis, Indiana. Dr. Yates is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. His top areas of expertise are Neurofibromatosis Type 2 (NF2), Acoustic Neuroma, Schwannoma, and Jones Syndrome. Dr. Yates is currently accepting new patients.

      Experienced in Kearns-Sayre Syndrome
      Family Medicine
      Experienced in Kearns-Sayre Syndrome
      Family Medicine

      Family Medicine Of South Bend PC

      6301 University Commons, Suite 210, 
      South Bend, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Brian Jacobs is a primary care provider, practicing in Family Medicine in South Bend, Indiana. Dr. Jacobs is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. His top areas of expertise are Pleurisy, High Cholesterol, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Jacobs is currently accepting new patients.

      Experienced in Kearns-Sayre Syndrome
      Family Medicine | Internal Medicine
      Experienced in Kearns-Sayre Syndrome
      Family Medicine | Internal Medicine

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English, Mandarin
      Accepting New Patients

      Zhi Xu is a primary care provider, practicing in Family Medicine and Internal Medicine in Indianapolis, Indiana. Dr. Xu is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. His top areas of expertise are Sepsis, Low Sodium Level, Chronic Cough, Ureteroscopy, and Hip Replacement. Dr. Xu is currently accepting new patients.

      Experienced in Kearns-Sayre Syndrome
      Psychiatry | Neurology
      Experienced in Kearns-Sayre Syndrome
      Psychiatry | Neurology

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Offers Telehealth

      Paul Bustion is a Psychiatrist and a Neurologist in Indianapolis, Indiana. Dr. Bustion is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. His top areas of expertise are Partial Familial Epilepsy, Partial Seizure, Seizures, and Opsoclonus-Myoclonus Syndrome.

      Showing 1-9 of 9

      Last Updated: 01/09/2026

      What is the definition of Kearns-Sayre Syndrome?

      Kearns-Sayre syndrome is a condition that affects many parts of the body, especially the eyes. The features of Kearns-Sayre syndrome usually appear before age 20, and the condition is diagnosed by a few characteristic signs and symptoms. People with Kearns-Sayre syndrome have progressive external ophthalmoplegia, which is weakness or paralysis of the eye muscles that impairs eye movement and causes drooping eyelids (ptosis). Affected individuals also have an eye condition called pigmentary retinopathy, which results from breakdown (degeneration) of the light-sensing tissue at the back of the eye (the retina) that gives it a speckled and streaked appearance. The retinopathy may cause loss of vision. In addition, people with Kearns-Sayre syndrome have at least one of the following signs or symptoms: abnormalities of the electrical signals that control the heartbeat (cardiac conduction defects), problems with coordination and balance that cause unsteadiness while walking (ataxia), or abnormally high levels of protein in the fluid that surrounds and protects the brain and spinal cord (the cerebrospinal fluid or CSF).

      When should I see a Kearns-Sayre Syndrome doctor in Indiana, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Kearns-Sayre Syndrome doctor in Indiana, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Kearns-Sayre Syndrome doctors in Indiana, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Kearns-Sayre Syndrome doctors in Indiana, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Kearns-Sayre Syndrome doctor in Indiana, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Kearns-Sayre Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Kearns-Sayre Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Kearns-Sayre Syndrome doctor in Indiana, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Kearns-Sayre Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Kearns-Sayre Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Kearns-Sayre Syndrome doctors in Indiana, US?

      Look for the filter feature on the left side of the Kearns-Sayre Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Kearns-Sayre Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Kearns-Sayre Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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