The 20 Best Kearns-Sayre Syndrome Doctors Near Me in Massachusetts, US

Find the Top Kearns-Sayre Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 17 doctor with experience in Kearns-Sayre Syndrome near Massachusetts, US. Of these, 10 are Experienced and 7 are Advanced.

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17 providers found
    Advanced in Kearns-Sayre Syndrome
    Pediatric Cardiology
    Advanced in Kearns-Sayre Syndrome
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    John Triedman is a Pediatric Cardiologist practicing medicine in Boston, Massachusetts. Dr. Triedman is rated as an Advanced provider by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Heart Block, Wolff-Parkinson-White Syndrome, Congenital Heart Block, Cardiac Ablation, and Heart Transplant.

    Advanced in Kearns-Sayre Syndrome
    Pediatric Cardiology
    Advanced in Kearns-Sayre Syndrome
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Elizabeth Dewitt is a Pediatric Cardiologist practicing medicine in Boston, Massachusetts. Dr. Dewitt is rated as an Advanced provider by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 54 other conditions, according to our data. Her clinical expertise encompasses Heart Block, Wolff-Parkinson-White Syndrome, Congenital Heart Block, Arrhythmias, and Cardiac Ablation.

    Advanced in Kearns-Sayre Syndrome
    Endocrinology
    Advanced in Kearns-Sayre Syndrome
    Endocrinology

    Baystate Pharmacy

    50 Wason Ave, 
    Springfield, MA 
    Languages Spoken:
    English

    Charlotte Boney is an Endocrinologist practicing medicine in Springfield, Massachusetts. Dr. Boney is rated as an Advanced provider by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Kearns-Sayre Syndrome, Diabetic Ketoacidosis, Growth Hormone Deficiency (GHD), and Short Stature (Growth Disorders).

    Learn about our expert tiers
    Experienced in Kearns-Sayre Syndrome
    Cardiac Electrophysiology
    Experienced in Kearns-Sayre Syndrome
    Cardiac Electrophysiology

    CVI - Cardiovascular Clinic

    330 Brookline Avenue, Shapiro 7, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Peter Zimetbaum is a Cardiac Electrophysiologist practicing medicine in Boston, Massachusetts. Dr. Zimetbaum is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Atrial Fibrillation, Arrhythmias, Cardiomyopathy, Pacemaker Implantation, and Cardiac Ablation. Dr. Zimetbaum is board certified in American Board Of Internal Medicine.

    Experienced in Kearns-Sayre Syndrome
    Experienced in Kearns-Sayre Syndrome

    Boston University Medical Center

    88 East Newton St, 
    Boston,, MA 
    Languages Spoken:
    English

    Wilson Colucci is a Cardiologist practicing medicine in Boston,, Massachusetts. Dr. Colucci is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Metabolic Syndrome, High Cholesterol, Cardiomyopathy, and Heart Failure.

    Advanced in Kearns-Sayre Syndrome
    Pediatric Neurology
    Advanced in Kearns-Sayre Syndrome
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Irina Anselm is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Anselm is rated as an Advanced provider by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses X-Linked Creatine Deficiency, Kearns-Sayre Syndrome, Mitochondrial Neurogastrointestinal Encephalopathy Disease, and MELAS Syndrome.

    Advanced in Kearns-Sayre Syndrome
    Pediatrics
    Advanced in Kearns-Sayre Syndrome
    Pediatrics

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Anne Fulton is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Fulton is rated as an Advanced provider by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 46 other conditions, according to our data. Her clinical expertise encompasses Retinopathy of Prematurity, X-Linked Congenital Stationary Night Blindness, Retinopathy Pigmentary Mental Retardation, and Stargardt Macular Degeneration.

    Advanced in Kearns-Sayre Syndrome
    Internal Medicine
    Advanced in Kearns-Sayre Syndrome
    Internal Medicine

    CVS Pharmacy

    1575 Blue Hill Ave, 
    Mattapan, MA 
    Languages Spoken:
    English

    Robert Taylor is a primary care provider, practicing in Internal Medicine in Mattapan, Massachusetts. Dr. Taylor is rated as an Advanced provider by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Progressive External Ophthalmoplegia, MELAS Syndrome, Lactic Acidosis, Cytochrome C Oxidase Deficiency, and Tissue Biopsy.

    Advanced in Kearns-Sayre Syndrome
    Medical Genetics
    Advanced in Kearns-Sayre Syndrome
    Medical Genetics

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Lance Rodan is a Medical Genetics provider practicing medicine in Boston, Massachusetts. Dr. Rodan is rated as an Advanced provider by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 172 other conditions, according to our data. His clinical expertise encompasses Polymicrogyria, Hennekam Syndrome, Increased Head Circumference, and Cortical Dysplasia.

    Experienced in Kearns-Sayre Syndrome
    Family Medicine
    Experienced in Kearns-Sayre Syndrome
    Family Medicine

    Gardner Family Medicine Inc.

    57 City Hall Ave, 
    Gardner, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Jennifer Ryan is a primary care provider, practicing in Family Medicine in Gardner, Massachusetts. Dr. Ryan is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Vertigo, Progressive External Ophthalmoplegia, Chronic Obstructive Pulmonary Disease (COPD), and Lung Metastases.

    Experienced in Kearns-Sayre Syndrome
    Ophthalmology
    Experienced in Kearns-Sayre Syndrome
    Ophthalmology

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Miriam Ehrenberg is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Ehrenberg is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Usher Syndrome, Brown Syndrome, and Late-Onset Retinal Degeneration.

    Experienced in Kearns-Sayre Syndrome
    Ophthalmology
    Experienced in Kearns-Sayre Syndrome
    Ophthalmology

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Michael Nguyen is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. His clinical expertise encompasses Horner Syndrome, Kearns-Sayre Syndrome, Progressive External Ophthalmoplegia, and Incontinentia Pigmenti.

    Experienced in Kearns-Sayre Syndrome
    Experienced in Kearns-Sayre Syndrome

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Alexandra Elliott is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Elliott is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Coloboma, Blocked Tear Duct, Strabismus, and Horner Syndrome.

    Experienced in Kearns-Sayre Syndrome
    Pediatric Otolaryngology
    Experienced in Kearns-Sayre Syndrome
    Pediatric Otolaryngology

    Department Of Otolaryngology And Communication Enhancement

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Margaret Kenna is a Pediatric Otolaryngologist practicing medicine in Boston, Massachusetts. Dr. Kenna is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Infant Hearing Loss, Hearing Loss, Familial Deafness, Adenoidectomy, and Myringotomy.

    Experienced in Kearns-Sayre Syndrome
    Medical Genetics | Pediatrics
    Experienced in Kearns-Sayre Syndrome
    Medical Genetics | Pediatrics
    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Wendy Chung is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Chung is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 54 other conditions, according to our data. Her clinical expertise encompasses Early Infantile Epileptic Encephalopathy, Hypotonia, HNRNPH2-Related Disorder, and Hernia. Dr. Chung is currently accepting new patients.

    Experienced in Kearns-Sayre Syndrome
    Experienced in Kearns-Sayre Syndrome

    Medical Infusion Center In Charles River Plaza

    165 Cambridge St Fl 8, 
    Boston, MA 
    Languages Spoken:
    English

    Paloma Gonzalez is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Gonzalez is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Experienced in Kearns-Sayre Syndrome
    Medical Genetics
    Experienced in Kearns-Sayre Syndrome
    Medical Genetics
    840 Memorial Dr, Suite 101, 
    Cambridge, MA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Jeff Milunsky is a Medical Genetics provider practicing medicine in Cambridge, Massachusetts. Dr. Milunsky is rated as an Experienced provider by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Branchio-Oculo-Facial Syndrome (BOFS), Branchiootorenal Syndrome, Micrognathia, and Coffin-Siris Syndrome. Dr. Milunsky is currently accepting new patients.

    Showing 1-17 of 17

    Last Updated: 04/28/2026

    What is the definition of Kearns-Sayre Syndrome?

    Kearns-Sayre syndrome is a condition that affects many parts of the body, especially the eyes. The features of Kearns-Sayre syndrome usually appear before age 20, and the condition is diagnosed by a few characteristic signs and symptoms. People with Kearns-Sayre syndrome have progressive external ophthalmoplegia, which is weakness or paralysis of the eye muscles that impairs eye movement and causes drooping eyelids (ptosis). Affected individuals also have an eye condition called pigmentary retinopathy, which results from breakdown (degeneration) of the light-sensing tissue at the back of the eye (the retina) that gives it a speckled and streaked appearance. The retinopathy may cause loss of vision. In addition, people with Kearns-Sayre syndrome have at least one of the following signs or symptoms: abnormalities of the electrical signals that control the heartbeat (cardiac conduction defects), problems with coordination and balance that cause unsteadiness while walking (ataxia), or abnormally high levels of protein in the fluid that surrounds and protects the brain and spinal cord (the cerebrospinal fluid or CSF).

    When should I see a Kearns-Sayre Syndrome doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Kearns-Sayre Syndrome doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Kearns-Sayre Syndrome doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Kearns-Sayre Syndrome doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Kearns-Sayre Syndrome doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Kearns-Sayre Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Kearns-Sayre Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Kearns-Sayre Syndrome doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Kearns-Sayre Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Kearns-Sayre Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Kearns-Sayre Syndrome doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Kearns-Sayre Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Kearns-Sayre Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Kearns-Sayre Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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