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    Last Updated: 01/09/2026

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    MediFind found 6 doctor with experience in Leber Congenital Amaurosis near Lower Saxony, DE. Of these, 6 are Experienced.

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    6 providers found
      Experienced in Leber Congenital Amaurosis

      Karl-wilhelm Koch
      Experienced in Leber Congenital Amaurosis

      Karl-wilhelm Koch
      Carl Von Ossietzky Str. 9-11, 
      Oldenburg, NI, DE 

      Karl-wilhelm Koch practices in Oldenburg, Germany. Koch is rated as an Experienced expert by MediFind in the treatment of Leber Congenital Amaurosis. Their top areas of expertise are Leber Congenital Amaurosis, Cone-Rod Dystrophy, Late-Onset Retinal Degeneration, and Retinitis Pigmentosa.

      Experienced in Leber Congenital Amaurosis

      Ulrike Bienhold-Janssen
      Experienced in Leber Congenital Amaurosis

      Ulrike Bienhold-Janssen
      Carl Von Ossietzky Str. 9-11, 
      Oldenburg, NI, DE 

      Ulrike Bienhold-Janssen practices in Oldenburg, Germany. Ms. Bienhold-Janssen is rated as an Experienced expert by MediFind in the treatment of Leber Congenital Amaurosis. Her top areas of expertise are Retinopathy Pigmentary Mental Retardation, Leber Congenital Amaurosis, Ganglion Cyst, and Late-Onset Retinal Degeneration.

      Experienced in Leber Congenital Amaurosis

      Carsten Framme
      Experienced in Leber Congenital Amaurosis

      Carsten Framme
      Carl Neuberg Street 1, 
      Hannover, NI, DE 

      Carsten Framme practices in Hannover, Germany. Mr. Framme is rated as an Experienced expert by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Retinal Vein Occlusion, Vitrectomy, and Trabeculectomy.

      Learn about our expert tiers
      Experienced in Leber Congenital Amaurosis

      John Neidhardt
      Experienced in Leber Congenital Amaurosis

      John Neidhardt
      Oldenburg, NI, DE 

      John Neidhardt practices in Oldenburg, Germany. Mr. Neidhardt is rated as an Experienced expert by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, and Hartsfield Syndrome.

      Experienced in Leber Congenital Amaurosis

      Karl-wilhelm Koch
      Experienced in Leber Congenital Amaurosis

      Karl-wilhelm Koch
      Carl Von Ossietzky Str. 9-11, 
      Oldenburg, NI, DE 

      Karl-wilhelm Koch practices in Oldenburg, Germany. Koch is rated as an Experienced expert by MediFind in the treatment of Leber Congenital Amaurosis. Their top area of expertise is Leber Congenital Amaurosis.

      Experienced in Leber Congenital Amaurosis

      Christiane Landsberg-Richter
      Experienced in Leber Congenital Amaurosis

      Christiane Landsberg-Richter
      Oldenburg, NI, DE 

      Christiane Landsberg-Richter practices in Oldenburg, Germany. Ms. Landsberg-Richter is rated as an Experienced expert by MediFind in the treatment of Leber Congenital Amaurosis. Her top areas of expertise are Multiple System Atrophy, Familial Dysautonomia, Corticobasal Degeneration, and Leber Congenital Amaurosis.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-6 of 6

      Last Updated: 01/09/2026

      What is the definition of Leber Congenital Amaurosis?

      Leber congenital amaurosis (LCA) is an eye disorder that primarily affects the retina. People with this condition typically have severe visual impairment beginning in infancy. Other features include photophobia, involuntary movements of the eyes (nystagmus), and extreme farsightedness. The pupils also do not react normally to light. Additionally, the cornea may be cone-shaped and abnormally thin (keratoconus). Franceschetti's oculo-digital sign is characteristic of Leber congenital amaurosis. This sign consists of poking, pressing, and rubbing the eyes with a knuckle or finger. Different subtypes have been described. The different subtypes are caused by genetic changes in different genes. Some of these subtypes are also distinguished by their patterns of vision loss and related eye abnormalities.

      When should I see a Leber Congenital Amaurosis doctor in Lower Saxony, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leber Congenital Amaurosis doctor in Lower Saxony, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Leber Congenital Amaurosis doctor in Lower Saxony, DE?

      You can find a Leber Congenital Amaurosis doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Leber Congenital Amaurosis doctors in Lower Saxony, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leber Congenital Amaurosis doctors in Lower Saxony, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leber Congenital Amaurosis doctor in Lower Saxony, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leber Congenital Amaurosis doctor search results page. 

      Why is it important to get a second opinion from a different Leber Congenital Amaurosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leber Congenital Amaurosis doctor in Lower Saxony, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leber Congenital Amaurosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leber Congenital Amaurosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leber Congenital Amaurosis doctors in Lower Saxony, DE?

      Look for the filter feature on the left side of the Leber Congenital Amaurosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leber Congenital Amaurosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Leber Congenital Amaurosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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