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    Last Updated: 10/30/2025

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    MediFind found 67 doctor with experience in Leber Congenital Amaurosis near Michigan, US. Of these, 56 are Experienced, 8 are Advanced and 3 are Distinguished.

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    LocationClose
    67 providers found
      Experienced in Leber Congenital Amaurosis
      Ophthalmology
      Experienced in Leber Congenital Amaurosis
      Ophthalmology

      Henry Ford Health System

      6777 W Maple Rd, 
      West Bloomfield, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Nitin Kumar is an Ophthalmologist in West Bloomfield, Michigan. Dr. Kumar is rated as an Experienced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Diabetic Retinopathy, Retinal Vein Occlusion, Age-Related Macular Degeneration (ARMD), and Late-Onset Retinal Degeneration. Dr. Kumar is currently accepting new patients.

      Experienced in Leber Congenital Amaurosis
      Ophthalmology
      Experienced in Leber Congenital Amaurosis
      Ophthalmology

      Henry Ford Health System

      2799 W Grand Blvd, 
      Detroit, MI 
      Languages Spoken:
      English, Marathi
      Accepting New Patients

      Uday Desai is an Ophthalmologist in Detroit, Michigan. Dr. Desai is rated as an Experienced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Retinal Vein Occlusion, Retinal Detachment, Diabetic Retinopathy, Vitrectomy, and Iridectomy. Dr. Desai is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Leber Congenital Amaurosis
      Distinguished in Leber Congenital Amaurosis

      Regents Of The University Of Michigan

      1000 Wall St, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Kanishka Jayasundera is an Ophthalmologist in Ann Arbor, Michigan. Dr. Jayasundera is rated as a Distinguished provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Retinitis Pigmentosa, Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, and Usher Syndrome Type 2A. Dr. Jayasundera is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in Leber Congenital Amaurosis
      Ophthalmology
      Distinguished in Leber Congenital Amaurosis
      Ophthalmology

      Regents Of The University Of Michigan

      1000 Wall St, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Abigail Fahim is an Ophthalmologist in Ann Arbor, Michigan. Dr. Fahim is rated as a Distinguished provider by MediFind in the treatment of Leber Congenital Amaurosis. Her top areas of expertise are X-Linked Retinitis Pigmentosa (XLRP), Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, and Late-Onset Retinal Degeneration. Dr. Fahim is currently accepting new patients.

      Distinguished in Leber Congenital Amaurosis
      Ophthalmology
      Distinguished in Leber Congenital Amaurosis
      Ophthalmology

      Regents Of The University Of Michigan

      1000 Wall St, 
      Ann Arbor, MI 
      Languages Spoken:
      English, Turkish
      Accepting New Patients

      Cagri Besirli is an Ophthalmologist in Ann Arbor, Michigan. Dr. Besirli is rated as a Distinguished provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Retinal Detachment, Late-Onset Retinal Degeneration, Stickler Syndrome, Vitrectomy, and Trabeculectomy. Dr. Besirli is currently accepting new patients.

      Liliya S. Sutherland
      Advanced in Leber Congenital Amaurosis
      Advanced in Leber Congenital Amaurosis

      Retina Specialists Of Michigan - Grand Rapids

      5030 Cascade Road Southeast, 
      Grand Rapids, MI 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Liliya Sutherland is an Ophthalmologist in Grand Rapids, Michigan. Dr. Sutherland has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Leber Congenital Amaurosis. Her top areas of expertise are Late-Onset Retinal Degeneration, Usher Syndrome, Stargardt Macular Degeneration, and Cone Dystrophy. Dr. Sutherland is currently accepting new patients.

      Advanced in Leber Congenital Amaurosis
      Advanced in Leber Congenital Amaurosis
      1000 Wall St, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      John Heckenlively is an Ophthalmologist in Ann Arbor, Michigan. Dr. Heckenlively is rated as an Advanced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, and X-Linked Retinitis Pigmentosa (XLRP). Dr. Heckenlively is currently accepting new patients.

      Advanced in Leber Congenital Amaurosis
      Ophthalmology
      Advanced in Leber Congenital Amaurosis
      Ophthalmology

      Paragon Health P C

      1052 Gull Rd, 
      Kalamazoo, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Doe Iv is an Ophthalmologist in Kalamazoo, Michigan. Dr. Doe Iv is rated as an Advanced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Cataract, Glaucoma, Late-Onset Retinal Degeneration, and Diabetic Retinopathy. Dr. Doe Iv is currently accepting new patients.

      Advanced in Leber Congenital Amaurosis
      Ophthalmology
      Advanced in Leber Congenital Amaurosis
      Ophthalmology

      Retina Consultants Of Michigan

      29201 Telegraph Road, Suite 606, 
      Southfield, MI 
      Experience:
      26+ years
      Languages Spoken:
      English
      Accepting New Patients

      Michael Ober is an Ophthalmologist in Southfield, Michigan. Dr. Ober has been practicing medicine for over 26 years and is rated as an Advanced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Hyphema, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Vitrectomy, and Cataract Removal. Dr. Ober is currently accepting new patients.

      Advanced in Leber Congenital Amaurosis
      Ophthalmology
      Advanced in Leber Congenital Amaurosis
      Ophthalmology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Emily Eton is an Ophthalmologist in Ann Arbor, Michigan. Dr. Eton is rated as an Advanced provider by MediFind in the treatment of Leber Congenital Amaurosis. Her top areas of expertise are Retinal Detachment, Endophthalmitis, Late-Onset Retinal Degeneration, Vitrectomy, and Cataract Removal. Dr. Eton is currently accepting new patients.

      Advanced in Leber Congenital Amaurosis
      Advanced in Leber Congenital Amaurosis

      Lansing Ophthalmology, PC

      1005 Charlevoix Dr, Suite 200, 
      Grand Ledge, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Ahmed El-Sanhouri is an Ophthalmologist in Grand Ledge, Michigan. Dr. El-Sanhouri is rated as an Advanced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Retinal Artery Occlusion, Diabetic Retinopathy, Retinal Vein Occlusion, and Late-Onset Retinal Degeneration. Dr. El-Sanhouri is currently accepting new patients.

      Advanced in Leber Congenital Amaurosis
      Advanced in Leber Congenital Amaurosis

      Mid Michigan Eye Care Center PC

      850 W N St, Suite 100, 
      Jackson, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Carmelina Gordon is an Ophthalmologist in Jackson, Michigan. Dr. Gordon is rated as an Advanced provider by MediFind in the treatment of Leber Congenital Amaurosis. Her top areas of expertise are Diabetic Retinopathy, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Retinal Artery Occlusion, and Vitrectomy. Dr. Gordon is currently accepting new patients.

      Advanced in Leber Congenital Amaurosis
      Ophthalmology
      Advanced in Leber Congenital Amaurosis
      Ophthalmology

      Regents Of The University Of Michigan

      3181 E Grand Blanc Rd, 
      Grand Blanc, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Huvard is an Ophthalmologist in Grand Blanc, Michigan. Dr. Huvard is rated as an Advanced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Retinal Detachment, Diabetic Retinopathy, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), and Vitrectomy. Dr. Huvard is currently accepting new patients.

      Ghaleb F. Hatem
      Experienced in Leber Congenital Amaurosis
      Ophthalmology
      Experienced in Leber Congenital Amaurosis
      Ophthalmology

      Ghaleb F Hatem MD

      4655 South Telegraph Road, 
      Dearborn Heights, MI 
      Experience:
      53+ years
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Ghaleb Hatem is an Ophthalmologist in Dearborn Heights, Michigan. Dr. Hatem has been practicing medicine for over 53 years and is rated as an Experienced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Diabetic Retinopathy, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, and Retinal Detachment. Dr. Hatem is currently accepting new patients.

      Alaina L. Kronenberg
      Experienced in Leber Congenital Amaurosis
      Experienced in Leber Congenital Amaurosis

      Eye Surgery Institute

      15212 Michigan Avenue, 
      Dearborn, MI 
      Experience:
      25+ years
      Languages Spoken:
      English
      Accepting New Patients

      Alaina Kronenberg is an Ophthalmologist in Dearborn, Michigan. Dr. Kronenberg has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of Leber Congenital Amaurosis. Her top areas of expertise are Gyrate Atrophy of the Choroid and Retina, Allergic Conjunctivitis, Glaucoma, and Conjunctivitis (Pink Eye). Dr. Kronenberg is currently accepting new patients.

      Patrick J. Droste
      Experienced in Leber Congenital Amaurosis
      Experienced in Leber Congenital Amaurosis

      Pediatric Ophthalmology PC - Cascade Road

      5050 Cascade Road Southeast, 
      Grand Rapids, MI 
      Experience:
      45+ years
      Languages Spoken:
      English
      Accepting New Patients

      Patrick Droste is a Pediatrics provider in Grand Rapids, Michigan. Dr. Droste has been practicing medicine for over 45 years and is rated as an Experienced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Strabismus, Esotropia, Amblyopia, and Brown Syndrome. Dr. Droste is currently accepting new patients.

      Susan M. Malinowski
      Experienced in Leber Congenital Amaurosis
      Experienced in Leber Congenital Amaurosis

      Retina Consultants Of Michigan

      29201 Telegraph Road, Suite 606, 
      Southfield, MI 
      Experience:
      37+ years
      Languages Spoken:
      English, Polish
      Accepting New Patients

      Susan Malinowski is an Ophthalmologist in Southfield, Michigan. Dr. Malinowski has been practicing medicine for over 37 years and is rated as an Experienced provider by MediFind in the treatment of Leber Congenital Amaurosis. Her top areas of expertise are Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Diabetic Retinopathy, and Central Serous Chorioretinopathy. Dr. Malinowski is currently accepting new patients.

      Benjamin P. Nicholson
      Experienced in Leber Congenital Amaurosis
      Experienced in Leber Congenital Amaurosis

      Great Lakes Eye Care

      2848 Niles Road, 
      Saint Joseph, MI 
      Experience:
      18+ years
      Languages Spoken:
      English
      Accepting New Patients

      Benjamin Nicholson is an Ophthalmologist in Saint Joseph, Michigan. Dr. Nicholson has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Uveitis, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Diabetic Retinopathy, and Vitrectomy. Dr. Nicholson is currently accepting new patients.

      Scott J. Westhouse
      Experienced in Leber Congenital Amaurosis
      Experienced in Leber Congenital Amaurosis

      Retina Specialists Of Michigan - Grand Rapids

      5030 Cascade Road Southeast, 
      Grand Rapids, MI 
      Experience:
      21+ years
      Languages Spoken:
      English
      Accepting New Patients

      Scott Westhouse is an Ophthalmologist in Grand Rapids, Michigan. Dr. Westhouse has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Diabetic Retinopathy, Retinal Artery Occlusion, Retinal Vein Occlusion, and Late-Onset Retinal Degeneration. Dr. Westhouse is currently accepting new patients.

      Stephen M. Tait
      Experienced in Leber Congenital Amaurosis
      Ophthalmology
      Experienced in Leber Congenital Amaurosis
      Ophthalmology

      Clark Tait Eye Center

      7329 Grand River Road, 
      Brighton, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Stephen Tait is an Ophthalmologist in Brighton, Michigan. Dr. Tait is rated as an Experienced provider by MediFind in the treatment of Leber Congenital Amaurosis. His top areas of expertise are Optic Nerve Atrophy, Optic Atrophy Type 1, Cataract, and Interstitial Keratitis. Dr. Tait is currently accepting new patients.

      Showing 1-20 of 67

      Last Updated: 10/30/2025

      What is the definition of Leber Congenital Amaurosis?

      Leber congenital amaurosis (LCA) is an eye disorder that primarily affects the retina. People with this condition typically have severe visual impairment beginning in infancy. Other features include photophobia, involuntary movements of the eyes (nystagmus), and extreme farsightedness. The pupils also do not react normally to light. Additionally, the cornea may be cone-shaped and abnormally thin (keratoconus). Franceschetti's oculo-digital sign is characteristic of Leber congenital amaurosis. This sign consists of poking, pressing, and rubbing the eyes with a knuckle or finger. Different subtypes have been described. The different subtypes are caused by genetic changes in different genes. Some of these subtypes are also distinguished by their patterns of vision loss and related eye abnormalities.

      When should I see a Leber Congenital Amaurosis doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leber Congenital Amaurosis doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Leber Congenital Amaurosis doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leber Congenital Amaurosis doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leber Congenital Amaurosis doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leber Congenital Amaurosis doctor search results page. 

      Why is it important to get a second opinion from a different Leber Congenital Amaurosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leber Congenital Amaurosis doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leber Congenital Amaurosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leber Congenital Amaurosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leber Congenital Amaurosis doctors in Michigan, US?

      Look for the filter feature on the left side of the Leber Congenital Amaurosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leber Congenital Amaurosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Leber Congenital Amaurosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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