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Learn About Legius Syndrome

Condition 101 content is not available at this time, but we are continually updating the site. Please check back.

However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.

Who are the top Legius Syndrome Local Doctors?
Elite in Legius Syndrome
Elite in Legius Syndrome

KU Leuven

Leuven, VLG, BE 

Eric Legius practices in Leuven, Belgium. Mr. Legius is rated as an Elite expert by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Legius Syndrome, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and RASopathies.

Elite in Legius Syndrome
Medical Genetics | Pediatrics
Elite in Legius Syndrome
Medical Genetics | Pediatrics
2825 50th St Rm 2284, Uc Davis Mind Institute, 
Sacramento, CA 
Languages Spoken:
English

Katherine Rauen is a Medical Genetics specialist and a Pediatrics provider in Sacramento, California. Dr. Rauen is rated as an Elite provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are RASopathies, Costello Syndrome, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

 
 
 
 
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Advanced in Legius Syndrome
Advanced in Legius Syndrome

Loyola University Medical Center

2160 S 1st Ave, 
Maywood, IL 
Languages Spoken:
English
Accepting New Patients

Vikram Prabhu is a Neurosurgery provider in Maywood, Illinois. Dr. Prabhu is rated as an Advanced provider by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Meningioma, Familial Porencephaly, Hydrocephalus, Awake Craniotomy, and Osteotomy. Dr. Prabhu is currently accepting new patients.

What are the latest Legius Syndrome Clinical Trials?
Clinical, Genetic, and Epidemiologic Study of Children and Adults With RASopathies

Background: RASopathies are a group of conditions caused by a genetic change. People with a RASopathy may have developmental issues, cognitive disability, poor growth, and birth defects. They may also have an increased risk for developing cancer. Researchers want to learn more.

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Acceptance and Commitment Therapy for Caregivers of Children With a RASopathy: An Internal Pilot Feasibility Study and Follow-up Phase III Randomized Controlled Trial

Background: RASopathies are a group of genetic diseases that affect a child s development. They cause physical, cognitive, and behavioral symptoms. Caring for a child with a RASopathy can be stressful. Acceptance and Commitment Therapy (ACT) is a therapy that helps people become more aware and accepting of difficult thoughts and feelings. ACT has been found to be helpful for parents with high parenting stress...