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    Last Updated: 01/09/2026

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    MediFind found 25 doctor with experience in Leigh Syndrome near North Rhine-Westphalia, DE. Of these, 20 are Experienced, 3 are Advanced and 2 are Distinguished.

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    25 providers found
      Distinguished in Leigh Syndrome

      Felix Distelmaier
      Distinguished in Leigh Syndrome

      Felix Distelmaier
      Heine, NW, DE 

      Felix Distelmaier practices in Heine, Germany. Mr. Distelmaier is rated as a Distinguished expert by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Leigh Syndrome, Vici Syndrome, Hypotonia, Lactic Acidosis, and Gastrostomy.

      Distinguished in Leigh Syndrome

      Alessandro Prigione
      Distinguished in Leigh Syndrome

      Alessandro Prigione
      Duesseldorf, NW, DE 

      Alessandro Prigione practices in Duesseldorf, Germany. Mr. Prigione is rated as a Distinguished expert by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Maternally Inherited Leigh Syndrome, Leigh Syndrome, Huntington Disease, and Mitochondrial Complex V Deficiency.

      Ertan Mayatepek
      Advanced in Leigh Syndrome

      Ertan Mayatepek
      Advanced in Leigh Syndrome

      Ertan Mayatepek
      Duesseldorf, NW, DE 

      Ertan Mayatepek practices in Duesseldorf, Germany. Mr. Mayatepek is rated as an Advanced expert by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Newborn Low Blood Sugar, Low Blood Sugar, Congenital Hyperinsulinism, Liver Transplant, and Ileostomy.

      Learn about our expert tiers
      Advanced in Leigh Syndrome

      Fabian Baertling
      Advanced in Leigh Syndrome

      Fabian Baertling
      Duesseldorf, NW, DE 

      Fabian Baertling practices in Duesseldorf, Germany. Mr. Baertling is rated as an Advanced expert by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Mitochondrial Complex 1 Deficiency, Cytochrome C Oxidase Deficiency, Leigh Syndrome, and Lactic Acidosis.

      Advanced in Leigh Syndrome

      Annika Zink
      Advanced in Leigh Syndrome

      Annika Zink
      Duesseldorf, NW, DE 

      Annika Zink practices in Duesseldorf, Germany. Ms. Zink is rated as an Advanced expert by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Maternally Inherited Leigh Syndrome, Leigh Syndrome, Allan-Herndon-Dudley Syndrome, and Hypotonia.

      Nils-goran G. Larsson
      Experienced in Leigh Syndrome

      Nils-goran G. Larsson
      Experienced in Leigh Syndrome

      Nils-goran G. Larsson
      Joseph Stelzmann Str. 9b, 
      Koeln, NW, DE 

      Nils-goran Larsson practices in Koeln, Germany. Mr. Larsson is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Cytochrome C Oxidase Deficiency, Progressive External Ophthalmoplegia, Progeria, and Leigh Syndrome.

      Elena I. Rugarli
      Experienced in Leigh Syndrome

      Elena I. Rugarli
      Experienced in Leigh Syndrome

      Elena I. Rugarli
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Elena Rugarli practices in Koeln, Germany. Ms. Rugarli is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Spinocerebellar Ataxia Type 28, Spastic Paraplegia Type 7, Spastic Paraplegia Type 2, and Spastic Paraplegia Type 5A.

      Experienced in Leigh Syndrome

      Dirk Klee
      Experienced in Leigh Syndrome

      Dirk Klee
      Duesseldorf, NW, DE 

      Dirk Klee practices in Duesseldorf, Germany. Mr. Klee is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Kienbock's Disease, Lactic Acidosis, Isovaleric Acidemia, and Newborn Low Blood Sugar.

      Experienced in Leigh Syndrome

      Giulia Rossetti
      Experienced in Leigh Syndrome

      Giulia Rossetti
      Aachen, NW, DE 

      Giulia Rossetti practices in Aachen, Germany. Ms. Rossetti is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Creutzfeldt-Jakob Disease, Cytochrome C Oxidase Deficiency, Leigh Syndrome, and Wolfram Syndrome.

      Experienced in Leigh Syndrome

      Cornelia Kornblum
      Experienced in Leigh Syndrome

      Cornelia Kornblum
      Bonn, NW, DE 

      Cornelia Kornblum practices in Bonn, Germany. Ms. Kornblum is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Cramp-Fasciculation Syndrome, Pompe Disease, Myotonic Dystrophy, and Myotonic Dystrophy Type 2.

      Experienced in Leigh Syndrome

      Juliane Munch
      Experienced in Leigh Syndrome

      Juliane Munch
      Duesseldorf, NW, DE 

      Juliane Munch practices in Duesseldorf, Germany. Ms. Munch is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Leigh Syndrome, Lactic Acidosis, Multiple System Atrophy, and Hypotonia.

      Experienced in Leigh Syndrome

      Barbara Hildebrandt
      Experienced in Leigh Syndrome

      Barbara Hildebrandt
      Heine, NW, DE 

      Barbara Hildebrandt practices in Heine, Germany. Ms. Hildebrandt is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Myelodysplastic Syndrome (MDS), Chromosome 7p Deletion, Acute Myeloid Leukemia (AML), and Chronic Myelomonocytic Leukemia (CMML).

      Experienced in Leigh Syndrome

      Matthias Begemann
      Experienced in Leigh Syndrome

      Matthias Begemann
      Aachen, NW, DE 

      Matthias Begemann practices in Aachen, Germany. Mr. Begemann is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Russell-Silver Dwarfism, Chromosome 6 Uniparental Disomy, Macroglossia, Orchiectomy, and Bone Marrow Transplant.

      Experienced in Leigh Syndrome

      Natascia Ventura
      Experienced in Leigh Syndrome

      Natascia Ventura
      Duesseldorf, NW, DE 

      Natascia Ventura practices in Duesseldorf, Germany. Ventura is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. Their top areas of expertise are Neurotoxicity Syndromes, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Cockayne Syndrome.

      Experienced in Leigh Syndrome

      Mert Karakaya
      Experienced in Leigh Syndrome

      Mert Karakaya
      Kerpener Str. 34, 
      Koeln, NW, DE 

      Mert Karakaya practices in Koeln, Germany. Mr. Karakaya is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Primary Lateral Sclerosis, Arthrogryposis Multiplex Congenita Neurogenic Type, Infantile Axonal Neuropathy, and Freeman-Sheldon Syndrome.

      Experienced in Leigh Syndrome

      Dimah Hasan
      Experienced in Leigh Syndrome

      Dimah Hasan
      Aachen, NW, DE 

      Dimah Hasan practices in Aachen, Germany. Hasan is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. Their top areas of expertise are Paraneoplastic Cerebellar Degeneration, Empyema, Cerebral Arteriovenous Malformation, Stroke, and Thrombectomy.

      Experienced in Leigh Syndrome

      Susanne Brodesser
      Experienced in Leigh Syndrome

      Susanne Brodesser
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Susanne Brodesser practices in Koeln, Germany. Ms. Brodesser is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Spinocerebellar Ataxia Type 28, Primary Carnitine Deficiency, Obesity, and Chylous Ascites.

      Experienced in Leigh Syndrome

      Esther Barth
      Experienced in Leigh Syndrome

      Esther Barth
      Koeln, NW, DE 

      Esther Barth practices in Koeln, Germany. Ms. Barth is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Spinocerebellar Ataxia Type 28, Spastic Paraplegia Type 2, Spastic Paraplegia Type 7, and Spasticity.

      Experienced in Leigh Syndrome

      Marta Zaninello
      Experienced in Leigh Syndrome

      Marta Zaninello
      Koeln, NW, DE 

      Marta Zaninello practices in Koeln, Germany. Ms. Zaninello is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Optic Nerve Atrophy, Peripheral Neuropathy, and Leigh Syndrome.

      Experienced in Leigh Syndrome

      Sonja Kottek-Trepels
      Experienced in Leigh Syndrome

      Sonja Kottek-Trepels
      Aachen, NW, DE 

      Sonja Kottek-Trepels practices in Aachen, Germany. Ms. Kottek-Trepels is rated as an Experienced expert by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Factor 10 Deficiency, Cor Pulmonale, Premature Infant, and Leigh Syndrome.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 25

      Last Updated: 01/09/2026

      What is the definition of Leigh Syndrome?

      Leigh syndrome is a severe neurological disorder that usually becomes apparent in the first year of life. This condition is characterized by progressive loss of mental and movement abilities (psychomotor regression) and typically results in death within two to three years, usually due to respiratory failure. A small number of individuals do not develop symptoms until adulthood or have symptoms that worsen more slowly.

      When should I see a Leigh Syndrome doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leigh Syndrome doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Leigh Syndrome doctor in North Rhine-Westphalia, DE?

      You can find a Leigh Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Leigh Syndrome doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leigh Syndrome doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leigh Syndrome doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leigh Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Leigh Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leigh Syndrome doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leigh Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leigh Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leigh Syndrome doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the Leigh Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leigh Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Leigh Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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