The 20 Best Leigh Syndrome Doctors Near Me in Arizona, US

Find the Top Leigh Syndrome Experts and Specialists

The 20 Best Leigh Syndrome Doctors in Arizona, US

Last Updated: 02/22/2026

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MediFind found 12 doctor with experience in Leigh Syndrome near Arizona, US. Of these, 12 are Experienced.

Location
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12 providers found
    Theresa A. Grebe
    Experienced in Leigh Syndrome
    Experienced in Leigh Syndrome

    Phoenix Children's Hospital - Genetics

    1919 E Thomas Rd, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients

    Theresa Grebe is a Pediatrics provider in Phoenix, Arizona. Dr. Grebe is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Chromosome 6 Uniparental Disomy, Temple Syndrome, Hypotonia, and Congenital Bowing of Long Bones. Dr. Grebe is currently accepting new patients.

    Mansour Mathkour
    Experienced in Leigh Syndrome
    General Surgery | Neurosurgery
    Experienced in Leigh Syndrome
    General Surgery | Neurosurgery

    Banner - University Medicine Multispecialty Services Clinic

    265 West Ina Road, 
    Tucson, AZ 
    Languages Spoken:
    English, Arabic
    Accepting New Patients

    I’m passionate about advancing spine care through surgical innovation, outcomes research, and medical education, and I remain actively engaged in mentorship and clinical teaching. My clinical interests span minimally invasive spine surgery, complex spine reconstruction, spinal oncology, and deformity correction, with a strong focus on personalized, evidence-based care.Outside of the operating room, I enjoy spending time with my family, exploring the outdoors, and supporting health outreach programs. I’m also involved in global neurosurgery initiatives aimed at improving access to advanced spine care in underserved regions. Fluent in English and Arabic, I strive to provide inclusive, culturally attuned care that respects the backgrounds and needs of every patient I serve. Dr. Mathkour is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Chiari Malformation Type 2, Chiari Malformation, Split Spinal Cord Malformation, Deep Brain Stimulation, and Posterior Fossa Decompression.

    Vinodh Narayanan
    Experienced in Leigh Syndrome
    Pediatric Neurology | Pediatrics
    Experienced in Leigh Syndrome
    Pediatric Neurology | Pediatrics

    Arizona Pediatric Neurology & Neurogenetics Associates, PLLC

    3330 N 2nd St, Ste 402, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Vinodh Narayanan is a Pediatrics specialist and a Pediatric Neurologist in Phoenix, Arizona. Dr. Narayanan is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Rett Syndrome, Microcephaly, Tuberous Sclerosis Complex, and Tuberous Sclerosis. Dr. Narayanan is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Leigh Syndrome
    Experienced in Leigh Syndrome

    Mayo Clinic Building Scottsdale

    13400 E Shea Blvd, 
    Scottsdale, AZ 
    Languages Spoken:
    English

    Marcus Callister is a Neurologist in Scottsdale, Arizona. Dr. Callister is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Conversion Disorder, Drug Induced Dyskinesia, Leigh Syndrome, West Nile Virus Infection, and Deep Brain Stimulation.

    Experienced in Leigh Syndrome
    Pediatric Gastroenterology | Pediatrics
    Experienced in Leigh Syndrome
    Pediatric Gastroenterology | Pediatrics

    PCH Gastroenterology

    1919 E Thomas Rd, 
    Phoenix, AZ 
    Languages Spoken:
    English, German, Turkish
    Accepting New Patients

    Ozlem Bulut is a Pediatric Gastroenterologist and a Pediatrics provider in Phoenix, Arizona. Dr. Bulut is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Delayed Growth, Malnutrition, Biliary Hypoplasia, and Roseola. Dr. Bulut is currently accepting new patients.

    Experienced in Leigh Syndrome
    Pediatric Cardiology
    Experienced in Leigh Syndrome
    Pediatric Cardiology

    Dignity Health Medical Group Maternal Fetal Medicine - St Joseph's

    500 W Thomas Rd Ste 700, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Offers Telehealth

    Neda Mulla is a Pediatric Cardiologist in Phoenix, Arizona. Dr. Mulla is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are X-Linked Cardiac Valvular Dysplasia, Cardiac Diverticulum, Congenital Heart Disease (CHD), and Pulmonary Artery Agenesis.

    Rebecca Egbert
    Experienced in Leigh Syndrome
    Experienced in Leigh Syndrome

    Office

    5155 E Farness Dr Ste 111C, 
    Tucson, AZ 
    Languages Spoken:
    English

    Rebecca Egbert is a Pediatrics provider in Tucson, Arizona. Dr. Egbert is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Leigh Syndrome, Maternally Inherited Leigh Syndrome, Agyria Pachygyria Polymicrogyria, and Bilateral Perisylvian Polymicrogyria.

    Experienced in Leigh Syndrome
    Pediatric Neurology
    Experienced in Leigh Syndrome
    Pediatric Neurology

    Phoenix Children's

    1919 E Thomas Rd, 
    Phoenix, AZ 
    Languages Spoken:
    English

    Michael Kruer is a Pediatric Neurologist in Phoenix, Arizona. Dr. Kruer is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. His top areas of expertise are Cerebral Palsy, Spasticity, Drug Induced Dyskinesia, Hallervorden-Spatz Disease, and Deep Brain Stimulation.

    Experienced in Leigh Syndrome
    Pediatrics
    Experienced in Leigh Syndrome
    Pediatrics

    Office

    965 W Chandler Heights Rd, 
    Chandler, AZ 
    Languages Spoken:
    English
    Offers Telehealth

    Cheri Nason is a Pediatrics provider in Chandler, Arizona. Dr. Nason is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Obesity in Children, Delayed Growth, Maternally Inherited Leigh Syndrome, and Leigh Syndrome.

    Experienced in Leigh Syndrome
    Pediatrics | Medical Genetics
    Experienced in Leigh Syndrome
    Pediatrics | Medical Genetics
    1920 E Cambridge Ave Ste 201, 
    Phoenix, AZ 
    Languages Spoken:
    English, Hindi, Punjabi
    Accepting New Patients

    Shagun Kaur is a Pediatrics specialist and a Medical Genetics provider in Phoenix, Arizona. Dr. Kaur is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Classic Galactosemia, Galactosemia, Galactose Epimerase Deficiency, and Hydranencephaly. Dr. Kaur is currently accepting new patients.

    Experienced in Leigh Syndrome
    Medical Genetics | Pediatrics
    Experienced in Leigh Syndrome
    Medical Genetics | Pediatrics

    Phoenix Children's Hospital

    1919 E Thomas Rd, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients

    Jasmine Knoll is a Medical Genetics specialist and a Pediatrics provider in Phoenix, Arizona. Dr. Knoll is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Fabry Disease, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Multiple Sulfatase Deficiency. Dr. Knoll is currently accepting new patients.

    Experienced in Leigh Syndrome
    Pediatric Neurology
    Experienced in Leigh Syndrome
    Pediatric Neurology

    Phoenix Children's Medical Group

    6990 E Shea Blvd, 
    Scottsdale, AZ 
    Languages Spoken:
    English

    Randa Jarrar is a Pediatric Neurologist in Scottsdale, Arizona. Dr. Jarrar is rated as an Experienced provider by MediFind in the treatment of Leigh Syndrome. Her top areas of expertise are Seizures, Epilepsy, Epilepsy in Children, and West Syndrome.

    Showing 1-12 of 12

    Last Updated: 02/22/2026

    What is the definition of Leigh Syndrome?

    Leigh syndrome is a severe neurological disorder that usually becomes apparent in the first year of life. This condition is characterized by progressive loss of mental and movement abilities (psychomotor regression) and typically results in death within two to three years, usually due to respiratory failure. A small number of individuals do not develop symptoms until adulthood or have symptoms that worsen more slowly.

    When should I see a Leigh Syndrome doctor in Arizona, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Leigh Syndrome doctor in Arizona, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Leigh Syndrome doctors in Arizona, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Leigh Syndrome doctors in Arizona, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Leigh Syndrome doctor in Arizona, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leigh Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Leigh Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Leigh Syndrome doctor in Arizona, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Leigh Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Leigh Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Leigh Syndrome doctors in Arizona, US?

    Look for the filter feature on the left side of the Leigh Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Leigh Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Leigh Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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