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    Last Updated: 10/30/2025

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    MediFind found 9 doctor with experience in Lethal Congenital Contracture Syndrome near North Rhine-Westphalia, DE. Of these, 9 are Experienced.

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    9 providers found
      Experienced in Lethal Congenital Contracture Syndrome

      Ulrike Schmidt-Schara
      Experienced in Lethal Congenital Contracture Syndrome

      Ulrike Schmidt-Schara
      Essen, NW, DE 

      Ulrike Schmidt-Schara practices in Essen, Germany. Ms. Schmidt-Schara is rated as an Experienced expert by MediFind in the treatment of Lethal Congenital Contracture Syndrome. Her top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

      Experienced in Lethal Congenital Contracture Syndrome

      Heike Kolbel
      Experienced in Lethal Congenital Contracture Syndrome

      Heike Kolbel
      Essen, NW, DE 

      Heike Kolbel practices in Essen, Germany. Ms. Kolbel is rated as an Experienced expert by MediFind in the treatment of Lethal Congenital Contracture Syndrome. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy Type 2, and Thymectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Lethal Congenital Contracture Syndrome

      Felix Distelmaier
      Experienced in Lethal Congenital Contracture Syndrome

      Felix Distelmaier
      Duesseldorf, NW, DE 

      Felix Distelmaier practices in Duesseldorf, Germany. Mr. Distelmaier is rated as an Experienced expert by MediFind in the treatment of Lethal Congenital Contracture Syndrome. His top areas of expertise are Leigh Syndrome, Vici Syndrome, Mitochondrial Complex 1 Deficiency, Lactic Acidosis, and Gastrostomy.

      Learn about our expert tiers
      Experienced in Lethal Congenital Contracture Syndrome

      Andreas H. Roos
      Experienced in Lethal Congenital Contracture Syndrome

      Andreas H. Roos
      Otto Hahn Str. 6b, 
      Dortmund, NW, DE 

      Andreas Roos practices in Dortmund, Germany. Mr. Roos is rated as an Experienced expert by MediFind in the treatment of Lethal Congenital Contracture Syndrome. His top areas of expertise are Congenital Myasthenic Syndrome, Cramp-Fasciculation Syndrome, Primary Lateral Sclerosis, and Limb-Girdle Muscular Dystrophy.

      Experienced in Lethal Congenital Contracture Syndrome

      Stefanie Heimbach-Heilmann
      Experienced in Lethal Congenital Contracture Syndrome

      Stefanie Heimbach-Heilmann
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Stefanie Heimbach-Heilmann practices in Bonn, Germany. Ms. Heimbach-Heilmann is rated as an Experienced expert by MediFind in the treatment of Lethal Congenital Contracture Syndrome. Her top areas of expertise are Autosomal Recessive Hypotrichosis, Male Pattern Baldness, Alzheimer's Disease, and Cleft Lip and Palate.

      Experienced in Lethal Congenital Contracture Syndrome

      Sophia O. Peters
      Experienced in Lethal Congenital Contracture Syndrome

      Sophia O. Peters
      1Institute Of Human Genetics, Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Sophia Peters practices in Bonn, Germany. Ms. Peters is rated as an Experienced expert by MediFind in the treatment of Lethal Congenital Contracture Syndrome. Her top areas of expertise are Lacrimo-Auriculo-Dento-Digital Syndrome, Familial Adenomatous Polyposis, Cortical Dysplasia, and Increased Head Circumference.

      Experienced in Lethal Congenital Contracture Syndrome

      Hartmut P. Engels
      Experienced in Lethal Congenital Contracture Syndrome

      Hartmut P. Engels
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Hartmut Engels practices in Bonn, Germany. Engels is rated as an Experienced expert by MediFind in the treatment of Lethal Congenital Contracture Syndrome. Their top areas of expertise are Increased Head Circumference, Achalasia Microcephaly Syndrome, Microcephaly, and Cortical Dysplasia.

      Experienced in Lethal Congenital Contracture Syndrome

      Claudia Perne
      Experienced in Lethal Congenital Contracture Syndrome

      Claudia Perne
      Bonn, NW, DE 

      Claudia Perne practices in Bonn, Germany. Ms. Perne is rated as an Experienced expert by MediFind in the treatment of Lethal Congenital Contracture Syndrome. Her top areas of expertise are Lynch Syndrome, Familial Colorectal Cancer, Turcot Syndrome, Salpingo-Oophorectomy, and Oophorectomy.

      Experienced in Lethal Congenital Contracture Syndrome

      Kirsten Cremer
      Experienced in Lethal Congenital Contracture Syndrome

      Kirsten Cremer
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Kirsten Cremer practices in Bonn, Germany. Ms. Cremer is rated as an Experienced expert by MediFind in the treatment of Lethal Congenital Contracture Syndrome. Her top areas of expertise are Increased Head Circumference, Lacrimo-Auriculo-Dento-Digital Syndrome, Cortical Dysplasia, Beta-Propeller Protein-Associated Neurodegeneration, and Gallbladder Removal.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-9 of 9

      Last Updated: 10/30/2025

      When should I see a Lethal Congenital Contracture Syndrome doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Lethal Congenital Contracture Syndrome doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Lethal Congenital Contracture Syndrome doctor in North Rhine-Westphalia, DE?

      You can find a Lethal Congenital Contracture Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Lethal Congenital Contracture Syndrome doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Lethal Congenital Contracture Syndrome doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Lethal Congenital Contracture Syndrome doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lethal Congenital Contracture Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Lethal Congenital Contracture Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Lethal Congenital Contracture Syndrome doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Lethal Congenital Contracture Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Lethal Congenital Contracture Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Lethal Congenital Contracture Syndrome doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the Lethal Congenital Contracture Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Lethal Congenital Contracture Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Lethal Congenital Contracture Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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