LeukodystrophySymptoms, Doctors, Treatments, Advances & More
Leukodystrophy Overview
Learn About Leukodystrophy
Condition 101 content is not available at this time, but we are continually updating the site. Please check back.
However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.
Pediatric Nephrology - University Of Utah Hospital
Joshua Bonkowsky is a Neurologist practicing medicine in Salt Lake City, Utah. Dr. Bonkowsky is rated as an Elite provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Adrenoleukodystrophy (ALD), Leukodystrophy, Krabbe Disease, and Gastrostomy. Dr. Bonkowsky is board certified in American Board Of Psychiatry And Neurology. Dr. Bonkowsky is currently accepting new patients.
Odile Tanguy-Boespflug practices practicing medicine in Paris, France. Ms. Tanguy-Boespflug is rated as an Elite expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Leukodystrophy, Spastic Paraplegia Type 2, Spinal Muscular Atrophy (SMA), and Pelizaeus-Merzbacher Disease.
Childrens Health Care Associates Inc
Adeline Vanderver is a Pediatric Neurologist and a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Vanderver is rated as an Elite provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Aicardi-Goutieres Syndrome, Leukodystrophy, CACH Syndrome, Pol 3-Related Leukodystrophy, and Gastrostomy.
Summary: The goals of this protocol is to diagnose, care for, and understand the clinical histories and outcomes of people with leukodystrophies.
Summary: The Myelin Disorders Biorepository Project (MDBP) seeks to collect and analyze clinical data and biological samples from leukodystrophy patients worldwide to support ongoing and future research projects. The MDBP is one of the world's largest leukodystrophy biorepositories, having enrolled nearly 2,000 affected individuals since it was launched over a decade ago. Researchers working in the biorepo...

