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    Last Updated: 01/09/2026

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    MediFind found 11 doctor with experience in Maffucci Syndrome near Maryland, US. Of these, 6 are Experienced, 4 are Advanced and 1 are Distinguished.

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    11 providers found
      Adam S. Levin
      Distinguished in Maffucci Syndrome
      Orthopedics
      Distinguished in Maffucci Syndrome
      Orthopedics

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Suite 5009, Suite 5009, 
      Baltimore, MD 
      Languages Spoken:
      English

      Adam Levin, MD, joined the Johns Hopkins Department of Orthopaedic Surgery as an assistant professor in orthopaedic oncology. Dr. Levin comes to Johns Hopkins after working as an orthopaedic oncologist at the North Shore/LIJ Health System in New York. He completed his residency in orthopaedic surgery at Long Island Jewish Medical Center, and a fellowship in orthopaedic oncology at the Memorial Sloan-Kettering Cancer Center. Dr. Levin offers care and consultations for adults and children with bone and soft tissue tumors of the pelvis and extremities. He has extensive experience in performing limb-sparing and complex extremity reconstruction surgeries. Dr. Levin has a special interest in surgical palliation and biologic reconstruction. Dr. Levin is a member of the American Academy of Orthopaedic Surgeons and the Musculoskeletal Tumor Society. Dr. Levin is rated as a Distinguished provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Adult Soft Tissue Sarcoma, Osteosarcoma, Ollier Disease, Hip Replacement, and Osteotomy.

      Donna Magid
      Advanced in Maffucci Syndrome
      Radiology
      Advanced in Maffucci Syndrome
      Radiology

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English

      "Dr. Donna Magid, a Johns Hopkins Medicine Professor of Diagnostic Radiology, holds joint appointments in Orthopaedic Surgery and Functional Anatomy and Evolution. As Director of both the JHU SOM Horizontal Strand in Diagnostic Imaging, and Undergraduate Medical Education in Radiology, she develops and oversees educational programs and curriculae from Gross Anatomy through the Transition to Wards and clinical years to ensure a firm foundation in and comprehension of the intelligent, safe, effective use of imaging in medical practice and of appropriate consultation with Diagnostic Imagers. Dr. Magid is also recognized nationally and by the students for intense involvement with career mentoring and The Match, professionalism, and the 'Hidden Curriculum"", emphasizing precise appropriate use of medical English and the non-verbal aspects of professional demeanor and comportment. Her areas of clinical specialization include Musculoskeletal and Emergency Medicine radiography and joint procedures, including aspirations and pain-response studies, particularly in difficult patients who might otherwise require anesthesia for same. After receiving her BS summa cum laude in Psychology at Tufts University in Boston, she completed an M.Ed in Adolescent Psychology at Boston University. Her MD from Johns Hopkins School of Medicine was followed by one year out of the JHU system for internship at Harvard's Cambridge Hospital in Boston, after which she returned to JHM for Radiology Residency, Radiology Fellowship in CT and US , and subsequent faculty positions. Her career has been 'biphasic'; after a decade focused on nationally recognized Orthopaedic and Body CT research, she became heavily engaged with medical student and resident education and mentoring. After a decade as Co-Director of Resident Selection and Assistant Residency Program Director she shifted her focus, as she participated in the development and debut of JHU SOM's new curriculum, to the success of that curriculum and to the medical students. This focus and passion has been rewarded with multiple awards both at Hopkins and nationally, for teaching excellence and for published research in radiology education. Dr. Magid is participating in the writing and design of the ABR's new national mandated licensing exam for Diagnostic Radiology.". Dr. Magid is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. Her top areas of expertise are Scoliosis, Metachondromatosis, Maffucci Syndrome, and Ollier Disease.

      Shadpour Demehri
      Advanced in Maffucci Syndrome
      Interventional Radiology
      Advanced in Maffucci Syndrome
      Interventional Radiology

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English, Farsi

      Dr. Shadpour Demehri is a Professor in the Johns Hopkins Medicine Department of Radiology and Radiological Science. He specializes in diagnostic radiology and musculoskeletal (MSK) radiology. Dr. Demehri received his M.D. from Tehran University School of Medicine in 2003. He completed a fellowship in radiology at Johns Hopkins University School of Medicine. He performed his residency in diagnostic radiology in 2010 at Brigham & Women’s Hospital, where he subsequently completed two fellowships, one in musculoskeletal and nuclear radiology and a second in noninvasive cardiovascular imaging. He joined the Johns Hopkins faculty in September 2012. Dr. Demehri is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Undifferentiated Pleomorphic Sarcoma, Rhabdomyosarcoma Embryonal, Ollier Disease, Osteotomy, and Aneurysm Repair.

      Learn about our expert tiers
      Experienced in Maffucci Syndrome
      Experienced in Maffucci Syndrome

      Aligned Orthopedic Partners

      19735 Germantown Rd #120, 
      Germantown, MD 
      Languages Spoken:
      English
      Accepting New Patients

      Brett Hampton is an Orthopedics provider in Germantown, Maryland. Dr. Hampton is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Osteoarthritis, Spinal Stenosis, Tendinitis, Hip Replacement, and Knee Replacement. Dr. Hampton is currently accepting new patients.

      Advanced in Maffucci Syndrome
      Advanced in Maffucci Syndrome
      2401 W Belvedere Avenue, Rubin Institute For Advanced Orthopedics, 
      Baltimore, MD 
      Languages Spoken:
      English

      John Herzenberg is an Orthopedics provider in Baltimore, Maryland. Dr. Herzenberg is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Congenital Femoral Deficiency, Clubfoot, Absence of Tibia, Tenotomy, and Osteotomy.

      Advanced in Maffucci Syndrome
      Orthopedics
      Advanced in Maffucci Syndrome
      Orthopedics

      University Of Maryland Orthopaedic Trauma Associates, P.A.

      22 S Green St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Vincent Ng is an Orthopedics provider in Baltimore, Maryland. Dr. Ng is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Adult Soft Tissue Sarcoma, Bone Tumor, Epithelioid Sarcoma, Hip Replacement, and Osteotomy. Dr. Ng is currently accepting new patients.

      Shivani Ahlawat
      Experienced in Maffucci Syndrome
      Experienced in Maffucci Syndrome

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English, Hindi

      Dr. Ahlawat earned a Bachelor of Arts with magna cum laude at New York University. She completed both her Medical Degree as well as residency training in diagnostic radiology at Rutgers University’s Robert Wood Johnson Medical School in New Brunswick, NJ. Dr. Ahlawat completed her Pediatric Radiology Fellowship at the Children’s National Medical Center in Washington, DC and went on to Johns Hopkins University in Baltimore, MD to do a Fellowship in musculoskeletal radiology. After completion of her fellowship, Dr. Ahlawat joined as faculty in the Diagnostic Division of the department of Radiology at the Johns Hopkins University. Currently, she is an Assistant Professor in the Johns Hopkins University Department of Radiology and Radiological Science. Dr. Ahlawat’s expertise is Diagnostic Radiology with additional training in pediatric and musculoskeletal radiology. Dr. Ahlawat specializes in high resolution magnetic resonance (MR) imaging of peripheral nerves, specifically detection and characterization of peripheral nerve injury; MR imaging of peripheral nerve tumors and peripheral nerve tumor syndromes; whole body MR imaging in the setting of peripheral nerve tumor syndromes; and advanced MR techniques such as quantitative diffusion weighted imaging and apparent diffusion coefficient mapping in characterization of bone and soft tissue tumors. Dr. Shivani Ahlawat also serves as the Director of the Musculoskeletal Fellowship Program. Dr. Ahlawat is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).

      Cheng T. Lin
      Experienced in Maffucci Syndrome
      Experienced in Maffucci Syndrome

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Experience:
      18+ years
      Languages Spoken:
      English

      Dr. Cheng Ting Lin is an associate professor of radiology and radiological science at the Johns Hopkins University School of Medicine. His expertise is in diagnostic radiology with particular focus on chest and cardiac imaging. Dr. Cheng Ting Lin received his undergraduate degree from Boston University. He graduated from State University of New York at Stony Brook, where he also completed a radiology residency training program. Dr. Lin completed fellowship training in cardiothoracic imaging at University of Maryland Medical Center. His research interest includes lung cancer screening and diagnosis, chronic obstructive pulmonary disease, Interstitial lung disease, pulmonary embolism, and coronary artery disease. Dr. Lin is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Lung Nodules, Interstitial Lung Disease, Pulmonary Arteriovenous Fistula, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Maffucci Syndrome
      Experienced in Maffucci Syndrome
      2401 W . Belvedere Avenue, Rubin Institute For Advanced Orthopedics, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients

      Shawn Standard is an Orthopedics provider in Baltimore, Maryland. Dr. Standard is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Congenital Femoral Deficiency, Legg-Calve-Perthes Disease (LCPD), Achondroplasia, Absence of Tibia, and Osteotomy. Dr. Standard is currently accepting new patients.

      Experienced in Maffucci Syndrome
      Experienced in Maffucci Syndrome
      601 N Caroline St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Harvey Ziessman is a Radiologist in Baltimore, Maryland. Dr. Ziessman is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Metachondromatosis, Syndactyly Cenani Lenz Type, Maffucci Syndrome, Ollier Disease, and Liver Embolization.

      Experienced in Maffucci Syndrome
      Orthopedics | Pediatric Orthopedics
      Experienced in Maffucci Syndrome
      Orthopedics | Pediatric Orthopedics

      University Of Maryland Orthopaedic Associates PA

      1 Texas Station Ct, Fl 3, 
      Lutherville Timonium, MD 
      Languages Spoken:
      English
      Accepting New Patients

      Joshua Abzug is an Orthopedics specialist and a Pediatric Orthopedics provider in Lutherville Timonium, Maryland. Dr. Abzug is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Compartment Syndrome, Accessory Navicular Bone, Brachial Plexopathy, Fasciotomy, and Osteotomy. Dr. Abzug is currently accepting new patients.

      Showing 1-11 of 11

      Last Updated: 01/09/2026

      What is the definition of Maffucci Syndrome?

      Maffucci syndrome is a disorder that primarily affects the bones and skin. It is characterized by multiple enchondromas, which are noncancerous (benign) growths of cartilage that develop within the bones. These growths most commonly occur in the limb bones, especially in the bones of the hands and feet; however, they may also occur in the skull, ribs, and bones of the spine (vertebrae). Enchondromas may result in severe bone deformities, shortening of the limbs, and fractures.

      When should I see a Maffucci Syndrome doctor in Maryland, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Maffucci Syndrome doctor in Maryland, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Maffucci Syndrome doctors in Maryland, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Maffucci Syndrome doctors in Maryland, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Maffucci Syndrome doctor in Maryland, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Maffucci Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Maffucci Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Maffucci Syndrome doctor in Maryland, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Maffucci Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Maffucci Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Maffucci Syndrome doctors in Maryland, US?

      Look for the filter feature on the left side of the Maffucci Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Maffucci Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Maffucci Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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