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    Last Updated: 01/09/2026

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    MediFind found 27 doctor with experience in Megalencephalic Leukoencephalopathy with Subcortical Cysts near Netherlands. Of these, 19 are Experienced, 4 are Advanced, 2 are Distinguished and 2 are Elite.

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    27 providers found
      Elite in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Marjo S. Van Der Knaap
      Elite in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Marjo S. Van Der Knaap
      Amsterdam, NH, NL 

      Marjo Van Der Knaap practices in Amsterdam, Netherlands. Ms. Van Der Knaap is rated as an Elite expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are CACH Syndrome, Leukodystrophy, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Metachromatic Leukodystrophy, and Bone Marrow Transplant.

      Elite in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Marianna Bugiani
      Elite in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Marianna Bugiani
      Amsterdam, NH, NL 

      Marianna Bugiani practices in Amsterdam, Netherlands. Ms. Bugiani is rated as an Elite expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, CACH Syndrome, Leukodystrophy, and Metachromatic Leukodystrophy.

      Distinguished in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Rogier Min
      Distinguished in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Rogier Min
      Amsterdam, NH, NL 

      Rogier Min practices in Amsterdam, Netherlands. Min is rated as a Distinguished expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Their top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, Leukodystrophy, Increased Head Circumference, and CACH Syndrome.

      Learn about our expert tiers
      Distinguished in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Huibert D. Mansvelder
      Distinguished in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Huibert D. Mansvelder
      Amsterdam, NH, NL 

      Huibert Mansvelder practices in Amsterdam, Netherlands. Mansvelder is rated as a Distinguished expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Their top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, CACH Syndrome, Memory Loss, and Leukodystrophy.

      Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Truus M. Abbink
      Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Truus M. Abbink
      Amsterdam, NH, NL 

      Truus Abbink practices in Amsterdam, Netherlands. Abbink is rated as an Advanced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Their top areas of expertise are CACH Syndrome, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Increased Head Circumference, and Spasticity.

      Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Maarten P. Kole
      Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Maarten P. Kole
      Utrecht, UT, NL 

      Maarten Kole practices in Utrecht, Netherlands. Mr. Kole is rated as an Advanced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, Leukodystrophy, CACH Syndrome, and Metachromatic Leukodystrophy.

      Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Tim S. Heistek
      Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Tim S. Heistek
      Amsterdam, NH, NL 

      Tim Heistek practices in Amsterdam, Netherlands. Mr. Heistek is rated as an Advanced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, Memory Loss, CACH Syndrome, and Alzheimer's Disease.

      Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Gert C. Scheper
      Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Gert C. Scheper
      Leiden, ZH, NL 

      Gert Scheper practices in Leiden, Netherlands. Scheper is rated as an Advanced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Their top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, CACH Syndrome, Severe Acute Respiratory Syndrome (SARS), and COVID-19.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Nienke L. Postma
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Nienke L. Postma
      Amsterdam, NH, NL 

      Nienke Postma practices in Amsterdam, Netherlands. Postma is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Their top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, CACH Syndrome, Increased Head Circumference, and Spasticity.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Ahlem Alia
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Ahlem Alia
      Leiden, ZH, NL 

      Ahlem Alia practices in Leiden, Netherlands. Alia is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Their top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, Alzheimer's Disease, Dementia, and CACH Syndrome.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Jan T. Van Weering
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Jan T. Van Weering
      Amsterdam, NH, NL 

      Jan Van Weering practices in Amsterdam, Netherlands. Van Weering is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Their top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, CACH Syndrome, Increased Head Circumference, and Alzheimer's Disease.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Quinten Waisfisz
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Quinten Waisfisz
      Amsterdam, NH, NL 

      Quinten Waisfisz practices in Amsterdam, Netherlands. Mr. Waisfisz is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Fetal Akinesia Sequence, Birt-Hogg-Dube Syndrome, CACH Syndrome, and Increased Head Circumference.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Marjolein Breur
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Marjolein Breur
      Amsterdam, NH, NL 

      Marjolein Breur practices in Amsterdam, Netherlands. Breur is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Their top areas of expertise are Leukodystrophy, CACH Syndrome, Metachromatic Leukodystrophy, and Pelizaeus-Merzbacher Disease.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Rene L. Olsthoorn
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Rene L. Olsthoorn
      Leiden, ZH, NL 

      Rene Olsthoorn practices in Leiden, Netherlands. Olsthoorn is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Their top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts and Increased Head Circumference.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Nicole I. Wolf
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Nicole I. Wolf
      Amsterdam, NH, NL 

      Nicole Wolf practices in Amsterdam, Netherlands. Ms. Wolf is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Leukodystrophy, CACH Syndrome, Metachromatic Leukodystrophy, Pelizaeus-Merzbacher Disease, and Bone Marrow Transplant.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      August B. Smit
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      August B. Smit
      Amsterdam, NH, NL 

      August Smit practices in Amsterdam, Netherlands. Mr. Smit is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Dementia, Alzheimer's Disease, Frontotemporal Dementia, and Memory Loss.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Johannes C. Lodder
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Johannes C. Lodder
      Amsterdam, NH, NL 

      Johannes Lodder practices in Amsterdam, Netherlands. Mr. Lodder is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top area of expertise is Megalencephalic Leukoencephalopathy with Subcortical Cysts.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Mark G. Verheijen
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Mark G. Verheijen
      Amsterdam, NH, NL 

      Mark Verheijen practices in Amsterdam, Netherlands. Mr. Verheijen is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are CACH Syndrome, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Alzheimer's Disease, and Dementia.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Nelda Antonovaite
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Nelda Antonovaite
      Amsterdam, NH, NL 

      Nelda Antonovaite practices in Amsterdam, Netherlands. Ms. Antonovaite is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts and Leukodystrophy.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Oliver Stiedl
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Oliver Stiedl
      Amsterdam, NH, NL 

      Oliver Stiedl practices in Amsterdam, Netherlands. Mr. Stiedl is rated as an Experienced expert by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts and Leukodystrophy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 27

      Last Updated: 01/09/2026

      What is the definition of Megalencephalic Leukoencephalopathy with Subcortical Cysts?

      Megalencephalic leukoencephalopathy with subcortical cysts (MLC) is a condition that affects brain development and function. Individuals with this condition have an enlarged brain (megalencephaly) and an abnormality of the white matter in the brain (leukoencephalopathy). White matter consists of nerve fibers covered by a fatty substance called myelin that promotes the rapid transmission of nerve impulses. In MLC, the myelin is swollen and contains numerous fluid-filled pockets (vacuoles). Over time, the swelling decreases and the myelin begins to waste away (atrophy). Leukoencephalopathy can lead to abnormal muscle tensing (spasticity), difficulty coordinating movements (ataxia), cysts in the brain (subcortical cysts), abnormal muscle tone (dystonia), swallowing difficulties, mild to moderate intellectual disabilities, speech difficulties, seizures, and difficulties walking. There are three types of MLC, which are distinguished by their signs and symptoms and genetic cause. Type 1 is caused by genetic changes in the MLC1 gene. Types 2A and 2B are caused by genetic changes in the HEPACAM gene. MLC types 1 and 2A are inherited in an autosomal recessive manner, while type 2B is inherited in an autosomal dominant manner. In some cases of MLC, the cause is unknown.

      When should I see a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor in Netherlands?

      You can find a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor in any of the 10 largest U.S. cities by clicking below:

      Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near New York, NY
      Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Los Angeles, CA
      Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Chicago, IL
      Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Houston, TX
      Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Phoenix, AZ
      Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Philadelphia, PA
      Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Atlanta, GA
      Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Boston, MA
      Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Dallas, TX
      Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near San Jose, CA

      How does MediFind rank Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. 

      Why is it important to get a second opinion from a different Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors in Netherlands?

      Look for the filter feature on the left side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor that offers video calls?

      Look for the filter feature on the left-side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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