The 20 Best Megalencephalic Leukoencephalopathy with Subcortical Cysts Doctors Near Me in Kansas City, KS

Find the Top Megalencephalic Leukoencephalopathy with Subcortical Cysts Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 15 doctor with experience in Megalencephalic Leukoencephalopathy with Subcortical Cysts near Kansas City, KS. Of these, 14 are Experienced and 1 are Distinguished.

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15 providers found
    Distinguished in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Distinguished in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Referral may be required

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
    Languages Spoken:
    English, Arabic, French
    Accepting New Patients
    Offers Telehealth

    Ahmad Tuffaha is a Nephrologist practicing medicine in Kansas City, Kansas. Dr. Tuffaha is rated as a Distinguished provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Fabry Disease, End-Stage Renal Disease (ESRD), Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Kidney Transplant. Dr. Tuffaha is board certified in American Board Of Internal Medicine, Internal Medicine - 2010 and American Board Of Internal Medicine, Nephrology - 2012 . Dr. Tuffaha is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Sabetha Family Practice

    1115 Main St, 
    Sabetha, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Christian Tramp is a primary care provider, practicing in Family Medicine in Sabetha, Kansas. Dr. Tramp is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Squamous Cell Lung Carcinoma, EGFR Positive Lung Cancer, and Non-Small Cell Lung Cancer (NSCLC). Dr. Tramp is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Jennafer Ball is a primary care provider, practicing in Family Medicine in Kansas City, Kansas. Dr. Ball is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her clinical expertise encompasses Fabry Disease, Multiple Sulfatase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts. Dr. Ball is board certified in American Board Of Family Medicine, Family Medicine - 2023. Dr. Ball is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Referral may be required

    Landon Center On Aging

    3599 Rainbow Boulevard, 
    Kansas City, KS 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Richard Dubinsky is a Neurologist practicing medicine in Kansas City, Kansas. Dr. Dubinsky is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Huntington Disease, Drug Induced Dyskinesia, Mcleod Neuroacanthocytosis Syndrome, and Tardive Dyskinesia. Dr. Dubinsky is board certified in American Board Of Electrodiagnostic Medicine, - - 1991 , American Board Of Psychiatry And Neurology, Neurology - 1988, and American Board Of Psychiatry And Neurology, Clinical Neurophysiology - 1992 . Dr. Dubinsky is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Referral may be required

    The University Of Kansas Hospital

    4000 Cambridge Street, 
    Kansas City, KS 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Carol Ulloa is a Neurologist practicing medicine in Kansas City, Kansas. Dr. Ulloa is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Seizures, Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), Partial Seizure, and Memory Loss. Dr. Ulloa is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2013 and American Board Of Psychiatry And Neurology, Neurology - 2009. Dr. Ulloa is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Kelsie Kelly is a primary care provider, practicing in Family Medicine in Kansas City, Kansas. Dr. Kelly is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her clinical expertise encompasses Glomerulonephritis, Mosaicism, Type 2 Diabetes (T2D), and Fabry Disease. Dr. Kelly is board certified in American Board Of Family Medicine, Family Medicine - 2013. Dr. Kelly is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Referral may be required

    Hospital District No 1 Crawford County

    302 N Hospital Dr, 
    Girard, KS 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Vernon Cooper is a Neurologist practicing medicine in Girard, Kansas. Dr. Cooper is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Migraine, Essential Tremor, Parkinson's Disease, and Movement Disorders. Dr. Cooper is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Internal Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Internal Medicine

    AdventHealth Medical Group Primary Care At State Avenue

    5701 State Ave Ste 100, 
    Kansas City, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Michael Harwood is a primary care provider, practicing in Internal Medicine in Kansas City, Kansas. Dr. Harwood is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Renovascular Hypertension, Necrotizing Myopathy (NM), Fabry Disease, Gastrostomy, and Endoscopy. Dr. Harwood is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Ashley Clinic Pharmacy

    505 S Plummer Ave, 
    Chanute, KS 
    Languages Spoken:
    English, Farsi, Korean
    Accepting New Patients

    Robert Thomen is a primary care provider, practicing in Family Medicine in Chanute, Kansas. Dr. Thomen is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Familial Colorectal Cancer, Pneumonia, Familial Hypertension, Endoscopy, and Colonoscopy. Dr. Thomen is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Clay Center Family Physicians

    609 Liberty St, 
    Clay Center, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Koerner is a primary care provider, practicing in Family Medicine in Clay Center, Kansas. Dr. Koerner is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Multiple Sulfatase Deficiency. Dr. Koerner is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

    Fort Scott Family Medicine

    202 State St Ste A, 
    Fort Scott, KS 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ricky Kellenberger is a primary care provider, practicing in Family Medicine in Fort Scott, Kansas. Dr. Kellenberger is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Chronic Pain, Chronic Obstructive Pulmonary Disease (COPD), Maturity Onset Diabetes of the Young, and Tracheitis. Dr. Kellenberger is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Preferred Medical Associates

    1900 N Amidon Ave Ste 100, 
    Wichita, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Edward Hett is a primary care provider, practicing in Family Medicine in Wichita, Kansas. Dr. Hett is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His clinical expertise encompasses Breast Cancer, Lymphangitis, Maturity Onset Diabetes of the Young, and Familial Colorectal Cancer. Dr. Hett is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Clay Center Family Physicians

    609 Liberty St, 
    Clay Center, KS 
    Languages Spoken:
    English
    Accepting New Patients

    David Larson is a primary care provider, practicing in Family Medicine in Clay Center, Kansas. Dr. Larson is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Coronary Heart Disease, Diverticular Disease, Chronic Kidney Disease, Glucocorticoid-Remediable Aldosteronism, and Endoscopy. Dr. Larson is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Allways Community Health Center

    1412 N 2nd St, 
    Atchison, KS 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Kerstin Glynn is a primary care provider, practicing in Family Medicine in Atchison, Kansas. Dr. Glynn is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her clinical expertise encompasses Type 2 Diabetes (T2D), Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension. Dr. Glynn is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Referral may be required

    Kansas Nephrology Physicians

    1035 N Emporia Ave, Ste 105, 
    Wichita, KS 
    Languages Spoken:
    English, French
    Accepting New Patients

    Lisa Weber is a Nephrologist practicing medicine in Wichita, Kansas. Dr. Weber is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Acute Kidney Failure, and Nephrosclerosis. Dr. Weber is board certified in The American Board Of Internal Medicine - Nephrology and The American Board Of Internal Medicine - Internal Medicine. Dr. Weber is currently accepting new patients.

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    Last Updated: 09/26/2026

    What is the definition of Megalencephalic Leukoencephalopathy with Subcortical Cysts?

    Megalencephalic leukoencephalopathy with subcortical cysts (MLC) is a condition that affects brain development and function. Individuals with this condition have an enlarged brain (megalencephaly) and an abnormality of the white matter in the brain (leukoencephalopathy). White matter consists of nerve fibers covered by a fatty substance called myelin that promotes the rapid transmission of nerve impulses. In MLC, the myelin is swollen and contains numerous fluid-filled pockets (vacuoles). Over time, the swelling decreases and the myelin begins to waste away (atrophy). Leukoencephalopathy can lead to abnormal muscle tensing (spasticity), difficulty coordinating movements (ataxia), cysts in the brain (subcortical cysts), abnormal muscle tone (dystonia), swallowing difficulties, mild to moderate intellectual disabilities, speech difficulties, seizures, and difficulties walking. There are three types of MLC, which are distinguished by their signs and symptoms and genetic cause. Type 1 is caused by genetic changes in the MLC1 gene. Types 2A and 2B are caused by genetic changes in the HEPACAM gene. MLC types 1 and 2A are inherited in an autosomal recessive manner, while type 2B is inherited in an autosomal dominant manner. In some cases of MLC, the cause is unknown.

    When should I see a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Kansas City, KS?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Kansas City, KS?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors near Kansas City, KS?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors near Kansas City, KS?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Kansas City, KS?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. 

    Why is it important to get a second opinion from a different Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Kansas City, KS?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors near Kansas City, KS?

    Look for the filter feature on the left side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor that offers video calls?

    Look for the filter feature on the left-side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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