The 20 Best Megalencephalic Leukoencephalopathy with Subcortical Cysts Doctors Near Me in Minnesota, US

Find the Top Megalencephalic Leukoencephalopathy with Subcortical Cysts Experts and Specialists

The 20 Best Megalencephalic Leukoencephalopathy with Subcortical Cysts Doctors in Minnesota, US

Last Updated: 02/22/2026

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MediFind found 32 doctor with experience in Megalencephalic Leukoencephalopathy with Subcortical Cysts near Minnesota, US. Of these, 28 are Experienced and 4 are Advanced.

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32 providers found
    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Hematology | Oncology
    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Hematology | Oncology

    U Of M Health Clinics And Surgery Center Inc.

    909 Fulton St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Najla El Jurdi is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. El Jurdi is rated as an Advanced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Graft Versus Host Disease (GvHD), Chronic Graft Versus Host Disease (cGvHD), Acute Myeloid Leukemia (AML), Bone Marrow Transplant, and Bone Marrow Aspiration.

    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatrics | Medical Genetics
    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatrics | Medical Genetics

    Fairview Express Care

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chester Whitley is a Pediatrics specialist and a Medical Genetics provider in Minneapolis, Minnesota. Dr. Whitley is rated as an Advanced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), and Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A). Dr. Whitley is currently accepting new patients.

    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatric Neurology
    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Marc Patterson is a Pediatric Neurologist in Rochester, Minnesota. Dr. Patterson is rated as an Advanced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Leukodystrophy, and CACH Syndrome.

    Learn about our expert tiers
    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Nephrology
    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Nephrology

    Hennepin Healthcare

    701 Park Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Jeffrey Wang is a Nephrologist in Minneapolis, Minnesota. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Chronic Kidney Disease, Fabry Disease, Glomerulonephritis, Thrombectomy, and Kidney Transplant.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Medical Genetics
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Medical Genetics

    CentraCare - Plaza Clinic Genetics

    1900 CentraCare Cir, Ste 2375, 
    St Cloud, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Patients with rare disorders are often misunderstood and not heard by the medical profession. I try to listen carefully to their story, in part to understand what they are going through and in part to try to recognize the condition they might have. I also want to provide them with a clear explanation of what condition they have and how to manage it so they can advocate for themselves. My clinical interests include inherited disorders and rare diseases of all sorts.|Why I Love My Work|I chose to pursue a career in medicine because I enjoy the science of medicine and seeing how that can be used to improve the lives of people. I initially chose to specialize in pediatrics because I enjoy working with kids. My interest in rare disorders and wanting to help patients and their families receive the best care possible led me to a career in medical genetics.|I enjoy the variety of conditions that work with and the satisfaction that comes from seeing patients move from a state of confusion about what condition they have to a sense of understanding of how it fits together and what to do next for their health.|Over the past nearly 20 years, I have been involved in health care administration within CentraCare. One of my enduring passions that emerged from this work is understanding the impact that the health care system and the community has on determining health, which is well beyond what is typically considered health care.|Getting To Know Me|Outside of work, I enjoy movies, reading, biking, and 3D printing. I am also engaged in community improvement work to try and improve the health of as many people as possible. Dr. Tilstra is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Fabry Disease, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Ehlers-Danlos Syndrome (EDS).

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Perham Health

    1000 Coney St W, 
    Perham, MN 
    Languages Spoken:
    English

    Illene Reed is a primary care provider, practicing in Family Medicine in Perham, Minnesota. Dr. Reed is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Gaucher Disease, Gaucher Disease Type 1, Gaucher Disease Type 2, Gaucher Disease Type 3, and Endoscopy.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Perham Health

    1000 Coney St W, 
    Perham, MN 
    Languages Spoken:
    English

    Mark Paulson is a primary care provider, practicing in Family Medicine in Perham, Minnesota. Dr. Paulson is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Cirrhosis, Enlarged Liver, Visceromegaly, and Maturity Onset Diabetes of the Young.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

    Gillette Children's-Maple Grove Clinic

    9550 Upland Ln N, 
    Maple Grove, MN 
    Languages Spoken:
    English

    Nicole Williams is a Neurologist in Maple Grove, Minnesota. Dr. Williams is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, Hydranencephaly, and Orofaciodigital Syndrome 6.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Perham Health

    1000 Coney St W, 
    Perham, MN 
    Languages Spoken:
    English

    Kailey Witt is a primary care provider, practicing in Family Medicine in Perham, Minnesota. Dr. Witt is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Schizoaffective Disorder, Pulmonary Veno-Occlusive Disease, Heart Failure with Preserved Ejection Fraction (HFpEF), and Pulmonary Hypertension.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Perham Health

    1000 Coney St W, 
    Perham, MN 
    Languages Spoken:
    English

    Jeffrey Blickenstaff is a primary care provider, practicing in Family Medicine in Perham, Minnesota. Dr. Blickenstaff is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Peripheral Neuropathy, Parkinson's Disease, Seasonal Affective Disorder (SAD), Lung Adenocarcinoma, and Endoscopy.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatrics
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatrics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Tori Bahr is a primary care provider, practicing in Pediatrics in Saint Paul, Minnesota. Dr. Bahr is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Temple Syndrome, and Mosaic Variegated Aneuploidy Syndrome.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Medical Genetics | Pediatrics
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Medical Genetics | Pediatrics

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Brendan Lanpher is a Medical Genetics specialist and a Pediatrics provider in Rochester, Minnesota. Dr. Lanpher is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Increased Head Circumference, Retinopathy Pigmentary Mental Retardation, Urea Cycle Disorders (UCD), and Argininosuccinic Aciduria. Dr. Lanpher is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Neuromusculoskeletal Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Neuromusculoskeletal Medicine

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Randal Richardson is a Neuromusculoskeletal Medicine provider in Saint Paul, Minnesota. Dr. Richardson is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, Fukuyama Type Muscular Dystrophy, and X-Linked Dominant Scapuloperoneal Myopathy.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Neurology
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Neurology

    Bloomington/Edina Clinic

    3601 Minnesota Dr Ste 200, 
    Edina, MN 
    Languages Spoken:
    English

    Tim Feyma is a Neurologist in Edina, Minnesota. Dr. Feyma is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Rett Syndrome, Cerebral Palsy, Focal Dystonia, Partial Familial Epilepsy, and Microvascular Decompression.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Internal Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Internal Medicine

    Hennepin Healthcare

    701 Park Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Katherine Shafto is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. Dr. Shafto is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Fabry Disease, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Fibromyalgia.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Internal Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Internal Medicine

    CentraCare - Plaza Clinic Internal Medicine

    1900 CentraCare Cir, Ste 2425, 
    St Cloud, MN 
    Languages Spoken:
    English

    Patricia Nee is a primary care provider, practicing in Internal Medicine in St Cloud, Minnesota. Dr. Nee is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Factor V Leiden Thrombophilia, Infant Hyperglycemia, Melorheostosis, and Melorheostosis with Osteopoikilosis.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Internal Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Internal Medicine

    St. Paul Heart Clinic P.A.

    225 Smith Ave N Ste 300, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Lawrence Callanan is a primary care provider, practicing in Internal Medicine in Saint Paul, Minnesota. Dr. Callanan is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Gaucher Disease, Gaucher Disease Type 1, Gaucher Disease Type 3, and Gaucher Disease Type 2.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Medical Genetics | Pediatrics
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Medical Genetics | Pediatrics

    Fairview Express Care

    2512 S 7th St, 
    Minneapolis, MN 
    Languages Spoken:
    English, Hindi, Malay, Malayalam, Malayan, Tamil
    Accepting New Patients

    Nishitha Pillai is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Pillai is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Hartnup Disease, Pompe Disease, Multiple Sulfatase Deficiency, and Hardikar Syndrome. Dr. Pillai is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Medical Genetics | Pediatrics
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Medical Genetics | Pediatrics

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Pavel Pichurin is a Medical Genetics specialist and a Pediatrics provider in Rochester, Minnesota. Dr. Pichurin is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Cerebellar Hypoplasia, Cowden Syndrome, Hypothalamic Hamartomas, and Peutz-Jeghers Syndrome.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

    Hennepin Healthcare

    701 Park Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Douglas Rausch is a Hematologist in Minneapolis, Minnesota. Dr. Rausch is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Hodgkin Lymphoma, Small Cell Lung Cancer (SCLC), Pleuropulmonary Blastoma, Sickle Cell Disease, and Bone Marrow Aspiration.

    Showing 1-20 of 32

    Last Updated: 02/22/2026

    What is the definition of Megalencephalic Leukoencephalopathy with Subcortical Cysts?

    Megalencephalic leukoencephalopathy with subcortical cysts (MLC) is a condition that affects brain development and function. Individuals with this condition have an enlarged brain (megalencephaly) and an abnormality of the white matter in the brain (leukoencephalopathy). White matter consists of nerve fibers covered by a fatty substance called myelin that promotes the rapid transmission of nerve impulses. In MLC, the myelin is swollen and contains numerous fluid-filled pockets (vacuoles). Over time, the swelling decreases and the myelin begins to waste away (atrophy). Leukoencephalopathy can lead to abnormal muscle tensing (spasticity), difficulty coordinating movements (ataxia), cysts in the brain (subcortical cysts), abnormal muscle tone (dystonia), swallowing difficulties, mild to moderate intellectual disabilities, speech difficulties, seizures, and difficulties walking. There are three types of MLC, which are distinguished by their signs and symptoms and genetic cause. Type 1 is caused by genetic changes in the MLC1 gene. Types 2A and 2B are caused by genetic changes in the HEPACAM gene. MLC types 1 and 2A are inherited in an autosomal recessive manner, while type 2B is inherited in an autosomal dominant manner. In some cases of MLC, the cause is unknown.

    When should I see a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. 

    Why is it important to get a second opinion from a different Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors in Minnesota, US?

    Look for the filter feature on the left side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor that offers video calls?

    Look for the filter feature on the left-side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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