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    Last Updated: 01/09/2026

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    MediFind found 2096 doctor with experience in Megalencephaly-Capillary Malformation Syndrome near The United States. Of these, 1931 are Experienced, 164 are Advanced and 1 are Distinguished.

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    2,096 providers found
      Stefanie A. Kienker
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Nurse Practitioner | Pediatrics
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Nurse Practitioner | Pediatrics

      Atrium Health Levine Children's Sleep Medicine

      4501 Cameron Valley Parkway, Suite 300, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Stefanie Kienker is a Pediatrics specialist and a Nurse Practitioner in Charlotte, North Carolina. Ms. Kienker is rated as an Experienced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. Her top areas of expertise are Marshall-Smith Syndrome, Cantu Syndrome, Hemi 3 Syndrome, and Megalencephaly-Capillary Malformation Syndrome. Ms. Kienker is currently accepting new patients.

      Amy Kelly
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Nurse Practitioner | Hematology | Oncology
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Nurse Practitioner | Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amy Kelly is a Hematologist and an Oncologist in Charlotte, North Carolina. Ms. Kelly is rated as an Experienced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. Her top areas of expertise are Medulloblastoma, Brain Tumor, Pediatric Low-Grade Glioma (pLGG), and Atypical Teratoid Rhabdoid Tumor (ATRT). Ms. Kelly is currently accepting new patients.

      Majd Makhoul
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Cardiology
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Majd Makhoul is a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Makhoul is rated as an Experienced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are X-Linked Cardiac Valvular Dysplasia, Cardiac Diverticulum, Congenital Heart Disease (CHD), and Congenital Mitral Malformation. Dr. Makhoul is currently accepting new patients.

      Learn about our expert tiers
      Chad T. Jacobsen
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Hematology | Oncology
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
      Experience:
      29+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chad Jacobsen is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Jacobsen has been practicing medicine for over 29 years and is rated as an Experienced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Medulloblastoma, Neurofibromatosis, and Embryonal Tumor with Multilayered Rosettes. Dr. Jacobsen is currently accepting new patients.

      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Family Medicine | Internal Medicine
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Family Medicine | Internal Medicine
      407 S Main St, 
      Viroqua, WI 
      Languages Spoken:
      English

      James Feltes is a primary care provider, practicing in Family Medicine and Internal Medicine in Viroqua, Wisconsin. Dr. Feltes is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Megalencephaly-Capillary Malformation Syndrome, Simpson-Golabi-Behmel Syndrome, Hemi 3 Syndrome, and Perlman Syndrome.

      Harry L. Lesmana
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Advanced in Megalencephaly-Capillary Malformation Syndrome

      Cleveland Clinic Children's Outpatient Center

      8950 Euclid Avenue, 
      Cleveland, OH 
      Experience:
      17+ years
      Languages Spoken:
      English, Bahasa
      Offers Telehealth

      Harry Lesmana is a Pediatrics provider in Cleveland, Ohio. Dr. Lesmana has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Cantu Syndrome, Hemi 3 Syndrome, Perlman Syndrome, and Megalencephaly-Capillary Malformation Syndrome.

      Richard E. Moretz
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Advanced in Megalencephaly-Capillary Malformation Syndrome

      Prisma Health Imaging Center–Greenville

      21 Orchard Park Drive, Suite A, 
      Greenville, SC 
      Languages Spoken:
      English

      Richard Moretz is a Radiologist in Greenville, South Carolina. Dr. Moretz is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Scoliosis, Knock Knees, Spondylocarpotarsal Synostosis Syndrome, and Caudal Regression Syndrome.

      Erica Fernandes
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Medical Genetics | Pediatrics
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Medical Genetics | Pediatrics
      26901 76th Avenue, 
      New Hyde Park, NY 
      Languages Spoken:
      English

      Erica Fernandes is a Medical Genetics specialist and a Pediatrics provider in New Hyde Park, New York. Dr. Fernandes is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. Her top areas of expertise are Microcephaly, Chromosome 13q Deletion, Scalp-Ear-Nipple Syndrome, and Snyder-Robinson Syndrome.

      Rachelle E. Goldfisher
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Radiology | Radiology
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Radiology | Radiology
      270-5 76th Avenue, 
      New Hyde Park, NY 
      Languages Spoken:
      English

      Rachelle Goldfisher is a Pediatric Radiologist and a Radiologist in New Hyde Park, New York. Dr. Goldfisher is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. Her top areas of expertise are Gas Bloat Syndrome, Marshall-Smith Syndrome, Perlman Syndrome, and Cantu Syndrome.

      David Westberry
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Orthopedics
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Orthopedics

      Shriners Hospitals For Children

      950 West Faris Road, 
      Greenville, SC 
      Languages Spoken:
      English
      Accepting New Patients

      David Westberry is a Pediatric Orthopedics provider in Greenville, South Carolina. Dr. Westberry is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Arthrogryposis Multiplex Congenita, Clubfoot, Spastic Diplegia Infantile Type, Osteotomy, and Leg or Foot Amputation. Dr. Westberry is currently accepting new patients.

      Brendan Mccleary
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Radiology
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Radiology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Experience:
      21+ years
      Languages Spoken:
      English

      Brendan Mccleary is a Pediatric Radiologist in Cleveland, Ohio. Dr. Mccleary has been practicing medicine for over 21 years and is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Trisomy 17 Mosaicism, Mosaic Trisomy 8, Mosaic Trisomy 9, and Congenital Athymia.

      Kara Alexander
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Advanced in Megalencephaly-Capillary Malformation Syndrome

      Johns Hopkins All Children's Hospital

      501 6th Avenue South, 
      Saint Petersburg, FL 
      Languages Spoken:
      English

      Dr. Alexander is a diagnostic radiologist at Johns Hopkins All Children’s. She sees patients on the hospital’s St. Petersburg, Florida, campus. She joined the medical staff in 2025. She was previously a radiologist at Boston Children’s Hospital. Dr. Alexander earned her medical degree from the University of Kansas School of Medicine in Wichita. She completed a diagnostic radiology residency at the University of Missouri in Kansas City. She then completed a diagnostic pediatric radiology fellowship followed by a pediatric musculoskeletal radiology fellowship at Boston Children’s Hospital. Dr. Alexander is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. Her top areas of expertise are Scoliosis, Osteochondritis Dissecans, Knock Knees, and Caffey Disease.

      John Amodio
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Radiology
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Radiology

      Montefiore Medical Center

      111 East 210th Street, 
      Bronx, NY 
      Languages Spoken:
      English

      John Amodio, MD, FACR, is Chief, Radiology and Division Lead, Pediatric Radiology at Children’s Hospital at Montefiore Einstein and Professor, Radiology at our Albert Einstein College of Medicine. Dr. Amodio has 40 years of experience in pediatric imaging. His particular interest is the use of contrast ultrasound in pediatric imaging. Dr. Amodio is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Gas Bloat Syndrome, Schizencephaly, Porencephaly, and Tracheobronchopathia Osteoplastica.

      Gregory S. Matthews
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Advanced in Megalencephaly-Capillary Malformation Syndrome

      Prisma Health Imaging Center–Greenville

      21 Orchard Park Drive, Suite A, 
      Greenville, SC 
      Languages Spoken:
      English

      Gregory Matthews is a Radiologist in Greenville, South Carolina. Dr. Matthews is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Scoliosis, Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, and Knock Knees.

      Albair Guirguis
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Radiology
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Radiology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Languages Spoken:
      English

      Albair Guirguis is a Pediatric Radiologist in Cleveland, Ohio. Dr. Guirguis is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Congenital Athymia, Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), and Familial Short Stature (FSS).

      Marie A. Tominna
      Advanced in Megalencephaly-Capillary Malformation Syndrome
      Advanced in Megalencephaly-Capillary Malformation Syndrome

      Corewell Health William Beaumont University Hospital

      3601 West 13 Mile Road, 
      Royal Oak, MI 
      Experience:
      11+ years
      Languages Spoken:
      English
      Accepting New Patients

      Marie Tominna is a Radiologist in Royal Oak, Michigan. Dr. Tominna has been practicing medicine for over 11 years and is rated as an Advanced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. Her top areas of expertise are Idiopathic Short Stature (ISS), Familial Short Stature (FSS), Short Stature (Growth Disorders), and Increased Head Circumference. Dr. Tominna is currently accepting new patients.

      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Orthopedics
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Orthopedics
      Medical Center Blvd, 
      Winston Salem, NC 
      Languages Spoken:
      English
      Accepting New Patients

      John Frino is an Orthopedics provider in Winston Salem, North Carolina. Dr. Frino is rated as an Experienced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Scoliosis, Knock Knees, Clubfoot, Spondylocarpotarsal Synostosis Syndrome, and Hip Replacement. Dr. Frino is currently accepting new patients.

      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Pulmonology | Pediatrics
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Pediatric Pulmonology | Pediatrics

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Gary Mcphail is a Pediatric Pulmonologist and a Pediatrics provider in Cincinnati, Ohio. Dr. Mcphail is rated as an Experienced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Cystic Fibrosis, Sleepwalking (Somnambulism), Congenital Unilateral Pulmonary Hypoplasia, and Exocrine Pancreatic Insufficiency. Dr. Mcphail is currently accepting new patients.

      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      3021 Griffin Ave, 
      Enumclaw, WA 
      Languages Spoken:
      English, Castilian, Portuguese, Spanish, Thai
      Accepting New Patients
      Offers Telehealth

      Paweena Thoophom is a Pediatrics provider in Enumclaw, Washington. Dr. Thoophom is rated as an Experienced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. Her top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Van Der Woude Syndrome, and Croup. Dr. Thoophom is currently accepting new patients.

      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Orthopedics
      Experienced in Megalencephaly-Capillary Malformation Syndrome
      Orthopedics
      11100 Euclid Ave, Department Of Orthopaedics, 
      Cleveland, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Raymond Liu is an Orthopedics provider in Cleveland, Ohio. Dr. Liu is rated as an Experienced provider by MediFind in the treatment of Megalencephaly-Capillary Malformation Syndrome. His top areas of expertise are Slipped Capital Femoral Epiphysis, Legg-Calve-Perthes Disease (LCPD), Accessory Navicular Bone, Osteotomy, and Penectomy. Dr. Liu is currently accepting new patients.

      Showing 1-20 of 2,096

      Last Updated: 01/09/2026

      What is the definition of Megalencephaly-Capillary Malformation Syndrome?

      Megalencephaly-capillary malformation syndrome (MCAP) is a disorder characterized by overgrowth of several tissues in the body. Its primary features are a large brain (megalencephaly) and abnormalities of small blood vessels in the skin called capillaries (capillary malformations).

      When should I see a Megalencephaly-Capillary Malformation Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Megalencephaly-Capillary Malformation Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Megalencephaly-Capillary Malformation Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Megalencephaly-Capillary Malformation Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Megalencephaly-Capillary Malformation Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Megalencephaly-Capillary Malformation Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Megalencephaly-Capillary Malformation Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Megalencephaly-Capillary Malformation Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Megalencephaly-Capillary Malformation Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Megalencephaly-Capillary Malformation Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Megalencephaly-Capillary Malformation Syndrome doctors in The United States?

      Look for the filter feature on the left side of the Megalencephaly-Capillary Malformation Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Megalencephaly-Capillary Malformation Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Megalencephaly-Capillary Malformation Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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