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Learn About Localized Scleroderma

What is the definition of Localized Scleroderma?
Localized scleroderma is characterized by thickening of the skin from excessive collagen deposits. Collagen is a protein normally present in our skin that provides structural support. However, when too much collagen is made, the skin becomes stiff and hard. Localized types of scleroderma are those limited to the skin and related tissues and, in some cases, the muscle below. Internal organs are not affected by Localized scleroderma, and Localized scleroderma can never progress to the systemic form of the disease. Often, localized conditions improve or go away on their own over time, but the skin changes and damage that occur when the disease is active can be permanent. For some people, Localized scleroderma is serious and disabling. There are two generally recognized types of Localized scleroderma: morphea and linear.
What are the alternative names for Localized Scleroderma?
  • Localized scleroderma
  • Localized fibrosing scleroderma
  • Scleroderma, localized
Who are the top Localized Scleroderma Local Doctors?
Victoria P. Werth
Elite in Localized Scleroderma
Elite in Localized Scleroderma

Penn Dermatology Perelman

3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
Philadelphia, PA 
Languages Spoken:
English
Accepting New Patients
Offers Telehealth

Victoria Werth is a Dermatologist in Philadelphia, Pennsylvania. Dr. Werth is rated as an Elite provider by MediFind in the treatment of Localized Scleroderma. Her top areas of expertise are Cutaneous Lupus Erythematosus (CLE), Dermatomyositis, Discoid Lupus Erythematosus (DLE), and Pemphigus. Dr. Werth is currently accepting new patients.

Kathryn S. Torok
Elite in Localized Scleroderma
Pediatric Rheumatology
Elite in Localized Scleroderma
Pediatric Rheumatology

UPMC Children's Hospital Of Pittsburgh, Pediatric Rheumatology

4401 Penn Avenue, Floor 3, 
Pittsburgh, PA 
Languages Spoken:
English

Kathryn Torok, MD, is a board-certified pediatric rheumatologist and director of the Pediatric Scleroderma Clinic at UPMC Children’s Hospital of Pittsburgh. Dr. Torok earned her medical degree from the Penn State College of Medicine. She began her career in pediatric rheumatology as a fellow at UPMC Children’s Hospital in 2006. Upon completion of her fellowship, she started as an instructor in the Division of Rheumatology at the University of Pittsburgh School of Medicine in July 2009 and was promoted to assistant professor in July 2010. Dr. Torok is rated as an Elite provider by MediFind in the treatment of Localized Scleroderma. Her top areas of expertise are Localized Scleroderma, Systemic Sclerosis (SSc), Pulmonary Hypertension, and Hypertension.

 
 
 
 
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Kaveh Ardalan
Elite in Localized Scleroderma
Elite in Localized Scleroderma

Duke Children's Health Center Rheumatology Clinic

2301 Erwin Rd, 
Durham, NC 
Experience:
20+ years
Languages Spoken:
English
Offers Telehealth

I take care of children and adolescents who have pediatric rheumatic diseases. These include juvenile idiopathic arthritis, lupus, juvenile dermatomyositis, scleroderma, and vasculitis. I take a particular interest in taking care young people who have different forms of juvenile myositis, which is an autoimmune disease in which the immune system attacks one’s own muscles or skin. In order to be a good rheumatologist, you have to listen to the patient and the family because we don’t have a fancy test that just gives you an answer. The answers come from what the patients and their families share with me. Some of our patients are some of the most challenging and sometimes even the sickest patients, yet we can help them get them much better. For that reason, I find my work is very hopeful because I get to see young people really persevere through very tough times and achieve really amazing things in their lives. Dr. Ardalan is rated as an Elite provider by MediFind in the treatment of Localized Scleroderma. His top areas of expertise are Juvenile Dermatomyositis, Dermatomyositis, Localized Scleroderma, and Discoid Lupus Erythematosus (DLE).

What are the latest Localized Scleroderma Clinical Trials?
Investigating the Relationship Between the Biopsychosocial Status of Individuals Diagnosed With Scleroderma and Their Physical Performance and Functionality

Summary: Physical functionality and performance are important for individuals diagnosed with scleroderma. There is a need to address children and adults diagnosed with scleroderma comprehensively and to evaluate them on a biopsychosocial basis to support their disease management. In light of all this literature, the aim was to evaluate the biopsychosocial characteristics of both pediatric and adult sclerod...

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Investigating the Relationship Between the Biopsychosocial Status of Patients Diagnosed With Scleroderma and Their Chewing and Swallowing Performance

Summary: It is recommended to focus on the physical functionality, chewing, and swallowing performance of individuals diagnosed with scleroderma. There is a need to address children and adults diagnosed with scleroderma comprehensively and to evaluate them on a biopsychosocial basis to support their disease management. The aim was to assess the biopsychosocial characteristics of both children and adults di...

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center