Digital Measures for Clinical Trial Endpoints in Huntington's Disease (MEND-HD)
MEND-HD is a longitudinal study evaluating the feasibility of passive monitoring of gait and chorea in patients with HD and the meaningfulness of these outcomes for patients with HD and their care partners/support persons. Participants will take part in four virtual visits with study investigators to answer survey questions on movement and cognition, perform in-home movement assessments, and take part in an interview regarding the meaningfulness of gait and chorea in their daily lives. Participant and care partner interviews will be used for symptom mapping and qualitative data analysis to assess the relevance and impact of the targeted symptoms on the participant's daily life.
• Inclusion Criteria for participants with adult-onset HD:
• Age of 25-60 years.
• Genetically confirmed HD (HD-ISS Stage 2 or early Stage 3)
• English speaking.
• Age of 25-60 years.
• English speaking.
• Self-identified support person or family member of the enrolled participants with HD.
• 18 years or older
• English speaking.