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    Last Updated: 10/30/2025

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    MediFind found 31 doctor with experience in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) near Michigan, US. Of these, 26 are Experienced, 4 are Advanced and 1 are Distinguished.

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    31 providers found
      Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics | Pediatrics
      Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English, Urdu
      Accepting New Patients

      Ayesha Ahmad is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ahmad is rated as a Distinguished provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). Her top areas of expertise are Pompe Disease, Propionic Acidemia, Von Gierke Disease, and Classic Galactosemia. Dr. Ahmad is currently accepting new patients.

      Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics
      Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics
      1600 W Grand River Ste 2, 
      Okemos, MI 
      Languages Spoken:
      English

      Andrea Amalfitano is a Medical Genetics provider in Okemos, Michigan. Dr. Amalfitano is rated as an Advanced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Pompe Disease, and Balloon Sinuplasty.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Family Medicine
      Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Family Medicine

      Edward W Sparrow Hospital Association

      2909 E Grand River Ave, 
      Lansing, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Joseph Nettleman is a primary care provider, practicing in Family Medicine in Lansing, Michigan. Dr. Nettleman is rated as an Advanced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Cerebral Palsy, and Selective Deficiency of IgA. Dr. Nettleman is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics | Pediatrics
      Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Shane Quinonez is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Quinonez is rated as an Advanced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Pompe Disease, Dihydrolipoamide Dehydrogenase Deficiency, MELAS Syndrome, and Propionic Acidemia.

      Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics | Pediatrics
      Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics | Pediatrics
      35 Michigan St NE Ste 3003, 
      Grand Rapids, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Stacie Adams is a Medical Genetics specialist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Adams is rated as an Advanced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). Her top areas of expertise are Propionic Acidemia, Classic Galactosemia, Biotinidase Deficiency, and Galactosemia. Dr. Adams is currently accepting new patients.

      Brooke E. Geddie
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
      Experience:
      21+ years
      Languages Spoken:
      English

      Brooke Geddie is a Pediatrics provider in Grand Rapids, Michigan. Dr. Geddie has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). Her top areas of expertise are Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy.

      Patrick J. Droste
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)

      Pediatric Ophthalmology PC - Cascade Road

      5050 Cascade Road Southeast, 
      Grand Rapids, MI 
      Experience:
      46+ years
      Languages Spoken:
      English
      Accepting New Patients

      Patrick Droste is a Pediatrics provider in Grand Rapids, Michigan. Dr. Droste has been practicing medicine for over 46 years and is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Strabismus, Esotropia, Amblyopia, and Brown Syndrome. Dr. Droste is currently accepting new patients.

      Jeffrey A. Cassidy
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatric Orthopedics
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
      Experience:
      29+ years
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Cassidy is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Cassidy has been practicing medicine for over 29 years and is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Scoliosis, Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Osteotomy, and Spinal Fusion. Dr. Cassidy is currently accepting new patients.

      Ted Kelbel
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatric Allergy and Immunology | Allergy and Immunology
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatric Allergy and Immunology | Allergy and Immunology

      Corewell Health Pediatric Allergy And Immunology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      15+ years
      Languages Spoken:
      English
      Accepting New Patients

      Ted Kelbel is a Pediatric Allergy and Immunologist and an Allergy and Immunologist in Grand Rapids, Michigan. Dr. Kelbel has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Hereditary Angioedema, Hives, Hyperphenylalaninemia Due to Dehydratase Deficiency, and Complement Component 2 Deficiency. Dr. Kelbel is currently accepting new patients.

      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatric Cardiology | Pediatrics
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatric Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, Mott Hospital, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Joshua Meisner is a Pediatric Cardiologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Meisner is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are CHARGE Syndrome, Cardiofaciocutaneous Syndrome, Noonan Syndrome, and Cardiomyopathic Lentiginosis. Dr. Meisner is currently accepting new patients.

      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Internal Medicine
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Internal Medicine

      Regents Of The University Of Michigan

      1051 N Canton Cntr Rd, University Of Michigan Med, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Deguzman is a primary care provider, practicing in Internal Medicine in Ann Arbor, Michigan. Dr. Deguzman is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and Type 2 Diabetes (T2D). Dr. Deguzman is currently accepting new patients.

      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Internal Medicine
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Internal Medicine
      3901 Beaubien St, 
      Detroit, MI 
      Languages Spoken:
      English

      David Stockton is a primary care provider, practicing in Internal Medicine in Detroit, Michigan. Dr. Stockton is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Pompe Disease, Danon Disease, Multiple Sulfatase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Ophthalmology
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Ophthalmology

      Regents Of The University Of Michigan

      1000 Wall St, 
      Ann Arbor, MI 
      Languages Spoken:
      English, German, Hindi, Punjabi, Urdu
      Accepting New Patients

      Shahzad Mian is an Ophthalmologist in Ann Arbor, Michigan. Dr. Mian is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Cataract, Interstitial Keratitis, Fuchs Dystrophy, Corneal Transplant, and Cataract Removal. Dr. Mian is currently accepting new patients.

      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics | Pediatrics
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Elizabeth Ames is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ames is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). Her top areas of expertise are Delayed Growth, Cardiomyopathic Lentiginosis, Noonan Syndrome, and Cardiofaciocutaneous Syndrome. Dr. Ames is currently accepting new patients.

      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Thor Thorsson is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Thorsson is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Isthmian Coarctation.

      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatric Cardiology | Pediatrics | Cardiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Albert Rocchini is a Pediatric Cardiologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Rocchini is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Tetralogy of Fallot, Ventricular Septal Defects, Patent Foramen Ovale Repair, and Stent Placement. Dr. Rocchini is currently accepting new patients.

      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Ophthalmology
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Ophthalmology

      Regents Of The University Of Michigan

      7500 Challis Rd, 
      Brighton, MI 
      Languages Spoken:
      English

      Adam Jacobson is an Ophthalmologist in Brighton, Michigan. Dr. Jacobson is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Microphthalmia, Strabismus, Congenital Cataract, Trabeculectomy, and Vitrectomy.

      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Medical Genetics

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Tomoyasu Higashimoto is a Medical Genetics provider in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia.

      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)

      Regents Of The University Of Michigan

      1051 N Canton Ctr Rd, 
      Canton, MI 
      Languages Spoken:
      English, Sign Language, Spanish
      Accepting New Patients

      Bradford Tannen is an Ophthalmologist in Canton, Michigan. Dr. Tannen is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). His top areas of expertise are Cataract, Fuchs Dystrophy, Interstitial Keratitis, Cataract Removal, and Corneal Transplant. Dr. Tannen is currently accepting new patients.

      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatrics | Palliative Medicine | Hospital Medicine
      Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
      Pediatrics | Palliative Medicine | Hospital Medicine

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Patricia Keefer is a Pediatrics specialist and a Palliative Medicine provider in Ann Arbor, Michigan. Dr. Keefer is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). Her top areas of expertise are Trisomy 13, Microcephaly Deafness Syndrome, Early Infantile Epileptic Encephalopathy, and Koolen De Vries Syndrome. Dr. Keefer is currently accepting new patients.

      Showing 1-20 of 31

      Last Updated: 10/30/2025

      What is the definition of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)?

      Mucopolysaccharidosis type I (MPS I) is a condition that affects many parts of the body. This disorder was once divided into three separate syndromes: Hurler syndrome (MPS I-H), Hurler-Scheie syndrome (MPS I-H/S), and Scheie syndrome (MPS I-S), listed from most to least severe. Because there is so much overlap between each of these three syndromes, MPS I is currently divided into the severe and attenuated types.

      When should I see a Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor search results page. 

      Why is it important to get a second opinion from a different Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctors in Michigan, US?

      Look for the filter feature on the left side of the Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor that offers video calls?

      Look for the filter feature on the left-side of the Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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