The 20 Best Myotonic Dystrophy Doctors in The United States

Find the Top Myotonic Dystrophy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 1874 doctor with experience in Myotonic Dystrophy near The United States. Of these, 1569 are Experienced, 208 are Advanced, 54 are Distinguished and 7 are Elite.

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1,874 providers found
    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy

    Office

    355 W 16th St Ste 3200, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Laurie Gutmann is a Neurologist practicing medicine in Indianapolis, Indiana. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Charcot-Marie-Tooth Disease.

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy

    Penn Neuroscience Center - Neurology

    330 South 9th Street, 3rd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Lauren Elman is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Elman is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 48 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myotonic Dystrophy Type 2, and Myotonic Dystrophy. Dr. Elman is currently accepting new patients.

    Distinguished in Myotonic Dystrophy
    Distinguished in Myotonic Dystrophy

    OSF Illinois Neurological Institute - Neurology

    200 East Pennsylvania Avenue, 
    Peoria, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Gregory Blume is a Neurologist practicing medicine in Peoria, Illinois. Dr. Blume is rated as a Distinguished provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Myotonic Dystrophy. Dr. Blume is board certified in American Board Of Psychiatry And Neurology.

    Learn about our expert tiers
    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Languages Spoken:
    English

    Charles Thornton is a Neurologist practicing medicine in Rochester, New York. Dr. Thornton is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Languages Spoken:
    English

    Chad Heatwole is a Neurologist practicing medicine in Rochester, New York. Dr. Heatwole is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Facioscapulohumeral Muscular Dystrophy (FSHD).

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy

    Houston Methodist Department Of Neurology-Texas Medical Center

    6560 Fannin St Ste 802, 
    Houston, TX 
    Languages Spoken:
    English

    Tetsuo Ashizawa is a Neurologist practicing medicine in Houston, Texas. Dr. Ashizawa is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Olivopontocerebellar Atrophy, Spinocerebellar Ataxia Type 10, Spinocerebellar Ataxia, Drug Induced Dyskinesia, and Deep Brain Stimulation.

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Thurman Wheeler is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Wheeler is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Dystrophinopathy.

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy

    Outpatient Neurologic Rehabilitation Program

    213 Quarry Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Jacinda Sampson is a Neurologist practicing medicine in Palo Alto, California. Dr. Sampson is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 73 other conditions, according to our data. Her clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, Oculodentodigital Dysplasia, and Thymectomy.

    Experienced in Myotonic Dystrophy
    Experienced in Myotonic Dystrophy

    Reading Hospital

    420 South 5th Avenue, 
    West Reading, PA 
    Languages Spoken:
    English

    Mohammad Khoshnoodi is a Neurologist practicing medicine in West Reading, Pennsylvania. Dr. Khoshnoodi is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Miller-Fisher Syndrome, Guillain-Barre Syndrome, and Chronic Polyradiculoneuritis. Dr. Khoshnoodi is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Myotonic Dystrophy
    Cardiac Electrophysiology | Cardiology
    Experienced in Myotonic Dystrophy
    Cardiac Electrophysiology | Cardiology

    Heart And Vascular Center At Durham Outpatient Center

    4400 Emile St., 
    Omaha, NE 
    Experience:
    47+ years
    Languages Spoken:
    English

    John Windle is a Cardiologist and a Cardiac Electrophysiologist practicing medicine in Omaha, Nebraska. He has been practicing medicine for over 47 years. Dr. Windle is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Familial Ventricular Tachycardia, Paroxysmal Supraventricular Tachycardia (PSVT), His Bundle Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

    Experienced in Myotonic Dystrophy
    Experienced in Myotonic Dystrophy

    Bassett Medical Center

    1 Atwell Road, 
    Cooperstown, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Ramesh Cherukuri is a Neurologist practicing medicine in Cooperstown, New York. Dr. Cherukuri is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Seizures, Epilepsy Juvenile Absence, Memory Loss, and Lewy Body Dementia (LBD). Dr. Cherukuri is board certified in American Board Of Psychiatry & Neurology In Clinical Neurophysiology and American Board Of Psychiatry & Neurology In Neurology.

    Experienced in Myotonic Dystrophy
    Pediatric Cardiology | Pediatrics
    Experienced in Myotonic Dystrophy
    Pediatric Cardiology | Pediatrics

    St. Christopher's Pediatric Associates Cardiology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Anna Tsirka is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Tsirka is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, and Tetralogy of Fallot. Dr. Tsirka is board certified in American Board Of Pediatrics.

    Experienced in Myotonic Dystrophy
    Experienced in Myotonic Dystrophy

    Reading Hospital Cardiology - West Reading

    301 S 7th Ave, Ste 2020, 
    West Reading, PA 
    Languages Spoken:
    English

    Jared Green is a Cardiologist practicing medicine in West Reading, Pennsylvania. Dr. Green is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 56 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Pulmonary Edema, Heart Failure with Preserved Ejection Fraction (HFpEF), and Atrial Fibrillation. Dr. Green is board certified in American Osteopathic Board Of Internal Medicine.

    Distinguished in Myotonic Dystrophy
    Distinguished in Myotonic Dystrophy

    Kennedy Krieger Institute

    1741 Ashland Avenue, Room 847, Room 847, 
    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Leung obtained her undergraduate degree in biochemical sciences from Harvard University. While attending medical school at Duke University, she completed a year-long research fellowship studying genetic markers of late-onset Alzheimer’s disease at the National Institute on Aging as part of the NIH Clinical Research Training Program. She completed her neurology residency and clinical neurophysiology fellowship at Stanford University Medical Center, and is currently a Ph.D. candidate in the graduate training program in clinical investigation at the Johns Hopkins Bloomberg School of Public Health. Dr. Leung joined the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute as a translational research fellow in 2010 and was appointed to the faculty in 2014. Her clinic specializes in electromyography and the diagnosis and treatment of hereditary muscle diseases. Dr. Leung’s research focuses on the development of imaging biomarkers and outcome measures for muscle diseases. She is the principal investigator for a longitudinal cohort study of whole-body MRI in facioscapulohumeral muscular dystrophy. Dr. Leung is also a site principal investigator for the Ionis-DMPKRx trial, a phase Ib/IIa clinical trial of a novel RNA-based therapy for myotonic muscular dystrophy. Dr. Leung is rated as a Distinguished provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, and Dysferlinopathy. Dr. Leung is board certified in American Board Of Psychiatry And Neurology.

    Distinguished in Myotonic Dystrophy
    Distinguished in Myotonic Dystrophy

    Neuromuscular - Integrated Medical Services

    630 S 400 E Ste 101, 
    Saint George, UT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Russell Butterfield is a Neurologist practicing medicine in Saint George, Utah. Dr. Butterfield is rated as a Distinguished provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Facioscapulohumeral Muscular Dystrophy (FSHD), and Spinal Muscular Atrophy (SMA). Dr. Butterfield is board certified in American Board Of Psychiatry And Neurology. Dr. Butterfield is currently accepting new patients.

    Advanced in Myotonic Dystrophy
    Advanced Heart Failure and Transplant Cardiology | Cardiology
    Advanced in Myotonic Dystrophy
    Advanced Heart Failure and Transplant Cardiology | Cardiology

    Heart And Vascular Center At Durham Outpatient Center

    4400 Emile St., 
    Omaha, NE 
    Experience:
    17+ years
    Languages Spoken:
    English

    Douglas Stoller is a Cardiologist and an Advanced Heart Failure and Transplant Cardiologist practicing medicine in Omaha, Nebraska. He has been practicing medicine for over 17 years. Dr. Stoller is rated as an Advanced provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Sengers Syndrome, Arrhythmogenic Right Ventricular Cardiomyopathy, Heart Transplant, and Pacemaker Implantation.

    Experienced in Myotonic Dystrophy
    Experienced in Myotonic Dystrophy

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Christopher Lee is a Neurologist practicing medicine in Nashville, Tennessee. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Guillain-Barre Syndrome, and Gamma Knife Radiosurgery. Dr. Lee is board certified in American Board Of Psychiatry & Neurology.

    Distinguished in Myotonic Dystrophy
    Distinguished in Myotonic Dystrophy

    Penn Heart And Vascular Center Radnor

    145 King Of Prussia Road, Suite 110, 
    Center Radnor, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Saman Nazarian is a Cardiologist practicing medicine in Center Radnor, Pennsylvania. Dr. Nazarian is rated as a Distinguished provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 36 other conditions, according to our data. His clinical expertise encompasses Ventricular Tachycardia, Arrhythmias, Atrial Fibrillation, Cardiac Ablation, and Pacemaker Implantation. Dr. Nazarian is board certified in Clinical Cardiac Electrophysiology, 2008 and Cardiovascular Disease, 2006. Dr. Nazarian is currently accepting new patients.

    Distinguished in Myotonic Dystrophy
    Distinguished in Myotonic Dystrophy

    Office

    300 Medical Plz, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Payam Soltanzadeh is a Neurologist practicing medicine in Los Angeles, California. Dr. Soltanzadeh is rated as a Distinguished provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Distinguished in Myotonic Dystrophy
    Distinguished in Myotonic Dystrophy

    Sound Cardiology PC

    170 Route 25A, 
    Rocky Point, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Scott Mcwilliams is a Neurologist practicing medicine in Rocky Point, New York. Dr. Mcwilliams is rated as a Distinguished provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Limb-Girdle Muscular Dystrophy Type 2C.

    Showing 1-20 of 1,874

    Last Updated: 04/28/2026

    What is the definition of Myotonic Dystrophy?

    Myotonic dystrophy is part of a group of inherited disorders called muscular dystrophies. It is the most common form of muscular dystrophy that begins in adulthood.

    When should I see a Myotonic Dystrophy doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Myotonic Dystrophy doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Myotonic Dystrophy doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Myotonic Dystrophy doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Myotonic Dystrophy doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Myotonic Dystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Myotonic Dystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Myotonic Dystrophy doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Myotonic Dystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Myotonic Dystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Myotonic Dystrophy doctors in The United States?

    Look for the filter feature on the left side of the Myotonic Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Myotonic Dystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Myotonic Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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