The 20 Best Myotonic Dystrophy Doctors in The United States

Find the Top Myotonic Dystrophy Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 1952 doctor with experience in Myotonic Dystrophy near The United States. Of these, 1634 are Experienced, 215 are Advanced, 54 are Distinguished and 45 are Elite.

Location
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1,952 providers found
    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy
    Referral may be required

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Statland is a Neurologist practicing medicine in Fairway, Kansas. Dr. Statland is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Paramyotonia Congenita, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Gastrostomy. Dr. Statland is board certified in American Board Of Psychiatry And Neurology, Neurology - 2011. Dr. Statland is currently accepting new patients.

    Distinguished in Myotonic Dystrophy
    Distinguished in Myotonic Dystrophy
    Referral may be required

    OSF Illinois Neurological Institute - Neurology

    200 East Pennsylvania Avenue, 
    Peoria, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Gregory Blume is a Neurologist practicing medicine in Peoria, Illinois. Dr. Blume is rated as a Distinguished provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2. Dr. Blume is board certified in American Board Of Psychiatry And Neurology. Dr. Blume is currently accepting new patients.

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy
    Referral may be required

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Languages Spoken:
    English

    Chad Heatwole is a Neurologist practicing medicine in Rochester, New York. Dr. Heatwole is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, and Facioscapulohumeral Muscular Dystrophy (FSHD).

    Learn about our expert tiers
    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy
    Referral may be required

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Languages Spoken:
    English

    Charles Thornton is a Neurologist practicing medicine in Rochester, New York. Dr. Thornton is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy
    Referral may be required

    Stanford Hospital And Clinics

    965 High St, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Jacinda Sampson is a Neurologist practicing medicine in Palo Alto, California. Dr. Sampson is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 74 other conditions, according to our data. Her clinical expertise encompasses Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, Oculodentodigital Dysplasia, and Thymectomy.

    Elite in Myotonic Dystrophy
    Neurology
    Elite in Myotonic Dystrophy
    Neurology
    Referral may be required

    Stanford Hospital And Clinics

    965 High St, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    John Day is a Neurologist practicing medicine in Palo Alto, California. Dr. Day is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy, Myotonic Dystrophy Type 2, Spinal Muscular Atrophy (SMA), and Paramyotonia Congenita.

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy
    Referral required

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City,, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Laurie Gutmann is a Neurologist practicing medicine in Iowa City,, Iowa. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Charcot-Marie-Tooth Disease. Dr. Gutmann is currently accepting new patients.

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy
    Referral may be required

    Office

    601 Elmwood Ave # 1, 
    Rochester, NY 
    Experience:
    17+ years
    Languages Spoken:
    English

    Johanna Hamel is a Neurologist practicing medicine in Rochester, New York. She has been practicing medicine for over 17 years. Dr. Hamel is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, and Facioscapulohumeral Muscular Dystrophy (FSHD).

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy
    Referral may be required

    Houston Methodist Department Of Neurology-Texas Medical Center

    6560 Fannin St Ste 802, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Tetsuo Ashizawa is a Neurologist practicing medicine in Houston, Texas. Dr. Ashizawa is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Olivopontocerebellar Atrophy, Spinocerebellar Ataxia Type 10, Spinocerebellar Ataxia, Drug Induced Dyskinesia, and Deep Brain Stimulation. Dr. Ashizawa is currently accepting new patients in some locations.

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Thurman Wheeler is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Wheeler is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, and Dystrophinopathy. Dr. Wheeler is currently accepting new patients.

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy
    Referral may be required

    Penn Nerve Center University City

    3737 Market Street, 7th Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lauren Elman is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Elman is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 48 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myotonic Dystrophy Type 2, and Myotonic Dystrophy. Dr. Elman is board certified in Neurology, 2003. Dr. Elman is currently accepting new patients.

    Elite in Myotonic Dystrophy
    Elite in Myotonic Dystrophy
    Referral may be required

    Penn Heart And Vascular Center

    3400 Civic Center Boulevard, East Pavilion, 2nd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Saman Nazarian is a Cardiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Nazarian is rated as an Elite provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Ventricular Tachycardia, Arrhythmias, Atrial Fibrillation, Cardiac Ablation, and Pacemaker Implantation. Dr. Nazarian is board certified in Cardiovascular Disease, 2006 and Clinical Cardiac Electrophysiology, 2008. Dr. Nazarian is currently accepting new patients.

    Advanced in Myotonic Dystrophy
    Advanced Heart Failure and Transplant Cardiology | Cardiology
    Advanced in Myotonic Dystrophy
    Advanced Heart Failure and Transplant Cardiology | Cardiology
    Referral may be required

    Heart And Vascular Center At Durham Outpatient Center

    4400 Emile St., 
    Omaha, NE 
    Experience:
    17+ years
    Languages Spoken:
    English, American Sign Language
    Accepting New Patients

    Douglas Stoller is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist practicing medicine in Omaha, Nebraska. He has been practicing medicine for over 17 years. Dr. Stoller is rated as an Advanced provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Sengers Syndrome, Heart Failure, Heart Transplant, and Pacemaker Implantation. Dr. Stoller is currently accepting new patients.

    Advanced in Myotonic Dystrophy
    Family Medicine
    Advanced in Myotonic Dystrophy
    Family Medicine

    Duke Primary Care Brier Creek

    10208 Cerny St, 
    Raleigh, NC 
    Languages Spoken:
    English, French, Spanish
    Accepting New Patients
    Offers Telehealth

    Michele Nacouzi is a primary care provider, practicing in Family Medicine in Raleigh, North Carolina. Dr. Nacouzi is rated as an Advanced provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Sitosterolemia, and Paramyotonia Congenita. Dr. Nacouzi is board certified in American Board Of Family Medicine, Family Medicine. Dr. Nacouzi is currently accepting new patients.

    Advanced in Myotonic Dystrophy
    Advanced in Myotonic Dystrophy
    Referral required

    Amc

    47 New Scotland Ave, 
    Albany, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Murnane is a Neurologist practicing medicine in Albany, New York. Dr. Murnane is rated as an Advanced provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 66 other conditions, according to our data. His clinical expertise encompasses Hereditary Sensory Neuropathy Type 1 (HSN1), Andermann Syndrome, Sensorimotor Polyneuropathy, and Septic Arthritis. Dr. Murnane is currently accepting new patients.

    Advanced in Myotonic Dystrophy
    Advanced in Myotonic Dystrophy
    Referral may be required

    Virginia Commonwealth University Health System Authority

    11958 W Broad St, 
    Henrico, VA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Nicholas Johnson is a Neurologist practicing medicine in Henrico, Virginia. Dr. Johnson is rated as an Advanced provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Fukuyama Type Muscular Dystrophy, Oculopharyngeal Muscular Dystrophy, Distal Myopathy 2, and Emery-Dreifuss Muscular Dystrophy. Dr. Johnson is currently accepting new patients.

    Advanced in Myotonic Dystrophy
    Advanced in Myotonic Dystrophy
    Referral may be required
    675 N St Clair St Ste 19-100, Galter Pavilion, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Elizabeth Mcnally is a Cardiologist practicing medicine in Chicago, Illinois. Dr. Mcnally is rated as an Advanced provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Cardiomyopathy, Duchenne Muscular Dystrophy, Dilated Cardiomyopathy (DCM), and Hypertrophic Cardiomyopathy (HCM). Dr. Mcnally is board certified in American Board Of Internal Medicine - Cardiovascular Disease (Certified). Dr. Mcnally is currently accepting new patients.

    Advanced in Myotonic Dystrophy
    Neurology
    Advanced in Myotonic Dystrophy
    Neurology
    Referral may be required

    Fletcher Allen Health Care Inc

    1 S Prospect St, 
    Burlington, VT 
    Languages Spoken:
    English, Hindi
    Offers Telehealth

    Rup Tandan is a Neurologist practicing medicine in Burlington, Vermont. Dr. Tandan is rated as an Advanced provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Dysferlinopathy, Primary Lateral Sclerosis, and Thymectomy. Dr. Tandan is board certified in American Board Of Psychiatry And Neurology - Neurology.

    Advanced in Myotonic Dystrophy
    Advanced in Myotonic Dystrophy
    Referral may be required

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Andrea Swenson is a Neurologist practicing medicine in Iowa City, Iowa. Dr. Swenson is rated as an Advanced provider by MediFind in the treatment of Myotonic Dystrophy. She is also highly rated in 44 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Myasthenia Gravis, and Rhizotomy. Dr. Swenson is currently accepting new patients.

    Advanced in Myotonic Dystrophy
    Advanced in Myotonic Dystrophy
    Referral may be required

    University Neurology Inc

    222 Piedmont Ave Ste 3200, 
    Cincinnati, OH 
    Languages Spoken:
    English
    Accepting New Patients

    John Quinlan is a Neurologist practicing medicine in Cincinnati, Ohio. Dr. Quinlan is rated as an Advanced provider by MediFind in the treatment of Myotonic Dystrophy. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Inclusion Body Myositis, Emery-Dreifuss Muscular Dystrophy, and Miyoshi Myopathy. Dr. Quinlan is currently accepting new patients.

    Showing 1-20 of 1,952

    Last Updated: 11/08/2026

    What is the definition of Myotonic Dystrophy?

    Myotonic dystrophy is part of a group of inherited disorders called muscular dystrophies. It is the most common form of muscular dystrophy that begins in adulthood.

    When should I see a Myotonic Dystrophy doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Myotonic Dystrophy doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Myotonic Dystrophy doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Myotonic Dystrophy doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Myotonic Dystrophy doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Myotonic Dystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Myotonic Dystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Myotonic Dystrophy doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Myotonic Dystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Myotonic Dystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Myotonic Dystrophy doctors in The United States?

    Look for the filter feature on the left side of the Myotonic Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Myotonic Dystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Myotonic Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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