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    Last Updated: 10/30/2025

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    MediFind found 14 doctor with experience in Naegeli-Franceschetti-Jadassohn Syndrome near Massachusetts, US. Of these, 8 are Experienced and 6 are Advanced.

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    14 providers found
      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      Medical Genetics | Pediatrics
      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      Medical Genetics | Pediatrics
      Childrens Hospital, 300 Longwood Ave./genetics, Feg, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Wen-hann Tan is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Tan is rated as an Advanced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. His top areas of expertise are Incontinentia Pigmenti, Congenital Athymia, EEC Syndrome, and AEC Syndrome. Dr. Tan is currently accepting new patients.

      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      Pediatrics
      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      Pediatrics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Eli Sprecher is a Pediatrics provider in Boston, Massachusetts. Dr. Sprecher is rated as an Advanced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. His top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Naegeli-Franceschetti-Jadassohn Syndrome. Dr. Sprecher is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      12 Meadow St, 
      Williamstown, MA 
      Languages Spoken:
      English

      David Elpern is a Dermatologist in Williamstown, Massachusetts. Dr. Elpern is rated as an Advanced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. His top areas of expertise are Basal Cell Skin Cancer, Ectodermal Dysplasias, Naegeli-Franceschetti-Jadassohn Syndrome, and Clouston Syndrome.

      Learn about our expert tiers
      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      Hand Surgery | Orthopedics
      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      Hand Surgery | Orthopedics

      Boston Orthopaedic And Spine LLC

      20 Guest St, Suite 225, 
      Brighton, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Jinsil Sung is a Hand Surgeon and an Orthopedics provider in Brighton, Massachusetts. Dr. Sung is rated as an Advanced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. Her top areas of expertise are Carpal Tunnel Syndrome, Dupuytren Contracture, Arthritis, and AEC Syndrome. Dr. Sung is currently accepting new patients.

      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      Medical Genetics | Pediatrics
      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      Medical Genetics | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Advanced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      Pediatrics | Medical Genetics
      Advanced in Naegeli-Franceschetti-Jadassohn Syndrome
      Pediatrics | Medical Genetics
      50 Wason Avenue, 
      Springfield, MA 
      Languages Spoken:
      English

      Ricardo Villalba-Lopez is a Pediatrics specialist and a Medical Genetics provider in Springfield, Massachusetts. Dr. Villalba-Lopez is rated as an Advanced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. His top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Naegeli-Franceschetti-Jadassohn Syndrome, and AEC Syndrome.

      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Dermatology | Pediatrics
      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Dermatology | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Sophia Delano is a Dermatologist and a Pediatrics provider in Boston, Massachusetts. Dr. Delano is rated as an Experienced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. Her top areas of expertise are Incontinentia Pigmenti, Urticaria Pigmentosa, Trichothiodystrophy, and Atopic Dermatitis. Dr. Delano is currently accepting new patients.

      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      5 Water St, Arlington Pediatric Associates, P.c., 
      Arlington, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Alenka Zeman is a Pediatrics provider in Arlington, Massachusetts. Dr. Zeman is rated as an Experienced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. Her top areas of expertise are AEC Syndrome, EEC Syndrome, Zlotogora-Ogur Syndrome, and Ectodermal Dysplasias. Dr. Zeman is currently accepting new patients.

      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Internal Medicine
      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Internal Medicine
      790 Boston Rd, 
      Billerica, MA 
      Languages Spoken:
      English

      Anna Livson is a primary care provider, practicing in Internal Medicine in Billerica, Massachusetts. Dr. Livson is rated as an Experienced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. Her top areas of expertise are Male Pattern Baldness, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension.

      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Dermatology | Pediatrics
      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Dermatology | Pediatrics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Stephen Gellis is a Dermatologist and a Pediatrics provider in Boston, Massachusetts. Dr. Gellis is rated as an Experienced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. His top areas of expertise are Molluscum Contagiosum, Trichothiodystrophy, Atopic Dermatitis, and Akesson Syndrome. Dr. Gellis is currently accepting new patients.

      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      107 Woburn St, 
      Reading, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Mark Curdo is a Pediatrics provider in Reading, Massachusetts. Dr. Curdo is rated as an Experienced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. His top areas of expertise are Obesity in Children, AEC Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, and Clouston Syndrome. Dr. Curdo is currently accepting new patients.

      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Ophthalmology
      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Ophthalmology

      Ophthalmic Consultants Of Boston Inc

      50 Staniford St, Suite 600, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Naveen Rao is an Ophthalmologist in Boston, Massachusetts. Dr. Rao is rated as an Experienced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. His top areas of expertise are Cataract, Entropion, Uveitis, and Neuroretinitis. Dr. Rao is currently accepting new patients.

      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Family Medicine
      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Family Medicine
      130 County Rd, 
      Ipswich, MA 
      Languages Spoken:
      English

      Curtis Ersing is a primary care provider, practicing in Family Medicine in Ipswich, Massachusetts. Dr. Ersing is rated as an Experienced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. His top areas of expertise are Gallbladder Disease, Gallstones, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension.

      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Oral and Maxillofacial Surgery | General Surgery
      Experienced in Naegeli-Franceschetti-Jadassohn Syndrome
      Oral and Maxillofacial Surgery | General Surgery

      Trustees Of Boston University

      100 E Newton St, G407, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Kelly Sayre is an Oral and Maxillofacial Surgeon and a General Surgeon in Boston, Massachusetts. Dr. Sayre is rated as an Experienced provider by MediFind in the treatment of Naegeli-Franceschetti-Jadassohn Syndrome. Her top areas of expertise are Mouth Sores, Mouth Ulcers, Tongue Cancer, Leukoplakia, and Tissue Biopsy. Dr. Sayre is currently accepting new patients.

      Showing 1-14 of 14

      Last Updated: 10/30/2025

      What is the definition of Naegeli-Franceschetti-Jadassohn Syndrome?

      Naegeli-Franceschetti-Jadassohn syndrome/dermatopathia pigmentosa reticularis (NFJS/DPR) represents a rare type of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of ectodermal tissues including the skin, hair, nails, teeth, and sweat glands. NFJS and DPR were originally described as separate conditions; however, because they have similar features and are caused by mutations in the same gene, they are now often considered forms of the same disorder.

      When should I see a Naegeli-Franceschetti-Jadassohn Syndrome doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Naegeli-Franceschetti-Jadassohn Syndrome doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Naegeli-Franceschetti-Jadassohn Syndrome doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Naegeli-Franceschetti-Jadassohn Syndrome doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Naegeli-Franceschetti-Jadassohn Syndrome doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Naegeli-Franceschetti-Jadassohn Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Naegeli-Franceschetti-Jadassohn Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Naegeli-Franceschetti-Jadassohn Syndrome doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Naegeli-Franceschetti-Jadassohn Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Naegeli-Franceschetti-Jadassohn Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Naegeli-Franceschetti-Jadassohn Syndrome doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Naegeli-Franceschetti-Jadassohn Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Naegeli-Franceschetti-Jadassohn Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Naegeli-Franceschetti-Jadassohn Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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