Nelson Syndrome
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Nelson Syndrome Overview

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What is the definition of Nelson Syndrome?
A rare, acquired, endocrine disease characterized by the triad of diffuse skin and mucosa hyperpigmentation, markedly elevated serum adrenocorticotropin (ACTH) levels and an enlarging corticotroph adenoma, which manifest following total bilateral adrenalectomy performed for the treatment of Cushing's disease. Additionally, patients may present with headaches, visual field defects, cranial nerve palsy, pituitary apoplexy, diabetes inspidus, panhypopituitarism, and, occasionally, paraovarian or paratesticular tumors.
What are the alternative names for Nelson Syndrome?
  • Nelson syndrome
  • Dermal Ridges
  • Ridges-off-the-end syndrome
Who are the top Nelson Syndrome Local Doctors?
Elite in Nelson Syndrome
Dr. Maria Fleseriu
Endocrinology
Elite in Nelson Syndrome
Dr. Maria Fleseriu
Endocrinology
Referral required

OHSU Hospital

3181 SW Sam Jackson Park Rd, 
Portland, OR 
503-494-8311
Languages Spoken:
English
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Offers Telehealth

Maria Fleseriu is an Endocrinologist practicing medicine in Portland, Oregon. Dr. Fleseriu is rated as an Elite provider by MediFind in the treatment of Nelson Syndrome. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Acromegaly, Cushing's disease, Cushing's syndrome, Acromegaloid Facial Appearance Syndrome, and Hormone Replacement Therapy (HRT).

Elite in Nelson Syndrome
Elite in Nelson Syndrome
Referral may be required
128 Szaserów Str, 
Warsaw, MZ, PL 

Grzegorz Zielinski practices practicing medicine in Warsaw, Poland. Mr. Zielinski is rated as an Elite expert by MediFind in the treatment of Nelson Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Nelson Syndrome, Cushing's disease, Pituitary Tumor, and Hypothalamic Tumor.

 
 
 
 
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Elite in Nelson Syndrome
Elite in Nelson Syndrome
Referral may be required
St Bartholomew's Hospital, 
London, ENG, GB 

William Drake practices practicing medicine in London, United Kingdom. Mr. Drake is rated as an Elite expert by MediFind in the treatment of Nelson Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Nelson Syndrome, Hyperaldosteronism, Von Hippel-Lindau (VHL) Syndrome, Endoscopic Transnasal Transsphenoidal Surgery, and Hormone Replacement Therapy (HRT).

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What are the latest Nelson Syndrome Clinical Trials?
18Fluoro-O-(2) Fluoroethyl-L-tyrosine (FET) PET For Localization Of Pituitary Adenomas In Patients With Cushing Disease
18Fluoro-O-(2) Fluoroethyl-L-tyrosine (FET) PET For Localization Of Pituitary Adenomas In Patients With Cushing Disease
Enrollment Status: Recruiting
Publish Date: June 22, 2026
Intervention Type: Drug
Study Phase: Early Phase 1

Summary: The purpose of this research is to evaluate the performance \[sensitivity, specificity, accuracy\] of FET PET/CT imaging to detect ACTH-secreting pituitary adenoma, using operative findings and histopathology as truth standard.

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Who are the sources who wrote this article ?

Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center