The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Kansas, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 25 doctor with experience in Neurofibromatosis Type 1 (NF1) near Kansas, US. Of these, 8 are Experienced and 1 are Advanced.

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25 providers found
    Neuroradiology
    Neuroradiology

    Ambulatory Surgery Center

    10720 Nall Avenue, 
    Overland Park, KS 
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Leever is a Neuroradiologist practicing medicine in Overland Park, Kansas. He has been practicing medicine for over 21 years. Dr. Leever is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Pediatric Low-Grade Glioma (pLGG), CAPOS Syndrome, Meningioma, and Cerebral Arteriovenous Malformation. Dr. Leever is board certified in American Board Of Radiology, Neuroradiology - 2012 and American Board Of Radiology, Diagnostic Radiology - 2010. Dr. Leever is currently accepting new patients.

    Neuroradiology
    Neuroradiology

    Ambulatory Surgery Center

    10720 Nall Avenue, 
    Overland Park, KS 
    Experience:
    14+ years
    Languages Spoken:
    English
    Accepting New Patients

    Nicholas Harn is a Neuroradiologist practicing medicine in Overland Park, Kansas. He has been practicing medicine for over 14 years. Dr. Harn is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Cerebral Arteriovenous Malformation, X-Linked Intellectual Disability, Siderius Type, Mohr-Tranebjaerg Syndrome, and Aicardi-Goutieres Syndrome. Dr. Harn is board certified in American Board Of Radiology, Neuroradiology - 2019 and American Board Of Radiology, Diagnostic Radiology - 2018. Dr. Harn is currently accepting new patients.

    Ambulatory Surgery Center

    10720 Nall Avenue, 
    Overland Park, KS 
    Experience:
    28+ years
    Languages Spoken:
    English
    Accepting New Patients

    Judson Bertsch is a Radiologist practicing medicine in Overland Park, Kansas. He has been practicing medicine for over 28 years. Dr. Bertsch is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Aicardi-Goutieres Syndrome, PEHO Syndrome, X-Linked Intellectual Disability, Siderius Type, and Mohr-Tranebjaerg Syndrome. Dr. Bertsch is board certified in American Board Of Radiology, Diagnostic Radiology - 2003. Dr. Bertsch is currently accepting new patients.

    Learn about our expert tiers
    Neuroradiology
    Neuroradiology

    The University Of Kansas Hospital

    4000 Cambridge St, 
    Kansas City, KS 
    Languages Spoken:
    English

    Kyle Werth is a Neuroradiologist practicing medicine in Kansas City, Kansas. Dr. Werth is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses X-Linked Intellectual Disability, Siderius Type, Aicardi-Goutieres Syndrome, PEHO Syndrome, and Mohr-Tranebjaerg Syndrome.

    Pediatric Radiology
    Pediatric Radiology

    Wichita Radiological Group Prof Assoc.

    551 N Hillside St Ste 320, 
    Wichita, KS 
    Languages Spoken:
    English

    Debbie Desilet is a Pediatric Radiologist practicing medicine in Wichita, Kansas. Dr. Desilet is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Breast Lump, Subarachnoid Hemorrhage, Pleurisy, and Bronchogenic Cyst.

    Nurse Practitioner
    Nurse Practitioner

    Ascentist Management

    14340 Metcalf Avenue, 
    Overland Park, KS 
    Languages Spoken:
    English

    Katherine Zlotky is a Nurse Practitioner practicing medicine in Overland Park, Kansas. Ms. Zlotky is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1).

    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology

    Grene Vision Group LLC

    1277 N Maize Rd, 
    Wichita, KS 
    Languages Spoken:
    English

    Charles Whitfill is an Ophthalmologist practicing medicine in Wichita, Kansas. Dr. Whitfill is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Strabismus, Brown Syndrome, X-Linked Infantile Nystagmus, and Blocked Tear Duct.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    The University Of Kansas Hospital

    4000 Cambridge Street, 
    Kansas City, KS 
    Experience:
    19+ years
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Benjamin Powers is a Hematologist practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 19 years. Dr. Powers is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Adult Soft Tissue Sarcoma, Liposarcoma, Synovial Sarcoma, Angiosarcoma of the Scalp, and Tissue Biopsy. Dr. Powers is board certified in American Board Of Internal Medicine, Medical Oncology - 2014. Dr. Powers is currently accepting new patients.

    Hematology Oncology | Oncology | Neurosurgery
    Hematology Oncology | Oncology | Neurosurgery

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
    Experience:
    32+ years
    Languages Spoken:
    English, Turkish
    Accepting New Patients
    Offers Telehealth

    Tolga Tuncer is a Hematologist Oncology specialist and an Oncologist practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 32 years. Dr. Tuncer is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Glioblastoma, Glioma, Oligodendroglioma, and Bone Marrow Aspiration. Dr. Tuncer is board certified in American Board Of Internal Medicine, Medical Oncology - 2013 , United Council For Neurologic Subspecialties, Neuro-Oncology - 2011 , and American Board Of Internal Medicine, Internal Medicine - 2008. Dr. Tuncer is currently accepting new patients.

    Ambulatory Surgery Center

    10720 Nall Avenue, 
    Overland Park, KS 
    Experience:
    15+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kyle Sweeney is an Orthopedics provider practicing medicine in Overland Park, Kansas. He has been practicing medicine for over 15 years. Dr. Sweeney is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Bone Tumor, Adult Soft Tissue Sarcoma, Rhabdomyosarcoma Embryonal, Hip Replacement, and Osteotomy. Dr. Sweeney is board certified in American Board Of Orthopaedic Surgery, Orthopaedic Surgery - 2019. Dr. Sweeney is currently accepting new patients.

    Ambulatory Surgery Center

    10720 Nall Avenue, 
    Overland Park, KS 
    Experience:
    41+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Howard Rosenthal is an Orthopedics provider practicing medicine in Overland Park, Kansas. He has been practicing medicine for over 41 years. Dr. Rosenthal is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Bone Tumor, Adult Soft Tissue Sarcoma, Osteochondroma, Rhabdomyosarcoma Embryonal, and Hip Replacement. Dr. Rosenthal is currently accepting new patients.

    Cambridge Tower A

    3825 Cambridge Street, 
    Kansas City, KS 
    Experience:
    40+ years
    Languages Spoken:
    English, Italian
    Accepting New Patients
    Offers Telehealth

    Paul Camarata is a Neurosurgery provider practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 40 years. Dr. Camarata is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Meningioma, Radiation Induced Meningioma, Neurofibromatosis Type 2 (NF2), Awake Craniotomy, and Thrombectomy. Dr. Camarata is board certified in American Board Of Neurological Surgery, Neurological Surgery - 1998. Dr. Camarata is currently accepting new patients.

    Ophthalmology
    Ophthalmology

    Eye Center

    7400 State Line Road, Suite 100, 
    Prairie Village, KS 
    Experience:
    22+ years
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Jason Sokol is an Ophthalmologist practicing medicine in Prairie Village, Kansas. He has been practicing medicine for over 22 years. Dr. Sokol is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Graves Disease, Anophthalmia Plus Syndrome, Blocked Tear Duct, Melanoma of the Eye, and Tissue Biopsy. Dr. Sokol is board certified in American Board Of Ophthalmology, Ophthalmology - 2010. Dr. Sokol is currently accepting new patients.

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jacob Brubacher is a Hand Surgeon practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 16 years. Dr. Brubacher is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Carpal Tunnel Syndrome, Dupuytren Contracture, Rhizarthrosis, Nerve Decompression, and Fasciotomy. Dr. Brubacher is board certified in American Board Of Orthopaedic Surgery, Surgery Of The Hand - 2019 and American Board Of Orthopaedic Surgery, Orthopaedic Surgery - 2018. Dr. Brubacher is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Nurse Practitioner
    Experienced in Neurofibromatosis Type 1 (NF1)
    Nurse Practitioner

    Wesley Pediatric Specialists

    3243 E Murdock St Ste 500 And 510, 
    Overland Park, KS 
    Languages Spoken:
    English

    Christina Brown is a Nurse Practitioner practicing medicine in Overland Park, Kansas. Ms. Brown is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Acute Lymphoblastic Leukemia (ALL), Hemoglobin SC Disease, Sickle Cell Disease, and Neurofibromatosis.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Family Medicine
    Experienced in Neurofibromatosis Type 1 (NF1)
    Family Medicine

    AdventHealth Medical Group Primary Care At Prairie Star

    23351 Prairie Star Pkwy Ste A245, 
    Lenexa, KS 
    Languages Spoken:
    English
    Offers Telehealth

    Jessica Yoakam is a primary care provider, practicing in Family Medicine in Lenexa, Kansas. Dr. Yoakam is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Obesity in Children, Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, and Hypothyroidism.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    2101 N Waldron St, 
    Hutchinson, KS 
    Languages Spoken:
    English

    Russell Kelley is a Dermatologist practicing medicine in Hutchinson, Kansas. Dr. Kelley is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 79 other conditions, according to our data. His clinical expertise encompasses Actinic Keratosis, Eosinophilic Pustular Folliculitis, Warts, and Syringocystadenoma Papilliferum.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Wesley Pediatric Specialists

    3243 E Murdock St Ste 500, 
    Wichita, KS 
    Languages Spoken:
    English

    Gerald Schaefer is a Pediatrics provider practicing medicine in Wichita, Kansas. Dr. Schaefer is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Hypotonia, Autism Spectrum Disorder, and Cortical Dysplasia.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Family Medicine
    Experienced in Neurofibromatosis Type 1 (NF1)
    Family Medicine

    Hutchinson Clinic PA Inc

    1100 N Main St, 
    Hutchinson, KS 
    Languages Spoken:
    English

    Casey Gee is a primary care provider, practicing in Family Medicine in Hutchinson, Kansas. Dr. Gee is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Parainfluenza Virus Type 3, Parainfluenza, Hypolipoproteinemia, and Fish-Eye Disease.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    Bajaj Electrophysiology

    3243 E Murdock St Ste 510, 
    Wichita, KS 
    Languages Spoken:
    English

    Jack Staddon is a Hematologist and an Oncologist practicing medicine in Wichita, Kansas. Dr. Staddon is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Hereditary Spherocytosis, Juvenile Myelomonocytic Leukemia (JMML), Congenital Hemolytic Anemia, and Hemolytic Anemia.

    Showing 1-20 of 25

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Kansas, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Kansas, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Kansas, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Kansas, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Kansas, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Kansas, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Kansas, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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