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    Last Updated: 10/30/2025

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    MediFind found 111 doctor with experience in Neurofibromatosis Type 1 (NF1) near Ann Arbor, MI. Of these, 44 are Experienced, 7 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    111 providers found
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Neurology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Patricia Robertson is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Robertson is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Glioma, Diencephalic Syndrome, Brain Stem Cancer, and Brain Tumor.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Medical Genetics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Medical Genetics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Mark Hannibal is a Pediatrics specialist and a Medical Genetics provider in Ann Arbor, Michigan. Dr. Hannibal is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Aase Syndrome, Filippi Syndrome, CHARGE Syndrome, and Smith-Kingsmore Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Regents Of The University Of Michigan

      1000 Wall St, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Pamela Williams is an Ophthalmologist in Ann Arbor, Michigan. Dr. Williams is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Esotropia, Amblyopia, and Oculocutaneous Albinism.

      Learn about our expert tiers
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Regents Of The University Of Michigan

      1000 Wall St, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Hakan Demirci is an Ophthalmologist in Ann Arbor, Michigan. Dr. Demirci is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Melanoma of the Eye, Retinoblastoma, Metastatic Uveal Melanoma, Uveal Melanoma, and Vitrectomy.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Kristen Lee is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Biotinidase Deficiency, Delayed Growth, Beta-Ketothiolase Deficiency, and Triple X Syndrome.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      Advanced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery

      Regents Of The University Of Michigan

      4260 Plymouth Rd, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English

      Hugh Garton is a Neurosurgery provider in Ann Arbor, Michigan. Dr. Garton is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Chiari Malformation, Chiari Malformation Type 1, Chiari Malformation Type 2, Posterior Fossa Decompression, and Gamma Knife Radiosurgery.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Christina Sloan is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Sloan is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Chromosome 8p Deletion, Chromosome 6q Duplication, Delayed Growth, and Fragile XE Syndrome.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Amanda Pritchard is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Pritchard is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Aase Syndrome.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Scott Schuetze is an Oncologist in Ann Arbor, Michigan. Dr. Schuetze is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Liposarcoma, Adult Soft Tissue Sarcoma, Angiosarcoma, and Myxoid Liposarcoma.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Oncology | Hematology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Oncology | Hematology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Rashmi Chugh is an Oncologist and a Hematologist in Ann Arbor, Michigan. Dr. Chugh is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Adult Soft Tissue Sarcoma, Epithelioid Sarcoma, Desmoid Tumor, and Ewing Sarcoma.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Santhosh Upadhyaya is a Pediatric Hematologist Oncology provider in Ann Arbor, Michigan. Dr. Upadhyaya is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Rhabdoid Tumor, Teratoma of the Mediastinum, Glioma, Medulloblastoma, and Bone Marrow Aspiration.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Elizabeth Ames is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ames is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Delayed Growth, Cardiomyopathic Lentiginosis, Noonan Syndrome, and Cardiofaciocutaneous Syndrome. Dr. Ames is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Adam Dorfman is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Dorfman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Tetralogy of Fallot, Double Discordia, Transposition of the Great Arteries, and Hypoplastic Left Heart Syndrome (HLHS).

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Rajen Mody is a Pediatric Hematologist Oncology provider in Ann Arbor, Michigan. Dr. Mody is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Infantile Neutropenia, Glioma, and Bone Marrow Aspiration.

      Pediatric Nephrology | Pediatrics
      Pediatric Nephrology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Kera Luckritz is a Pediatric Nephrologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Luckritz is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are End-Stage Renal Disease (ESRD), Posterior Urethral Valves, Beta-Ketothiolase Deficiency, Nephrotic Syndrome, and Kidney Transplant.

      Radiology | Pediatric Radiology
      Radiology | Pediatric Radiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Gary Luker is a Radiologist and a Pediatric Radiologist in Ann Arbor, Michigan. Dr. Luker is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Myeloproliferative Neoplasms (MPN), Tracheoesophageal Fistula, Posterior Urethral Valves, Chondrodystrophy, and Hepato-Pancreato-Biliary Surgery.

      Pediatric Cardiology | Cardiology | Pediatrics
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Martin Lapage is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Lapage is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Congenital Heart Block, Arrhythmias, Congenital Heart Disease (CHD), Cardiac Ablation, and Heart Transplant.

      Pediatric Cardiology | Cardiology | Pediatrics
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Carlen Fifer is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Fifer is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Tetralogy of Fallot, Lithotripsy, and Septoplasty.

      Radiology | Pediatric Radiology
      Radiology | Pediatric Radiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Anastasia Hryhorczuk is a Radiologist and a Pediatric Radiologist in Ann Arbor, Michigan. Dr. Hryhorczuk is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Posterior Urethral Valves, Intussusception in Children, Pleural Effusion, and Pleurisy.

      Pediatric Nephrology | Pediatrics | Nephrology
      Pediatric Nephrology | Pediatrics | Nephrology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Zubin Modi is a Pediatric Nephrologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Modi is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Renovascular Hypertension, Alport Syndrome, Autosomal Recessive Polycystic Kidney Disease, Liddle Syndrome, and Kidney Transplant.

      Showing 1-20 of 111

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Ann Arbor, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Ann Arbor, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Ann Arbor, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Ann Arbor, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Ann Arbor, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Ann Arbor, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Ann Arbor, MI?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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