The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in District of Columbia, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 09/26/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 44 doctor with experience in Neurofibromatosis Type 1 (NF1) near District of Columbia, US. Of these, 21 are Elite, 13 are Experienced, 2 are Advanced and 2 are Distinguished.

Location
LocationClose
44 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Languages Spoken:
    English

    Aerang Kim is a Pediatric Hematologist Oncology provider practicing medicine in Washington, Washington, D.c.. Dr. Kim is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Adult Soft Tissue Sarcoma. Dr. Kim is board certified in Pediatrics: American Board Of Pediatrics, 2004 and Pediatric Hematology-Oncology: American Board Of Pediatrics, 2009.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Languages Spoken:
    English

    Roger Packer is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Packer is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Gliomatosis Cerebri, Neurofibromatosis Type 1 (NF1), and Embryonal Tumor with Multilayered Rosettes.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Referral may be required

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Languages Spoken:
    English

    Srivandana Akshintala is a Hematologist and an Oncologist practicing medicine in Washington, Washington, D.c.. Dr. Akshintala is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Multiple Endocrine Neoplasia, Medullary Thyroid Carcinoma, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Thyroidectomy.

    Learn about our expert tiers
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Languages Spoken:
    English, Portuguese, Spanish

    Steven Stasheff is a Pediatric Neurologist practicing medicine in Washington, Washington, D.c.. Dr. Stasheff is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Gomez Lopez Hernandez Syndrome, Marcus Gunn Phenomenon, and Neurofibromatosis Type 1 (NF1). Dr. Stasheff is board certified in American Board Of Psychiatry And Neurology, 1999.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Languages Spoken:
    English

    Lindsay Kilburn is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Kilburn is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Gliomatosis Cerebri, Pediatric Low-Grade Glioma (pLGG), Embryonal Tumor with Multilayered Rosettes, and Neurofibromatosis. Dr. Kilburn is board certified in Pediatrics: American Board Of Pediatrics, 2004 and Pediatric Hematology-Oncology: American Board Of Pediatrics, 2009.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Languages Spoken:
    English
    Accepting New Patients

    Narendra Shet is a Pediatric Radiologist practicing medicine in Washington, Washington, D.c.. Dr. Shet is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Short Stature (Growth Disorders), Familial Short Stature (FSS), Idiopathic Short Stature (ISS), and Neurofibromatosis. Dr. Shet is board certified in Diagnostic Radiology: American Board Of Radiology, 2012 and Pediatric Radiology: American Board Of Radiology, 2015. Dr. Shet is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Languages Spoken:
    English

    Brian Rood is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Rood is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Embryonal Tumor with Multilayered Rosettes, Gliomatosis Cerebri, Pediatric Low-Grade Glioma (pLGG), and Neurofibromatosis Type 1 (NF1). Dr. Rood is board certified in Pediatrics: American Board Of Pediatrics, 1998 and Pediatric Hematology-Oncology: American Board Of Pediatrics, 2002.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Languages Spoken:
    English

    Hari Sankaran is a Pediatric Hematologist Oncology provider practicing medicine in Washington, Washington, D.c.. Dr. Sankaran is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Adult Soft Tissue Sarcoma, Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis. Dr. Sankaran is board certified in Pediatric Hematology-Oncology: American Board Of Pediatrics, 2017 and Pediatrics: American Board Of Pediatrics, 2012.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Languages Spoken:
    English, Armenian, Russian
    Accepting New Patients

    Harutyun Haroyan is a Pediatric Radiologist practicing medicine in Washington, Washington, D.c.. Dr. Haroyan is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Familial Short Stature (FSS), Idiopathic Short Stature (ISS), Short Stature (Growth Disorders), and Neurofibromatosis. Dr. Haroyan is board certified in Neuroradiology: American Board Of Radiology, 2016, Diagnostic Radiology: American Board Of Radiology, 2013, and Pediatric Radiology: American Board Of Radiology, 2016. Dr. Haroyan is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Languages Spoken:
    English
    Accepting New Patients

    Ramon Sanchez is a Pediatric Radiologist practicing medicine in Washington, Washington, D.c.. Dr. Sanchez is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Familial Short Stature (FSS), Idiopathic Short Stature (ISS), Short Stature (Growth Disorders), and Koolen De Vries Syndrome. Dr. Sanchez is board certified in Pediatric Radiology: American Board Of Radiology, 2014 and Diagnostic Radiology: American Board Of Radiology, 2012. Dr. Sanchez is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Languages Spoken:
    English, Hebrew, Spanish
    Accepting New Patients

    Jonathan Zember is a Pediatric Radiologist practicing medicine in Washington, Washington, D.c.. Dr. Zember is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Cantu Syndrome, Perlman Syndrome, Megalencephaly-Capillary Malformation Syndrome, and Simpson-Golabi-Behmel Syndrome. Dr. Zember is board certified in Diagnostic Radiology: American Board Of Radiology, 2017 and Pediatric Radiology: American Board Of Radiology, 2019. Dr. Zember is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    General Surgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    General Surgery
    Referral may be required
    111 Michigan Ave NW, 
    Washington, DC 
    Languages Spoken:
    English, Greek

    John Myseros is a General Surgeon practicing medicine in Washington, Washington, D.c.. Dr. Myseros is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Baller-Gerold Syndrome, Sunken Fontanelles, Lhermitte-Duclos Disease, Posterior Fossa Decompression, and Osteotomy. Dr. Myseros is board certified in Neurological Surgery: American Board Of Neurological Surgery, 2000 and American Board Of Pediatric Neurological Surgery, 2000.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Languages Spoken:
    English

    Angela Lee is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1) and Neurofibromatosis. Dr. Lee is board certified in Pediatric Anesthesiology: American Board Of Anesthesiology, 2013 and Anesthesiology: American Board Of Anesthesiology, 2016.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Languages Spoken:
    English

    Eugene Hwang is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Hwang is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Gliomatosis Cerebri, Embryonal Tumor with Multilayered Rosettes, Infantile Neutropenia, and Pediatric Low-Grade Glioma (pLGG). Dr. Hwang is board certified in Pediatrics: American Board Of Pediatrics, 2005 and Pediatric Hematology-Oncology: American Board Of Pediatrics, 2009.

    Nurse Practitioner | Pediatric Neurology
    Nurse Practitioner | Pediatric Neurology
    Referral may be required

    Main Hospital-Neuroscience Clinic

    111 Michigan Avenue Northwest, Room 1300, 
    Washington, DC 
    Languages Spoken:
    English
    Offers Telehealth

    Dorothy Davis is a Nurse Practitioner specialist and a Pediatric Neurologist practicing medicine in Washington, Washington, D.c.. Davis, NP is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Davis, NP is board certified in American Nurses Credentialing Center, 2018.

    Pediatric Radiology
    Pediatric Radiology
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Languages Spoken:
    English
    Accepting New Patients

    Eglal Rana is a Pediatric Radiologist practicing medicine in Washington, Washington, D.c.. Dr. Rana is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Hypochondroplasia, Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), and Familial Short Stature (FSS). Dr. Rana is board certified in Pediatric Radiology: American Board Of Radiology, 1995 and Diagnostic Radiology: American Board Of Radiology, 1987. Dr. Rana is currently accepting new patients.

    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Languages Spoken:
    English, Arabic, French

    Claude Abdallah is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Abdallah is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Infantile Pneumothorax, Gomez Lopez Hernandez Syndrome, Neurofibromatosis Type 1 (NF1), and Adenoidectomy. Dr. Abdallah is board certified in American Board Of Anesthesiology, 2000.

    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Languages Spoken:
    English
    Accepting New Patients

    Nikhil Patel is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Dr. Patel is board certified in Pediatric Anesthesiology: American Board Of Anesthesiology, 2015 and Anesthesiology: American Board Of Anesthesiology, 2015. Dr. Patel is currently accepting new patients.

    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Henshaw is an Orthopedics provider practicing medicine in Washington, Washington, D.c.. Dr. Henshaw is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Bone Tumor, Adult Soft Tissue Sarcoma, Rhabdomyosarcoma Embryonal, Osteotomy, and Bone Graft. Dr. Henshaw is board certified in Orthopaedic Surgery: American Board Of Orthopaedic Surgery, 1999. Dr. Henshaw is currently accepting new patients.

    Surgical Oncology
    Surgical Oncology
    Referral may be required

    Johns Hopkins Sibley Memorial Hospital

    5255 Loughboro Rd NW, Building B, 
    Washington, DC 
    Languages Spoken:
    English, Greek
    Accepting New Patients

    Michail Mavros is a Surgical Oncologist practicing medicine in Washington, District of Columbia. Dr. Mavros is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Neuroendocrine Tumor, Familial Pancreatic Cancer, Pancreatic Cancer, Pancreatectomy, and Pancreaticoduodenectomy. Dr. Mavros is board certified in Surgery and Complex General Surgical Oncology. Dr. Mavros is currently accepting new patients.

    Showing 1-20 of 44

    Last Updated: 09/26/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in District of Columbia, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in District of Columbia, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in District of Columbia, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in District of Columbia, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in District of Columbia, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in District of Columbia, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in District of Columbia, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

    More Neurofibromatosis Type 1 (NF1) Doctors by city