The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Illinois, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

The 20 Best Neurofibromatosis Type 1 (NF1) Doctors in Illinois, US

Last Updated: 02/22/2026

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MediFind found 189 doctor with experience in Neurofibromatosis Type 1 (NF1) near Illinois, US. Of these, 67 are Experienced, 10 are Advanced, 3 are Distinguished and 3 are Elite.

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189 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    James Tonsgard is a Pediatrics provider in Chicago, Illinois. Dr. Tonsgard is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies.

    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Robert Listernick is a Pediatrics provider in Chicago, Illinois. Dr. Listernick is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Glutaric Acidemia Type 2.

    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    225 E Chicago Ave # 59, 
    Chicago, IL 
    Languages Spoken:
    English

    Carlos Prada is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Prada is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are RASopathies, Smith-Kingsmore Syndrome, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1).

    Learn about our expert tiers
    Russell Reid
    Advanced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    Advanced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery

    UChicago Medicine

    5841 South Maryland Ave, Mc 6035, 
    Chicago, IL 
    Languages Spoken:
    English

    Russell Reid is a Plastic Surgeon in Chicago, Illinois. Dr. Reid is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Craniosynostosis, Micrognathia, Metopic Ridge, Osteotomy, and Bone Graft.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics

    Lurie Children's Medical Group Inc.

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Joel Charrow is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Charrow is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Gaucher Disease Type 1, Gaucher Disease, Achondroplasia, Isovaleric Acidemia, and Splenectomy.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Ophthalmology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Janice Lasky is an Ophthalmologist in Chicago, Illinois. Dr. Lasky is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Optic Glioma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Strabismus, and Trabeculectomy.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Neurosurgery

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Bakhtiar Yamini is a Neurosurgery provider in Chicago, Illinois. Dr. Yamini is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Primitive Neuroectodermal Tumor (PNET), Posterior Fossa Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Awake Craniotomy.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    Office

    225 E Chicago Ave # 9, 
    Chicago, IL 
    Languages Spoken:
    English

    Corey Bregman is a Neuroradiologist in Chicago, Illinois. Dr. Bregman is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Optic Glioma, Familial Porencephaly, Choroid Plexus Cyst, and Arachnoid Cysts.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Judith Gadde is a Radiologist in Chicago, Illinois. Dr. Gadde is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Choroid Plexus Cyst, Familial Porencephaly, Arachnoid Cysts, and Optic Glioma.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Maura Ryan is a Neuroradiologist in Chicago, Illinois. Dr. Ryan is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Chiari Malformation, Cortical Dysplasia, Choroid Plexus Cyst, and Familial Porencephaly.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Dianna Bardo is a Radiologist in Chicago, Illinois. Dr. Bardo is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Scoliosis, Choroid Plexus Cyst, Familial Porencephaly, and Arachnoid Cysts.

    Stephen T. Magill
    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    675 N St Clair St Ste 20-100, Galter Pavilion, 
    Chicago, IL 
    Experience:
    13+ years
    Languages Spoken:
    English
    Offers Telehealth

    Stephen Magill is a Neurosurgery provider in Chicago, Illinois. Dr. Magill has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Meningioma, Schwannoma, Brain Tumor, Rhizotomy, and Awake Craniotomy.

    Karan S. Dixit
    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology Oncology | Neurology | Hematology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology Oncology | Neurology | Hematology
    675 N St Clair St Ste 20-100, Galter Pavilion, 
    Chicago, IL 
    Experience:
    15+ years
    Languages Spoken:
    English
    Offers Telehealth

    Karan Dixit is a Hematologist Oncology specialist and a Neurologist in Chicago, Illinois. Dr. Dixit has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Astrocytoma, Glioma, Brain Tumor, Glioblastoma, and Gastrostomy.

    Lawrence Kaufman
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology

    Lawrence M. Kaufman, MD, PhD, SC

    2456 N. Western Ave., 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Lawrence Kaufman is an Ophthalmologist in Chicago, Illinois. Dr. Kaufman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Esotropia, Amblyopia, and Pentasomy X.

    Peter Hulick
    Experienced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Cardiology | Neuromusculoskeletal Medicine
    Experienced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Cardiology | Neuromusculoskeletal Medicine

    Endeavor Health Medical Group

    1000 Central St., Suite 610, 
    Evanston, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Peter Hulick, MD, a clinical geneticist and chair of personalized medicine at Endeavor Health, helps patients understand how genomic information can inform care and improve health outcomes. With a career rooted in genetics since high school, he works to integrate genomic data into everyday decision-making for patients and clinicians. Dr. Hulick focuses on risk assessment, early detection and treatment guidance by combining science, patient context and team collaboration. He also leads efforts to make genomic care more accessible across the health system. Dr. Hulick is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Ring Chromosome 12, Retinopathy Pigmentary Mental Retardation, and BRCA Positive Breast Cancer.

    Joel Joyce
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology | Pediatrics | Medical Genetics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology | Pediatrics | Medical Genetics

    Endeavor Health Medical Group

    9933 Woods Dr., Suite 200, 
    Skokie, IL 
    Languages Spoken:
    English

    Joel Joyce, MD, a pediatric dermatologist at Endeavor Health, cares for children from newborns to adolescents with a wide range of skin, hair and nail conditions. He combines a family-centered approach with evidence-based care, encouraging collaboration with parents and children. Dr. Joyce is also active in clinical research to improve dermatologic treatment options for young patients. Dr. Joyce is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Molluscum Contagiosum, Comedones, Familial Multiple Nevi Flammei, and Linear Hamartoma Syndrome.

    Jason H. Ko
    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    259 E Erie St Ste 2060, Lavin Family Pavilion, 
    Chicago, IL 
    Experience:
    8+ years
    Languages Spoken:
    English
    Offers Telehealth

    Jason Ko is a Plastic Surgeon in Chicago, Illinois. Dr. Ko has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Phantom Limb Pain, Legius Syndrome, Erb's Palsy, Leg or Foot Amputation, and Bone Graft.

    Christopher Trevino
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurology | Hematology Oncology | Hematology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurology | Hematology Oncology | Hematology

    Endeavor Health Medical Group

    2650 Ridge Ave., Kellogg Cancer Center, 
    Evanston, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Christopher Ray Trevino, MD, a neurologist at Endeavor Health, evaluates and treats conditions of the brain, spine and nervous system. Dr. Trevino provides care for neurologic concerns such as seizures, migraines and movement disorders using evidence-based diagnostic tools and therapies. Dr. Trevino is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Metastatic Brain Tumor, Ependymoma, Brain Tumor, Glioma, and Splenectomy.

    Ali Shaibani
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology | Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology | Radiology

    Endeavor Health Medical Group

    880 W. Central Rd., Suite 4100, 
    Arlington Heights, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Ali Shaibani is a Radiologist and a Neuroradiologist in Arlington Heights, Illinois. Dr. Shaibani is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Brain Aneurysm, Thrombectomy, and Stent Placement.

    Aleksandrs Kalnins
    Neuroradiology | Radiology
    Neuroradiology | Radiology

    Endeavor Health Medical Group

    2650 Ridge Ave., Department Of Radiology, 
    Evanston, IL 
    Experience:
    17+ years
    Languages Spoken:
    English

    Aleksandrs U. Kalnins, MD, a neuroradiologist at Endeavor Health, specializes in the imaging and diagnosis of conditions affecting the brain, spine and nervous system. He interprets advanced imaging studies such as MRI and CT scans to support the diagnosis and treatment planning for neurological disorders. Dr. Kalnins works in collaboration with neurologists, neurosurgeons and other specialists to deliver accurate, timely insights that guide patient care. Dr. Kalnins is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Stroke, Invertebral Disc Disease, Hepatocerebral Degeneration, and Cerebellar Degeneration.

    Showing 1-20 of 189

    Last Updated: 02/22/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Illinois, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Illinois, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Illinois, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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