The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Illinois, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 191 doctor with experience in Neurofibromatosis Type 1 (NF1) near Illinois, US. Of these, 71 are Experienced, 69 are Elite, 12 are Advanced and 2 are Distinguished.

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191 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Neurology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Neurology
    Referral may be required

    Comer Children's Hospital - Hyde Park

    5721 S. Maryland Ave., 
    Chicago, IL 
    Languages Spoken:
    English, Italian
    Accepting New Patients
    Offers Telehealth

    James Tonsgard is a Pediatric Neurologist and a Neurologist practicing medicine in Chicago, Illinois. Dr. Tonsgard is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies. Dr. Tonsgard is board certified in Pediatrics and Practicing Since1978. Dr. Tonsgard is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Experience:
    18+ years
    Languages Spoken:
    English, Polish, Spanish

    Miriam Bornhorst is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. She has been practicing medicine for over 18 years. Dr. Bornhorst is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Brain Tumor, and Glioma.

    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Referral may be required

    Lurie Children's Medical Group Inc.

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Carlos Prada is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Prada is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 172 other conditions, according to our data. His clinical expertise encompasses RASopathies, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Smith-Kingsmore Syndrome.

    Learn about our expert tiers
    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English, Polish, Spanish

    Robert Listernick is a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Listernick is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Glutaric Acidemia Type 2.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Family Medicine
    Experienced in Neurofibromatosis Type 1 (NF1)
    Family Medicine

    OSF Medical Group - Primary Care

    2850 West 95th Street Suite 101, 
    Evergreen Park, IL 
    Languages Spoken:
    English, Urdu

    Kashif Zaheer is a primary care provider, practicing in Family Medicine in Evergreen Park, Illinois. Dr. Zaheer is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Sciatica. Dr. Zaheer is board certified in American Board Of Family Medicine.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    OSF Illinois Neurological Institute - Neurology

    200 East Pennsylvania Avenue, 
    Peoria, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Douglas Juvinall is a Neurologist practicing medicine in Peoria, Illinois. Dr. Juvinall is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Alternating Hemiplegia of Childhood, and Optic Neuritis. Dr. Juvinall is board certified in American Board Of Psychiatry And Neurology. Dr. Juvinall is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    Referral may be required
    259 E Erie St Ste 2060, Lavin Family Pavilion, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jason Ko is a Plastic Surgeon practicing medicine in Chicago, Illinois. Dr. Ko is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Phantom Limb Pain, Legius Syndrome, Erb's Palsy, Bone Graft, and Tenotomy. Dr. Ko is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Referral may be required
    259 E Erie St Ste 1950, Lavin Family Pavilion, 
    Chicago, IL 
    Languages Spoken:
    English, Farsi, Spanish
    Accepting New Patients
    Offers Telehealth

    Ali Shaibani is a Neuroradiologist practicing medicine in Chicago, Illinois. Dr. Shaibani is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Stroke, Thrombectomy, and Stent Placement. Dr. Shaibani is board certified in American Board Of Radiology, American Board Of Radiology - Diagnostic Radiology (Certified), Neuroradiology, and Radiology. Dr. Shaibani is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery | Pediatrics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery | Pediatrics
    Referral may be required

    UChicago Medicine Duchossois Center For Advanced Medicine - Hyde Park

    5758 S. Maryland Ave., 
    Chicago, IL 
    Languages Spoken:
    English, French, German, Italian
    Accepting New Patients
    Offers Telehealth

    Peter Warnke is a Neurosurgery specialist and a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Warnke is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Epilepsy, Congenital Cardiovascular Shunt, Deep Brain Stimulation, and Gamma Knife Radiosurgery. Dr. Warnke is currently accepting new patients.

    Referral may be required

    OSF Children's Hospital Of Illinois - Ophthalmology

    4927 North Glen Park Place Road, 
    Peoria, IL 
    Languages Spoken:
    English
    Accepting New Patients

    Steven Lichtenstein is an Ophthalmologist practicing medicine in Peoria, Illinois. Dr. Lichtenstein is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Strabismus, Oculomotor Apraxia Cogan Type, Esotropia, Amblyopia, and Vitrectomy. Dr. Lichtenstein is board certified in American Board Of Ophthalmology. Dr. Lichtenstein is currently accepting new patients.

    Referral may be required
    259 E Erie St 13th Fl, Lavin Family Pavilion, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Terrance Peabody is an Orthopedics provider practicing medicine in Chicago, Illinois. Dr. Peabody is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Bone Tumor, Chondrosarcoma, Adolescent Idiopathic Scoliosis, Osteotomy, and Bone Graft. Dr. Peabody is board certified in American Board Of Orthopaedic Surgery - Orthopaedic Surgery (Certified). Dr. Peabody is currently accepting new patients.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Referral may be required

    UChicago Medicine Duchossois Center For Advanced Medicine - Hyde Park

    5758 S. Maryland Ave., 
    Chicago, IL 
    Languages Spoken:
    English, Farsi, Spanish
    Accepting New Patients
    Offers Telehealth

    Bakhtiar Yamini is a Neurosurgery provider practicing medicine in Chicago, Illinois. Dr. Yamini is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Pituitary Tumor, Glioma, and Awake Craniotomy. Dr. Yamini is board certified in Neurological Surgery and Practicing Since2001. Dr. Yamini is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Family Medicine
    Advanced in Neurofibromatosis Type 1 (NF1)
    Family Medicine

    P & D Medical, SC

    4201 W 95th St, 
    Oak Lawn, IL 
    Languages Spoken:
    English, French, Polish, Serbian, Serbo Croatian
    Accepting New Patients
    Offers Telehealth

    Peter Dragisic is a primary care provider, practicing in Family Medicine in Oak Lawn, Illinois. Dr. Dragisic is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and High Cholesterol. Dr. Dragisic is board certified in American Board Of Family Medicine. Dr. Dragisic is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Referral may be required

    Office

    259 E Erie St Ste 2450, 
    Chicago, IL 
    Languages Spoken:
    English

    Bahram Rahmani is an Ophthalmologist practicing medicine in Chicago, Illinois. Dr. Rahmani is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Microphthalmia, Strabismus, Microphthalmia with Linear Skin Defects Syndrome, Trabeculectomy, and Cataract Removal.

    Hematology | Oncology
    Hematology | Oncology
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Rishi Lulla is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. Dr. Lulla is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Glioma, Gliomatosis Cerebri, Brain Tumor, and Ependymoma.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Referral may be required

    Lurie Children's Medical Group Inc.

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Joel Charrow is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Charrow is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 46 other conditions, according to our data. His clinical expertise encompasses Gaucher Disease Type 1, Gaucher Disease, Achondroplasia, Isovaleric Acidemia, and Splenectomy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Referral may be required

    UChicago Medicine Duchossois Center For Advanced Medicine - Hyde Park

    5758 S. Maryland Ave., 
    Chicago, IL 
    Languages Spoken:
    English, Russian
    Accepting New Patients

    Diana Bolotin is a Dermatologist practicing medicine in Chicago, Illinois. Dr. Bolotin is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, Head and Neck Squamous Cell Carcinoma (HNSCC), and Extramammary Paget Disease. Dr. Bolotin is board certified in Micrographic Dermatologic Surgery Dermatology and Practicing Since2010. Dr. Bolotin is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology | Pediatrics | Medical Genetics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology | Pediatrics | Medical Genetics
    Referral may be required

    Chicagoland Childrens Health Alliance

    3232 Lake Ave., Suite 330, 
    Wilmette, IL 
    Languages Spoken:
    English
    Accepting New Patients

    Joel Joyce is a Dermatologist and a Pediatrics provider practicing medicine in Wilmette, Illinois. Dr. Joyce is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Molluscum Contagiosum, Comedones, Linear Hamartoma Syndrome, and Vascular Birthmark. Dr. Joyce is board certified in American Board Of Dermatology. Dr. Joyce is currently accepting new patients.

    Plastic Surgery
    Plastic Surgery
    Referral may be required

    UChicago Medicine Duchossois Center For Advanced Medicine - Hyde Park

    5758 S. Maryland Ave., 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients

    Sebastian Vrouwe is a Plastic Surgeon practicing medicine in Chicago, Illinois. Dr. Vrouwe is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Frostbite, Keloids, Hidradenitis Suppurativa, and Epidural Lipomatosis. Dr. Vrouwe is board certified in Plastic Surgery Surgical Critical Care Plastic Surgery (Canada)Practicing Since2019. Dr. Vrouwe is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    General Surgery | Plastic Surgery
    Advanced in Neurofibromatosis Type 1 (NF1)
    General Surgery | Plastic Surgery
    Referral may be required

    Comer Children's At Edward Hospital - Naperville

    120 Spalding Dr., Suite 407, 
    Naperville, IL 
    Languages Spoken:
    English
    Accepting New Patients

    Russell Reid is a General Surgeon and a Plastic Surgeon practicing medicine in Naperville, Illinois. Dr. Reid is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Craniosynostosis, Micrognathia, Legius Syndrome, Osteotomy, and Bone Graft. Dr. Reid is board certified in Practicing Since2006, American Board Of Plastic Surgery, and Plastic Surgery. Dr. Reid is currently accepting new patients.

    Showing 1-20 of 191

    Last Updated: 09/26/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Illinois, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Illinois, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Illinois, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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