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    Last Updated: 10/30/2025

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    MediFind found 25 doctor with experience in Neurofibromatosis Type 1 (NF1) near Kansas, US. Of these, 8 are Experienced and 1 are Advanced.

    Location
    LocationClose
    25 providers found
      Nurse Practitioner
      Nurse Practitioner

      Ascentist Management

      14340 Metcalf Avenue, 
      Overland Park, KS 
      Languages Spoken:
      English

      Katherine Zlotky is a Nurse Practitioner in Overland Park, Kansas. Her top area of expertise is Neurofibromatosis Type 1 (NF1).

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Grene Vision Group LLC

      1851 N Webb Rd, 
      Wichita, KS 
      Languages Spoken:
      English

      Charles Whitfill is an Ophthalmologist in Wichita, Kansas. Dr. Whitfill is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Brown Syndrome, X-Linked Infantile Nystagmus, and Blocked Tear Duct.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      3243 E Murdock St Ste 510, 
      Wichita, KS 
      Languages Spoken:
      English

      Christina Brown is a Pediatric Hematologist Oncology provider in Wichita, Kansas. Dr. Brown is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Hemoglobin SC Disease, Sickle Cell Disease, and Neurofibromatosis.

      Learn about our expert tiers
      Experienced in Neurofibromatosis Type 1 (NF1)
      Family Medicine
      Experienced in Neurofibromatosis Type 1 (NF1)
      Family Medicine

      Shawnee Mission Medical Center Inc

      9100 W 74th St, Ahmg Cardiology At Shawnee, 
      Merriam, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jessica Yoakam is a primary care provider, practicing in Family Medicine in Merriam, Kansas. Dr. Yoakam is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Obesity in Children, Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, and Hypothyroidism. Dr. Yoakam is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology Oncology | Hematology | Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology Oncology | Hematology | Oncology

      University Of Kansas Hospital Authority

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English
      Offers Telehealth

      Benjamin Powers is a Hematologist Oncology specialist and a Hematologist in Kansas City, Kansas. Dr. Powers is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Adult Soft Tissue Sarcoma, Liposarcoma, Angiosarcoma of the Scalp, Synovial Sarcoma, and Tissue Biopsy.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Hutchinson Clinic P A Inc

      2107 N Waldron St, 
      Hutchinson, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Russell Kelley is a Dermatologist in Hutchinson, Kansas. Dr. Kelley is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Actinic Keratosis, Eosinophilic Pustular Folliculitis, Warts, and Syringoma. Dr. Kelley is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Family Medicine
      Experienced in Neurofibromatosis Type 1 (NF1)
      Family Medicine

      Hutchinson Clinic P A Inc

      1100 N Main St, 
      Hutchinson, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Casey Gee is a primary care provider, practicing in Family Medicine in Hutchinson, Kansas. Dr. Gee is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Parainfluenza Virus Type 3, Parainfluenza, Familial HDL Deficiency, and Chorea-Acanthocytosis. Dr. Gee is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      3243 E Murdock St Ste 510, 
      Wichita, KS 
      Languages Spoken:
      English

      Jack Staddon is a Pediatric Hematologist Oncology provider in Wichita, Kansas. Dr. Staddon is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hereditary Spherocytosis, Juvenile Myelomonocytic Leukemia (JMML), Hemolytic Anemia, and Congenital Hemolytic Anemia.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Cotton-O'neil Clinic Revocable Trust

      1325 Research Park Dr, 
      Manhattan, KS 
      Languages Spoken:
      English, Arabic
      Accepting New Patients
      Offers Telehealth

      Fatma Radhi is a Neurologist in Manhattan, Kansas. Dr. Radhi is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Seizures, Multiple Sclerosis (MS), Parkinson's Disease, and Movement Disorders. Dr. Radhi is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Research Neuroscience Institute, LLC

      10550 Quivira Rd, Suite 400, 
      Overland Park, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Matthew Pierson is a Neurosurgery provider in Overland Park, Kansas. Dr. Pierson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Subdural Hematoma, Cerebral Arteriovenous Malformation, Trigeminal Neuralgia, Microdiscectomy, and Microvascular Decompression. Dr. Pierson is currently accepting new patients.

      Hematology Oncology | Oncology | Neurosurgery
      Hematology Oncology | Oncology | Neurosurgery

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
      Languages Spoken:
      English
      Offers Telehealth

      Tolga Tuncer is a Hematologist Oncology specialist and an Oncologist in Kansas City, Kansas. Dr. Tuncer is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, Oligodendroglioma, and Bone Marrow Aspiration.

      Orthopedics
      Orthopedics

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
      Languages Spoken:
      English
      Offers Telehealth

      Kyle Sweeney is an Orthopedics provider in Kansas City, Kansas. Dr. Sweeney is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Bone Tumor, Adult Soft Tissue Sarcoma, Rhabdomyosarcoma Embryonal, Osteotomy, and Hip Replacement.

      Medical Genetics | Pediatrics
      Medical Genetics | Pediatrics

      Wesley Physicians Medical Specialties LLC

      3243 E Murdock St, 
      Wichita, KS 
      Languages Spoken:
      English

      Elizabeth Beltran is a Medical Genetics specialist and a Pediatrics provider in Wichita, Kansas. Dr. Beltran is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Phenylketonuria (PKU), Biotinidase Deficiency, Chromosome 13q Deletion, and MELAS Syndrome.

      Pediatric Radiology | Radiology
      Pediatric Radiology | Radiology

      The Childrens Mercy Hospital

      5808 W 110th St, 
      Overland Park, KS 
      Languages Spoken:
      English

      Hayden Head is a Pediatric Radiologist and a Radiologist in Overland Park, Kansas. Dr. Head is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hemolytic Disease of the Newborn and Neurofibromatosis Type 1 (NF1).

      University Of Kansas Hospital Authority

      10720 Nall Ave, University Of Kansas India, 
      Overland Park, KS 
      Languages Spoken:
      English
      Offers Telehealth

      Howard Rosenthal is an Orthopedics provider in Overland Park, Kansas. Dr. Rosenthal is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Bone Tumor, Adult Soft Tissue Sarcoma, Osteochondroma, Epithelioid Sarcoma, and Hip Replacement.

      Neurosurgery
      Neurosurgery

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English
      Offers Telehealth

      Paul Camarata is a Neurosurgery provider in Kansas City, Kansas. Dr. Camarata is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Meningioma, Radiation Induced Meningioma, Neurofibromatosis Type 2 (NF2), Awake Craniotomy, and Thrombectomy.

      Radiology
      Radiology

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
      Languages Spoken:
      English

      Graham Lee is a Radiologist in Kansas City, Kansas. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Brain Aneurysm, Meningioma, Headache, Cervical Myelopathy, and Gastrostomy.

      Radiology
      Radiology

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
      Languages Spoken:
      English

      John Leever is a Radiologist in Kansas City, Kansas. Dr. Leever is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), CAPOS Syndrome, Meningioma, and Cerebral Arteriovenous Malformation.

      Radiology | Neuroradiology
      Radiology | Neuroradiology

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
      Languages Spoken:
      English

      Nicholas Harn is a Radiologist and a Neuroradiologist in Kansas City, Kansas. His top areas of expertise are Cerebral Arteriovenous Malformation, PEHO Syndrome, X-Linked Intellectual Disability, Siderius Type, and Aicardi-Goutieres Syndrome.

      Ophthalmology | Pediatrics
      Ophthalmology | Pediatrics

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
      Languages Spoken:
      English

      Jason Sokol is an Ophthalmologist and a Pediatrics provider in Kansas City, Kansas. His top areas of expertise are Graves Disease, Anophthalmia Plus Syndrome, Blocked Tear Duct, Nerve Decompression, and Tissue Biopsy.

      Showing 1-20 of 25

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor in Kansas, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Kansas, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Kansas, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Kansas, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Kansas, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Kansas, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Kansas, US?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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