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    Last Updated: 10/30/2025

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    MediFind found 233 doctor with experience in Neurofibromatosis Type 1 (NF1) near Massachusetts, US. Of these, 81 are Experienced, 12 are Advanced, 3 are Elite and 2 are Distinguished.

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    233 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Mass General Brigham Cancer Institute: Neuro-Oncology

      55 Fruit Street, Yawkey Center For Outpatient Care, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology

      Dana-Farber Cancer Institute, Inc.

      450 Brookline Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Nicole Ullrich is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Ullrich is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Optic Glioma.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Justin Jordan is a Neurologist in Boston, Massachusetts. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).

      Learn about our expert tiers
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurology | Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurology | Oncology
      Pappas Center For Neuro-oncology, Yawkey 9e, 55 Fruit Street, 
      Boston, MA 
      Languages Spoken:
      English

      Kien-ninh Ly is a Neurologist and an Oncologist in Boston, Massachusetts. Dr. Ly is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Brain Tumor, and Pediatric Low-Grade Glioma (pLGG).

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Childrens Hospital Ophthalmology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Gena Heidary is an Ophthalmologist in Boston, Massachusetts. Dr. Heidary is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Papilledema, Increased Intracranial Pressure, Optic Glioma, and Cataract Removal.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner
      Advanced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Courtney Lewis is a Nurse Practitioner in Boston, Massachusetts. Ms. Lewis is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and RASopathies.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Internal Medicine
      Advanced in Neurofibromatosis Type 1 (NF1)
      Internal Medicine

      Umass Memorial Medical Group Inc

      65 Canal St, 
      Millbury, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kavitha Nutakki is a primary care provider, practicing in Internal Medicine in Millbury, Massachusetts. Dr. Nutakki is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Ventricular Fibrillation. Dr. Nutakki is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology | Pediatrics

      Dana-Farber Cancer Institute, Inc.

      450 Brookline Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Viviana Benitez is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Benitez is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Diffuse Midline Glioma H3 K27M-Mutant, and Optic Glioma.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      243 Charles St, 
      Boston, MA 
      Languages Spoken:
      English

      Ryan Gise is an Ophthalmologist in Boston, Massachusetts. Dr. Gise is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Papilledema, Increased Intracranial Pressure, Strabismus, and Amblyopia.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner
      Advanced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Christina Orr is a Nurse Practitioner in Boston, Massachusetts. Ms. Orr is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and RASopathies.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Radiology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Radiology

      Children's Hospital Radiology Foundation, Inc.

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Edward Yang is a Radiologist in Boston, Massachusetts. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Cortical Dysplasia, Polymicrogyria, Agyria Pachygyria Polymicrogyria, and Focal or Multifocal Malformations in Neuronal Migration.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Childrens Hospital Ophthalmology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Carolyn Wu is an Ophthalmologist in Boston, Massachusetts. Dr. Wu is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Esotropia, Strabismus, Amblyopia, Brown Syndrome, and Myringotomy.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Childrens Hospital Ophthalmology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Joseph Griffith is an Ophthalmologist in Boston, Massachusetts. Dr. Griffith is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Brown Syndrome, Isolated Duane Retraction Syndrome, Knobloch Syndrome, and Vitrectomy.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      44 Binney St, Room Sw331, 
      Boston, MA 
      Languages Spoken:
      English

      Mark Kieran is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Kieran is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Brain Stem Cancer, Diffuse Midline Glioma H3 K27M-Mutant, and Medulloblastoma.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery | Hand Surgery
      Advanced in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery | Hand Surgery

      Boston Plastic And Oral Surgery

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Amir Taghinia is a Plastic Surgeon and a Hand Surgeon in Boston, Massachusetts. Dr. Taghinia is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Syndactyly, Acrocephalopolydactyly, Apert Syndrome, Osteotomy, and Tissue Biopsy.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Endocrinology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Endocrinology

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Carmen Soto is a Pediatric Endocrinologist in Boston, Massachusetts. Dr. Soto is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), Precocious Puberty, and Hormone Replacement Therapy (HRT).

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Childrens Hospital Ophthalmology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English

      Linda Dagi is an Ophthalmologist in Boston, Massachusetts. Dr. Dagi is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Brown Syndrome, Isolated Duane Retraction Syndrome, Esotropia, and Craniectomy.

      Hematology Oncology | Oncology
      Hematology Oncology | Oncology

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Priscilla Brastianos is a Hematologist Oncology specialist and an Oncologist in Boston, Massachusetts. Her top areas of expertise are Brain Tumor, Metastatic Brain Tumor, Melanoma, and Posterior Fossa Tumor.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)
      300 Longwood Ave, Children's Hosp. - Orthopaedics, 
      Boston, MA 
      Languages Spoken:
      English

      Samantha Spencer is an Orthopedics provider in Boston, Massachusetts. Dr. Spencer is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Acromicric Dysplasia, Brachydactyly Mononen Type, Chondrodystrophy, Achondroplasia, and Osteotomy.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurology

      Lahey Clinic Inc

      41 Mall Rd, Lahey Provider Enrollment Dept, 
      Burlington, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Joy Burke is a Neurologist in Burlington, Massachusetts. Dr. Burke is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Embryonal Tumor with Multilayered Rosettes, Astrocytoma, Gliosarcoma, Glioblastoma, and Tissue Biopsy.

      Showing 1-20 of 233

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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