The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Massachusetts, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 232 doctor with experience in Neurofibromatosis Type 1 (NF1) near Massachusetts, US. Of these, 78 are Experienced, 12 are Advanced, 3 are Elite and 2 are Distinguished.

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232 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Office

    55 Fruit St # 9, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Scott Plotkin is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma.

    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Nicole Ullrich is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Ullrich is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Optic Glioma.

    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Justin Jordan is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Tissue Biopsy.

    Learn about our expert tiers
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Miriam Bredella is a Radiologist practicing medicine in Boston, Massachusetts. Dr. Bredella is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Sleeve Gastrectomy, and Gastric Bypass.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Referral may be required

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Gena Heidary is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Heidary is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 31 other conditions, according to our data. Her clinical expertise encompasses Papilledema, Strabismus, Increased Intracranial Pressure, Optic Glioma, and Cataract Removal.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Radiology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Radiology
    Referral may be required

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Edward Yang is a Radiologist practicing medicine in Boston, Massachusetts. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Cortical Dysplasia, Polymicrogyria, Agyria Pachygyria Polymicrogyria, and Focal or Multifocal Malformations in Neuronal Migration.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Endocrinology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Endocrinology
    Referral may be required

    Division Of Endocrinology

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Carmen Soto is a Pediatric Endocrinologist practicing medicine in Boston, Massachusetts. Dr. Soto is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), and Precocious Puberty.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology | Pediatrics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology | Pediatrics
    Referral may be required

    UMass Memorial Medical Center - Hahnemann Campus

    281 Lincoln Street, 
    Worcester, MA 
    Experience:
    23+ years
    Languages Spoken:
    English

    Leah Belazarian is a Dermatologist and a Pediatrics provider practicing medicine in Worcester, Massachusetts. She has been practicing medicine for over 23 years. Dr. Belazarian is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Giant Congenital Melanocytic Nevus, Psoriasis, Cafe-Au-Lait Spots, and Autosomal Recessive Hypotrichosis. Dr. Belazarian is board certified in Pediatric Dermatology.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery | Pediatrics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery | Pediatrics
    Referral may be required

    Boston Pediatric Neurosurgical Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Edward Smith is a Pediatrics specialist and a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Moyamoya Disease, Vein of Galen Aneurysm, Wyburn-Mason Syndrome, and Arteriovenous Malformation. Dr. Smith is board certified in Neurological Surgery.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    BIDMC Department Of Neurology

    Neurology Department, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Patricia Greenstein is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Greenstein is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 51 other conditions, according to our data. Her clinical expertise encompasses Spinocerebellar Ataxia, Cervical Myelopathy, Behr Syndrome, and Infantile-Onset Spinocerebellar Ataxia (IOSCA). Dr. Greenstein is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Referral may be required
    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Julius Oatts is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Oatts is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Strabismus, Ocular Hypertension (OHT), Glaucoma, Trabeculectomy, and Cataract Removal. Dr. Oatts is board certified in American Board Of Ophthalmology - Ophthalmology.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral required

    Beth Israel Deaconess Medical Center

    330 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Megan Anderson is an Orthopedics provider practicing medicine in Boston, Massachusetts. Dr. Anderson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Osteochondroma, Hereditary Multiple Osteochondromas, Rhabdomyosarcoma Embryonal, Knee Replacement, and Hip Replacement. Dr. Anderson is board certified in American Board Of Orthopaedic Surgery.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Beth Israel Deaconess Medical Center

    330 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English

    Gerilyn Olsen is a Dermatologist practicing medicine in Boston, Massachusetts. Dr. Olsen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Olsen is board certified in American Board Of Dermatology.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Meabh O'hare is a Neurologist practicing medicine in Boston, Massachusetts. Dr. O'hare is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Inclusion Body Myositis, Myasthenia Gravis, Siderosis, and Peripheral Neuropathy. Dr. O'hare is board certified in Neurology, Electrodiagnostic Medicine, and Neuromuscular Medicine.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Surgical Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Surgical Oncology
    Referral may be required

    Brigham And Women's Hospital, Division Of Surgical Oncology

    45 Francis Street, Asb2-3, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Raut is the Chief of the Division of Surgical Oncology and the inaugural Distinguished Chair for Cancer Care at Brigham and Women's Hospital. He received a BA and BS from Stanford University, MSc from University of Oxford, and MD from Harvard Medical School, where he is also a Professor of Surgery. He completed his residency in general surgery at Massachusetts General Hospital and fellowship in surgical oncology at MD Anderson Cancer Center. Dr. Raut specializes in the multidisciplinary care of patients with soft tissue sarcoma and serves as the Surgery Director for the Center for Sarcoma and Bone Oncology at Dana-Farber Brigham Cancer Center (DFBCC). His research focuses on multimodal strategies to reduce rates of local recurrence for patients with sarcoma. Dr. Raut is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Adult Soft Tissue Sarcoma, Gastrointestinal Stromal Tumor, Liposarcoma, Nephrectomy, and Pancreaticoduodenectomy. Dr. Raut is board certified in Surgery, General.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral required

    BIDMC Department Of Neurology

    330 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Erik Uhlmann is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Uhlmann is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Metastatic Brain Tumor, Brain Tumor, Astrocytoma, Glioblastoma, and Gamma Knife Radiosurgery. Dr. Uhlmann is board certified in American Board Of Pathology and American Board Of Psychiatry And Neurology.

    Dermatology | Pediatrics
    Dermatology | Pediatrics
    Referral may be required

    Worcester Dermatology Associates, PC

    100 MLK JR. Boulevard, 
    Worcester, MA 
    Experience:
    38+ years
    Languages Spoken:
    English, Spanish

    Seth Kates is a Dermatologist and a Pediatrics provider practicing medicine in Worcester, Massachusetts. He has been practicing medicine for over 38 years. Dr. Kates is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 66 other conditions, according to our data. His clinical expertise encompasses Melanoma, Actinic Keratosis, Familial Atypical Multiple Mole Melanoma Syndrome, and Giant Congenital Melanocytic Nevus. Dr. Kates is board certified in Dermatology.

    Referral may be required

    Beth Israel Deaconess Medical Center

    330 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English, French, Spanish
    Offers Telehealth

    Carrie Heincelman is an Orthopedics provider practicing medicine in Boston, Massachusetts. Dr. Heincelman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Osteochondroma, Hereditary Multiple Osteochondromas, Chondroma, Osteotomy, and Hip Replacement. Dr. Heincelman is board certified in American Board Of Orthopaedic Surgery.

    Medical Genetics
    Medical Genetics
    Referral may be required

    Beth Israel Deaconess Hospital - Plymouth

    275 Sandwich Street, 
    Plymouth, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Jodi Hoffman is a Medical Genetics provider practicing medicine in Plymouth, Massachusetts. Dr. Hoffman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Bosma Arhinia Microphthalmia Syndrome, Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Ehlers-Danlos Syndrome (EDS). Dr. Hoffman is board certified in American Board Of Medical Genetics And Genomics and American Board Of Pediatrics.

    Dermatology
    Dermatology
    Referral may be required

    Dana-Farber Cancer Institute, Center For Cutaneous Oncology

    450 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English

    Sasha Stephen is a Dermatologist practicing medicine in Boston, Massachusetts. Dr. Stephen is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Actinic Keratosis, Pyoderma Gangrenosum, Cutaneous T-Cell Lymphoma (CTCL), and Acute Febrile Neutrophilic Dermatosis. Dr. Stephen is board certified in Dermatology.

    Showing 1-20 of 232

    Last Updated: 06/30/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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