The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Massachusetts, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

The 20 Best Neurofibromatosis Type 1 (NF1) Doctors in Massachusetts, US

Last Updated: 02/22/2026

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MediFind found 232 doctor with experience in Neurofibromatosis Type 1 (NF1) near Massachusetts, US. Of these, 78 are Experienced, 12 are Advanced, 3 are Elite and 2 are Distinguished.

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232 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)

    Office

    55 Fruit St # 9, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma.

    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Nicole Ullrich is a Pediatric Neurologist in Boston, Massachusetts. Dr. Ullrich is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Optic Glioma.

    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Justin Jordan is a Neurologist in Boston, Massachusetts. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Tissue Biopsy.

    Learn about our expert tiers
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Miriam Bredella is a Radiologist in Boston, Massachusetts. Dr. Bredella is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Sleeve Gastrectomy, and Gastric Bypass.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Ophthalmology

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Gena Heidary is an Ophthalmologist in Boston, Massachusetts. Dr. Heidary is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Papilledema, Optic Glioma, Increased Intracranial Pressure, and Cataract Removal.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Radiology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Radiology

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Edward Yang is a Radiologist in Boston, Massachusetts. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Cortical Dysplasia, Agyria Pachygyria Polymicrogyria, Focal or Multifocal Malformations in Neuronal Migration, and Polymicrogyria.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Endocrinology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Endocrinology

    Division Of Endocrinology

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Carmen Soto is a Pediatric Endocrinologist in Boston, Massachusetts. Dr. Soto is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Adrenal Insufficiency Pediatric, Short Stature (Growth Disorders), Familial Short Stature (FSS), Idiopathic Short Stature (ISS), and Hormone Replacement Therapy (HRT).

    Edward R. Smith
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery | Pediatrics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery | Pediatrics

    Boston Pediatric Neurosurgical Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Edward Smith is a Pediatrics specialist and a Neurosurgery provider in Boston, Massachusetts. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Moyamoya Disease, Vein of Galen Aneurysm, Arteriovenous Malformation, Endovascular Embolization, and Posterior Fossa Decompression.

    Leah T. Belazarian
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology | Pediatrics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology | Pediatrics

    UMass Memorial Medical Center - Hahnemann Campus

    281 Lincoln Street, 
    Worcester, MA 
    Experience:
    23+ years
    Languages Spoken:
    English

    Leah Belazarian is a Dermatologist and a Pediatrics provider in Worcester, Massachusetts. Dr. Belazarian has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Giant Congenital Melanocytic Nevus, Psoriasis, Cafe-Au-Lait Spots, and Autosomal Recessive Hypotrichosis.

    Patricia E. Greenstein
    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    BIDMC Department Of Neurology

    Neurology Department, 330 Brookline Avenue, Shapiro 8, 
    Boston, MA 
    Languages Spoken:
    English

    Patricia Greenstein is a Neurologist in Boston, Massachusetts. Dr. Greenstein is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Spinocerebellar Ataxia, Cervical Myelopathy, Spastic Ataxia Charlevoix-Saguenay Type, and Spinocerebellar Ataxia Type 28.

    Megan E. Anderson
    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Beth Israel Deaconess Medical Center

    330 Brookline Avenue, Shapiro 2, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Megan Anderson is an Orthopedics provider in Boston, Massachusetts. Dr. Anderson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Osteochondroma, Hereditary Multiple Osteochondromas, Epithelioid Sarcoma, Knee Replacement, and Hip Replacement.

    Meabh J. O'hare
    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Meabh O'hare is a Neurologist in Boston, Massachusetts. Dr. O'hare is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Siderosis, and Peripheral Neuropathy.

    Chandrajit P. Raut
    Experienced in Neurofibromatosis Type 1 (NF1)
    Surgical Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Surgical Oncology

    Brigham And Women's Hospital, Division Of Surgical Oncology

    45 Francis Street, Asb2-3, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Raut is the Chief of the Division of Surgical Oncology and the inaugural Distinguished Chair for Cancer Care at Brigham and Women's Hospital. He received a BA and BS from Stanford University, MSc from University of Oxford, and MD from Harvard Medical School, where he is also a Professor of Surgery. He completed his residency in general surgery at Massachusetts General Hospital and fellowship in surgical oncology at MD Anderson Cancer Center. Dr. Raut specializes in the multidisciplinary care of patients with soft tissue sarcoma and serves as the Surgery Director for the Center for Sarcoma and Bone Oncology at Dana-Farber Brigham Cancer Center (DFBCC). His research focuses on multimodal strategies to reduce rates of local recurrence for patients with sarcoma. Dr. Raut is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Adult Soft Tissue Sarcoma, Gastrointestinal Stromal Tumor, Angiosarcoma, Nephrectomy, and Pancreaticoduodenectomy.

    Erik J. Uhlmann
    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    BIDMC Department Of Neurology

    330 Brookline Avenue, Tcc 8, 
    Boston, MA 
    Languages Spoken:
    English

    Erik Uhlmann is a Neurologist in Boston, Massachusetts. Dr. Uhlmann is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Metastatic Brain Tumor, Brain Tumor, Astrocytoma, Glioblastoma, and Gamma Knife Radiosurgery.

    Seth G. Kates
    Dermatology | Pediatrics
    Dermatology | Pediatrics

    Worcester Dermatology Associates, PC

    100 MLK JR. Boulevard, 
    Worcester, MA 
    Experience:
    38+ years
    Languages Spoken:
    English, Spanish

    Seth Kates is a Dermatologist and a Pediatrics provider in Worcester, Massachusetts. Dr. Kates has been practicing medicine for over 38 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Melanoma, Actinic Keratosis, Familial Atypical Multiple Mole Melanoma Syndrome, and Giant Congenital Melanocytic Nevus.

    Beth Israel Deaconess Medical Center

    330 Brookline Avenue, St-10, 
    Boston, MA 
    Languages Spoken:
    English, French, Spanish
    Offers Telehealth

    Carrie Heincelman is an Orthopedics provider in Boston, Massachusetts. Dr. Heincelman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Osteochondroma, Hereditary Multiple Osteochondromas, Chondroblastoma, Osteotomy, and Hip Replacement.

    Sasha Stephen
    Dermatology
    Dermatology

    Dana-Farber Cancer Institute, Center For Cutaneous Oncology

    450 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English

    Sasha Stephen is a Dermatologist in Boston, Massachusetts. Her top areas of expertise are Pyoderma Gangrenosum, Actinic Keratosis, Cutaneous T-Cell Lymphoma (CTCL), and Acute Febrile Neutrophilic Dermatosis.

    Joseph F. Griffith
    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics
    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics

    UMass Memorial Medical Center - Hahnemann Campus

    291 Lincoln Street, 
    Worcester, MA 
    Experience:
    14+ years
    Languages Spoken:
    English

    Joseph Griffith is a Pediatrics specialist and an Ophthalmologist in Worcester, Massachusetts. Dr. Griffith has been practicing medicine for over 14 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Brown Syndrome, Isolated Duane Retraction Syndrome, Knobloch Syndrome, and Vitrectomy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Stephan Voss is a Radiologist in Boston, Massachusetts. Dr. Voss is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Adrenal Cancer, Pulmonary Vein Stenosis, Idiopathic Dilatation of the Pulmonary Artery, Rhabdomyosarcoma, and Nerve Decompression.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Sarah Bixby is a Pediatric Radiologist in Boston, Massachusetts. Dr. Bixby is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Osteochondritis Dissecans, Scoliosis, Knock Knees, Osteotomy, and Fasciotomy.

    Showing 1-20 of 232

    Last Updated: 02/22/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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