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    Last Updated: 10/30/2025

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    MediFind found 87 doctor with experience in Neurofibromatosis Type 1 (NF1) near Maryland, US. Of these, 21 are Experienced, 9 are Advanced, 4 are Elite and 2 are Distinguished.

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    87 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      8906 Bradmoor Dr, 
      Bethesda, MD 
      Languages Spoken:
      English

      Brigitte Widemann is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Widemann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Johns Hopkins University

      601 N Caroline St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Jaishri Blakeley is a Neurologist in Baltimore, Maryland. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Neurofibromatosis Type 1 (NF1)
      Neurology
      Elite in Neurofibromatosis Type 1 (NF1)
      Neurology

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
      Languages Spoken:
      English

      Carlos Romo is a Neurologist in Baltimore, Maryland. Dr. Romo is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Astrocytoma.

      Learn about our expert tiers
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Christine Pratilas is a Pediatric Hematologist Oncology provider in Baltimore, Maryland. Dr. Pratilas is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Adult Soft Tissue Sarcoma, and Osteotomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
      Languages Spoken:
      English

      Shivani Ahlawat is a Radiologist in Baltimore, Maryland. Dr. Ahlawat is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Allan Belzberg is a Neurosurgery provider in Baltimore, Maryland. Dr. Belzberg is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Schwannomatosis, Neurofibromatosis, Thoracic Outlet Syndrome, Osteotomy, and Rhizotomy.

      Constantine A. Stratakis
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Gastroenterology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Gastroenterology
      9000 Rockville Pike, 
      Bethesda, MD 
      Languages Spoken:
      English

      Constantine Stratakis is a Medical Genetics specialist and a Gastroenterologist in Bethesda, Maryland. Dr. Stratakis is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Cushing's disease, Neuroendocrine Tumor, Gastrointestinal Stromal Tumor, Orchiectomy, and Hormone Replacement Therapy (HRT).

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Neurology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Neurology
      600 N Wolfe St, Woods Science Bldg, 461, 
      Baltimore, MD 
      Languages Spoken:
      English

      Thomas Bosley is an Ophthalmologist and a Neurologist in Baltimore, Maryland. Dr. Bosley is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Duane-Radial Ray Syndrome, Sulfite Oxidase Deficiency, Isolated Duane Retraction Syndrome, and Brown Syndrome.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner
      Advanced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner
      601 N Caroline St, 5th Floor-neurology Department, 
      Baltimore, MD 
      Languages Spoken:
      English

      Shannon Langmead is a Nurse Practitioner in Baltimore, Maryland. Ms. Langmead is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, RASopathies, Neurofibromatosis Type 1 (NF1), and Legius Syndrome.

      Advanced in Neurofibromatosis Type 1 (NF1)
      General Surgery | Neurosurgery
      Advanced in Neurofibromatosis Type 1 (NF1)
      General Surgery | Neurosurgery
      600 N Wolfe St, Tower 110, 
      Baltimore, MD 
      Languages Spoken:
      English

      Jignesh Tailor is a General Surgeon and a Neurosurgery provider in Baltimore, Maryland. Dr. Tailor is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Choroid Plexus Cyst, Hydrocephalus, Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, Rhizotomy, and Awake Craniotomy.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Radiology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Radiology

      Johns Hopkins University

      10700 Charter Dr, 
      Columbia, MD 
      Languages Spoken:
      English

      Laura Fayad is a Radiologist in Columbia, Maryland. Dr. Fayad is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Liposarcoma, and Neurofibromatosis Type 2 (NF2).

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      6201 Greenleigh Ave, 
      Middle River, MD 
      Experience:
      9+ years
      Languages Spoken:
      English

      Lindy Zhang is a Pediatric Hematologist Oncology provider in Middle River, Maryland. Dr. Zhang has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Adult Soft Tissue Sarcoma.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)
      1800 Orleans St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Archis Bhandarkar is a Neurosurgery provider in Baltimore, Maryland. Dr. Bhandarkar is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Schwannoma, Osteotomy, and Craniectomy.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
      Languages Spoken:
      English

      Kathryn Lemberg is a Pediatric Hematologist Oncology provider in Baltimore, Maryland. Dr. Lemberg is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Adult Soft Tissue Sarcoma.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      9609 Medical Center Dr, Rm 5-w414, Msc 9737, 
      Bethesda, MD 
      Languages Spoken:
      English

      Malcolm Smith is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Smith is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Childhood Acute Myeloid Leukemia, Rhabdomyosarcoma, Neuroblastoma, and Acute Lymphoblastic Leukemia (ALL).

      Jennifer Chu
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      NuVasive Clinical Services

      10275 Little Patuxent Parkway, Ste 300, 
      Columbia, MD 
      Experience:
      14+ years
      Languages Spoken:
      English

      Jennifer Chu is a Neurologist in Columbia, Maryland. Dr. Chu has been practicing medicine for over 14 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Cervical Myelopathy, Spinal Tumor, Hemangioblastoma, Dysembryoplastic Neuroepithelial Tumors (DNET), and Deep Brain Stimulation.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics
      200 N Wolfe St, Ste 2158, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      David Wolf is a Pediatric Neurologist and a Pediatrics provider in Baltimore, Maryland. Dr. Wolf is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Tuberous Sclerosis Complex, and Tuberous Sclerosis.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
      Languages Spoken:
      English, Kannada
      Accepting New Patients
      Offers Telehealth

      Chetan Bettegowda is a Neurosurgery provider in Baltimore, Maryland. Dr. Bettegowda is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Trigeminal Neuralgia, Astrocytoma, Glioblastoma, Rhizotomy, and Microvascular Decompression. Dr. Bettegowda is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics | Geriatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics | Geriatrics

      Kaiser Foundation Health Plan Of The Mid Atlantic States, Inc

      5100 Auth Way, 
      Suitland, MD 
      Languages Spoken:
      English, Thai
      Accepting New Patients
      Offers Telehealth

      Pim Suwannarat is a Medical Genetics specialist and a Pediatrics provider in Suitland, Maryland. Dr. Suwannarat is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Triple X Syndrome, Classic Galactosemia, Ehlers-Danlos Syndrome (EDS), and Chromosome 10q Deletion. Dr. Suwannarat is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery
      Experienced in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Chad Gordon is a Plastic Surgeon in Baltimore, Maryland. Dr. Gordon is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Legius Syndrome, Neurofibromatosis Type 1 (NF1), Osteotomy, and Bone Graft.

      Showing 1-20 of 87

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor in Maryland, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Maryland, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Maryland, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Maryland, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Maryland, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Maryland, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Maryland, US?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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