The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Maryland, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 105 doctor with experience in Neurofibromatosis Type 1 (NF1) near Maryland, US. Of these, 45 are Elite, 24 are Experienced, 8 are Advanced and 2 are Distinguished.

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105 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

    10753 Falls Road, Pavilion II STE 115, 
    Lutherville, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jaishri Blakeley is a Neurologist practicing medicine in Lutherville, Maryland. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology. Dr. Blakeley is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Carlos Romo is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Romo is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Neurofibromatosis Type 2 (NF2). Dr. Romo is board certified in American Board Of Psychiatry And Neurology. Dr. Romo is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Oncology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Oncology
    Referral may be required

    Johns Hopkins Children's Center

    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Christine Pratilas is a Pediatrics specialist and an Oncologist practicing medicine in Baltimore, Maryland. Dr. Pratilas is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Osteotomy. Dr. Pratilas is board certified in American Board Of Pediatrics. Dr. Pratilas is currently accepting new patients.

    Learn about our expert tiers
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Colleen Cotton is a Pediatrics provider practicing medicine in Rockville, Maryland. Dr. Cotton is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Vascular Birthmark, Stork Bite, Aplasia Cutis Congenita, and Ectodermal Dysplasias. Dr. Cotton is board certified in American Board Of Dermatology, 2019 and American Board Of Dermatology, 2020. Dr. Cotton is currently accepting new patients.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    The Johns Hopkins Hospital

    1800 Orleans Street, 
    Baltimore, MD 
    Languages Spoken:
    English, Hindi
    Accepting New Patients

    Shivani Ahlawat is a Radiologist practicing medicine in Baltimore, Maryland. Dr. Ahlawat is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2). Dr. Ahlawat is board certified in American Board Of Radiology. Dr. Ahlawat is currently accepting new patients.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    General Surgery | Neurosurgery
    Distinguished in Neurofibromatosis Type 1 (NF1)
    General Surgery | Neurosurgery
    Referral may be required

    Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

    10753 Falls Road, Pavilion II, Suite 115, 
    Lutherville, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Allan Belzberg is a General Surgeon and a Neurosurgery provider practicing medicine in Lutherville, Maryland. Dr. Belzberg is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Schwannoma, Rhizotomy, and Laminectomy. Dr. Belzberg is board certified in American Board Of Neurological Surgery. Dr. Belzberg is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Office

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Dominique Pichard is a Dermatologist practicing medicine in Silver Spring, Maryland. Dr. Pichard is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Graft Versus Host Disease (GvHD), and DRESS Syndrome. Dr. Pichard is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Nurse Practitioner
    Advanced in Neurofibromatosis Type 1 (NF1)
    Nurse Practitioner
    Referral may be required

    Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

    10753 Falls Road, Pavilion II STE 115, 
    Lutherville, MD 
    Languages Spoken:
    English

    Shannon Langmead is a Nurse Practitioner practicing medicine in Lutherville, Maryland. Langmead, NP is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, RASopathies, Neurofibromatosis Type 1 (NF1), and Legius Syndrome. Langmead, NP is board certified in American Nurses Credentialing Center.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Oncology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Oncology
    Referral may be required

    Johns Hopkins Children's Center

    1800 Orleans Street, Bloomberg 11N, Bloomberg 11N, 
    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Kathryn Lemberg is a Pediatrics specialist and an Oncologist practicing medicine in Baltimore, Maryland. Dr. Lemberg is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis. Dr. Lemberg is board certified in American Board Of Pediatrics. Dr. Lemberg is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    The Johns Hopkins Hospital

    1800 Orleans Street, 
    Baltimore, MD 
    Languages Spoken:
    English, Arabic, French
    Accepting New Patients

    Laura Fayad is a Radiologist practicing medicine in Baltimore, Maryland. Dr. Fayad is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Liposarcoma, and Neurofibromatosis Type 2 (NF2). Dr. Fayad is board certified in American Board Of Radiology. Dr. Fayad is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Gastroenterology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Gastroenterology
    Referral may be required
    9000 Rockville Pike, 
    Bethesda, MD 
    Languages Spoken:
    English

    Constantine Stratakis is a Medical Genetics specialist and a Gastroenterologist practicing medicine in Bethesda, Maryland. Dr. Stratakis is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Cushing's disease, Neuroendocrine Tumor, Gastrointestinal Stromal Tumor, Orchiectomy, and Hormone Replacement Therapy (HRT).

    Referral may be required

    Anne Arundel Dermatology-Columbia

    10700 Charter Dr Ste 300, 
    Westminster, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Chikoti Wheat is a Dermatologist practicing medicine in Westminster, Maryland. Dr. Wheat is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 104 other conditions, according to our data. Her clinical expertise encompasses Universal Acquired Melanosis, Liver Spots, Female Pattern Baldness, and Malignant Hypertension. Dr. Wheat is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Johns Hopkins Hospital

    600 N Wolfe St, 
    Baltimore, MD 
    Languages Spoken:
    English

    Thomas Bosley is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Bosley is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Duane-Radial Ray Syndrome, Sulfite Oxidase Deficiency, Kearns-Sayre Syndrome, and Brown Syndrome.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Referral may be required

    Johns Hopkins Children's Center

    1800 Orleans St, 
    Baltimore, MD 
    Experience:
    10+ years
    Languages Spoken:
    English

    Lindy Zhang is a Hematologist and an Oncologist practicing medicine in Baltimore, Maryland. She has been practicing medicine for over 10 years. Dr. Zhang is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)
    Referral may be required
    1800 Orleans St, 
    Baltimore, MD 
    Languages Spoken:
    English

    Archis Bhandarkar is a Neurosurgery provider practicing medicine in Baltimore, Maryland. Dr. Bhandarkar is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Schwannoma, Osteotomy, and Craniectomy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English, Kannada
    Accepting New Patients
    Offers Telehealth

    Chetan Bettegowda is a Neurosurgery provider practicing medicine in Baltimore, Maryland. Dr. Bettegowda is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Trigeminal Neuralgia, Astrocytoma, Glioblastoma, Rhizotomy, and Microvascular Decompression. Dr. Bettegowda is board certified in American Board Of Neurological Surgery. Dr. Bettegowda is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 8, Floor 8, 
    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Chad Gordon is a Plastic Surgeon practicing medicine in Baltimore, Maryland. Dr. Gordon is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Legius Syndrome, Neurofibromatosis Type 1 (NF1), Osteotomy, and Bone Graft. Dr. Gordon is board certified in American Board Of Plastic Surgery. Dr. Gordon is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Orthopedics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Orthopedics
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Suite 5009, Suite 5009, 
    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Adam Levin is an Orthopedics provider practicing medicine in Baltimore, Maryland. Dr. Levin is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Adult Soft Tissue Sarcoma, Osteosarcoma, Bone Tumor, Hip Replacement, and Osteotomy. Dr. Levin is board certified in American Board Of Orthopaedic Surgery. Dr. Levin is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery | General Surgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery | General Surgery
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mari Groves is a Neurosurgery specialist and a General Surgeon practicing medicine in Baltimore, Maryland. Dr. Groves is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Spinal Tumor, Myelomeningocele, Tethered Cord Syndrome, Osteotomy, and Laminectomy. Dr. Groves is board certified in American Board Of Neurological Surgery and American Board Of Pediatric Neurological Surgery. Dr. Groves is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    Referral may be required

    Johns Hopkins Bayview Medical Center

    4940 Eastern Avenue, Bayview Medical Offices, Level 01 (G), Clinic 6, Bayview Medical Offices, Level 01 (G), Clinic 6, 
    Baltimore, MD 
    Languages Spoken:
    English, Japanese
    Accepting New Patients

    Mark Fisher is a Plastic Surgeon practicing medicine in Baltimore, Maryland. Dr. Fisher is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Melanoma, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Rhinophyma. Dr. Fisher is board certified in American Board Of Plastic Surgery. Dr. Fisher is currently accepting new patients.

    Showing 1-20 of 105

    Last Updated: 09/26/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Maryland, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Maryland, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Maryland, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Maryland, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Maryland, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Maryland, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Maryland, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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