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    Last Updated: 10/30/2025

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    MediFind found 304 doctor with experience in Neurofibromatosis Type 1 (NF1) near Michigan, US. Of these, 103 are Experienced, 21 are Advanced and 4 are Distinguished.

    Location
    LocationClose
    304 providers found
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      Spectrum Health Primary Care Partners

      145 Michigan St Ne, 5500 Corewell Health Medic, 
      Grand Rapids, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Matthew Steensma is an Orthopedics provider in Grand Rapids, Michigan. Dr. Steensma is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Fibrosarcoma, Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis, Adult Soft Tissue Sarcoma, and Hip Replacement.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      Henry Ford Health System

      2799 W Grand Blvd, 
      Detroit, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Tobias Walbert is a Neurologist in Detroit, Michigan. Dr. Walbert is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Brain Tumor, Glioblastoma, and Astrocytoma.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      Spectrum Health Primary Care Partners

      2750 E Beltline Ave Ne, Corewell Health Medical Gr, 
      Grand Rapids, MI 
      Languages Spoken:
      English

      Cynthia Hingtgen is a Neurologist in Grand Rapids, Michigan. Dr. Hingtgen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Multiple Sclerosis (MS), and Relapsing Multiple Sclerosis (RMS).

      Learn about our expert tiers
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Neurology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Patricia Robertson is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Robertson is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Glioma, Diencephalic Syndrome, Brain Stem Cancer, and Brain Tumor.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics
      35 Michigan St Ne, Suite 3003, 
      Grand Rapids, MI 
      Languages Spoken:
      English

      Daniel Fain is a Pediatric Neurologist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Fain is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Developmental and Behavioral Pediatrics | Neurology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Developmental and Behavioral Pediatrics | Neurology
      601 John St Ste M-124, 
      Kalamazoo, MI 
      Languages Spoken:
      English

      Robin Cook is a Pediatric Neurologist and a Developmental and Behavioral Pediatrics provider in Kalamazoo, Michigan. Dr. Cook is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Absence Seizure, Seizures, Partial Seizure, and Epilepsy Juvenile Absence.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics

      Saginaw Cooperative Hospitals Inc

      1000 Houghton Ave, 
      Saginaw, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Xia Wang is a Medical Genetics provider in Saginaw, Michigan. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Cowden Syndrome, and Ruvalcaba Syndrome.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      35 Michigan St Ne Fl 2, 
      Grand Rapids, MI 
      Languages Spoken:
      English

      Albert Cornelius is a Pediatric Hematologist Oncology provider in Grand Rapids, Michigan. Dr. Cornelius is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hereditary Spherocytosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Medulloblastoma.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology
      28595 Orchard Lake Rd, Suite 200, 
      Farmington Hills, MI 
      Languages Spoken:
      English

      Heather Little is a Pediatric Neurologist in Farmington Hills, Michigan. Dr. Little is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Aphantasia, and Seizures.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Regents Of The University Of Michigan

      39901 Traditions Dr, 
      Northville, MI 
      Languages Spoken:
      English

      Christopher Gappy is an Ophthalmologist in Northville, Michigan. Dr. Gappy is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Esotropia, Oculomotor Apraxia Cogan Type, and Amblyopia.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics

      Spectrum Health Primary Care Partners

      4069 Lake Dr Se, 
      Grand Rapids, MI 
      Experience:
      16+ years
      Languages Spoken:
      English

      Julie Conley is an Ophthalmologist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Conley has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Legius Syndrome, Esotropia, and RASopathies.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Childrens Eye Care PC

      22731 Newman St, Suite 245, 
      Dearborn, MI 
      Languages Spoken:
      English

      Elena Gianfermi is an Ophthalmologist in Dearborn, Michigan. Dr. Gianfermi is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Esotropia, X-Linked Infantile Nystagmus, and Hyperferritinemia-Cataract Syndrome.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      Advanced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery

      Regents Of The University Of Michigan

      4260 Plymouth Rd, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Hugh Garton is a Neurosurgery provider in Ann Arbor, Michigan. Dr. Garton is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Chiari Malformation, Chiari Malformation Type 1, Chiari Malformation Type 2, Posterior Fossa Decompression, and Gamma Knife Radiosurgery.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Medical Genetics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Medical Genetics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Mark Hannibal is a Pediatrics specialist and a Medical Genetics provider in Ann Arbor, Michigan. Dr. Hannibal is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Aase Syndrome, Filippi Syndrome, CHARGE Syndrome, and Smith-Kingsmore Syndrome.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Childrens Eye Care PC

      7001 Orchard Lake Rd, Suite 200, 
      West Bloomfield, MI 
      Languages Spoken:
      English

      Lisa Bohra is an Ophthalmologist in West Bloomfield, Michigan. Dr. Bohra is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Brown Syndrome, Esotropia, and Amblyopia.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Beaumont Medical Group- Specialty Services

      3535 W 13 Mile Rd, 
      Royal Oak, MI 
      Languages Spoken:
      English

      Rajesh Rao is an Ophthalmologist in Royal Oak, Michigan. Dr. Rao is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Esotropia, Amblyopia, and Oculocutaneous Albinism Type 1.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Childrens Eye Care PC

      42700 Garfield Rd, Suite 200, 
      Clinton Township, MI 
      Languages Spoken:
      English

      John Roarty is an Ophthalmologist in Clinton Township, Michigan. Dr. Roarty is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Marcus Gunn Phenomenon, Gomez Lopez Hernandez Syndrome, Esotropia, and Cataract Removal.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Regents Of The University Of Michigan

      1000 Wall St, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Pamela Williams is an Ophthalmologist in Ann Arbor, Michigan. Dr. Williams is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Esotropia, Amblyopia, and Oculocutaneous Albinism.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Spectrum Health Primary Care Partners

      4444 Kalamazoo Ave Se, 200 Corewell Health Medica, 
      Kentwood, MI 
      Languages Spoken:
      English

      Lauren Fletcher is an Ophthalmologist in Kentwood, Michigan. Dr. Fletcher is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Esotropia, Amblyopia, and Astigmatism.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics

      Spectrum Health Primary Care Partners

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
      Languages Spoken:
      English

      Brooke Geddie is an Ophthalmologist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Geddie is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy.

      Showing 1-20 of 304

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Michigan, US?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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