The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Michigan, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 312 doctor with experience in Neurofibromatosis Type 1 (NF1) near Michigan, US. Of these, 108 are Experienced, 22 are Advanced and 4 are Distinguished.

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312 providers found
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Surgical Oncology
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Surgical Oncology

    Corewell Health Orthopedic Oncology - Lemmen-Holton

    145 Michigan Street Northeast, Suite 5500, 
    Grand Rapids, MI 
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Steensma is a Pediatrics specialist and a Surgical Oncologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 24 years. Dr. Steensma is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Fibrosarcoma, Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis, Adult Soft Tissue Sarcoma, and Hip Replacement. Dr. Steensma is board certified in American Board Of Orthopaedic Surgery. Dr. Steensma is currently accepting new patients.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)

    Corewell Health Grand Rapids Hospitals Neurology - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
    Experience:
    30+ years
    Languages Spoken:
    English

    Cynthia Hingtgen is a Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 30 years. Dr. Hingtgen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Multiple Sclerosis (MS), and Relapsing Multiple Sclerosis (RMS). Dr. Hingtgen is board certified in American Board Of Psychiatry And Neurology.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Pediatrics
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Dr. Patricia Robertson, M.D., earned a medical degree at Wayne State University Medical School in Detroit and completed a residency in pediatrics at Children's Hospital of Michigan. She then went on to a fellowship in pediatric neurology at the University of Michigan and trained in pediatric neuro-oncology at New York University Medical Center. Dr. Robertson joined the University of Michigan faculty in 1988. She has a special interest in clinical pediatric neuro-oncology focusing on the evaluation of response, outcome and late effects on the developing nervous system; current treatment strategies for children with central nervous malignancies; and in the development of innovative treatment approaches for this population. Dr. Robertson is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses Glioma, Diencephalic Syndrome, Brain Stem Cancer, and Brain Tumor.

    Learn about our expert tiers
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Fain is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 34 years. Dr. Fain is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 84 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2016 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 1999. Dr. Fain is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients

    Robin Cook is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 12 years. Dr. Cook is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Tuberous Sclerosis Complex. Dr. Cook is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2020 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2019. Dr. Cook is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology

    Helen DeVos Children's Hospital Hematology And Oncology

    100 Michigan Street Northeast, Floor 10, 
    Grand Rapids, MI 
    Experience:
    44+ years
    Languages Spoken:
    English
    Accepting New Patients

    Albert Cornelius is a Pediatric Hematologist Oncology provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 44 years. Dr. Cornelius is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Hereditary Spherocytosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Medulloblastoma. Dr. Cornelius is board certified in American Board Of Pediatrics, Pediatric Hematology-Oncology - 1992. Dr. Cornelius is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Experience:
    17+ years
    Languages Spoken:
    English

    Julie Conley is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 17 years. Dr. Conley is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 39 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Legius Syndrome, Esotropia, and RASopathies. Dr. Conley is board certified in American Board Of Ophthalmology.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Children's Eye Care PC

    22731 Newman Street, Suite 245, 
    Dearborn, MI 
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients

    Elena Gianfermi is an Ophthalmologist practicing medicine in Dearborn, Michigan. She has been practicing medicine for over 21 years. Dr. Gianfermi is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Esotropia, X-Linked Infantile Nystagmus, and Hyperferritinemia-Cataract Syndrome. Dr. Gianfermi is board certified in American Board Of Ophthalmology. Dr. Gianfermi is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology

    Children's Eye Care PC

    7001 Orchard Lake Road, Suite 200, 
    West Bloomfield, MI 
    Experience:
    29+ years
    Languages Spoken:
    English, French, Hindi, Spanish
    Accepting New Patients

    Lisa Bohra is an Ophthalmologist practicing medicine in West Bloomfield, Michigan. She has been practicing medicine for over 29 years. Dr. Bohra is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Brown Syndrome, Esotropia, and Amblyopia. Dr. Bohra is board certified in American Board Of Ophthalmology. Dr. Bohra is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology

    Children's Eye Care PC

    7001 Orchard Lake Road, Suite 200, 
    West Bloomfield, MI 
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Rajesh Rao is an Ophthalmologist practicing medicine in West Bloomfield, Michigan. He has been practicing medicine for over 34 years. Dr. Rao is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Oculocutaneous Albinism Type 1. Dr. Rao is board certified in American Board Of Ophthalmology. Dr. Rao is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Experience:
    13+ years
    Languages Spoken:
    English

    Lauren Fletcher is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 13 years. Dr. Fletcher is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Astigmatism. Dr. Fletcher is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Experience:
    21+ years
    Languages Spoken:
    English

    Brooke Geddie is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 21 years. Dr. Geddie is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 47 other conditions, according to our data. Her clinical expertise encompasses Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy. Dr. Geddie is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology

    Children's Eye Care PC

    7001 Orchard Lake Road, Suite 200, 
    West Bloomfield, MI 
    Experience:
    26+ years
    Languages Spoken:
    English, Hebrew, Spanish
    Accepting New Patients

    Leemor Rotberg is an Ophthalmologist practicing medicine in West Bloomfield, Michigan. She has been practicing medicine for over 26 years. Dr. Rotberg is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 46 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Brown Syndrome, Amblyopia, and Esotropia. Dr. Rotberg is board certified in American Board Of Ophthalmology. Dr. Rotberg is currently accepting new patients.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)

    Henry Ford Cancer-Detroit

    2800 W Grand Blvd, 
    Detroit, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Tobias Walbert is a Neurologist practicing medicine in Detroit, Michigan. Dr. Walbert is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Glioma, Brain Tumor, Glioblastoma, and Astrocytoma.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology

    Grand Rapids Ophthalmology - East Beltline Avenue

    750 East Beltline Avenue Northeast, 
    Grand Rapids, MI 
    Experience:
    29+ years
    Languages Spoken:
    English
    Accepting New Patients

    Laura Piippo is an Ophthalmologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 29 years. Dr. Piippo is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Isolated Duane Retraction Syndrome. Dr. Piippo is board certified in American Board Of Ophthalmology. Dr. Piippo is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Pediatric Ophthalmology PC - Cascade Road

    5050 Cascade Road Southeast, 
    Grand Rapids, MI 
    Experience:
    46+ years
    Languages Spoken:
    English
    Accepting New Patients

    Patrick Droste is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 46 years. Dr. Droste is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Brown Syndrome. Dr. Droste is board certified in American Board Of Ophthalmology. Dr. Droste is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery

    Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
    Experience:
    31+ years
    Languages Spoken:
    English
    Accepting New Patients

    Todd Vitaz is a Neurosurgery provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 31 years. Dr. Vitaz is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Pituitary Tumor, Awake Craniotomy, and Turbinectomy. Dr. Vitaz is board certified in American Board Of Neurological Surgery. Dr. Vitaz is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology | Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology | Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Eric Liao is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Liao is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pediatric Low-Grade Glioma (pLGG), Arachnoid Cysts, and Neurofibromatosis Type 2 (NF2). Dr. Liao is board certified in Neuroradiology and Diagnostic Radiology.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology

    Children's Eye Care PC

    22731 Newman Street, Suite 245, 
    Dearborn, MI 
    Experience:
    11+ years
    Languages Spoken:
    English, Arabic
    Accepting New Patients

    Shaza Al is an Ophthalmologist practicing medicine in Dearborn, Michigan. She has been practicing medicine for over 11 years. Dr. Al is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Amblyopia, Strabismus, Esotropia, and Meibomianitis. Dr. Al is board certified in American Board Of Ophthalmology. Dr. Al is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology | Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology | Neuroradiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Diana Gomez is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Gomez is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Sciatica, Relapsing Multiple Sclerosis (RMS), Cerebellar Degeneration, and Meningioma. Dr. Gomez is board certified in Diagnostic Radiology and Neuroradiology.

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    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Michigan, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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