The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Michigan, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 303 doctor with experience in Neurofibromatosis Type 1 (NF1) near Michigan, US. Of these, 100 are Experienced, 86 are Elite, 22 are Advanced and 5 are Distinguished.

Location
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303 providers found
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Henry Ford Cancer-Detroit

    2800 W Grand Blvd, 
    Detroit, MI 
    Languages Spoken:
    English, French, German
    Accepting New Patients
    Offers Telehealth

    Tobias Walbert is a Neurologist practicing medicine in Detroit, Michigan. Dr. Walbert is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Glioma, Brain Tumor, Glioblastoma, and Astrocytoma. Dr. Walbert is currently accepting new patients.

    Internal Medicine
    Internal Medicine

    Corewell Health Grand Rapids Hospitals Academic Medicine Associates - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Rima Shah is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Shah is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Melorheostosis, Melorheostosis with Osteopoikilosis, Osteopenia, and Sciatica. Dr. Shah is board certified in American Board Of Internal Medicine. Dr. Shah is currently accepting new patients.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Internal Medicine
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Internal Medicine

    Emergency Care Specialists PC - Kentwood

    4100 Embassy Drive Southeast, Suite 400, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Bernard Eisenga is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Eisenga is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Enlarged Liver, and Type 2 Diabetes (T2D). Dr. Eisenga is board certified in American Board Of Internal Medicine. Dr. Eisenga is currently accepting new patients.

    Learn about our expert tiers
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Surgical Oncology
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Surgical Oncology
    Referral may be required

    Corewell Health Orthopedic Oncology - Lemmen-Holton

    145 Michigan Street Northeast, Suite 5500, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Steensma is a Pediatrics specialist and a Surgical Oncologist practicing medicine in Grand Rapids, Michigan. Dr. Steensma is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Fibrosarcoma, Neurofibromatosis, Adult Soft Tissue Sarcoma, Bone Tumor, and Hip Replacement. Dr. Steensma is board certified in American Board Of Orthopaedic Surgery. Dr. Steensma is currently accepting new patients.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

    2750 East Beltline Avenue Northeast, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Cynthia Hingtgen is a Neurologist practicing medicine in Grand Rapids, Michigan. Dr. Hingtgen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Relapsing Multiple Sclerosis (RMS), and Multiple Sclerosis (MS). Dr. Hingtgen is board certified in American Board Of Psychiatry And Neurology. Dr. Hingtgen is currently accepting new patients.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Pediatrics
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Pediatrics
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Patricia Robertson is a Pediatric Neurologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Robertson is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Gliomatosis Cerebri, and Embryonal Tumor with Multilayered Rosettes. Dr. Robertson is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Taubman Center

    1500 E Medical Center Dr, Floor 2 Reception G, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Noojan Kazemi is a Neurosurgery provider practicing medicine in Ann Arbor, Michigan. Dr. Kazemi is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Kyphosis, Sciatica, Laminectomy, and Microdiscectomy. Dr. Kazemi is currently accepting new patients.

    Referral may be required

    Henry Ford Cancer-Detroit

    2800 W Grand Blvd, 
    Detroit, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lisa Rogers is a Neurologist practicing medicine in Detroit, Michigan. Dr. Rogers is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Glioblastoma, Astrocytoma, Glioma, and Brain Tumor. Dr. Rogers is currently accepting new patients.

    Neurosurgery
    Neurosurgery
    Referral may be required

    Henry Ford Cancer-Detroit

    2800 W Grand Blvd, 
    Detroit, MI 
    Languages Spoken:
    English, French, Mandarin
    Accepting New Patients
    Offers Telehealth

    Ian Lee is a Neurosurgery provider practicing medicine in Detroit, Michigan. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Gliosarcoma, Embryonal Tumor with Multilayered Rosettes, Awake Craniotomy, and Gamma Knife Radiosurgery. Dr. Lee is currently accepting new patients.

    Referral may be required

    Henry Ford Cancer-Detroit

    2800 W Grand Blvd, 
    Detroit, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    James Snyder is a Neurologist practicing medicine in Detroit, Michigan. Dr. Snyder is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Embryonal Tumor with Multilayered Rosettes, Glioblastoma, Gliosarcoma, and Neuroepithelioma. Dr. Snyder is currently accepting new patients.

    Referral required

    Wayne Health

    1560 E Maple Rd, Suite 200, 
    Troy, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Geoffrey Potts is a Dermatologist practicing medicine in Troy, Michigan. Dr. Potts is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Hyperhidrosis, Acne, Autosomal Recessive Hypotrichosis, and Alopecia Areata. Dr. Potts is board certified in Dermatology. Dr. Potts is currently accepting new patients.

    Referral required

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Yolanda Helfrich is a Dermatologist practicing medicine in Ann Arbor, Michigan. Dr. Helfrich is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 53 other conditions, according to our data. Her clinical expertise encompasses Actinic Keratosis, Graham-Little-Piccardi-Lassueur Syndrome, Rosacea, and Melanoma. Dr. Helfrich is board certified in Dermatology. Dr. Helfrich is currently accepting new patients.

    General Surgery
    General Surgery
    Referral may be required

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception G, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Michael Englesbe is a General Surgeon practicing medicine in Ann Arbor, Michigan. Dr. Englesbe is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Hernia, Liver Failure, End-Stage Renal Disease (ESRD), Liver Transplant, and Kidney Transplant. Dr. Englesbe is board certified in Surgery. Dr. Englesbe is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Referral may be required

    Bronson Neuroscience Center - Pediatric Neurology

    601 John Street, Suite M-124, 
    Kalamazoo, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Fain is a Pediatric Neurologist practicing medicine in Kalamazoo, Michigan. Dr. Fain is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is board certified in American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 1999, American Board Of Psychiatry And Neurology, and American Board Of Psychiatry And Neurology, Epilepsy - 2016 . Dr. Fain is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Referral may be required

    Corewell Health Pediatric Neurology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Robin Cook is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. Dr. Cook is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Tuberous Sclerosis Complex. Dr. Cook is board certified in American Board Of Psychiatry And Neurology, American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2019, and American Board Of Psychiatry And Neurology, Epilepsy - 2020 . Dr. Cook is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology
    Referral may be required

    Helen DeVos Pediatric Clinic - Hematology/Oncology

    3950 Hollywood Road, Suite 240, 
    Saint Joseph, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Albert Cornelius is a Pediatric Hematologist Oncology provider practicing medicine in Saint Joseph, Michigan. Dr. Cornelius is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Hereditary Spherocytosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Medulloblastoma. Dr. Cornelius is board certified in American Board Of Pediatrics, Pediatric Hematology-Oncology - 1992 and American Board Of Pediatrics. Dr. Cornelius is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Referral may be required

    Kellogg Eye Center

    1000 Wall St, Floor 1, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Gappy is an Ophthalmologist practicing medicine in Ann Arbor, Michigan. Dr. Gappy is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Strabismus, Esotropia, Oculomotor Apraxia Cogan Type, and Amblyopia. Dr. Gappy is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Julie Conley is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. Dr. Conley is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Legius Syndrome, RASopathies, Neurofibromatosis, and Marcus Gunn Phenomenon. Dr. Conley is board certified in American Board Of Ophthalmology. Dr. Conley is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Children's Eye Care PC

    3901 Beaubien Street, Department Of, 
    Detroit, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Elena Gianfermi is an Ophthalmologist practicing medicine in Detroit, Michigan. Dr. Gianfermi is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Esotropia, X-Linked Infantile Nystagmus, and Hyperferritinemia-Cataract Syndrome. Dr. Gianfermi is board certified in American Board Of Ophthalmology. Dr. Gianfermi is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Advanced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 3 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Hugh Garton is a Neurosurgery provider practicing medicine in Ann Arbor, Michigan. Dr. Garton is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 73 other conditions, according to our data. His clinical expertise encompasses Chiari Malformation, Chiari Malformation Type 1, Chiari Malformation Type 2, Posterior Fossa Decompression, and Gamma Knife Radiosurgery. Dr. Garton is board certified in Neurological Surgery. Dr. Garton is currently accepting new patients.

    Showing 1-20 of 303

    Last Updated: 09/26/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Michigan, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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