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    Last Updated: 10/30/2025

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    MediFind found 140 doctor with experience in Neurofibromatosis Type 1 (NF1) near Minnesota, US. Of these, 46 are Experienced, 2 are Distinguished, 1 are Advanced and 1 are Elite.

    Location
    LocationClose
    140 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Christopher Moertel is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Moertel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Dusica Babovic is a Medical Genetics provider in Rochester, Minnesota. Dr. Babovic is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Hereditary Multiple Osteochondromas.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery

      Mayo Clinic

      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Robert Spinner is a Neurosurgery provider in Rochester, Minnesota. Dr. Spinner is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Accessory Deep Peroneal Nerve, Mononeuritis Multiplex, Erb's Palsy, Nerve Decompression, and Tissue Biopsy.

      Learn about our expert tiers
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Neurology | Pediatric Neurology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Neurology | Pediatric Neurology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Radhika Dhamija is a Medical Genetics specialist and a Neurologist in Rochester, Minnesota. Dr. Dhamija is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Retinal Vasculopathy with Cerebral Leukodystrophy, Cowden Syndrome, Lhermitte-Duclos Disease, and Bannayan-Riley-Ruvalcaba Syndrome.

      Pediatric Cardiology | Pediatrics | Cardiology
      Pediatric Cardiology | Pediatrics | Cardiology

      Fairview Express Care

      909 Fulton St Se, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Jamie Lohr is a Pediatric Cardiologist and a Pediatrics provider in Minneapolis, Minnesota. Her top areas of expertise are Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Sjogren-Larsson Syndrome.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      2525 Chicago Ave S, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Amy Lebedoff is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Lebedoff is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Increased Head Circumference, and Marshall-Smith Syndrome.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurology | Pediatrics | Pediatric Neurology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurology | Pediatrics | Pediatric Neurology
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Partha Ghosh is a Neurologist and a Pediatrics provider in Rochester, Minnesota. Dr. Ghosh is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Congenital Myasthenic Syndrome, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Amyotonia Congenita, and Microvascular Decompression. Dr. Ghosh is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurology | Neuromusculoskeletal Medicine
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurology | Neuromusculoskeletal Medicine

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Daniel Lachance is a Neurologist and a Neuromusculoskeletal Medicine provider in Rochester, Minnesota. Dr. Lachance is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Gliomatosis Cerebri, Brain Tumor, and Astrocytoma.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Matthias Zinn is a Pediatric Neurologist and a Neurologist in Minneapolis, Minnesota. Dr. Zinn is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Zika Virus Disease, Microcephaly with Spastic Quadriplegia, Microcephaly, and Seizures.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Hematology Oncology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Jonathan Schwartz is a Pediatrics specialist and a Pediatric Hematologist Oncology provider in Rochester, Minnesota. Dr. Schwartz is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Congenital Aplastic Anemia, Fanconi Anemia, Aplastic Anemia, Splenectomy, and Bone Marrow Transplant.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Fairview Express Care

      717 Delaware St Se, Suite 340, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Collin Mcclelland is an Ophthalmologist in Minneapolis, Minnesota. Dr. Mcclelland is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Papilledema, Strabismus, Optic Neuritis, Esotropia, and Vitrectomy.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English

      Tenner Guillaume is an Orthopedics provider in Saint Paul, Minnesota. Dr. Guillaume is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Scoliosis, Kyphosis, CHARGE Syndrome, Spinal Fusion, and Gastrostomy.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      347 Smith Ave N, 
      Saint Paul, MN 
      Languages Spoken:
      English

      Nancy Mendelsohn is a Medical Genetics specialist and a Pediatrics provider in Saint Paul, Minnesota. Dr. Mendelsohn is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), and Cockayne Syndrome.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurology | Oncology | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurology | Oncology | Pediatrics

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Gesina Keating is a Neurologist and an Oncologist in Rochester, Minnesota. Dr. Keating is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Primitive Neuroectodermal Tumor (PNET), Hydrocephalus, Glioma, and Brain Tumor.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Park Nicollet Clinic

      8401 Golden Valley Rd, 
      Golden Valley, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Larisa Speetzen is a Dermatologist in Golden Valley, Minnesota. Dr. Speetzen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Lichen Simplex Chronicus, Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, and Localized Scleroderma. Dr. Speetzen is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Experience:
      9+ years
      Languages Spoken:
      English

      Robert Galvin is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Galvin has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Glioma, and Malignant Peripheral Nerve Sheath Tumor.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Associated Skin Care Specialists, PA

      11107 Ulysses St Ne, Suite 200, 
      Blaine, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Steven Kempers is a Dermatologist in Blaine, Minnesota. Dr. Kempers is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Lamellar Ichthyosis, Nonbullous Congenital Ichthyosiform Erythroderma, Fetal Retinoid Syndrome, and Actinic Keratosis. Dr. Kempers is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Noran Neurological Clinic, P.A.

      3601 Minnesota Dr, Suite 200, 
      Bloomington, MN 
      Languages Spoken:
      English
      Accepting New Patients

      John Trusheim is a Neurologist in Bloomington, Minnesota. Dr. Trusheim is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioblastoma, Astrocytoma, Glioma, and Brain Tumor. Dr. Trusheim is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Northwest Eye Clinic LLC

      12000 Elm Creek Blvd N, Suite 100, 
      Maple Grove, MN 
      Languages Spoken:
      English

      Alejandra Decanini is an Ophthalmologist in Maple Grove, Minnesota. Dr. Decanini is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Esotropia, Amblyopia, and Nearsightedness.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      5901 Lincoln Dr Cbc 2 Rev/pe, 
      Edina, MN 
      Languages Spoken:
      English

      Margaret Shatara is a Pediatric Hematologist Oncology provider in Edina, Minnesota. Dr. Shatara is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Rhabdoid Tumor, Glioma, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis.

      Showing 1-20 of 140

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor in Minnesota, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Minnesota, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Minnesota, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Minnesota, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Minnesota, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Minnesota, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Minnesota, US?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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