The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Minnesota, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 110 doctor with experience in Neurofibromatosis Type 1 (NF1) near Minnesota, US. Of these, 41 are Experienced, 2 are Advanced, 2 are Distinguished and 1 are Elite.

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110 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Christopher Moertel is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. Moertel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Medical Genetics
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Medical Genetics
    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English

    Dusica Babovic is a Medical Genetics provider in Rochester, Minnesota. Dr. Babovic is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Hereditary Multiple Osteochondromas.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Neurosurgery

    MN - Neuro Surgery

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Robert Spinner is a Neurosurgery provider in Rochester, Minnesota. Dr. Spinner is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Accessory Deep Peroneal Nerve, Mononeuritis Multiplex, Erb's Palsy, Nerve Decompression, and Tissue Biopsy.

    Learn about our expert tiers
    Pediatric Cardiology
    Pediatric Cardiology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Jamie Lohr is a Pediatric Cardiologist in Minneapolis, Minnesota. Her top areas of expertise are Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Cornelia De Lange Syndrome.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Park Nicollet Clinic-St Louis Park

    3800 Park Nicollet Blvd, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Larisa Speetzen is a Dermatologist in Minneapolis, Minnesota. Dr. Speetzen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Lichen Simplex Chronicus, Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, and Localized Scleroderma.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology

    Office

    7205 University Ave NE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Steven Kempers is a Dermatologist in Minneapolis, Minnesota. Dr. Kempers is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Lamellar Ichthyosis, Nonbullous Congenital Ichthyosiform Erythroderma, Fetal Retinoid Syndrome, and Actinic Keratosis.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    Diagnostic Imaging Of South Jersey PC

    11995 Singletree Ln Ste 500, 
    Eden Prairie, MN 
    Languages Spoken:
    English

    Dirk Rehder is a Neuroradiologist in Eden Prairie, Minnesota. Dr. Rehder is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Subarachnoid Hemorrhage, Melorheostosis with Osteopoikilosis, Melorheostosis, and Osteopenia.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Experience:
    18+ years
    Languages Spoken:
    English

    Can Ozutemiz is a Neuroradiologist in Minneapolis, Minnesota. Dr. Ozutemiz has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Lymphofollicular Hyperplasia, CACH Syndrome, Hereditary Retinoblastoma, and Myxoid Liposarcoma.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    M. Health Fairview Clinics And Surgery Maple Grove

    14500 99th Ave N, 
    Maple Grove, MN 
    Languages Spoken:
    English

    Sheilagh Maguiness is a Pediatrics provider in Maple Grove, Minnesota. Dr. Maguiness is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Kerion Celsi, Hemangioma, Stork Bite, and Familial Multiple Nevi Flammei.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Intensive Care Medicine
    Experienced in Neurofibromatosis Type 1 (NF1)
    Intensive Care Medicine

    Park Nicollet Clinic Burnsville-14050

    14050 Fairview Dr, 
    Burnsville, MN 
    Languages Spoken:
    English

    Brent Bauman is an Intensive Care Medicine provider in Burnsville, Minnesota. Dr. Bauman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Appendicitis, Ogilvie Syndrome, Retroperitoneal Inflammation, Thymectomy, and Hernia Surgery.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Fairview Pharmacy Services

    2512 S 7th St Fl 3, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Christina Boull is a Pediatrics provider in Minneapolis, Minnesota. Dr. Boull is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Stork Bite, Familial Multiple Nevi Flammei, Dystrophic Epidermolysis Bullosa, and Hemangioma.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology

    Diagnostic Imaging Of South Jersey PC

    11995 Singletree Ln Ste 500, 
    Eden Prairie, MN 
    Languages Spoken:
    English

    Ahmed Belal is a Radiologist in Eden Prairie, Minnesota. Dr. Belal is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Radiation Induced Meningioma, Meningioma, WT1-Related Wilms Tumor Syndromes, Bone Marrow Aspiration, and Gastrostomy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    Suburban Imaging LLC

    2355 Highway 36 W Ste 100, 
    Roseville, MN 
    Experience:
    18+ years
    Languages Spoken:
    English

    Mehmet Gencturk is a Neuroradiologist in Roseville, Minnesota. Dr. Gencturk has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Stroke, CAPOS Syndrome, Meningioma, and Relapsing Multiple Sclerosis (RMS).

    U Of M Health Clinics And Surgery Center Inc.

    909 Fulton St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Samuel Luchsinger is a Radiologist in Minneapolis, Minnesota. Dr. Luchsinger is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Fibrosarcoma, Rhabdomyosarcoma Embryonal, Myxoid Liposarcoma, and Epithelioid Sarcoma.

    Pediatric Radiology
    Pediatric Radiology

    Childrens Health Care

    2525 Chicago Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Corey Matthews is a Pediatric Radiologist in Minneapolis, Minnesota. Dr. Matthews is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Appendicitis, Cortical Dysplasia, Lhermitte-Duclos Disease, and Subcortical Band Heterotopia.

    Neuroradiology
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Frederick Ott is a Neuroradiologist in Minneapolis, Minnesota. Dr. Ott is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are CAPOS Syndrome, Cerebellar Multiple System Atrophy, Hepatocerebral Degeneration, and Prolactinoma.

    Neuroradiology
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    David Nascene is a Neuroradiologist in Minneapolis, Minnesota. Dr. Nascene is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

    Neuroradiology
    Neuroradiology

    Office

    14500 99th Ave N Ste 100, 
    Maple Grove, MN 
    Languages Spoken:
    English

    Jeffrey Rykken is a Neuroradiologist in Maple Grove, Minnesota. Dr. Rykken is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Optic Glioma, Spinal Tumor, CACH Syndrome, and Subarachnoid Hemorrhage.

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Benjamin Spilseth is a Radiologist in Minneapolis, Minnesota. Dr. Spilseth is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Pleurisy, Pleural Effusion, Visceromegaly, Collapsed Lung, and Islet Cell Transplantation.

    Neuroradiology
    Neuroradiology

    Office

    2021 6th St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Zuzan Cayci is a Neuroradiologist in Minneapolis, Minnesota. Dr. Cayci is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Gastroenteropancreatic Neuroendocrine Tumor (GEP-NET), Primary Lymphoma of the Brain, Neuroendocrine Tumor, Mast Cell Activation Syndrome (MCAS), and Tissue Biopsy.

    Showing 1-20 of 110

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Minnesota, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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