The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Missouri, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 142 doctor with experience in Neurofibromatosis Type 1 (NF1) near Missouri, US. Of these, 76 are Elite, 31 are Experienced and 4 are Advanced.

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142 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    David Gutmann is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Optic Glioma, Neurofibromatosis Type 1 (NF1), and Glioma. Dr. Gutmann is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Angela Hirbe is an Oncologist practicing medicine in Saint Louis, Missouri. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis. Dr. Hirbe is currently accepting new patients.

    Referral may be required

    Office

    4500 Forest Park Ave Ste 1B, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Gregory Zipfel is a Neurosurgery provider practicing medicine in Saint Louis, Missouri. Dr. Zipfel is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Subarachnoid Hemorrhage, Arteriovenous Malformation, Meningioma, Endovascular Embolization, and Thrombectomy. Dr. Zipfel is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Referral may be required

    Meramec Dermatology

    3783 Vogel Rd, 
    Arnold, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Karl Staser is a Dermatologist practicing medicine in Arnold, Missouri. Dr. Staser is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Neurocutaneous Melanosis, Epidermal Nevus, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1). Dr. Staser is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Washington University Workers Compensation Specialists LLC

    969 N Mason Rd, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Caroline Mann is a Dermatologist practicing medicine in Saint Louis, Missouri. Dr. Mann is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Neurocutaneous Melanosis, Epidermal Nevus, Graham-Little-Piccardi-Lassueur Syndrome, and Actinic Keratosis. Dr. Mann is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Referral may be required

    Office

    8656 N Ambassador Dr, 
    Kansas City, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Mark Cohen is a Dermatologist practicing medicine in Kansas City, Missouri. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Basal Cell Skin Cancer, Universal Acquired Melanosis, Liver Spots, and Neurocutaneous Melanosis. Dr. Cohen is currently accepting new patients.

    Referral required

    Office

    1 Childrens Pl Ste 2A, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Carrie Coughlin is a Pediatrics provider practicing medicine in Saint Louis, Missouri. Dr. Coughlin is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Aplasia Cutis Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Mosaicism. Dr. Coughlin is currently accepting new patients.

    Referral may be required

    Curators Of The University Of Missouri

    1 Hospital Dr, 
    Columbia, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Stephen Colbert is a Hand Surgeon practicing medicine in Columbia, Missouri. Dr. Colbert is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Carpal Tunnel Syndrome, Ganglion Cyst, Dupuytren Contracture, Epidural Lipomatosis, and Lymphadenectomy. Dr. Colbert is currently accepting new patients.

    Referral may be required

    The Children's Mercy Hospital

    501 NW Barry Rd, 
    Kansas City, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Brandon Newell is a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Newell is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Aplasia Cutis Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Vascular Birthmark. Dr. Newell is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics
    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Jeffrey Szymanski is a Medical Genetics provider practicing medicine in Saint Louis, Missouri. Dr. Szymanski is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Paroxysmal Supraventricular Tachycardia (PSVT). Dr. Szymanski is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Referral may be required

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Nicole Brossier is a Hematologist and an Oncologist practicing medicine in Saint Louis, Missouri. Dr. Brossier is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Ganglioglioma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Malignant Peripheral Nerve Sheath Tumor. Dr. Brossier is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Curators Of The University Of Missouri

    1 Hospital Dr, 
    Columbia, MO 
    Languages Spoken:
    English

    Norman Litofsky is a Neurosurgery provider practicing medicine in Columbia, Missouri. Dr. Litofsky is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Glioblastoma, Radiation Induced Meningioma, Meningioma, Awake Craniotomy, and Gastrostomy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics
    Referral may be required

    SLUCare Physician Group

    1225 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Bradley Davitt is an Ophthalmologist and a Pediatrics provider practicing medicine in St. Louis, Missouri. Dr. Davitt is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Strabismus, Esotropia, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis. Dr. Davitt is board certified in American Board Of Ophthalmology , Missouri Dept Of Health/Narcotics&Dangerous Drugs , Missouri State Board Of Registration, and Drug Enforcement Administration . Dr. Davitt is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurology | Pediatric Neurology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurology | Pediatric Neurology
    Referral may be required

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Ali Jamal is a Neurologist and a Pediatric Neurologist practicing medicine in St. Louis, Missouri. Dr. Jamal is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Seizures, Heart Failure with Preserved Ejection Fraction (HFpEF), and Gastric Bypass. Dr. Jamal is board certified in Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration. Dr. Jamal is currently accepting new patients.

    Nurse Practitioner
    Nurse Practitioner
    Referral may be required

    SLUCare Physician Group - Orthopedic Surgery - Fenton

    1011 Bowles Ave., Suite 400, 
    Fenton, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Duncan Mchardy is a Nurse Practitioner practicing medicine in Fenton, Missouri. Mchardy, NP is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Mchardy, NP is board certified in American Academy Of Nurse Practitioners and Missouri State Board Of Nursing. Mchardy, NP is currently accepting new patients.

    Palliative Medicine | Pediatrics | Oncology
    Palliative Medicine | Pediatrics | Oncology
    Referral may be required

    The Costas Center At SSM Health Cardinal Glennon Children's Hospital

    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    William Ferguson is a Palliative Medicine specialist and a Pediatrics provider practicing medicine in St. Louis, Missouri. Dr. Ferguson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Ependymoma, Ewing Sarcoma, Hepatoblastoma, Rhabdoid Tumor, and Bone Marrow Aspiration. Dr. Ferguson is board certified in American Board Of Pediatrics , Missouri Dept Of Health/Narcotics&Dangerous Drugs , Missouri State Board Of Registration, Drug Enforcement Administration , and American Board Of Pediatrics/Hematology-Oncology . Dr. Ferguson is currently accepting new patients.

    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology
    Referral may be required
    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Hayden Head is a Radiologist and a Pediatric Radiologist practicing medicine in St. Louis, Missouri. Dr. Head is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Hemolytic Disease of the Newborn and Neurofibromatosis Type 1 (NF1). Dr. Head is board certified in Missouri Dept Of Health/Narcotics&Dangerous Drugs , Missouri State Board Of Registration, American Board Of Radiology (Pediatric) , Drug Enforcement Administration , American Board Of Family Medicine, and American Board Of Radiology/Diagnostic Radiology . Dr. Head is currently accepting new patients.

    Radiology | Neuroradiology
    Radiology | Neuroradiology
    Referral may be required
    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English, Farsi
    Accepting New Patients

    Mehrdad Sehi is a Radiologist and a Neuroradiologist practicing medicine in St. Louis, Missouri. Dr. Sehi is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Stroke, PEHO Syndrome, Mohr-Tranebjaerg Syndrome, and Aicardi-Goutieres Syndrome. Dr. Sehi is board certified in American Board Of Radiology/Neuroradiology , Missouri Dept Of Health/Narcotics&Dangerous Drugs , American Board Of Radiology/Diagnostic Radiology , Missouri State Board Of Registration, and Drug Enforcement Administration . Dr. Sehi is currently accepting new patients.

    Hematology | Oncology | Pediatrics
    Hematology | Oncology | Pediatrics
    Referral may be required

    The Costas Center At SSM Health Cardinal Glennon Children's Hospital

    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Hugge is a Hematologist and an Oncologist practicing medicine in St. Louis, Missouri. Dr. Hugge is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Factor 11 Deficiency, Langerhans Cell Histiocytosis, Sickle Cell Disease, and Wilms Tumor. Dr. Hugge is board certified in American Board Of Pediatrics , Missouri Dept Of Health/Narcotics&Dangerous Drugs , Missouri State Board Of Registration, Drug Enforcement Administration , and American Board Of Pediatrics/Hematology-Oncology . Dr. Hugge is currently accepting new patients.

    Referral may be required

    SLUCare Physician Group

    1225 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English, French, Spanish
    Accepting New Patients

    Gabriela Espinoza is an Ophthalmologist practicing medicine in St. Louis, Missouri. Dr. Espinoza is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Anophthalmia Plus Syndrome, Benign Essential Blepharospasm, Ptosis, and Blocked Tear Duct. Dr. Espinoza is board certified in American Board Of Ophthalmology , Missouri Dept Of Health/Narcotics&Dangerous Drugs , Missouri State Board Of Registration, and Drug Enforcement Administration . Dr. Espinoza is currently accepting new patients.

    Showing 1-20 of 142

    Last Updated: 09/26/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Missouri, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Missouri, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Missouri, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Missouri, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Missouri, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Missouri, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Missouri, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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