The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in North Carolina, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 152 doctor with experience in Neurofibromatosis Type 1 (NF1) near North Carolina, US. Of these, 61 are Elite, 43 are Experienced, 6 are Advanced and 2 are Distinguished.

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152 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Family Medicine
    Elite in Neurofibromatosis Type 1 (NF1)
    Family Medicine

    Planned Parenthood South Atlantic

    1765 Dobbins Dr, 
    Chapel Hill, NC 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Michael Fisher is a primary care provider, practicing in Family Medicine in Chapel Hill, North Carolina. Dr. Fisher is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), Osteotomy, and Intrauterine Device Insertion. Dr. Fisher is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Duke Children's Health Center Hematology/Oncology Clinic

    2301 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Van Mater is a Pediatrics provider practicing medicine in Durham, North Carolina. Dr. Van Mater is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Legius Syndrome. Dr. Van Mater is board certified in American Board Of Pediatrics, Pediatric Hematology-Oncology. Dr. Van Mater is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Internal Medicine
    Advanced in Neurofibromatosis Type 1 (NF1)
    Internal Medicine

    Mountain Area Health Education Center Inc.

    123 Hendersonville Rd, 
    Asheville, NC 
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Caroline Mueller is a primary care provider, practicing in Internal Medicine in Asheville, North Carolina. Dr. Mueller is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Hypertension, and Familial Hypertension. Dr. Mueller is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Referral required

    Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

    1001 Blythe Blvd., Suite 3000, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chad Jacobsen is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Jacobsen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Medulloblastoma, Neurofibromatosis, and Embryonal Tumor with Multilayered Rosettes. Dr. Jacobsen is board certified in American Board Of Pediatrics, Pediatric Hematology And Oncology. Dr. Jacobsen is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Atrium Health Levine Children's Neurology Concord

    100 Medical Park Drive, Suite 310, 
    Concord, NC 
    Languages Spoken:
    English, Urdu
    Accepting New Patients
    Offers Telehealth

    Adeel Yousaf is a Neurologist practicing medicine in Concord, North Carolina. Dr. Yousaf is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Seizures, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Yousaf is board certified in American Board Of Psychiatry And Neurology and American Board Of Pediatrics. Dr. Yousaf is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Atrium Health Levine Children's Neurology

    1001 Blythe Blvd., Suite 4151, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients

    Cecilia Fernandes is a Neurologist practicing medicine in Charlotte, North Carolina. Dr. Fernandes is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Seizures, Memory Loss, Absence Seizure, and Dravet Syndrome. Dr. Fernandes is board certified in American Board Of Psychiatry/Neurology-Child Neuro. Dr. Fernandes is currently accepting new patients.

    Medical Genetics
    Medical Genetics
    Referral required

    Duke Health Integrated Practice Inc

    2301 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English, Russian
    Accepting New Patients
    Offers Telehealth

    Dmitriy Niyazov is a Medical Genetics provider practicing medicine in Durham, North Carolina. Dr. Niyazov is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Early Infantile Epileptic Encephalopathy, Thymidine Kinase 2 Deficiency (TK2d), Macroglossia, and Ehlers-Danlos Syndrome (EDS). Dr. Niyazov is board certified in American Board Of Medical Genetics And Genomics, Clinical Genetics And Genomics - General. Dr. Niyazov is currently accepting new patients.

    Nurse Practitioner | Hematology | Oncology
    Nurse Practitioner | Hematology | Oncology
    Referral may be required

    Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

    1001 Blythe Blvd., Suite 3000, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Amy Kelly is a Nurse Practitioner specialist and a Hematologist practicing medicine in Charlotte, North Carolina. Kelly, NP is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Medulloblastoma, Brain Tumor, Pediatric Low-Grade Glioma (pLGG), and Atypical Teratoid Rhabdoid Tumor (ATRT). Kelly, NP is currently accepting new patients.

    Hematology | Oncology
    Hematology | Oncology
    Referral may be required

    Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

    1001 Blythe Blvd., Suite 3000, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Gass is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Gass is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Brain Stem Cancer, Brain Tumor, Glioma, and Shwachman-Diamond Syndrome. Dr. Gass is board certified in American Board Of Pediatrics. Dr. Gass is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Office

    Medical Center Blvd Fl 3, 
    Winston Salem, NC 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Roy Strowd-Iii is a Neurologist practicing medicine in Winston Salem, North Carolina. He has been practicing medicine for over 17 years. Dr. Strowd-Iii is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Glioma, Tuberous Sclerosis, and Tuberous Sclerosis Complex. Dr. Strowd-Iii is currently accepting new patients.

    Hematology | Oncology
    Hematology | Oncology
    Referral may be required

    North Carolina Baptist Hospital

    1 Medical Ctr Blvd, 
    Winston Salem, NC 
    Languages Spoken:
    English
    Accepting New Patients

    Thomas Mclean is a Hematologist and an Oncologist practicing medicine in Winston Salem, North Carolina. Dr. Mclean is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Vascular Birthmark, Hemangioma Thrombocytopenia Syndrome, Wilms Tumor, Reticulohistiocytoma, and Bone Marrow Aspiration. Dr. Mclean is currently accepting new patients.

    Orthopedics
    Orthopedics
    Referral may be required

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Patrick Lin is an Orthopedics provider practicing medicine in Cary, North Carolina. Dr. Lin is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Synovial Sarcoma, Adult Soft Tissue Sarcoma, Bone Tumor, Osteotomy, and Bone Graft.

    Referral may be required

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Spencer Frink is an Oncologist practicing medicine in Cary, North Carolina. Dr. Frink is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Multiple Myeloma, Desmoid Tumor, Childhood Acute Myeloid Leukemia, Hip Replacement, and Knee Replacement.

    Neurosurgery | General Surgery
    Neurosurgery | General Surgery
    Referral may be required

    Duke Cancer Center Brain Tumor Clinic

    20 Duke Medicine Cir, 
    Durham, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    C Rory-Goodwin is a Neurosurgery specialist and a General Surgeon practicing medicine in Durham, North Carolina. Dr. Rory-Goodwin is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Pituitary Tumor, Spinal Stenosis, Hemangioblastoma, Laminectomy, and Vertebroplasty. Dr. Rory-Goodwin is board certified in American Board Of Neurological Surgery, Neurological Surgery. Dr. Rory-Goodwin is currently accepting new patients.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Ian Mccutcheon is a Neurosurgery provider practicing medicine in Cary, North Carolina. Dr. Mccutcheon is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Pituitary Tumor, Neurofibromatosis, Awake Craniotomy, and Gamma Knife Radiosurgery.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    UNC Hospitals Pulmonary Function Lab

    101 Manning Dr, 
    Chapel Hill, NC 
    Languages Spoken:
    English
    Accepting New Patients

    Robert Greenwood is a Pediatrics provider practicing medicine in Chapel Hill, North Carolina. Dr. Greenwood is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Legius Syndrome. Dr. Greenwood is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics
    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics
    Referral may be required

    Charlotte Eye, Ear, Nose & Throat Associates, P.A. - SouthPark

    6035 Fairview Road, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Elliott Mckee is an Ophthalmologist and a Pediatrics provider practicing medicine in Charlotte, North Carolina. Dr. Mckee is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Strabismus, Oculomotor Apraxia Cogan Type, Isolated Duane Retraction Syndrome, and Hyperferritinemia-Cataract Syndrome. Dr. Mckee is board certified in American Academy Of Ophthalmology. Dr. Mckee is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics
    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics
    Referral may be required

    Charlotte Eye, Ear, Nose & Throat Associates, P.A. - Huntersville

    10305 Hamptons Park Drive, Suite 201, 
    Huntersville, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Erin Schotthoefer is an Ophthalmologist and a Pediatrics provider practicing medicine in Huntersville, North Carolina. Dr. Schotthoefer is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Astigmatism, Nearsightedness, and Esotropia. Dr. Schotthoefer is board certified in American Board Of Ophthalmology. Dr. Schotthoefer is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Referral may be required

    Summit Plastic Surgery & Dermatology

    58 Physicians Dr NW Ste 103, 
    Supply, NC 
    Languages Spoken:
    English
    Accepting New Patients

    Lana Haynes is a Dermatologist practicing medicine in Supply, North Carolina. Dr. Haynes is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 35 other conditions, according to our data. Her clinical expertise encompasses Universal Acquired Melanosis, Liver Spots, Seborrheic Keratosis, and Warts. Dr. Haynes is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Referral may be required

    Office

    3311 Trent Rd, 
    Trent Woods, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Todd Nelson is a Dermatologist practicing medicine in Trent Woods, North Carolina. Dr. Nelson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Warts, Actinic Keratosis, Seborrheic Keratosis, and Sunburn. Dr. Nelson is currently accepting new patients.

    Showing 1-20 of 152

    Last Updated: 09/26/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in North Carolina, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in North Carolina, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in North Carolina, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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