The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Ohio, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

The 20 Best Neurofibromatosis Type 1 (NF1) Doctors in Ohio, US

Last Updated: 02/22/2026

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MediFind found 473 doctor with experience in Neurofibromatosis Type 1 (NF1) near Ohio, US. Of these, 152 are Experienced, 41 are Advanced, 3 are Distinguished and 2 are Elite.

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473 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics

    Children's Hospital Medical Center

    3333 Burnet Ave, Ml 5021, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Elizabeth Schorry is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Schorry is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Brittle Cornea Syndrome, and Vascular Ehlers-Danlos Syndrome (VEDS).

    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics

    Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Robert Hopkin is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Hopkin is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Fabry Disease, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Micrognathia, and Orchiectomy.

    Mina Lobbous
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)

    Cleveland Clinic Main Campus

    10201 Carnegie Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English, Arabic
    Offers Telehealth

    Mina Lobbous is a Neurologist in Cleveland, Ohio. Dr. Lobbous is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioblastoma, Astrocytoma, Glioma, and Brain Tumor.

    Learn about our expert tiers
    Neha Patel
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatrics
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatrics

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    34+ years
    Languages Spoken:
    English

    Neha Patel is a Pediatrics provider in Cleveland, Ohio. Dr. Patel has been practicing medicine for over 34 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Diffuse Midline Glioma H3 K27M-Mutant, Neurofibromatosis, Optic Glioma, and Legius Syndrome.

    Gary Hsich
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    35+ years
    Languages Spoken:
    English

    Gary Hsich is a Pediatric Neurologist in Cleveland, Ohio. Dr. Hsich has been practicing medicine for over 35 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Ruvalcaba Syndrome, Lhermitte-Duclos Disease, Tension Headache, and Spasmus Nutans.

    Efrain Salgado
    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    49+ years
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Efrain Salgado is a Neurologist in Cleveland, Ohio. Dr. Salgado has been practicing medicine for over 49 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neuromyelitis Optica, Stroke, Myasthenia Gravis, Hemiplegia, and Thymectomy.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Darcy Krueger is a Pediatric Neurologist in Cincinnati, Ohio. Dr. Krueger is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    Cincinnati Childrens Hospital Medical Center Liberty Campus

    7777 Yankee Rd, 
    Liberty Township, OH 
    Languages Spoken:
    English

    Trent Hummel is a Hematologist and an Oncologist in Liberty Township, Ohio. Dr. Hummel is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Diffuse Midline Glioma H3 K27M-Mutant, Optic Glioma, and Neurofibromatosis.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology

    Akron Children's Hospital Path

    1 Perkins Sq, 
    Akron, OH 
    Languages Spoken:
    English

    Azam Eghbal is a Pediatric Radiologist in Akron, Ohio. Dr. Eghbal is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are PIK3CA-Related Overgrowth Spectrum, Acropectoral Syndrome, Acro-Pectoro-Renal Field Defect, and Adams-Oliver Syndrome.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Jungwhan Choi is a Neuroradiologist in Cincinnati, Ohio. Dr. Choi is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Chiari Malformation, Agyria Pachygyria Polymicrogyria, Arachnoid Cysts, and Chiari Malformation Type 1.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Endocrinology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Endocrinology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Sarah Lawson is a Pediatric Endocrinologist in Cincinnati, Ohio. Dr. Lawson is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Septo-Optic Dysplasia, Diabetes Insipidus (DI), Neurohypophyseal Diabetes Insipidus, Adrenal Insufficiency Pediatric, and Pancreatectomy.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Endocrinology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Endocrinology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Janet Chuang is a Pediatric Endocrinologist in Cincinnati, Ohio. Dr. Chuang is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Multiple Endocrine Neoplasia Type 2, Neurohypophyseal Diabetes Insipidus, Diabetes Insipidus (DI), Gastric Bypass, and Thyroidectomy.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics

    Nationwide Children's Hospital Toledo-Genetics

    2222 Cherry Street, Suite 2600, 
    Toledo, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Kandamurugu Manickam is a Medical Genetics specialist and a Pediatrics provider in Toledo, Ohio. Dr. Manickam is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Chromosome 6q Deletion, Vici Syndrome, Neurofibromatosis Type 1 (NF1), and Miller-Dieker Syndrome. Dr. Manickam is currently accepting new patients.

    Larry Dashefsky
    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Hillcrest Hospital

    6780 Mayfield Road, 
    Mayfield Hts, OH 
    Languages Spoken:
    English

    Larry Dashefsky is a Neurologist in Mayfield Hts, Ohio. Dr. Dashefsky is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Shingles, Seizures, Chorea, and Memory Loss.

    Megan Jack
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    20+ years
    Languages Spoken:
    English
    Offers Telehealth

    Megan Jack is a Neurosurgery provider in Cleveland, Ohio. Dr. Jack has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Brachial Plexopathy, Thoracic Outlet Syndrome, Hereditary Neuralgic Amyotrophy, Gastrostomy, and Tissue Biopsy.

    Harry L. Lesmana
    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    17+ years
    Languages Spoken:
    English, Bahasa
    Offers Telehealth

    Harry Lesmana is a Pediatrics provider in Cleveland, Ohio. Dr. Lesmana has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hemi 3 Syndrome, Marshall-Smith Syndrome, Simpson-Golabi-Behmel Syndrome, and Perlman Syndrome.

    Sudeshna Mitra
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology

    Amherst Family Health Center

    5172 Leavitt Road, 
    Lorain, OH 
    Languages Spoken:
    English, Bengali, Hindi

    Sudeshna Mitra is a Pediatric Neurologist in Lorain, Ohio. Dr. Mitra is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Spasmus Nutans, Stereotypic Movement Disorder, Tourette Syndrome, and Increased Head Circumference.

    Andrew Dhawan
    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Cleveland Clinic Main Campus

    10201 Carnegie Avenue, 
    Cleveland, OH 
    Experience:
    14+ years
    Languages Spoken:
    English
    Offers Telehealth

    Andrew Dhawan is a Neurologist in Cleveland, Ohio. Dr. Dhawan has been practicing medicine for over 14 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Lhermitte-Duclos Disease, Cowden Syndrome, Ruvalcaba Syndrome, and Astrocytoma.

    Gregory Kosmorsky
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Neurology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Neurology

    Cleveland Clinic Main Campus

    2022 East 105th Street, 
    Cleveland, OH 
    Experience:
    51+ years
    Languages Spoken:
    English

    Gregory Kosmorsky is an Ophthalmologist and a Neurologist in Cleveland, Ohio. Dr. Kosmorsky has been practicing medicine for over 51 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Oculomotor Apraxia Cogan Type, Papilledema, Strabismus, and Cataract.

    Fatema Ghasia
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology

    Cleveland Clinic

    8950 Euclid Ave, 
    Cleveland, OH 
    Languages Spoken:
    English

    Fatema Ghasia is an Ophthalmologist in Cleveland, Ohio. Dr. Ghasia is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Amblyopia, Strabismus, Brown Syndrome, Esotropia, and Deep Brain Stimulation.

    Showing 1-20 of 473

    Last Updated: 02/22/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Ohio, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Ohio, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Ohio, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Ohio, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Ohio, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Ohio, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Ohio, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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