The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Oregon, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

The 20 Best Neurofibromatosis Type 1 (NF1) Doctors in Oregon, US

Last Updated: 02/22/2026

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MediFind found 72 doctor with experience in Neurofibromatosis Type 1 (NF1) near Oregon, US. Of these, 20 are Experienced and 1 are Advanced.

Location
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72 providers found
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics
    24601 Southeast Stark Street, 
    Troutdale, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Holland is a Pediatrics specialist and an Ophthalmologist in Troutdale, Oregon. Dr. Holland is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glaucoma, Cataract, Strabismus, and Presbyopia. Dr. Holland is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Andrew Phelps is a Pediatric Radiologist in Portland, Oregon. Dr. Phelps is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Scoliosis, Myhre Syndrome, Osteopathia Striata Cranial Sclerosis, and Kyphomelic Dysplasia.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    9135 Southwest Barnes Road, Suite 461, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Prakash Ambady is a Neurologist in Portland, Oregon. Dr. Ambady is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, and Brain Tumor. Dr. Ambady is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology

    Cory T Johnson MD PC

    3000 Bryant Williams Dr Ste 100, 
    Klamath Falls, OR 
    Languages Spoken:
    English

    Nathan Miller is a Dermatologist in Klamath Falls, Oregon. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Atopic Dermatitis, Actinic Keratosis, Melanoma, and Kaposiform Hemangioendothelioma.

    Cardiology
    Cardiology

    Legacy Medical Group-Cardiology At Emanuel-A Department Of Legacy Emanuel Medical Center

    501 N Graham St Ste 200 Office, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Amish Desai is a Cardiologist in Portland, Oregon. Dr. Desai is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Atrial Fibrillation, Aortic Valve Stenosis, Mitral Valve Regurgitation, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

    Neuroradiology
    Neuroradiology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Experience:
    18+ years
    Languages Spoken:
    English

    David Pettersson is a Neuroradiologist in Portland, Oregon. Dr. Pettersson has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Prolactinoma, and Cerebral Arteriovenous Malformation.

    Neuroradiology
    Neuroradiology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Joshua Nickerson is a Neuroradiologist in Portland, Oregon. Dr. Nickerson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Stroke, Pediatric Low-Grade Glioma (pLGG), Scoliosis, and Cerebral Arteriovenous Malformation.

    Neuroradiology
    Neuroradiology

    Providence St. Vincent Medical Center

    9205 SW Barnes Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Joao Prola is a Neuroradiologist in Portland, Oregon. Dr. Prola is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are CAPOS Syndrome, Pediatric Low-Grade Glioma (pLGG), Relapsing Multiple Sclerosis (RMS), and Melorheostosis.

    Pediatric Endocrinology
    Pediatric Endocrinology

    Randall Children's Diabetes And Endocrine Program

    501 N Graham St Ste 375 Office, 
    Portland, OR 
    Languages Spoken:
    English

    Radhika Purushothaman is a Pediatric Endocrinologist in Portland, Oregon. Dr. Purushothaman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Type 1 Diabetes (T1D), Short Stature (Growth Disorders), Precocious Puberty, and Idiopathic Short Stature (ISS).

    Neuroradiology
    Neuroradiology

    Oregon Health & Science University

    3303 S Bond Ave, 
    Portland, OR 
    Languages Spoken:
    English

    James Anderson is a Neuroradiologist in Portland, Oregon. Dr. Anderson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Prolactinoma, Relapsing Multiple Sclerosis (RMS), X-Linked Infantile Spinal Muscular Atrophy, and Spinal Muscular Atrophy Type 2.

    Neuroradiology
    Neuroradiology

    Legacy Emanuel Medical Center

    2801 N Gantenbein Ave, 
    Portland, OR 
    Languages Spoken:
    English

    David Ciaverella is a Neuroradiologist in Portland, Oregon. Dr. Ciaverella is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Herniated Disk, Aseptic and Alopecic Nodules of Scalp (AANS), Bronchogenic Cyst, and Neural Crest Tumor.

    Kaiser Permanente Westside Medical Center

    2875 NE Stucki Ave, 
    Hillsboro, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Charles Colip is a Radiologist in Hillsboro, Oregon. His top areas of expertise are Cerebral Arteriovenous Malformation, Subarachnoid Hemorrhage, Vein of Galen Aneurysm, and Wyburn-Mason Syndrome. Dr. Colip is currently accepting new patients.

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Experience:
    17+ years
    Languages Spoken:
    English

    Barry Hansford is a Radiologist in Portland, Oregon. His top areas of expertise are Scoliosis, Tenosynovitis, Malignant Peripheral Nerve Sheath Tumor, Bone Marrow Aspiration, and Tissue Biopsy.

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Sandra Schmahmann is a Radiologist in Portland, Oregon. Her top areas of expertise are Undifferentiated Pleomorphic Sarcoma, Rhabdomyosarcoma Embryonal, Scoliosis, and Collapsed Lung.

    Pediatric Cardiology
    Pediatric Cardiology

    Ohsu Dch Pediatrics Specialty Medford

    691 Murphy Rd Ste 200, 
    Medford, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Maggie Likes is a Pediatric Cardiologist in Medford, Oregon. Her top areas of expertise are Fainting, Inappropriate Sinus Tachycardia (IST), Familial Ventricular Tachycardia, and Aortic Regurgitation.

    Neuroradiology
    Neuroradiology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Jaclyn Thiessen is a Neuroradiologist in Portland, Oregon. Her top areas of expertise are Arachnoiditis, Primary Lymphoma of the Brain, Prolactinoma, and Pediatric Low-Grade Glioma (pLGG).

    Neuroradiology
    Neuroradiology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Michael Regner is a Neuroradiologist in Portland, Oregon. His top areas of expertise are Subarachnoid Hemorrhage, Septo-Optic Dysplasia, Cerebral Arteriovenous Malformation, and Hereditary Retinoblastoma.

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Gregory Hall is a Radiologist in Portland, Oregon. His top areas of expertise are Tenosynovitis, Rhizarthrosis, Rhabdomyosarcoma Embryonal, and Myxoid Liposarcoma.

    Neuroradiology | Radiology
    Neuroradiology | Radiology

    Kaiser Permanente Mt. Talbert Medical Office - Neurosurgery & Spine Department

    10100 SE Sunnyside Road, 
    Clackamas, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Justin Vranic is a Radiologist and a Neuroradiologist in Clackamas, Oregon. His top areas of expertise are Stroke, Brain Aneurysm, Arteriovenous Malformation, Thrombectomy, and Liver Embolization. Dr. Vranic is currently accepting new patients.

    Neuroradiology
    Neuroradiology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Experience:
    17+ years
    Languages Spoken:
    English

    Leslie Starkey is a Neuroradiologist in Portland, Oregon. His top areas of expertise are Subarachnoid Hemorrhage, Stroke, Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL), and Pediatric Low-Grade Glioma (pLGG).

    Showing 1-20 of 72

    Last Updated: 02/22/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Oregon, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Oregon, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Oregon, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Oregon, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Oregon, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Oregon, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Oregon, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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