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    Last Updated: 01/09/2026

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    MediFind found 323 doctor with experience in Neurofibromatosis Type 1 (NF1) near Pennsylvania, US. Of these, 67 are Experienced, 23 are Advanced, 5 are Distinguished and 2 are Elite.

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    323 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Penn Pituitary Center

      3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Grant Liu is a Neurologist in Philadelphia, Pennsylvania. Dr. Liu is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Increased Intracranial Pressure, Pseudotumor Cerebri Syndrome, Papilledema, Thymectomy, and Cataract Removal. Dr. Liu is currently accepting new patients.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)
      3401 Civic Center Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Robert Avery is a Neurologist in Philadelphia, Pennsylvania. Dr. Avery is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Optic Glioma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Papilledema, and Thymectomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Staci Kallish is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Kallish is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Gaucher Disease Type 1, Fabry Disease, and Neurofibromatosis. Dr. Kallish is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery

      Penn Hernia Program University City

      3737 Market Street, 4th Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Stephen Kovach is a Plastic Surgeon in Philadelphia, Pennsylvania. Dr. Kovach is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Melanoma, Hernia Surgery, and Lymphadenectomy. Dr. Kovach is currently accepting new patients.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery

      Penn Neuroscience Center - Neurosurgery

      3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Eric Zager is a Neurosurgery provider in Philadelphia, Pennsylvania. Dr. Zager is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Thoracic Outlet Syndrome, Hydrocephalus, Neurofibromatosis, Awake Craniotomy, and Gastrostomy. Dr. Zager is currently accepting new patients.

      Kathy L. Gardner
      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      UPMC Department Of Neurology

      3471 5th Avenue, Suite 810, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Kathy Gardner, MD, is a neurologist certified by the American Board of Psychiatry and Neurology. She is co-director of UPMC Children’s Hospital Neurofibromatosis Clinic and is an assistant professor of Neurology at the University of Pittsburgh School of Medicine. She received her medical degree and completed her residency at the University of Utah School of Medicine. Dr. Gardner’s clinical and research interests include the genetics of both common and rare hemiplegic forms of migraine. She is an advisor and board member for the local chapter of the Neurofibromatosis Clinics Association. Dr. Gardner is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Tuberous Sclerosis.

      Dorothy H. Hendricks
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics

      Ophthalmology - Wills Eye Hospital

      840 Walnut Street, Floor 10, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Dorothy Hendricks is a Pediatrics specialist and an Ophthalmologist in Philadelphia, Pennsylvania. Dr. Hendricks is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Amblyopia, Strabismus, Retinochoroidal Coloboma, and Esotropia. Dr. Hendricks is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Katherine Nathanson is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Nathanson is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Pheochromocytoma, Cowden Syndrome, Peutz-Jeghers Syndrome, and Hypothalamic Hamartomas. Dr. Nathanson is currently accepting new patients.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Hem/onc, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Jean Belasco is a Pediatric Hematologist Oncology provider in Philadelphia, Pennsylvania. Dr. Belasco is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Medulloblastoma, and Glioma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - General Peds, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Rachel Hachen is a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Hachen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and RASopathies.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      CHOP Specialty Care, Lancaster

      2104 Harrisburg Pike, Suite 300, 
      Lancaster, PA 
      Languages Spoken:
      English

      William Anninger is an Ophthalmologist in Lancaster, Pennsylvania. Dr. Anninger is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Retinopathy Pigmentary Mental Retardation, Congenital Cataract, and Epicanthal Folds.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Rena Rowan Breast Center

      3400 Civic Center Boulevard, West Pavilion, 3rd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mersedeh Rohanizadegan is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Rohanizadegan is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Li-Fraumeni Syndrome, HER2 Negative Breast Cancer, BRCA Positive Breast Cancer, and Myhre Syndrome. Dr. Rohanizadegan is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Theodore Drivas is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Drivas is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Hereditary Hemorrhagic Telangiectasia, Acrofacial Dysostosis Nager Type, and Acrofacial Dysostosis Catania Type. Dr. Drivas is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Penn Neuroscience Center - Neurology

      3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amy Pruitt is a Neurologist in Philadelphia, Pennsylvania. Dr. Pruitt is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Medulloblastoma, and Brain Tumor. Dr. Pruitt is currently accepting new patients.

      Nicholas Sala
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Pediatric Ophthalmology Of Erie, Inc

      128 West 12th Street, Suite 301, 
      Erie, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Nicholas Sala is an Ophthalmologist in Erie, Pennsylvania. Dr. Sala is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Esotropia, Amblyopia, and Chalazion.

      Jan Drappatz
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      UPMC Hillman Cancer Center

      5115 Centre Avenue, Hillman Cancer Center, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Jan Drappatz is a Neurologist in Pittsburgh, Pennsylvania. Dr. Drappatz is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioblastoma, Astrocytoma, Glioma, and Gliomatosis Cerebri.

      Julia Meade
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Pediatric Hematology Oncology In Lawrenceville

      4401 Penn Avenue, 
      Pittsburgh, PA 
      Languages Spoken:
      English, French, German, Spanish
      Accepting New Patients
      Offers Telehealth

      Julia Meade, MD, is a pediatric genetic oncologist certified in pediatric hematology/oncology by the American Board of Pediatrics. She is an Associate Professor of Pediatrics at the University of Pittsburgh School of Medicine in both the divisions of Pediatric Hematology/Oncology and Genetic and Genomic Medicine. Dr. Meade holds a secondary appointment as Associate Professor of Human Genetics in the School of Public Health. She received her medical degree from Texas A&M University School of Medicine and completed her pediatric residency at the University of Colorado, followed by her hematology/oncology fellowship at UT Southwestern Medical Center and her pediatric neuro-oncology fellowship at Northwestern University. Dr. Meade also holds a certificate in cancer risk assessment from the City of Hope. Dr. Meade is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Ewing Sarcoma, L1 Syndrome, Osteosarcoma, and Medulloblastoma.

      Penn Endocrine And Oncologic Surgery Perelman 3rd Floor

      3400 Civic Center Boulevard, West Pavilion, 3rd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Giorgos Karakousis is a General Surgeon in Philadelphia, Pennsylvania. Dr. Karakousis is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Melanoma, Merkel Cell Carcinoma, Adult Soft Tissue Sarcoma, Lymphadenectomy, and Gastrectomy. Dr. Karakousis is currently accepting new patients.

      Melissa Burgess
      Hematology Oncology
      Hematology Oncology

      UPMC Hillman Cancer Center

      5115 Centre Avenue, Hillman Cancer Center, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Melissa Burgess is a Hematologist Oncology provider in Pittsburgh, Pennsylvania. Dr. Burgess is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Adult Soft Tissue Sarcoma, Liposarcoma, Merkel Cell Carcinoma, Chondrosarcoma, and Gamma Knife Radiosurgery.

      Elizabeth Caris
      Pediatric Cardiology
      Pediatric Cardiology

      UPMC Children's Hospital Of Pittsburgh

      4401 Penn Ave, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Elizabeth Caris is a Pediatric Cardiologist in Pittsburgh, Pennsylvania. Dr. Caris is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Partial Atrioventricular Canal, Congenital Heart Disease (CHD), and Ventricular Septal Defects.

      Showing 1-20 of 323

      Last Updated: 01/09/2026

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor in Pennsylvania, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Pennsylvania, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Pennsylvania, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Pennsylvania, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Pennsylvania, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Pennsylvania, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Pennsylvania, US?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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