The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Pennsylvania, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

The 20 Best Neurofibromatosis Type 1 (NF1) Doctors in Pennsylvania, US

Last Updated: 02/22/2026

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MediFind found 329 doctor with experience in Neurofibromatosis Type 1 (NF1) near Pennsylvania, US. Of these, 68 are Experienced, 22 are Advanced, 5 are Distinguished and 2 are Elite.

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329 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)

    Penn Pituitary Center

    3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Grant Liu is a Neurologist in Philadelphia, Pennsylvania. Dr. Liu is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Increased Intracranial Pressure, Papilledema, Pseudotumor Cerebri Syndrome, Thymectomy, and Cataract Removal. Dr. Liu is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatrics
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatrics

    Children's Hospital Of Philadelphia

    3401 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Robert Avery is a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Avery is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Optic Glioma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Increased Intracranial Pressure, and Thymectomy.

    Rula S. Balluz
    Cardiology | Pediatrics | Pediatric Cardiology
    Cardiology | Pediatrics | Pediatric Cardiology

    St. Christopher's Pediatric Associates Cardiology - Jenkintown

    500 York Rd, 
    Jenkintown, PA 
    Languages Spoken:
    English

    . Dr. Balluz is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Patent Ductus Arteriosus, Heart Murmurs, Ventricular Septal Defects, and Pulmonary Supravalvular Stenosis.

    Learn about our expert tiers
    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology

    St. Christopher's Pediatric Associates Radiology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . . His top area of expertise is Neurofibromatosis Type 1 (NF1).

    Radiology | Neuroradiology
    Radiology | Neuroradiology

    Hospital Of The University Of Pennsylvania Radiology

    3400 Spruce Street, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . . Her top areas of expertise are Subarachnoid Hemorrhage, Cerebral Arteriovenous Malformation, Relapsing Multiple Sclerosis (RMS), and Neurofibromatosis Type 1 (NF1).

    Radiology | Pediatric Radiology | Neuroradiology
    Radiology | Pediatric Radiology | Neuroradiology

    Tele-Radiology Solutions

    22 Llanfair Road, Unit 6, 
    Ardmore, PA 
    Languages Spoken:
    English

    . . Her top areas of expertise are Craniometaphyseal Dysplasia, Fountain Syndrome, and Neurofibromatosis Type 1 (NF1).

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery

    Penn Hernia Program University City

    3737 Market Street, 4th Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Stephen Kovach is a Plastic Surgeon in Philadelphia, Pennsylvania. Dr. Kovach is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Melanoma, Hernia Surgery, and Lymphadenectomy. Dr. Kovach is currently accepting new patients.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Neurosurgery

    Penn Neuroscience Center - Neurosurgery

    3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Eric Zager is a Neurosurgery provider in Philadelphia, Pennsylvania. Dr. Zager is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Thoracic Outlet Syndrome, Hydrocephalus, Neurofibromatosis, Awake Craniotomy, and Gastrostomy. Dr. Zager is currently accepting new patients.

    Elise Mercier
    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    St. Christopher's Pediatric Associates Neurology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Mercier is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Seizures, Epilepsy Juvenile Absence, Absence Seizure, and Memory Loss.

    Amber L. Valeri
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery

    Tower Health Medical Group Neurosurgery - West Reading

    601 Spruce St, 
    West Reading, PA 
    Languages Spoken:
    English

    . Dr. Valeri is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Prolactinoma, Pituitary Tumor, Meningioma, and Spinal Cord Abscess.

    St. Christopher's Pediatric Associates Neurology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Hasbani is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Seizures, Tetrasomy X, Epilepsy Juvenile Absence, and Absence Seizure.

    St. Christopher's Pediatric Associates Oncology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Halligan is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Rhabdomyosarcoma, Neuroblastoma, and Ewing Sarcoma.

    St. Christopher's Pediatric Associates Oncology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. White is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Langerhans Cell Histiocytosis, Optic Glioma, and Febrile Neutropenia.

    Robert A. Koenigsberg
    Radiology | Pediatric Radiology | Neuroradiology
    Radiology | Pediatric Radiology | Neuroradiology

    St. Christopher's Pediatric Associates Radiology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . . His top areas of expertise are Aseptic and Alopecic Nodules of Scalp (AANS), Stroke, CAPOS Syndrome, and Meningioma.

    Kathy L. Gardner
    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    UPMC Department Of Neurology

    3471 5th Avenue, Suite 810, 
    Pittsburgh, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Kathy Gardner, MD, is a neurologist certified by the American Board of Psychiatry and Neurology. She is co-director of UPMC Children’s Hospital Neurofibromatosis Clinic and is an assistant professor of Neurology at the University of Pittsburgh School of Medicine. She received her medical degree and completed her residency at the University of Utah School of Medicine. Dr. Gardner’s clinical and research interests include the genetics of both common and rare hemiplegic forms of migraine. She is an advisor and board member for the local chapter of the Neurofibromatosis Clinics Association. Dr. Gardner is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Tuberous Sclerosis.

    Katherine L. Nathanson
    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Penn Translational Medicine And Human Genetics

    3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Katherine Nathanson is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Nathanson is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Cowden Syndrome, Neuroendocrine Tumor, Peutz-Jeghers Syndrome, and Hypothalamic Hamartomas. Dr. Nathanson is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery

    St. Christopher's Hospital For Children

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Samdani is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Scoliosis, Adolescent Idiopathic Scoliosis, Kyphosis, Spinal Fusion, and Osteotomy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery

    St. Christopher's Pediatric Associates Neurology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Hwang is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Scoliosis, Adolescent Idiopathic Scoliosis, Kyphosis, Spinal Fusion, and Osteotomy.

    St. Christopher's Pediatric Associates Genetics - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Narumanchi is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Urea Cycle Disorders (UCD), Phenylketonuria (PKU), Dihydropteridine Reductase Deficiency, and Maternal Hyperphenylalaninemia.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    Children's Hospital Of Philadelphia

    3401 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Jean Belasco is a Hematologist and an Oncologist in Philadelphia, Pennsylvania. Dr. Belasco is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Medulloblastoma, and Glioma.

    Showing 1-20 of 329

    Last Updated: 02/22/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Pennsylvania, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Pennsylvania, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Pennsylvania, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Pennsylvania, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Pennsylvania, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Pennsylvania, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Pennsylvania, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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