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    Last Updated: 10/30/2025

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    MediFind found 20 doctor with experience in Neurofibromatosis Type 1 (NF1) near Rhode Island, US. Of these, 7 are Experienced and 1 are Advanced.

    Location
    LocationClose
    20 providers found
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      593 Eddy St, 
      Providence, RI 
      Languages Spoken:
      English

      Lauren Massingham is a Medical Genetics specialist and a Pediatrics provider in Providence, Rhode Island. Dr. Massingham is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Hypotonia, Noonan Syndrome, Thanatophoric Dysplasia, and Lysosomal Acid Lipase Deficiency.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Lifespan Physician Group Inc

      593 Eddy St Apc, Suite 6, 
      Providence, RI 
      Languages Spoken:
      English

      Mansour Mathkour is a Neurosurgery provider in Providence, Rhode Island. Dr. Mathkour is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Chiari Malformation Type 2, Chiari Malformation, Split Spinal Cord Malformation, Deep Brain Stimulation, and Posterior Fossa Decompression.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Lifespan Physician Group Inc

      593 Eddy St, 
      Providence, RI 
      Languages Spoken:
      English

      David Kurland is a Neurosurgery provider in Providence, Rhode Island. Dr. Kurland is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Kyphosis, Subarachnoid Hemorrhage, Frontonasal Dysplasia Klippel Feil Syndrome, Craniectomy, and Osteotomy.

      Learn about our expert tiers
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Rhode Island Hospital

      593 Eddy St, Apc 138, 
      Providence, RI 
      Languages Spoken:
      English

      Eric Wong is a Neurologist in Providence, Rhode Island. Dr. Wong is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioblastoma, Astrocytoma, Glioma, Brain Tumor, and Craniectomy.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Internal Medicine
      Experienced in Neurofibromatosis Type 1 (NF1)
      Internal Medicine

      Lifespan Physician Group Inc

      164 Summit Ave, 
      Providence, RI 
      Languages Spoken:
      English

      Jonathan Ho is a primary care provider, practicing in Internal Medicine in Providence, Rhode Island. Dr. Ho is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Discoid Lupus Erythematosus (DLE), Cutaneous Lupus Erythematosus (CLE), Folliculitis, and Autosomal Recessive Hypotrichosis.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Neurohealth, Inc.

      227 Centerville Rd, 
      Warwick, RI 
      Languages Spoken:
      English

      Keith Brecher is a Neurologist in Warwick, Rhode Island. Dr. Brecher is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Migraine, Unverricht-Lundborg Syndrome, Lafora Disease, and Progressive Myoclonic Epilepsy.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      593 Eddy St, 
      Providence, RI 
      Languages Spoken:
      English

      Hamza Gorsi is a Pediatric Hematologist Oncology provider in Providence, Rhode Island. Dr. Gorsi is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Sickle Cell Disease, Glioma, Hemoglobinopathy, and Hemoglobin E Disease.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Brown Neurology

      593 Eddy St, 
      Providence, RI 
      Languages Spoken:
      English

      Renee Hickey is a Neurologist in Providence, Rhode Island. Dr. Hickey is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Migraine, Generalized Tonic-Clonic Seizure, Migraine with Brainstem Aura, and Seizures.

      Hematology Oncology | Hematology | Oncology
      Hematology Oncology | Hematology | Oncology

      Northeast Medical Group Inc

      25 Wells St, 
      Westerly, RI 
      Languages Spoken:
      English
      Offers Telehealth

      Rebecca Vanasse is a Hematologist Oncology specialist and a Hematologist in Westerly, Rhode Island. Dr. Vanasse is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Hodgkin Lymphoma, Anemia, Childhood Iron Deficiency Anemia, and Paget Disease of the Breast.

      Rhode Island Medical Imaging

      1500 Mineral Spring Ave, 
      North Providence, RI 
      Languages Spoken:
      English

      Lawrence Davis is a Radiologist in North Providence, Rhode Island. His top areas of expertise are Melorheostosis, Melorheostosis with Osteopoikilosis, Osteopenia, and Herniated Disk.

      Ophthalmology
      Ophthalmology

      Lifespan Physician Group Inc

      1 Hoppin St, Suite 202, 
      Providence, RI 
      Experience:
      17+ years
      Languages Spoken:
      English

      Wendy Chen is an Ophthalmologist in Providence, Rhode Island. Her top areas of expertise are Papilledema, Increased Intracranial Pressure, Brown Syndrome, and Strabismus.

      Pediatrics
      Pediatrics
      101 Dudley St, 
      Providence, RI 
      Languages Spoken:
      English

      Rishi Lulla is a Pediatrics provider in Providence, Rhode Island. His top areas of expertise are Gliomatosis Cerebri, Embryonal Tumor with Multilayered Rosettes, and Neurofibromatosis Type 1 (NF1).

      Rhode Island Medical Imaging

      1500 Mineral Spring Ave, 
      North Providence, RI 
      Experience:
      43+ years
      Languages Spoken:
      English

      Jeffrey Brody is a Radiologist in North Providence, Rhode Island. His top areas of expertise are Tenosynovitis, Herniated Disk, Synovitis, and Angiomyoma.

      1239 Hartford Ave, Suite 1, 
      Johnston, RI 
      Languages Spoken:
      English

      Albert Marano is a Neurologist in Johnston, Rhode Island. His top areas of expertise are Autosomal Dominant Partial Epilepsy with Auditory Features, Migraine, Memory Loss, and Seizures.

      Rhode Island Medical Imaging

      1 Kettle Point Ave, 
      East Providence, RI 
      Languages Spoken:
      English

      Gaurav Jindal is a Radiologist in East Providence, Rhode Island. His top areas of expertise are Aseptic and Alopecic Nodules of Scalp (AANS), Subarachnoid Hemorrhage, Bronchogenic Cyst, and Headache.

      David S Pomerantz MD Inc

      333 School St, Suite 112a, 
      Pawtucket, RI 
      Languages Spoken:
      English

      David Pomerantz is a Dermatologist in Pawtucket, Rhode Island. His top areas of expertise are Liver Spots, Universal Acquired Melanosis, Seborrheic Keratosis, and Warts.

      Radiology
      Radiology

      Rhode Island Medical Imaging

      1500 Mineral Spring Ave, 
      North Providence, RI 
      Experience:
      43+ years
      Languages Spoken:
      English

      Glenn Tung is a Radiologist in North Providence, Rhode Island. His top areas of expertise are Subarachnoid Hemorrhage, Aseptic and Alopecic Nodules of Scalp (AANS), Caffey Disease, Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, and Thrombectomy.

      125 Metro Center Blvd Ste 2000, 
      Warwick, RI 
      Languages Spoken:
      English

      Jeffrey Rogg is a Radiologist in Warwick, Rhode Island. His top areas of expertise are Cerebellum Agenesis Hydrocephaly, Herniated Disk, Subarachnoid Hemorrhage, Aseptic and Alopecic Nodules of Scalp (AANS), and Embolectomy.

      Rhode Island Medical Imaging

      1500 Mineral Spring Ave, 
      North Providence, RI 
      Languages Spoken:
      English

      Jerrold Boxerman is a Radiologist in North Providence, Rhode Island. His top areas of expertise are Meningioma, Cerebral Arteriovenous Malformation, Hydrocephalus, Subarachnoid Hemorrhage, and Thrombectomy.

      Pediatric Hematology Oncology
      Pediatric Hematology Oncology
      593 Eddy St, 
      Providence, RI 
      Languages Spoken:
      English

      Bradley Denardo is a Pediatric Hematologist Oncology provider in Providence, Rhode Island. His top areas of expertise are Neuroblastoma, Hereditary Neuroblastoma, Osteosarcoma, and Adult Soft Tissue Sarcoma.

      Showing 1-20 of 20

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor in Rhode Island, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Rhode Island, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Rhode Island, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Rhode Island, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Rhode Island, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Rhode Island, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Rhode Island, US?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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