The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Iowa, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 33 doctor with experience in Neurofibromatosis Type 1 (NF1) near Iowa, US. Of these, 13 are Experienced and 1 are Advanced.

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33 providers found
    Experienced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Benjamin Darbro is a Medical Genetics provider in Iowa City, Iowa. Dr. Darbro is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Osteomyelitis in Children, Neu Laxova Syndrome, and Non-Muscle Invasive Bladder Cancer.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology

    Dermatology PC

    6000 University Ave Ste 450, 
    West Des Moines, IA 
    Languages Spoken:
    English

    Joshua Wilson is a Dermatologist in West Des Moines, Iowa. Dr. Wilson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Impetigo, Psoriasis, Plaque Psoriasis, and Universal Acquired Melanosis.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology

    Ducharme Dermatology PC

    16349 Sheridan Ave Ste 101, 
    Clive, IA 
    Languages Spoken:
    English

    Erin Ducharme is a Dermatologist in Clive, Iowa. Dr. Ducharme is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Dissecting Cellulitis of the Scalp, Sunburn, Actinic Keratosis, and Basal Cell Skin Cancer.

    Learn about our expert tiers
    Neuroradiology
    Neuroradiology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Yutaka Sato is a Neuroradiologist in Iowa City, Iowa. Dr. Sato is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Clouston Syndrome, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Gorham's Disease.

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Michael D'alessandro is a Radiologist in Iowa City, Iowa. Dr. D'alessandro is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top area of expertise is Neurofibromatosis Type 1 (NF1).

    Neuroradiology
    Neuroradiology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Lillian Lai is a Neuroradiologist in Iowa City, Iowa. Her top areas of expertise are Hydrocephalus, Meningioma, Normal Pressure Hydrocephalus, and Congenital Cardiovascular Shunt.

    Neuroradiology
    Neuroradiology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Joan Maley is a Neuroradiologist in Iowa City, Iowa. Her top areas of expertise are Stroke, Normal Pressure Hydrocephalus, Subarachnoid Hemorrhage, and Congenital Cardiovascular Shunt.

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Experience:
    18+ years
    Languages Spoken:
    English

    Paul Dicamillo is a Radiologist in Iowa City, Iowa. His top areas of expertise are Scoliosis, Cervical Myelopathy, Smoldering Multiple Myeloma, and Caffey Disease.

    Pediatric Radiology
    Pediatric Radiology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Simon Kao is a Pediatric Radiologist in Iowa City, Iowa. His top areas of expertise are Epithelioid Sarcoma, Rhabdomyosarcoma, Synovial Sarcoma, Hypochondroplasia, and Glossectomy.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics

    State University Of Iowa

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Alpa Sidhu is a Medical Genetics specialist and a Pediatrics provider in Iowa City, Iowa. Dr. Sidhu is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Gastroschisis, and Hypothalamic Hamartomas.

    Lydia Mustafic
    Experienced in Neurofibromatosis Type 1 (NF1)
    Family Medicine
    Experienced in Neurofibromatosis Type 1 (NF1)
    Family Medicine

    Mercyone Waterloo Family Medicine

    2710 Saint Francis Dr, 
    Waterloo, IA 
    Experience:
    17+ years
    Languages Spoken:
    English

    Lydia Mustafic is a primary care provider, practicing in Family Medicine in Waterloo, Iowa. Dr. Mustafic has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Chronic Obstructive Pulmonary Disease (COPD), Lung Metastases, Urinary Incontinence, and Peripheral Artery Disease.

    Nuclear Medicine
    Nuclear Medicine

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Yusuf Menda is a Nuclear Medicine provider in Iowa City, Iowa. Dr. Menda is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are T-Cell Lymphoma, Marginal Zone Lymphoma (MZL), Muscle Invasive Bladder Cancer, Smoldering Multiple Myeloma, and Liver Embolization.

    Internal Medicine
    Internal Medicine

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Michael Graham is an Internal Medicine provider in Iowa City, Iowa. His top areas of expertise are Smoldering Multiple Myeloma, Classical Hodgkin Lymphoma, ALK-Positive Non-Small Cell Lung Cancer, and Lung Nodules.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Nurse Practitioner
    Experienced in Neurofibromatosis Type 1 (NF1)
    Nurse Practitioner

    Office

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Samantha Schutt is a Nurse Practitioner in Iowa City, Iowa. Ms. Schutt is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1) and Neurofibromatosis.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Patrick Hitchon is a Neurosurgery provider in Iowa City, Iowa. Dr. Hitchon is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Trigeminal Neuralgia, Fractured Spine, Spinal Stenosis, Microvascular Decompression, and Laminectomy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    David Dickens is a Hematologist and an Oncologist in Iowa City, Iowa. Dr. Dickens is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Leukemia, Hepatoblastoma, Histiocytosis, and Bone Marrow Aspiration.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    John Jensen is a Plastic Surgeon in Iowa City, Iowa. Dr. Jensen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis and Neurofibromatosis Type 1 (NF1).

    Experienced in Neurofibromatosis Type 1 (NF1)
    Internal Medicine
    Experienced in Neurofibromatosis Type 1 (NF1)
    Internal Medicine

    Myrtue Medical Center-Harlan Clinic

    1220 Chatburn Ave, 
    Harlan, IA 
    Languages Spoken:
    English

    Sarah Devine is a primary care provider, practicing in Internal Medicine in Harlan, Iowa. Dr. Devine is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Sarcoidosis, Hypertensive Heart Disease, Colorectal Cancer, and Renovascular Hypertension.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Family Medicine
    Experienced in Neurofibromatosis Type 1 (NF1)
    Family Medicine

    Office

    1018 Duff Ave, 
    Ames, IA 
    Languages Spoken:
    English

    Ryan Grandgenett is a primary care provider, practicing in Family Medicine in Ames, Iowa. Dr. Grandgenett is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Sciatica, Obesity, Cirrhosis, Familial Combined Hyperlipidemia, and Pacemaker Implantation.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Benjamin Miller is an Orthopedics provider in Iowa City, Iowa. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Rhabdomyosarcoma Embryonal, Epithelioid Sarcoma, Undifferentiated Pleomorphic Sarcoma, Mesenchymoma, and Hip Replacement.

    Showing 1-20 of 33

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Iowa, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Iowa, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Iowa, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Iowa, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Iowa, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Iowa, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Iowa, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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