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    Last Updated: 01/09/2026

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    MediFind found 185 doctor with experience in Neurofibromatosis Type 1 (NF1) near Illinois, US. Of these, 72 are Experienced, 9 are Advanced, 4 are Elite and 3 are Distinguished.

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    185 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Neurology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Neurology

      The University Of Chicago

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Offers Telehealth

      James Tonsgard is a Pediatrics specialist and a Neurologist in Chicago, Illinois. Dr. Tonsgard is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      225 E Chicago Ave # 30, 
      Chicago, IL 
      Languages Spoken:
      English

      Miriam Bornhorst is a Pediatric Hematologist Oncology provider in Chicago, Illinois. Dr. Bornhorst is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Optic Glioma, and Glioma.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)
      2300 Childrens Plaza, Division Of General Academic Pediatrics Childrens Memor, 
      Chicago, IL 
      Languages Spoken:
      English

      Robert Listernick is a Pediatrics provider in Chicago, Illinois. Dr. Listernick is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Glutaric Acidemia Type 2.

      Learn about our expert tiers
      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      225 E Chicago Ave # 59, 
      Chicago, IL 
      Languages Spoken:
      English

      Carlos Prada is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Prada is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are RASopathies, Smith-Kingsmore Syndrome, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1).

      Peter B. Dragisic
      Advanced in Neurofibromatosis Type 1 (NF1)
      Family Medicine
      Advanced in Neurofibromatosis Type 1 (NF1)
      Family Medicine

      P & D Medical, SC

      4201 W 95th St, 
      Oak Lawn, IL 
      Languages Spoken:
      English, Serbian
      Offers Telehealth

      Peter Dragisic is a primary care provider, practicing in Family Medicine in Oak Lawn, Illinois. Dr. Dragisic is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and High Cholesterol.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Joel Charrow is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Charrow is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Gaucher Disease Type 1, Gaucher Disease, Achondroplasia, Isovaleric Acidemia, and Splenectomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      2300 N Childrens Plz, Box 70, 
      Chicago, IL 
      Languages Spoken:
      English

      Janice Zeid is an Ophthalmologist in Chicago, Illinois. Dr. Zeid is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Optic Glioma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Strabismus, and Trabeculectomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery | Neurology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery | Neurology

      The University Of Chicago Medical Center

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Farsi
      Accepting New Patients

      Bakhtiar Yamini is a Neurosurgery specialist and a Neurologist in Chicago, Illinois. Dr. Yamini is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Awake Craniotomy. Dr. Yamini is currently accepting new patients.

      Stephen T. Magill
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)
      675 N St Clair St Ste 20-100, Galter Pavilion, 
      Chicago, IL 
      Experience:
      13+ years
      Languages Spoken:
      English
      Offers Telehealth

      Stephen Magill is a Neurosurgery provider in Chicago, Illinois. Dr. Magill has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Meningioma, Schwannoma, Brain Tumor, Rhizotomy, and Awake Craniotomy.

      Karan S. Dixit
      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology Oncology | Neurology | Hematology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology Oncology | Neurology | Hematology
      675 N St Clair St Ste 20-100, Galter Pavilion, 
      Chicago, IL 
      Experience:
      15+ years
      Languages Spoken:
      English
      Offers Telehealth

      Karan Dixit is a Hematologist Oncology specialist and a Neurologist in Chicago, Illinois. Dr. Dixit has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Astrocytoma, Brain Tumor, Glioblastoma, and Gastrostomy.

      Lawrence M. Kaufman
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Lawrence M Kaufman, MD, PhD, SC

      Chicago, IL 
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Lawrence Kaufman is an Ophthalmologist in Chicago, Illinois. Dr. Kaufman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Esotropia, Amblyopia, and Pentasomy X.

      Brien C. Barrett
      Experienced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner
      Experienced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner

      Advocate Medical Group Neurology

      1700 Luther Ln, Ste 1170, 
      Park Ridge, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Brien Barrett is a Nurse Practitioner in Park Ridge, Illinois. Mr. Barrett is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Neurofibromatosis Type 1 (NF1), and Neurofibromatosis.

      Jason H. Ko
      Experienced in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery
      Experienced in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery
      259 E Erie St Ste 2060, Lavin Family Pavilion, 
      Chicago, IL 
      Experience:
      8+ years
      Languages Spoken:
      English
      Offers Telehealth

      Jason Ko is a Plastic Surgeon in Chicago, Illinois. Dr. Ko has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Phantom Limb Pain, Legius Syndrome, Erb's Palsy, Leg or Foot Amputation, and Bone Graft.

      Ali Shaibani
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neuroradiology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neuroradiology
      259 E Erie St Ste 1950, Lavin Family Pavilion, 
      Chicago, IL 
      Experience:
      34+ years
      Languages Spoken:
      English
      Offers Telehealth

      Ali Shaibani is a Neuroradiologist in Chicago, Illinois. Dr. Shaibani has been practicing medicine for over 34 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Brain Aneurysm, Thrombectomy, and Stent Placement.

      15300 West Ave Ste 100, 
      Orland Hills, Illinois, IL 
      Experience:
      13+ years
      Languages Spoken:
      English
      Offers Telehealth

      Robin Buerki is a Neurologist in Orland Hills, Illinois, Illinois. Dr. Buerki has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Astrocytoma, Glioblastoma, and Brain Tumor.

      Donald R. Cantrell
      Neuroradiology
      Neuroradiology
      251 E Huron St 4th Fl, Feinberg Pavilion, 
      Chicago, IL 
      Experience:
      15+ years
      Languages Spoken:
      English

      Donald Cantrell is a Neuroradiologist in Chicago, Illinois. Dr. Cantrell has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Brain Aneurysm, Stroke, Arteriovenous Malformation, Thrombectomy, and Transmyocardial Revascularization.

      Roger Stupp
      Hematology Oncology | Neurology | Hematology
      Hematology Oncology | Neurology | Hematology
      675 N St Clair St Ste 20-100, Galter Pavilion, 
      Chicago, IL 
      Experience:
      39+ years
      Languages Spoken:
      English
      Offers Telehealth

      Roger Stupp is a Hematologist Oncology specialist and a Neurologist in Chicago, Illinois. His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, and Brain Tumor.

      676 N St Clair St Ste 1400, Arkes Pavilion, 
      Chicago, IL 
      Experience:
      26+ years
      Languages Spoken:
      English

      Tarek Hijaz is a Radiologist in Chicago, Illinois. His top areas of expertise are Cerebral Arteriovenous Malformation, Meningioma, Headache, and Brain Aneurysm.

      Jeffrey R. Desanto
      Neuroradiology
      Neuroradiology
      676 N St Clair St Ste 800, Arkes Pavilion, 
      Chicago, IL 
      Experience:
      23+ years
      Languages Spoken:
      English

      Jeffrey Desanto is a Neuroradiologist in Chicago, Illinois. His top areas of expertise are Stroke, Cerebral Arteriovenous Malformation, Relapsing Multiple Sclerosis (RMS), and Aseptic and Alopecic Nodules of Scalp (AANS).

      201 E Huron St 4th Fl, Galter Pavilion, 
      Chicago, IL 
      Experience:
      27+ years
      Languages Spoken:
      English

      Alexander Nemeth is a Radiologist in Chicago, Illinois. His top areas of expertise are Subarachnoid Hemorrhage, Brain Aneurysm, Cerebrospinal Fluid Leak, and Meningioma.

      Showing 1-20 of 185

      Last Updated: 01/09/2026

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Illinois, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Illinois, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Illinois, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Illinois, US?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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