The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Missouri, US

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 02/22/2026

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MediFind found 150 doctor with experience in Neurofibromatosis Type 1 (NF1) near Missouri, US. Of these, 33 are Experienced, 5 are Advanced and 2 are Elite.

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150 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    David Gutmann is a Neurologist in Saint Louis, Missouri. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Optic Glioma, Neurofibromatosis Type 1 (NF1), and Glioma.

    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Angela Hirbe is an Oncologist in Saint Louis, Missouri. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Adult Soft Tissue Sarcoma.

    Hayden Head
    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology
    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English

    Hayden Head is a Radiologist and a Pediatric Radiologist in St. Louis, Missouri. Dr. Head is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hemolytic Disease of the Newborn and Neurofibromatosis Type 1 (NF1).

    Learn about our expert tiers
    Mehrdad Sehi
    Radiology | Neuroradiology
    Radiology | Neuroradiology
    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English

    Dr. Mehrdad Sehi specializes in neuroradiology - imaging tests for the diagnosis of head, neck and spine conditions. Dr. Sehi has a special interest in the spine and spinal interventions. He is an assistant professor in the Department of Radiology at Saint Louis University School of Medicine, where he serves a section chief of neuroradiology. . His top areas of expertise are Aicardi-Goutieres Syndrome, Mohr-Tranebjaerg Syndrome, PEHO Syndrome, and X-Linked Intellectual Disability, Siderius Type.

    Chetana Reddy
    Pediatric Cardiology
    Pediatric Cardiology

    Dorothy And Larry Dallas Heart Center At SSM Health Cardinal Glennon Children's Hospital

    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English

    Dr. Chetana Reddy is a pediatric cardiologist specializing in congenital and acquired heart disease in children. She also performs fetal echocardiography in collaboration with the SSM Health St. Louis Fetal Care Institute. Dr. Reddy is an assistant professor in the Department of Pediatrics, Division of Cardiology, at Saint Louis University School of Medicine. Dr. Reddy participates in medical mission trips to provide pediatric cardiology care to areas in need. Recent trips include Vietnam and Panama. She hopes to continue this work throughout her career. In her spare time, Dr. Reddy enjoys spending time outdoors, exploring the many hiking areas around St. Louis. . Her top areas of expertise are Tetralogy of Fallot, Pulmonary Atresia, Ebstein's Anomaly, and Fetal Edema.

    Renuka Peterson
    Pediatric Cardiology
    Pediatric Cardiology

    Dorothy And Larry Dallas Heart Center At SSM Health Cardinal Glennon Children's Hospital

    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English

    Renuka Peterson is a Pediatric Cardiologist in St. Louis, Missouri. Her top areas of expertise are Chromosome 13q Duplication, Trisomy 13, Pulmonary Atresia with Intact Ventricular Septum, and Pulmonary Atresia.

    Gloria Lehmann
    Pediatric Cardiology | Pediatrics
    Pediatric Cardiology | Pediatrics

    SSM Health Cardinal Glennon Pediatrics Specialty Services - South County

    13000 Butler Crest Drive, 
    St. Louis, MO 
    Languages Spoken:
    English

    Gloria Lehmann is a Pediatrics specialist and a Pediatric Cardiologist in St. Louis, Missouri. Her top areas of expertise are Atrial Tachycardia, Patent Ductus Arteriosus, Fainting, and High Blood Pressure in Infants.

    Wilson King
    Pediatric Cardiology
    Pediatric Cardiology

    Dorothy And Larry Dallas Heart Center At SSM Health Cardinal Glennon Children's Hospital

    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English

    Dr. Wilson King specializes in cardiovascular magnetic resonance, cardiac computed tomography (cardiac CT), echocardiography, and pulmonary hypertension in children. His services include treatment of a range of pediatric conditions, including: congenital heart disease; congestive heart failure; hypertension; aneurysms; aortic disease; Wolff-Parkinson-White syndrome; mitral valve prolapse; and heart failure. He is interested in research into advanced cardiac imaging, 3D reconstruction of cardiac imaging, and 3D printing. Dr. King is an associate professor in the Department of Pediatrics, Division of Cardiology, at Saint Louis University School of Medicine. He is a member of the Society of Cardiovascular Magnetic Resonance. Dr. King enjoys traveling in his spare time. . His top areas of expertise are Dextrocardia, Dextrocardia with Situs Inversus, Heart Murmurs, and Situs Inversus.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Jack Jennings is a Radiologist in Saint Louis, Missouri. Dr. Jennings is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Fractured Spine, Caffey Disease, Scoliosis, Bone Marrow Aspiration, and Vertebroplasty.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Ali Mian is a Neuroradiologist in Saint Louis, Missouri. Dr. Mian is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Choroid Plexus Cyst, Pediatric Low-Grade Glioma (pLGG), Aplasia Cutis Congenita, and Subarachnoid Hemorrhage.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Manu Goyal is a Neuroradiologist in Saint Louis, Missouri. Dr. Goyal is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hydrocephalus, Normal Pressure Hydrocephalus, Stroke, Multiple Sclerosis (MS), and Thrombectomy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology | Pediatric Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology | Pediatric Radiology
    2401 Gillham Road, 
    Kansas City, MO 
    Experience:
    18+ years
    Languages Spoken:
    English

    Rachel Berkovich is a Radiologist and a Pediatric Radiologist in Kansas City, Missouri. Dr. Berkovich has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Familial Porencephaly, Choroid Plexus Cyst, Arachnoid Cysts, and Cerebellum Agenesis Hydrocephaly.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    Ssm Health St. Joseph-St. Charles

    300 1st Capitol Dr, 
    Saint Charles, MO 
    Languages Spoken:
    English

    Mrudula Penta is a Neuroradiologist in Saint Charles, Missouri. Dr. Penta is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Stroke, Radiation Induced Meningioma, Meningioma, and Cerebral Arteriovenous Malformation.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Joshua Shimony is a Neuroradiologist in Saint Louis, Missouri. Dr. Shimony is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hydrocephalus, Dextrocardia, Dextrocardia with Situs Inversus, Chiari Malformation, and Posterior Fossa Decompression.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Susan Bayliss is a Pediatrics provider in Saint Louis, Missouri. Dr. Bayliss is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Epidermal Nevus, Linear Nevus Sebaceous Syndrome, Osteopoikilosis, and Familial Multiple Lipomatosis.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Dermatology

    Office

    8656 N Ambassador Dr, 
    Kansas City, MO 
    Languages Spoken:
    English

    Mark Cohen is a Dermatologist in Kansas City, Missouri. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Basal Cell Skin Cancer, Universal Acquired Melanosis, Liver Spots, and Neurocutaneous Melanosis.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Golden Valley Memorial Hospital

    1600 N 2nd St, 
    Clinton, MO 
    Languages Spoken:
    English

    Marija Tonkovic is a Dermatologist in Clinton, Missouri. Dr. Tonkovic is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Actinic Keratosis, Warts, Basal Cell Skin Cancer, and Liver Spots.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Maria Ponisio is a Radiologist in Saint Louis, Missouri. Dr. Ponisio is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Lung Nodules, Fibrolamellar Carcinoma, Gliomatosis Cerebri, and Fibrosarcoma.

    Neuroradiology
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Matthew Parsons is a Neuroradiologist in Saint Louis, Missouri. Dr. Parsons is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Stroke, Meningioma, Subarachnoid Hemorrhage, Pediatric Low-Grade Glioma (pLGG), and Bone Marrow Aspiration.

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Offers Telehealth

    Travis Hillen is a Radiologist in Saint Louis, Missouri. Dr. Hillen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Tenosynovitis, Scoliosis, Collins Pope Syndrome, Bone Marrow Aspiration, and Bone Graft.

    Showing 1-20 of 150

    Last Updated: 02/22/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in Missouri, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in Missouri, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in Missouri, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in Missouri, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in Missouri, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in Missouri, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in Missouri, US?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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