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    Last Updated: 10/30/2025

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    MediFind found 123 doctor with experience in Neurofibromatosis Type 1 (NF1) near North Carolina, US. Of these, 33 are Experienced, 7 are Advanced, 1 are Distinguished and 1 are Elite.

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    123 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Family Medicine
      Elite in Neurofibromatosis Type 1 (NF1)
      Family Medicine
      224 S 10th Ave, 
      Siler City, NC 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Michael Fisher is a primary care provider, practicing in Family Medicine in Siler City, North Carolina. Dr. Fisher is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), Osteotomy, and Intrauterine Device Insertion. Dr. Fisher is currently accepting new patients.

      Chad T. Jacobsen
      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology | Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
      Experience:
      28+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chad Jacobsen is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Jacobsen has been practicing medicine for over 28 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Medulloblastoma, Neurofibromatosis, and Embryonal Tumor with Multilayered Rosettes. Dr. Jacobsen is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Joel A. Kaplan
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Hematology | Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
      Experience:
      24+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Joel Kaplan is a Hematologist and a Pediatrics provider in Charlotte, North Carolina. Dr. Kaplan has been practicing medicine for over 24 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Medulloblastoma, Langerhans Cell Histiocytosis, and Bone Marrow Aspiration. Dr. Kaplan is currently accepting new patients.

      Learn about our expert tiers
      Adeel Yousaf
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Atrium Health Levine Children's Neurology Concord

      100 Medical Park Drive, Suite 310, 
      Concord, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Adeel Yousaf is a Neurologist in Concord, North Carolina. Dr. Yousaf is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Seizures, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Yousaf is currently accepting new patients.

      Amy Kelly
      Nurse Practitioner | Hematology | Oncology
      Nurse Practitioner | Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amy Kelly is a Hematologist and an Oncologist in Charlotte, North Carolina. Ms. Kelly is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Marshall-Smith Syndrome, Megalencephaly-Capillary Malformation Syndrome, and Perlman Syndrome. Ms. Kelly is currently accepting new patients.

      Amy L. Svenson
      Pediatric Cardiology
      Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amy Svenson is a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Svenson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Cardiac Diverticulum, X-Linked Cardiac Valvular Dysplasia, Congenital Heart Disease (CHD), and Ventricular Septal Defects. Dr. Svenson is currently accepting new patients.

      Andrew S. Bensky
      Pediatric Cardiology
      Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
      Experience:
      39+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Andrew Bensky is a Pediatric Cardiologist in Charlotte, North Carolina. His top areas of expertise are End-Stage Renal Disease (ESRD), X-Linked Cardiac Valvular Dysplasia, Cardiac Diverticulum, and Congenital Heart Disease (CHD). Dr. Bensky is currently accepting new patients.

      David A. Gass
      Hematology | Oncology
      Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Gass is a Hematologist and an Oncologist in Charlotte, North Carolina. His top areas of expertise are Diffuse Midline Glioma H3 K27M-Mutant, Infantile Neutropenia, Brain Stem Cancer, and Glioma. Dr. Gass is currently accepting new patients.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)
      101 Manning Dr, 
      Chapel Hill, NC 
      Languages Spoken:
      English

      Robert Greenwood is a Neurologist in Chapel Hill, North Carolina. Dr. Greenwood is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Legius Syndrome.

      Erin O. Schotthoefer
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics

      Charlotte Eye, Ear, Nose & Throat Associates, P.A. - Huntersville

      10305 Hamptons Park Drive, Suite 201, 
      Huntersville, NC 
      Experience:
      23+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Erin Schotthoefer is a Pediatrics specialist and an Ophthalmologist in Huntersville, North Carolina. Dr. Schotthoefer has been practicing medicine for over 23 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Astigmatism, Nearsightedness, and Esotropia. Dr. Schotthoefer is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Neurology | Hematology | Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Neurology | Hematology | Oncology

      Wake Forest University Health Sciences

      Medical Ctr Blvd, 
      Winston Salem, NC 
      Experience:
      16+ years
      Languages Spoken:
      English
      Offers Telehealth

      Roy Strowd is a Neurologist and a Hematologist in Winston Salem, North Carolina. Dr. Strowd has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Astrocytoma, Brain Tumor, Glioblastoma, and Deep Brain Stimulation.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Hematology Oncology | Hematology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Hematology Oncology | Hematology

      Duke Health Integrated Practice Inc

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Offers Telehealth

      David Vanmater is a Pediatrics specialist and a Pediatric Hematologist Oncology provider in Durham, North Carolina. Dr. Vanmater is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Burkitt Lymphoma.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Charlotte Eye Ear Nose And Throat Associates PA

      400 Park St, 
      Belmont, NC 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Elliot Mckee is an Ophthalmologist in Belmont, North Carolina. Dr. Mckee has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Oculomotor Apraxia Cogan Type, Isolated Duane Retraction Syndrome, and Hyperferritinemia-Cataract Syndrome. Dr. Mckee is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)
      Unc Chapel Hl, 
      Chapel Hill, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Timothy Gershon is a Pediatrics provider in Chapel Hill, North Carolina. Dr. Gershon is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Embryonal Tumor with Multilayered Rosettes, Gliomatosis Cerebri, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Psychiatry | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Psychiatry | Pediatrics
      2100 Erwin Rd, 
      Durham, NC 
      Languages Spoken:
      English

      Kristina Hardy is a Psychiatrist and a Pediatrics provider in Durham, North Carolina. Dr. Hardy is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Anorexia, and Anemia.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Internal Medicine
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Internal Medicine

      Mountain Area Health Education Center Inc

      121 Hendersonville Rd, 
      Asheville, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Caroline Mueller is a primary care provider, practicing in Pediatrics and Internal Medicine in Asheville, North Carolina. Dr. Mueller is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Glucocorticoid-Remediable Aldosteronism, and Hypertension.

      Zachary E. Potter
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Kernodle Clinic Mebane

      101 Medical Park Dr, 
      Mebane, NC 
      Experience:
      17+ years
      Languages Spoken:
      English
      Offers Telehealth

      Over the past decade, I have developed a special interest in treating headache disorders. This includes migraines, tension headaches, cluster headaches, chronic daily headaches, medication headaches, rebound headaches, trigeminal neuralgia, and everything in between. Headache disorders cause a great deal of disability and affect men, women, and children of all ages. I specialize in developing individualized headache treatment regimens that provide fast and sustained relief and am very proud of our record of success. I am originally from Ohio and enjoy visiting my siblings there a few times each year. I like exploring different restaurants around town, visiting Banner Elk and the beach, and playing with my dachshund for fun. Dr. Potter is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Generalized Tonic-Clonic Seizure, Shingles, Headache, and Neurofibromatosis.

      Experienced in Neurofibromatosis Type 1 (NF1)
      General Surgery | Plastic Surgery
      Experienced in Neurofibromatosis Type 1 (NF1)
      General Surgery | Plastic Surgery

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
      Languages Spoken:
      English

      Jennifer Carr is a General Surgeon and a Plastic Surgeon in Chapel Hill, North Carolina. Dr. Carr is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Juvenile Polyposis Syndrome, Neurofibromatosis, Legius Syndrome, RASopathies, and Mastectomy.

      Steven L. Frick
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Orthopedics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Orthopedics

      Atrium Health Myers Park Orthopedics

      1350 S. Kings Drive, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Steven Frick is a Pediatric Orthopedics specialist and a Pediatrics provider in Charlotte, North Carolina. Dr. Frick is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Clubfoot, Claw Foot, Macrodactyly of the Foot, Osteotomy, and Tenotomy. Dr. Frick is currently accepting new patients.

      Ryan M. Gleason
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Atrium Health Neurology

      10660 Park Road, Suite 4500, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ryan Gleason is a Neurologist in Charlotte, North Carolina. Dr. Gleason is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Opsoclonus-Myoclonus Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Trigeminal Neuralgia. Dr. Gleason is currently accepting new patients.

      Showing 1-20 of 123

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in North Carolina, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in North Carolina, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in North Carolina, US?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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