The 20 Best Neurofibromatosis Type 2 (NF2) Doctors in The United States

Find the Top Neurofibromatosis Type 2 (NF2) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 1384 doctor with experience in Neurofibromatosis Type 2 (NF2) near The United States. Of these, 1168 are Experienced, 173 are Advanced, 29 are Distinguished and 13 are Elite.

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1,384 providers found
    Elite in Neurofibromatosis Type 2 (NF2)
    Elite in Neurofibromatosis Type 2 (NF2)

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology.

    Advanced in Neurofibromatosis Type 2 (NF2)
    Otolaryngology
    Advanced in Neurofibromatosis Type 2 (NF2)
    Otolaryngology

    Bassett Medical Center

    1 Atwell Road, 
    Cooperstown, NY 
    Languages Spoken:
    English

    . Dr. Redd is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Infant Hearing Loss, DFNB1, Jones Syndrome, and Meniere Disease.

    Elite in Neurofibromatosis Type 2 (NF2)
    Elite in Neurofibromatosis Type 2 (NF2)

    Office

    55 Fruit St # 9, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Scott Plotkin is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma.

    Learn about our expert tiers
    Elite in Neurofibromatosis Type 2 (NF2)
    Neurosurgery
    Elite in Neurofibromatosis Type 2 (NF2)
    Neurosurgery

    UVA Health Neuro Oncology

    1240 Lee St Fl 3, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Ashok Asthagiri is a Neurosurgery provider practicing medicine in Charlottesville, Virginia. Dr. Asthagiri is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 52 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 2 (NF2), Von Hippel-Lindau (VHL) Syndrome, Neurofibromatosis, Awake Craniotomy, and Gamma Knife Radiosurgery.

    Elite in Neurofibromatosis Type 2 (NF2)
    Elite in Neurofibromatosis Type 2 (NF2)

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Justin Jordan is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Tissue Biopsy.

    Elite in Neurofibromatosis Type 2 (NF2)
    Otolaryngology
    Elite in Neurofibromatosis Type 2 (NF2)
    Otolaryngology

    University Of Miami

    1120 NW 14th St, 
    Miami, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Christine Dinh is an Otolaryngologist practicing medicine in Miami, Florida. Dr. Dinh is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Schwannoma, Acoustic Neuroma, Neurofibromatosis Type 2 (NF2), and Neurofibromatosis.

    Elite in Neurofibromatosis Type 2 (NF2)
    Elite in Neurofibromatosis Type 2 (NF2)

    House Ear Clinic

    2100 W 3rd St, 
    Los Angeles, CA 
    Experience:
    25+ years
    Languages Spoken:
    English
    Offers Telehealth

    Gregory Lekovic is a Neurosurgery provider practicing medicine in Los Angeles, California. He has been practicing medicine for over 25 years. Dr. Lekovic is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Acoustic Neuroma, Neurofibromatosis Type 2 (NF2), Schwannoma, Nerve Decompression, and Cerebral Artery Bypass Surgery. Dr. Lekovic is board certified in American Board Neurological Surgery.

    Elite in Neurofibromatosis Type 2 (NF2)
    Otolaryngology
    Elite in Neurofibromatosis Type 2 (NF2)
    Otolaryngology

    Office

    355 W 16th St Ste 3000, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Charles Yates is an Otolaryngologist practicing medicine in Indianapolis, Indiana. Dr. Yates is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 2 (NF2), Acoustic Neuroma, Schwannoma, and Jones Syndrome.

    Elite in Neurofibromatosis Type 2 (NF2)
    Elite in Neurofibromatosis Type 2 (NF2)

    Office

    200 Med Plz, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Phioanh Nghiemphu is a Neurologist practicing medicine in Los Angeles, California. Dr. Nghiemphu is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Glioma, Glioblastoma, Astrocytoma, and Brain Tumor.

    Elite in Neurofibromatosis Type 2 (NF2)
    Elite in Neurofibromatosis Type 2 (NF2)

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    James Tonsgard is a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Tonsgard is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies.

    Elite in Neurofibromatosis Type 2 (NF2)
    Otolaryngology | Neurology
    Elite in Neurofibromatosis Type 2 (NF2)
    Otolaryngology | Neurology

    University Of Miami

    1120 NW 14th St, 
    Miami, FL 
    Languages Spoken:
    English

    Fred Telischi is an Otolaryngologist and a Neurologist practicing medicine in Miami, Florida. Dr. Telischi is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Schwannoma, Acoustic Neuroma, Neurofibromatosis Type 2 (NF2), Neuroendocrine Tumor, and Mastoidectomy.

    Elite in Neurofibromatosis Type 2 (NF2)
    Pediatric Neurology
    Elite in Neurofibromatosis Type 2 (NF2)
    Pediatric Neurology

    UT MD Anderson Cancer Center

    1515 Holcombe Blvd, 
    Houston, TX 
    Languages Spoken:
    English
    Offers Telehealth

    John Slopis is a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Slopis is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Schwannomatosis.

    Elite in Neurofibromatosis Type 2 (NF2)
    Otolaryngology
    Elite in Neurofibromatosis Type 2 (NF2)
    Otolaryngology

    Massachusetts Eye And Ear

    7301 E 2nd St Ste 300, 
    Scottsdale, AZ 
    Languages Spoken:
    English

    D Bradley is an Otolaryngologist practicing medicine in Scottsdale, Arizona. Dr. Bradley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Acoustic Neuroma, Schwannoma, Neurofibromatosis Type 2 (NF2), Mastoidectomy, and Myringotomy.

    Elite in Neurofibromatosis Type 2 (NF2)
    Otolaryngology
    Elite in Neurofibromatosis Type 2 (NF2)
    Otolaryngology

    Massachusetts Eye And Ear

    243 Charles St, 
    Boston, MA 
    Languages Spoken:
    English

    David Jung is an Otolaryngologist practicing medicine in Boston, Massachusetts. Dr. Jung is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Acoustic Neuroma, Schwannoma, Neurofibromatosis Type 2 (NF2), Otosclerosis, and Mastoidectomy.

    Experienced in Neurofibromatosis Type 2 (NF2)
    Neurosurgery
    Experienced in Neurofibromatosis Type 2 (NF2)
    Neurosurgery

    Aurora Neuroscience Innovation

    2801 W Kinnickinnic River Pkwy, Ste 680, 
    Milwaukee, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Aaron Plitt is a Neurosurgery provider practicing medicine in Milwaukee, Wisconsin. Dr. Plitt is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Schwannoma, Acoustic Neuroma, Hydrocephalus, Neuroendocrine Tumor, and Endoscopy. Dr. Plitt is board certified in  .

    Experienced in Neurofibromatosis Type 2 (NF2)
    Experienced in Neurofibromatosis Type 2 (NF2)

    Bassett Medical Center

    1 Atwell Road, 
    Cooperstown, NY 
    Languages Spoken:
    English

    . Dr. Barnowsky is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Gastric Lymphoma, Lung Nodules, Chronic Cough, and Pleurisy.

    Experienced in Neurofibromatosis Type 2 (NF2)
    Hematology
    Experienced in Neurofibromatosis Type 2 (NF2)
    Hematology

    Bassett Medical Center

    1 Atwell Road, 
    Cooperstown, NY 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 57 other conditions, according to our data. His clinical expertise encompasses Angiosarcoma, Small Cell Lung Cancer (SCLC), Lung Adenocarcinoma, and Iron Deficiency Anemia.

    Experienced in Neurofibromatosis Type 2 (NF2)
    Neurosurgery
    Experienced in Neurofibromatosis Type 2 (NF2)
    Neurosurgery

    Aurora Neuroscience Innovation

    2801 W Kinnickinnic River Pkwy, Ste 680, 
    Milwaukee, WI 
    Languages Spoken:
    English
    Offers Telehealth

    David Straus is a Neurosurgery provider practicing medicine in Milwaukee, Wisconsin. Dr. Straus is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pituitary Tumor, Subdural Hematoma, Gastrostomy, and Awake Craniotomy. Dr. Straus is board certified in American Board Of Neurological Surgery.

    Distinguished in Neurofibromatosis Type 2 (NF2)
    General Surgery | Neurosurgery
    Distinguished in Neurofibromatosis Type 2 (NF2)
    General Surgery | Neurosurgery

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
    Experience:
    44+ years
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Allan Belzberg is a neurosurgeon specializing in surgery of the peripheral nervous system. As Director of Peripheral Nerve Surgery at Johns Hopkins in Baltimore, he treats tumors including schwannoma, neurofibroma and nerve sheath tumor. Dr. Belzberg performs surgical repair of nerve damage caused by trauma as well as neurosurgery on carpal tunnel, peroneal nerve and other peripheral nerve conditions. Dr. Belzberg also directs the Brachial Plexus and Peripheral Nerve Clinic at the Kennedy Krieger Institute and co-directs the Neurosurgery Pain Research Institute at Johns Hopkins Hospital. Dr. Belzberg currently sees patients at the Johns Hopkins Outpatient Center located in Baltimore on Wednesdays and the Green Spring Station location on Fridays. Dr. Belzberg is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Thoracic Outlet Syndrome, Rhizotomy, and Laminectomy. Dr. Belzberg is board certified in American Board Of Neurological Surgery.

    Experienced in Neurofibromatosis Type 2 (NF2)
    Otolaryngology
    Experienced in Neurofibromatosis Type 2 (NF2)
    Otolaryngology

    Abingdon Ear, Nose, And Throat Associates, PC

    176 Valley St NW, 
    Abingdon, VA 
    Languages Spoken:
    English

    . Dr. Neal is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 2 (NF2). He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Grass Allergy, Allergic Rhinitis, Sinusitis, and Empyema. Dr. Neal is board certified in American Board Of Otolaryngology.

    Showing 1-20 of 1,384

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 2 (NF2)?

    Neurofibromatosis 2 (NF2) is a disorder in which tumors form on the nerves of the brain and spinal cord (the central nervous system). It may be passed down (inherited) in families.

    Although it has a similar name to neurofibromatosis type 1, it is a different and separate condition.

    When should I see a Neurofibromatosis Type 2 (NF2) doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 2 (NF2) doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 2 (NF2) doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 2 (NF2) doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 2 (NF2) doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 2 (NF2) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 2 (NF2) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 2 (NF2) doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 2 (NF2) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 2 (NF2) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 2 (NF2) doctors in The United States?

    Look for the filter feature on the left side of the Neurofibromatosis Type 2 (NF2) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 2 (NF2) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 2 (NF2) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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